Author: Sorting Last Post on Top ↓ Message:
MAL5W_ANN's Photo MAL5W_ANN Posts: 157
1/26/09 11:38 A

My SparkPage
Send Private Message
Reply


thanks for all your support, everyone. i have progressed past being angry (skipping several other steps in the "greiving" process) and moved straight to acceptance. :-)

I'm now at the point where I realize it's too my advantage to treat the right disease, regardless of how long I've been treated for the wrong one. I'm pretty set for the blood work this week.

(I think at the moment I'm on an endorphin high from exercise this morning!)

"I am careful not to confuse excellence with perfection. Excellence, I can reach for; Perfection is God's business"



 Pounds lost: 11.0 
 
0
21.5
43
64.5
86
ALWYSSMILIN's Photo ALWYSSMILIN Posts: 203
1/25/09 8:55 P

My SparkPage
Send Private Message
Reply
They are very similar and it is hard for anyone to discern the difference. I am sorry you are angry and having been misdiagnosed with another illness it's very frustrating to think a doctor was SO wrong. Atleast with a new perspective this new doctor can help you and make sure you are being treated for exactly what you need to be treated for, which is the end goal.

I was originally sent to an endo because they thought I had cushing's syndrome but it ended up being PCOS. They are very similar and I went through a lot of tests to be sure. That was about twelve years ago though!

Life is like a mirror, you get better results when you smile at it.

*Shelly* www.kevinandshelly.blogspot.com
NYXWOLFWALKER's Photo NYXWOLFWALKER SparkPoints: (139,356)
Fitness Minutes: (147,992)
Posts: 14,837
1/23/09 12:29 A

My SparkPage
Send Private Message
Reply
i have been tested for both and its only the pcos i have - got tested for the other becuase my dog died of cushings we've never were able to control it 100% so when i new that pcos and it were similor i made sure to get tested, i was so not willing to have it progress to the point that teatment wouldn't work

Nyxks Musings
nyxstium.info
twitter.com/nyxks/

Cals Burned for 6 years = 2,359,000
6 years Deficit Total = 1,729,800
Should have lost: 250 to 495 pounds
Actual loss = 139 lbs and 50 inches from core


 Pounds lost: 33.0 
 
0
17
34
51
68
MAL5W_ANN's Photo MAL5W_ANN Posts: 157
1/21/09 6:08 P

My SparkPage
Send Private Message
Reply
thanks,
maybe we could have virtual drinks.... is there an emoticon for that...
not seeing one.

you are right... this IS good news. If they start treating me for something I will be healthier.

somehow my head is just saying - it's one more thing that's wrong with you and it won't go away. but i need to snap out of that.

thanks for the pep-talk. i clearly needed it.


emoticon

"I am careful not to confuse excellence with perfection. Excellence, I can reach for; Perfection is God's business"



 Pounds lost: 11.0 
 
0
21.5
43
64.5
86
TOMMIEHANNAH's Photo TOMMIEHANNAH Posts: 88
1/21/09 2:44 P

My SparkPage
Send Private Message
Reply
I understand, truly I do. My gyno orginally started prescribing the right medications, but he never made THE diagnosis. Even though I knew what I had (also through self-diagnosis, which, by the way, we are never allowed to tell a doctor that we did!) I was so flipping angry, too! It took me two more doctors to finally SAY the words.....

Here's what I think: This is a new doctor who may or may not be able to confirm that you have something that you haven't heard of before. That's good news, isn't it? Even though your old doctor didn't quite have it right, NOW you will finally get the help you need.

BTW, I looked into it (online, of course) and found that you could quite possibly have both PCOS and Cushing's.....I can only pray for you that that is NOT the case, but it is possible. Plus, are you taking any medications for asthma, lupus, or arthritis??

I'm sorry you are so angry. I would take you out for a margarita if I could emoticon

Goals!
I will reward myself each time I reach a 5% weight loss of my current weight!


 Pounds lost: 14.0 
 
0
21.75
43.5
65.25
87
MAL5W_ANN's Photo MAL5W_ANN Posts: 157
1/21/09 12:55 P

My SparkPage
Send Private Message
Reply
TommieHannah,

I agree with you on the being fortunate to have the internet. At the moment (in my ANGRY state) I'm not finding comfort in that. I was the one who diagnosed PCOS from info that I read on the internet and in a women's health magazine. and went to an endo to confirm it (back in 2003). Shouldn't he know more than me? Shouldn't he be able to say, "well, maybe, but this also sometimes gets confused with something else." Let's try it and see. And I went to him because the soul cysters site said he was the best in the area that I lived in. This is what I should expect from the best?

Sorry, I'm not trying to shoot the messenger.

I had a similar experience. I thought that hair growth was hereditary. I thought skin tags were fairly normal (everyone in my family, plus a lot of other folks, has them. I thought I just bruised easily like my mother does.

i think at the moment the most help i need will be in getting over being angry.

m

"I am careful not to confuse excellence with perfection. Excellence, I can reach for; Perfection is God's business"



 Pounds lost: 11.0 
 
0
21.5
43
64.5
86
TOMMIEHANNAH's Photo TOMMIEHANNAH Posts: 88
1/21/09 10:27 A

My SparkPage
Send Private Message
Reply
I'm definetely going to have to look into doing some research about Cushing's. I have heard of it, but I have never been screened.

Your frustration is evident in your email. Everybody knows that there is something very wrong with the healthcare in this country. And healthcare management leaves something to be desired as well. We are fortunate, however, to have the internet available to us, which allows us to look into symptoms that may or may not be a problem. For example, after two years of talking to my gyno about depression and water retention and being treated for both symptoms separately, it wasn't until I did a little bit of research online that I realized I wasn't discussing ALL of my symptoms with my doctor. I never brought up the growth of hair in abnormal places or skin tags because I thought those things were just hereditary. When I finally realized they may ALL have something in common I was able to go back to the doctor and get the right bloodwork done which led to the PCOS diagnosis.

Hang in there!!! You may have the answer you need very soon. And keep praying that our new President will help solve the many problems in our nation's healthcare.

Good day
Me

Goals!
I will reward myself each time I reach a 5% weight loss of my current weight!


 Pounds lost: 14.0 
 
0
21.75
43.5
65.25
87
MAL5W_ANN's Photo MAL5W_ANN Posts: 157
1/21/09 10:05 A

My SparkPage
Send Private Message
Reply
I moved recently, and went about the business of finding new doctor's here. My S.O. practically had to drag me out to see an new reproductive endocrinologist, but I found one and went to see him. He requested the blood work from my initial diagnosis (2003, I think) to review.

His P.A. called me yesterday, because the Dr. got the initial blood work and thinks there's a fairly good chance that I don't have PCOS, and instead have Cushing's Syndrome or Cushing's Disease. The symptoms are apparently incredibly similar (inconsistent or no periods, hirutism, weight gain mostly in the body NOT the extremities, co-existing depression, insulin resistance) along with some others that are definitely me including muscle weakness, bone weakness, anxiety, easily bruised skin that doesn't resolve quickly... (this is from the little quick research I did).

So I'm writing (partly) as a "Public Service Announcement" - hey everybody this is a different syndrome that is apparently REVERSIBLE in most cases, that is known to be frequently confused with PCOS (according to my doctor AND wikipedia).

But also I'm writing to find out more... have any of you all HEARD of this? were you screened for it? what do you all know about this? is it possible to have BOTH PCOS and Cushing's?.... etc, etc, etc.

Anyway, next week I'm going in to do two separate blood work series, apparently one before and one after I take some pill that helps diagnose. Both are fasting blood draws -- although I'm usually ASLEEP well before midnight and the draws are at 8:00 am, so I guess it doesn't matter much.

And, on an aside, can I even tell you how ANGRY this makes me! Why is it we have 4 pills covered by (most) medical insurance that help a man get an erection that lasts, but we can't come up with a simple way to definitely diagnose a women's health issue (PCOS) and not confuse it with something else? ARGH! (Sorry I just needed to vent that!)

M

"I am careful not to confuse excellence with perfection. Excellence, I can reach for; Perfection is God's business"



 Pounds lost: 11.0 
 
0
21.5
43
64.5
86
Page: 1 of (1)  

Report Innappropriate Post

Other PCOS & Losing Weight Medical Info & Discussion Posts

Topics: Last Post:
Baby On The Brain 11/6/2013 11:14:15 AM
Mirena Caused PCOS Symptoms 6/25/2014 12:44:30 AM
Getting off of the pill 6/7/2014 1:29:11 AM
TTC one year later... 7/23/2014 4:12:49 PM
Follistim 9/11/2013 1:24:48 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=602x136x22102059

Review our Community Guidelines