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BELROSA's Photo BELROSA Posts: 697
3/25/09 8:26 A

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It really does depend on the individual Dr. There are useless people in all professions and all modalities and specialities. I went to an Endo, a very well recommended Endo at the private hospital I was working at, and she knew less than I did about PCOS and some other more fundamental things. But in general, yes, PCOS is an endocrinological disorder with gynaecological symptoms so you would expect an Endo to be of more help with the underlying problems.

By the way I figured out how to change my username, thanks.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

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JUPITERSTAR's Photo JUPITERSTAR SparkPoints: (21,641)
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3/24/09 5:02 P

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I also have a thyroid problem, and believe me, just going to your endo is DEFINITELY the way to go. My gyno couldn't even properly diagnose my PCOS, it was an endo who specializes in thyroid problems who actually suggested I get the tests done, and he's been the only one to effectively treat both at the same time for me.

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BELROSA's Photo BELROSA Posts: 697
3/21/09 8:49 P

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Sorry for the quick foray off-topic, but how do you edit (or create) your signature for the message boards? I can't find it anywhere!

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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ALIE719's Photo ALIE719 SparkPoints: (13,196)
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3/21/09 2:02 P

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I agree. Both my gyno and endo in the states were great. As soon as my blood work came back the gyno sent me straight to the endo and they worked together regarding bc and other things, and they decided to send me to a nutritionist. Here in the UK, it's a bit of a different story. Sigh...
As long as you're with someone who makes you comfortable and takes the time to be informed and give you all the options, it'll be good.

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BELROSA's Photo BELROSA Posts: 697
3/20/09 9:53 A

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I guess really the most important thing is whatever their specialty, make sure that they are very good at what they do and keep up with the scientific and medical literature. There are some very interesting breakthroughs in understanding PCOS and what causes it happening at the moment and of course that changes the way it is treated. The importance of Insulin Resistance and it's flow on effects for instance. It's very important that whomever you choose be they endo, gyno or naturopath keeps on top of the current research.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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ABBY-DO's Photo ABBY-DO SparkPoints: (0)
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3/20/09 9:25 A

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I think a good endo is the better way to go....call around for one who specializes in PCOS if possible or at least is well informed about PCOS.

The first thing you need is a good diagnosis to know what other organs may be involved.PCOS is an endocrine disorder that also happens to affect the female and reproductive organs/hormones

Once you have that diagnosis then search out some holistic treatments if that is the way you want to go.

I was diagnosed in the 1970's by a gyne but it took 38 years to find a doctor who understood and explained all the ramifications of PCOS and he was a endo. All the gyne told me was that I would have trouble getting pregnant.....None of my other doctors thru the years even mentioned the disease though I told them I had it (or Stein-Leventhal Syndrome as it used to be called)

Most of all Good Luck in your Journey.

Live the life you have imagined...................Thoreau
BELROSA's Photo BELROSA Posts: 697
3/17/09 7:19 A

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Thanks for the link ... that's great info for women to take to their Dr if the Dr is unaware of PCOS and of how to treat (as most have been in my experience).

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
SWEETSUNSHINE72's Photo SWEETSUNSHINE72 Posts: 533
3/16/09 9:47 A

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Any good doctor can treat PCOS effectively - but s/he has to know what to look for, and has to be one of those people who's always learning, problem solving, etc. as it probably won't be covered in the standard training for gynos and regular docs.

I would say - so long as you're not being brushed off or "just" given the BCP, then you've probably got a decent doc. If they don't already know, give them the info on the connection with metabolic issues (especially IR and possible thyroid issues), and they should be willing to investigate it. Here's a link to a paper from the American Association of Clinical Endocrinologists: www.aace.com/pub/pdf/guidelines/PCOS
po
sitionstatement.pdf




DipMT, Hon (ACTM)
(Diploma in Massage Therapy, with Honours from the Atlantic College of Therapeutic Massage)


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ANGLEDGE's Photo ANGLEDGE Posts: 148
3/16/09 8:31 A

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I'm not trying to be wishy-washy here, but I think you could end up getting good treatment from either a gyno or an endo. Personally, my endocrinologist is the best doctor I've ever worked with, hands down. But if I had a gyno who was equally amazing, I wouldn't leave their care just because they weren't an endo.

If possible, find a doctor who has published research on PCOS (that's how I found mine).

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BELROSA's Photo BELROSA Posts: 697
3/11/09 10:41 P

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This is an extract of an article written by Dr Warren Kidson, the Endocrinologist who instigated metformin treatment for women with PCOS in Australia.

The oral contraceptive pill:

For many years the oral contraceptive pill has been standard treatment for the polycystic ovary syndrome as it reduces the amount of male hormone produced by the ovaries, improving acne and body hair growth and, at the same time, giving women regular monthly artificial menstruation. It protects the woman from the possibility of developing cancer of the lining of the womb. However, recent studies in Singapore and Japan have not confirmed that women with the polycystic ovary syndrome have an increased risk of developing cancer of the lining of the womb.

Unfortunately, oral contraceptives aggravate insulin resistance and probably hasten the onset of diabetes by exposing the liver to very high levels of female hormones immediately after absorption on the tablet. A 1997 study of 98,590 nurses in the USA over a long period of time revealed that type 2 diabetes was 60% more prevalent in women taking oral contraceptives! Only half of the excess cases of diabetes knew that they were diabetic. If a woman is insulin resistant with PCOS, oral contraceptives could be expected to increase the risk of diabetes by at least 100%, and possibly by 200%.
I think I got it from the Diabetes Australia website.

I also have some other studies saved to my computer which I can email if anyone is interested . anne.seccombe@gmail.com

Basically just backing up the info in Warren's article. Scary stuff, given most GPs and even gynos and endos can't be bothered to do much else other than prescribe BCPs for us. I am so thankful I discovered this research days before I was to get my first BCP script filled.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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BEEBEA's Photo BEEBEA SparkPoints: (46,353)
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3/11/09 5:33 P

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I'm so glad to find this information! My gyno offered to put me on birth control, which I'm not excited about for several reasons, and that was the only suggestion he had. I'll try to see an endo soon.

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BELROSA's Photo BELROSA Posts: 697
3/9/09 12:32 A

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I absolutely agree and should have mentioned this myself. Thanks Sweetsunshine72. Natural medicine is just as complex as western medicine, maybe more so. I am an ex-naturopath and nurse myself although I no longer practice and even I get confused wading through all the scientific literature out there about different natural treatment options. You definitely need to see a naturopathic physician who is a specialist in endocrine disorders and preferably PCOS.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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SWEETSUNSHINE72's Photo SWEETSUNSHINE72 Posts: 533
3/8/09 10:13 P

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I completely agree that holistic medicine is a good way to go. I would strongly recommend, though, that you see a qualified practitioner, rather than treating yourself as herbal medicines are still medicines and there are still side effects, contra-indications, and complications that can arise, especially when combined with drugs or other herbals. Besides which, a qualified practitioner will be able to determine exactly what it is that you need, and tailor things to your body, rather than just floundering around in the dark and trying things at random.

Holistic medicine does have a better track record with dealing with systemic disorders like PCOS and Insulin Resistance than Western medicine.


DipMT, Hon (ACTM)
(Diploma in Massage Therapy, with Honours from the Atlantic College of Therapeutic Massage)


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BELROSA's Photo BELROSA Posts: 697
3/8/09 8:58 P

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Keep in mind that there are natural alternatives to Metformin which studies have shown to be equally as effective. Hyponidd is an Ayurvedic herbal formulation which has been shown to be as effective as Metformin and MORE effective than glibenclamide, in studies:


www.ijddc.com/article.asp?iss
n=0973-39
30;year=2002;volume=22;issue=
1;spa
ge=19;epage=27;aulast=Poongothai


www.ingentaconnect.com/content/rpsgb
/j
pp/2004/00000056/00000011/art00012?tR>oken=004d1932a3bc2251e275c277b422c4b
67
4748742570453a2b6d592f653b2a2d3a
7c4e724770a9


www.fixdisease.com/clinical_r
esearch/h
yponidd.pdf


There are a plenty of places you can purchase it from, here are a couple. I found the first one to be the cheapest (from Australia though).

www.ayurvedaforall.com/1076/h
yponidd-t
ablets.html


www.indiaabundance.com/fronte
nd/produc
ts/HYPONIDD_Tablets_Hypp_Chrk
.asp


Minerals such as chromium and magnesium have also been shown to lower blood sugar and IR, as have herbs such as gymnema sylvestre (a component of Hyponidd) and glycyrrhiza glabra (liquorice).

Best of luck.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
SINGINGKJ's Photo SINGINGKJ Posts: 138
3/5/09 12:04 P

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I hate to throw a monkey wrench in there but I had 3 different endos trying to deal with my PCOS for 4 years and nothing came of it.
Finally I found an amazing gyno who's been very helpful.
I agree that it's all in the care you receive. You don't want someone who tells you it's going to be easy and you don't want someone who tells you it's impossible. Cause it's neither.
Good luck to you!

Edited by: SINGINGKJ at: 3/5/2009 (12:04)
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SWEETSUNSHINE72's Photo SWEETSUNSHINE72 Posts: 533
3/3/09 3:24 P

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Really, you want someone who's thorough, isn't afraid to answer questions, and doesn't just brush you off. Joslen Diabetes Centers are good as they work with dieticians. I don't know if you have to officially have diabetes to get in, though.

Another option is to go to a naturopathic doctor. Just double-check to make sure that they are fully qualified. If you're planning on using any natural herbs, supplements or remedies, I'd recommend seeing one anyways, as natural meds are still meds, and you do need guidance with them. You can see both an ND as well as an endo.

Metformin is a medication that helps your body use insulin better. Most of us Cysters have Insulin Resistance - it seems to be a main trigger/cause of PCOS, so by treating the IR, the PCOS improves, too. Met is one of the mildest meds available, although it can upset your stomach, so you need to gradually work up to the minimum dosage of 1,500 mg/day. With so much happening with your thyroid, though, I'm not sure if IR is the main part of what's happening with you, so I'm not sure how well Met might work. Just something to keep in mind. Also, while some women get a response right away to the Met, for others it takes up to 6 months. It all depends on your body and how it responds.

Take care, HTH!!! :)


DipMT, Hon (ACTM)
(Diploma in Massage Therapy, with Honours from the Atlantic College of Therapeutic Massage)


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SUNFIRE2's Photo SUNFIRE2 Posts: 3
3/3/09 1:00 P

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Thanks! This info has helped me alot too! Do you all have any suggestions on what to look for in a good endo? I'm really big on natural and I don't like it when Doctors throw a bunch of medicines on you. I'm also wondering what Metformin is.

It seems that we have it backward in our society. We tend to look up to people who are under a great deal of stress, who can handle loads of stress, and those who are under a great deal of pressure.
Richard Carlson




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SUNFIRE2's Photo SUNFIRE2 Posts: 3
3/3/09 12:58 P

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Thanks! This info has helped me alot too! Do you all have any suggestions on what to look for in a good endo? I'm really big on natural and I don't like it when Doctors throw a bunch of medicines on you. I'm also wondering what Metformin is.

It seems that we have it backward in our society. We tend to look up to people who are under a great deal of stress, who can handle loads of stress, and those who are under a great deal of pressure.
Richard Carlson




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SWEETSUNSHINE72's Photo SWEETSUNSHINE72 Posts: 533
3/1/09 1:48 P

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I ditto the endo. PCOS is really a metabolic issue that has some gyno symptoms. The only thing that a gyno can really do is put you on BCP, kick-start a period (which is important - you do need at least 4 a year to prevent cancer), and (if they specialize in fertility) give you fertility meds to help you get pregnant (which may or may not work, depending on if the metabolic issue is still getting in the way).

An endo will get to the source of the problem (which may be the thyroid condition anyways - some thyroid conditions mimic PCOS and lots of Cysters have thyroid issues, too). Once he finishes his investigation, he'll be able to recommend a treatment to resolve the metabolic issue. Once that's in control, your PCOS symptoms should start clearing up. They may never clear 100%, but you should start seeing a HUGE difference, especially if you have a good lifestyle going, too. Clearing the metabolic stuff is going to help your fertility, too. Even if you still need some help with that, it's likely to be less than if you hadn't gotten control over the underlying issues first.

Take care, and good luck with your endo!!!!


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(Diploma in Massage Therapy, with Honours from the Atlantic College of Therapeutic Massage)


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TRUTH4LIFE's Photo TRUTH4LIFE Posts: 12
2/26/09 8:59 A

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Go to an endo. I have learned this the hard way. I battled with my gyno to put me on something for my pcos, and for 7 yrs all they did was put me on millions of different birth control. I stressed how I wanted to get pregnant and control my pcos symptoms. They talked about putting me on something to control my sugar and they never did. Also, my periods are pretty regular anyway, I just don't ovulate, so duh, birth control is not going to help that much. I finally found a doctor that recomended and endo, and said for pcos you need more than just birth control. Something to deal with the insulin resistance, and fertility. An endo will know how to treat pcos, not a gyno.

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PTPHELAN's Photo PTPHELAN Posts: 1,163
2/25/09 2:29 P

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I agree. The Endo is the way to go.

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HJACENKO's Photo HJACENKO Posts: 36
2/24/09 7:02 P

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Trust me... go to a Endo. Find one who can treat both. I wasted two years with my gyno and general practice DRs bouncing me back and forth and neither having a full story about what PCOS really is. All I got in the last two years was told to loose weight and that all I needed was to talk 500mg of Metformin. Now with my Endo I am on 2000mg. Good Luck!

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JLENDERMO Posts: 2
2/24/09 3:04 P

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I was just tentatively diagnosed with PCOS after a transvaginal ultrasound revealed several subcentimeter cysts on both of my ovaries, as well as some fluid from a cyst that had recently burst (I instantly thought, "So THAT'S what that burning pain was!"). I go to my gyno to check out my blood test results and discuss medication and lifestyle options for dealing with this.
My issue is I was diagnosed last June with a compensatory multinodular goiter. From the way I understand it, my thyroid grew because it was not able to produce enough hormone on its own. My thyroid levels were never low because thyroid just kept growing to compensate, hence the name :D
It was my endocrinologist who diagnosed this because for years doctors had refused to diagnose a thyroid disorder because my numbers always showed up okay.
Since I (most likely) have PCOS and this thyroid thing, do you guys think I would be better off treated for the PCOS by my endo? I'm not sure how well-equipped my gyno would be at handling this syndrome along with the thyroid issues as well.

Any thoughts?

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