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GENNALEA1985's Photo GENNALEA1985 SparkPoints: (0)
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4/30/08 11:09 P

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Hey, thanks everyone so much! A few notes...

When I had my ultra sounds the endometrial lining was normal. The person doing it said it looked normal for a woman my age. Also, I don't get any pain. I just get the mild cramps when my period should come... and of course it doesn't. And it's only for a day or two.

I was put on Provera for 10 days and it brought on a period but now what?

I am going to call my other doctor tomorrow to make an appointment. It's so hard to get into see her though. Usually we get stuck seeing one of the nurses under her. So I have no clue when I'll get to see her. The doctor I'm talking about is a nurse/midwife... so maybe she just doesn't know much about it... not too sure. The one I'm calling is an OBGYN. She might be able to help... or at least refer me to someone who can.

Again, thanks everyone for your kind thoughts and helpful words. I'll let you know what's going on... when I know what's going on that is! God bless!
emoticon

Donít let anyone
Tell you that youíre not strong enough
Donít give up
Thereís nothing wrong with just being yourself
Thatís more than enough
So come on and raise your voice
Speak your mind and make some noise
And sing
Hey, hey
Make some noise
Hey, hey, yeah


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BEKAH_LYNN's Photo BEKAH_LYNN Posts: 930
4/30/08 7:39 P

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I would definitly call her back and try to talk it out with her. If you continue to be frustrated though maybe finding someone else would be the best decision. It certainly sounds like you indeed have PCOS and there is nothing really "normal" about it. You have to make major life changes to control it in some situations. Just hold in there. I hope you find all the answers to your questions. Good luck!

Beks

"Obstacles are mental. Defeat the mind and you will conquer the body."-Beks

"In life, many things will catch your eye, but only a few will catch your heart...pursue those."
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XANDERMOM's Photo XANDERMOM Posts: 59
4/30/08 2:55 P

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My family practitioner ran all the tests...but she was looking for a reason for my depression. When she got the results back, she told me flat out that she didn't know what to make of them, especially the hormone one. So with a little nudging, I finally got her to recommend me to gynaecologist who was able to understand what all that meant and has been able to help.

Don't give up! Just keep at them and they'll hopefully come along.

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MAMABAHAMA's Photo MAMABAHAMA Posts: 249
4/30/08 11:25 A

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Hey, first let me just say HANG IN THERE!!! It is very frustrating when our DOC's just dont get it. I would definately go see an endocrinologist that can do the correct tests for you. Maybe you can try Metformin. A low to moderate carb diet would help with the weight issue. I had all the tests done by a wonderful fertility doc in 2002. She put me on MET to cut down testosterone levels to achieve pregnancy. It also helps you lose weight easier since it helps with insulin resistance. There are also homeopathic remedies to help with balancing your hormones out. Good luck. Just dont give up, take it one day at a time.

Sarah

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AMBAM1881's Photo AMBAM1881 Posts: 126
4/30/08 10:41 A

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My doc ran some blood work, did the vaginal ultrasounds, and basically I was like you...my insulin levels and hormone levels were "within normal limits" and everything seemed fine except that my ovaries hurt constantly and on the ultrasound, they looked a lot like swiss cheese. The cysts were all small and again "within normal limits" but there were a lot of them. My doc said that PCOS was the only explanation for my ovaries looking the way they did...even though I didn't exhibit the other symptoms like insulin resistance and abnormal hair growth. I got a second opinion (always recommended any time you're diagnosed with anything) and that doc had the exact same response. You may not have all of the symptoms or need a lot of different tests. I would talk to your doctor face to face...write down all of your questions and schedule an appointment to ask all of your questions. A good doctor will give you the time to ask questions. In my experience, the males seem to listen more than the females when it comes to obgyns. The women I've dealt with tend to just say "suck it up and deal with it" while the men seem to be more concerned...especially if there's pain involved.

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TDGNIKA's Photo TDGNIKA SparkPoints: (9,187)
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4/30/08 8:43 A

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My doc tested my LH, FSH and...some other hormone that I can't remember. They did an ultrasound and found no cysts, but having no cysts at one particular point does not mean that you don't have PCOS. You can have PCOS and never actually have cysts, from my understanding. Or maybe you had cysts, and they went away. I'm guessing they go in cycles. I agree with everyone's recommendation to go to an endocrinologist.

"If you are not for yourself, who will be." -Hillel

"Take care of your body with steadfast fidelity. The soul must see through these eyes alone, and if they are dim, the whole world is clouded." - Goethe

"Give them nothing! But take from them everything!"


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TRYINAGAIN3's Photo TRYINAGAIN3 Posts: 1,597
4/30/08 8:30 A

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I had the same problem. My family doctor said I didn't have PCOS just with an ultrasound coming back normal. I got no where with her or my gyn. Since you are TTC you could try a fertility doctor. That was the only place I got help with PCOS without being put on birth control pills.





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TOMMIEHANNAH's Photo TOMMIEHANNAH Posts: 88
4/30/08 8:11 A

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RODAWN~ I read your post many times. It is very well-written and understandable. I don't know what else to say except for I'm glad we are all able to find support with other women who are going through the same problems. emoticon emoticon

Goals!
I will reward myself each time I reach a 5% weight loss of my current weight!


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RODAWN's Photo RODAWN Posts: 58
4/30/08 3:31 A

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What you are describing is a common theme. An amazing number of general family practice physicians know very, very little about this disorder. There are some who think they know more than they actually do too.

Your best bet, especially since you're having problems losing the weight, is going to an gyne-endocrinologist. They have, obviously studied extensively about the subject and know a whole lot more than general doctors.

First off the bat, it is not normal, NOR HEALTHY for a women of menstrual age to not be having regular periods. The risks are significant.

As for specific weight loss issues, you could look into low-carb-low-fat dietary solutions. That has been working for a number of us. I've just started this and have lost 6 pounds already.

PS: My blood work always comes back low-normal or high-normal and my ovaries always show cysts.

It is not normal for ovaries to have multiple cysts. What is normal is for an ovulatory ovary to show a follicular cyst but that disappears once the egg has erupted through (ovulation). Multiple cysts on an ovary mean multiple eggs have not erupted (no ovulation). No ovulation = NO PERIODS.

You should be a good candidate for your gynecologist to be wanting to take an endometrial biopsy to make sure you are not developing a pre-cancerous condition. Women with PCOS who do not have regular periods, but still grow their endometrial lining, are at high risk for endometrial cancer. You should try to do whatever it takes to get your periods jump-started again. More than likely, your first few periods will be very heavy with clots and maybe with cramps until things get flushed out and working again. For some women, this is effectively done with the Pill. Others need additional medication. I'm managing to get periods now through diet (low-carb-low-fat) and exercise.

Whatever you do, sit down for a face-to-face discussion with your physician. I would personally be asking for a referral to a specialist. Can you try to get some sort of insurance so you are covering some of your expenses?

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LBE_VERSION2's Photo LBE_VERSION2 Posts: 301
4/30/08 1:23 A

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you could try going to

www.pcosupport.org

this site has helpful information regarding doctors, pco itself, treatments and input from other women with pco.

Keep the faith...
Never give up

Les

California


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SCO0BY74's Photo SCO0BY74 SparkPoints: (0)
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4/29/08 11:20 P

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Call her back tomorrow and try explaining it. If she goes with it that is great. But I would still get a second opinion. It never hurts to. I did and I feel much better that I did. My first doc was like ur levels r a little high so its pcos and gave me some pamlets to read. So I went else where and got the answers I needed. U have to feel what feels right to u and make sure that u get all ur answers that u need. it will make u feel better. I hope helped and let me know if u need anything. And I also wished u luck and u figure it all out! emoticon

FORGET WILLPOWER.
"Losing weight is not about willpower--it's about moments of bravado, like the moment when you ask your waiter to take the bread away from the table right away."-Jillian Michaels


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GENNALEA1985's Photo GENNALEA1985 SparkPoints: (0)
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4/29/08 10:51 P

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I've been reading through some of the posts and I've noticed a lot of you recommending several tests that should be done... I called my doctor today (had to leave a message) and I asked her what other tests could be done to see why I have symptoms of PCOS (whatever she tested for came back normal). And I also asked her how she could help me find out why I can't lose weight... when I try I seem to gain more because and I have to get it off, we are TTC. She called me back (had to leave a message) and said that she didn't really understand what I was asking her and that she needed more information. Should I find another doctor? Or should I call her tomorrow and try to explain this...

I don't get why she diagnosed me with PCOS any way, honestly. I went for my yearly and asked her why I hadn't had my period for 2 years (yeah 2 years. I didn't have insurance to get checked sooner and I refuse to put my time or money into planned parenthood). So she gave me some general blood work for thyroid problems and an abdominal and transvaginal ultrasound. The blood work came back "relatively normal" and she said I have a few small cysts on my ovaries but well within normal range. What? If it's normal, why the diagnosis... I am so confused. Maybe one of you can help...

Thanks!!

Edited by: GENNALEA1985 at: 4/29/2008 (22:50)
Donít let anyone
Tell you that youíre not strong enough
Donít give up
Thereís nothing wrong with just being yourself
Thatís more than enough
So come on and raise your voice
Speak your mind and make some noise
And sing
Hey, hey
Make some noise
Hey, hey, yeah


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