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LADYPUERCOLOCO's Photo LADYPUERCOLOCO Posts: 427
12/15/09 6:21 P

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I had a really bad experience with the Mirena - my endo believes it triggered my PCOS, which had been under control for several years. I gained 80 lbs in a year, and the cysts got out of control. I hope this doesn't happen to anyone else, but I did want to put it out there when I found this thread on the subject.

Be faithful to that which exists within yourself.
~Andre Gide


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JES4UJES's Photo JES4UJES Posts: 3
8/6/09 6:14 A

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I have had the mirena twice and love it. No side effects other than when it was first inserted and was a bit crampy.

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RAESUE's Photo RAESUE Posts: 19
7/23/09 10:06 A

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Thanks so much for your post. I have not had any side effect really either. I had some bleeding when it was placed and only one real period and that was 2 months ago. I am starting to think I won't have anymore for the next almost 5 yrs.

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GR8KAZOO Posts: 1
7/22/09 9:07 P

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Hi Ladies,

Just started Spark and decided to look up PCOS and came across this group. In my local area I am a huge advocate for early diagnosis and treatment of PCOS. I was diagnosed with PCOS in 97. Well, I saw this post regarding the Mirena.

I have had the Mirena for 5 years now (being removed September). I ABSOLUTELY love the Mirena!!!!!!! Fortunately I have not had any ill side effects from the Mirena. The first couple months I did experience slight breast tenderness. Although my menstrual cycle was never normal, I only had one incidence of spotting for a few days SINCE 2004!!! Its been great.

Just wanted to post my thoughts and experiences. If I can shed more light on this topic please let me know!!! Thnx

RAESUE's Photo RAESUE Posts: 19
7/20/09 3:06 P

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I don't want a tubal. Though I said I was done there is still that possiblity of wanting one later. Plus I heard several girls my age having tubal and their cycles changed dramically.

BTW, what does HRT stand for?

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NYXWOLFWALKER's Photo NYXWOLFWALKER SparkPoints: (141,685)
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7/17/09 8:18 P

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I was given the option of Mirena, but said for-get-it not worth the side effects or issues that I have read about (I've already got issues with what would be used for HRT as it why compound the issue).

If you are 100% through with procreation then why not have a tubal and be dun with it, or send him to get a V and again be dun with it.

I chose to have a hyster, because it was the right choice for me.

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Cals Burned for 6 years = 2,359,000
6 years Deficit Total = 1,729,800
Should have lost: 250 to 495 pounds
Actual loss = 139 lbs and 50 inches from core


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RAESUE's Photo RAESUE Posts: 19
7/16/09 10:53 A

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Yes it is an IUD that stays in place for 5 yrs.

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TAVERA Posts: 11
7/15/09 6:31 P

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ah i see - then you'll need to have your dr run periodic blood work on you to see if you are running a risk of the other co-morbidities as time goes on - one big indicator that you might need metformin would be your insulin levels.
But as far as the mirena goes, i'm just not sure on the hormones that it excretes - is it like being on continuous bcps w/o the monthly period?

RAESUE's Photo RAESUE Posts: 19
7/15/09 3:43 P

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I guess I understand that and will ask about my hormones on my next doctors appt. But I was just asking because there is some hormone in Mirena and a normal woman can get to the point of mild sporadic or no periods.

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TAVERA Posts: 11
7/15/09 3:09 P

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even if it's a mild form, you should still be treating. there are many co-morbidities that go along with pcos that can develop if you do not treat - to name a few, diabetes, high cholesterol, high triglycerides, high blood pressure - even if you don't have any of these things now, you need to be controlling your hormone levels - if you are not ovulating and having periods, then it is not controlled. Many people can treat naturally with no medication - just by dietary changes such as lower/good carbs - but it still needs to be treated. The sheer fact that you needed clomid and met. to get pregnant speaks to the fact that it is not being controlled w/o medications. Just my opinion

RAESUE's Photo RAESUE Posts: 19
7/15/09 2:28 P

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NO not treating. I was told that I may not have periods eventually but didn't this soon. My case of PCOS is mild I think. I am not on any treatment. Only treatment was metformin when I was trying to get pregnant with my daughter and clomid. I don't take anything routinely or when I got pregnant with my son.

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TAVERA Posts: 11
7/15/09 2:19 P

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sorry, i've not had any experience with the mirena - are you treating the pcos? If you are, i would imagine that you would still get periods, right? All i know about mirena is that i've had 2 friends that had to have hysterectomies because of the uterine infections that were contributed to the mirena. I had a csection with out last child so i opted to have my tubes done because like you i didn't want to have to worry about getting pg. again (for me it could be life threatening ).
Call your dr and ask what you should expect and make sure you are treating that nasty pcos :)

RAESUE's Photo RAESUE Posts: 19
7/15/09 12:39 P

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Question. I have PCOS and used to take BCP but after my last child (we are done) decided to do the Mirena so I didn't have to worry on the day to day. I had always been irregular with my cycle unless on BCP and now I have no idea when I will have a period. I am 20 wks pp and had some spotting when Mirena was placed and have had 1 period on May 21 and nothing since. What is everyone elses experience with this? Will I have a period again? Ok if I don't emoticon

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