What you are describing is a common theme. An amazing number of general family practice physicians know very, very little about this disorder. There are some who think they know more than they actually do too.
Your best bet, especially since you're having problems losing the weight, is going to an gyne-endocrinologist. They have, obviously studied extensively about the subject and know a whole lot more than general doctors.
First off the bat, it is not normal, NOR HEALTHY for a women of menstrual age to not be having regular periods. The risks are significant.
As for specific weight loss issues, you could look into low-carb-low-fat dietary solutions. That has been working for a number of us. I've just started this and have lost 6 pounds already.
PS: My blood work always comes back low-normal or high-normal and my ovaries always show cysts.
It is not normal for ovaries to have multiple cysts. What is normal is for an ovulatory ovary to show a follicular cyst but that disappears once the egg has erupted through (ovulation). Multiple cysts on an ovary mean multiple eggs have not erupted (no ovulation). No ovulation = NO PERIODS.
You should be a good candidate for your gynecologist to be wanting to take an endometrial biopsy to make sure you are not developing a pre-cancerous condition. Women with PCOS who do not have regular periods, but still grow their endometrial lining, are at high risk for endometrial cancer. You should try to do whatever it takes to get your periods jump-started again. More than likely, your first few periods will be very heavy with clots and maybe with cramps until things get flushed out and working again. For some women, this is effectively done with the Pill. Others need additional medication. I'm managing to get periods now through diet (low-carb-low-fat) and exercise.
Whatever you do, sit down for a face-to-face discussion with your physician. I would personally be asking for a referral to a specialist. Can you try to get some sort of insurance so you are covering some of your expenses?
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