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LILYANNASMOM Posts: 21
9/30/08 12:34 A

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I was diagnosed back when I was about 12 years old. I hadn't had menstrual problems etc yet. It started with the hair growth. I lost over 80 pounds, back in the day. It did not lessen anything. I think that if you have PCOS, nothing is ever going to make it go away. Weight is just one of the many factors. Yes it could help with some things I am sure. Other things not so much. I am now on another weight loss journey, having gained back all the weight. Being thinner, didn't help me do anything, except give me some better self esteem despite all the factors against me. I have been on Metformin for over a year. It hasn't helped any of my symptoms, but knowing that it will help my insulin resistance in the long run, I will keep at it. Good luck to you all on this life long journey. Just remember, that even though we are inflicted with this nuisance, we need to look for the rainbows in life. Be happy!

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SSTERSUZIE's Photo SSTERSUZIE Posts: 80
9/23/08 6:35 P

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I finally got to see a great endocrinologist the other day and really feel like she's working with me on this - as well as other hormonal issues. She listened to me and came up with several plans for attacking this - I heart her.

The point being - I trust her opinion. And on the facial hair, she said she was going to be brutally honest and that once the facial hair growth had started, it would probably never stop. There were things we could do to try and decrease the growth, but it will always be there. I broke down this weekend and had my entire face waxed. Hurt like you know what, but I loved the results. So I guess that's going to be my monthly treatment. I just recently grew sideburns - and then started noticing hair on my cheeks. Gross!

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JENNY_ZZZ's Photo JENNY_ZZZ Posts: 45
9/2/08 11:26 P

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Ugh. I'm having such a problem with this now, and I'm so bummed about it. I've been on Metformin about a year now (and only recently started losing weight), but it feels like it's gotten worse in the facial area, but slacked off in other areas...

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WMERRITT's Photo WMERRITT Posts: 3
8/15/08 3:42 P

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That was the same response that I had from my doctor and so far it has been accurate.

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STYLGRL's Photo STYLGRL Posts: 2,574
4/19/08 8:08 A

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How true! I seem to notice other women now as well, and think the same thing. I almost want to say something to share my new found knowledge. Of course I would never, unless it happens to be someone I know personally. I also agree this is a great support group..thanks everyone!!!! (btw..I'd buy your book) :o)

Health of Body & Spirit, Chris
GAL 5:19-20
TOMMIEHANNAH's Photo TOMMIEHANNAH Posts: 88
4/19/08 6:55 A

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Thank you Chris! I don't understand as of yet what a "syndrome" is, but I will look it up. I'm thinking that it means that it's incurable, and the changes you have to make to relieve the symptoms are lifelong changes?

Mind you, I only just found out that I have PCOS. It seems I have had mild symptoms since I was a teenager, most of them got worse after I had my son eight years ago, YET the majority of them started working double time since a miscarriage in the summer of 2006. I just never knew that everything I suffered were ALL symptoms for ONE not-so-simple problem. I had been treated for many symptoms individually. I have read everything I can get my hands on regarding PCOS. So far, this is the BEST support group that I've found online for women with PCOS.

I start noticing women in stores now who may have a heavy belly area and acne, or some chin hairs (many young women) and wonder if they have problems that they don't dare speak of outloud to anyone, including their doctors. I keep thinking "if only I had known...."

I wonder if I should write a book?

Goals!
I will reward myself each time I reach a 5% weight loss of my current weight!


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ANGEL02001's Photo ANGEL02001 Posts: 394
4/19/08 3:08 A

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When I first started taking metformin and spironolactone I did not see a reduction in hair growth. I did notice that it stopped getting worse, however, and I was losing weight at that time. When I talked to my doctor he said for some people it just stops the new hairs from growing but the old ones might not ever leave, so he recommended to get laser hair removal.





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STYLGRL's Photo STYLGRL Posts: 2,574
4/18/08 10:42 P

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Hi Monique, Everything you had to say regarding PCOS is very well spoken, and all sounds plausible, however.... it isn't necessary to have multiple cysts to be diagnosed with PCOS. I know that sounds weird, but it is true. That being said, it is somewhat if a mystery when trying to rationalize what's actually going on in our bodies. I have "a" very small cyst on one ovary. Yet I also have all the symptoms of PCOS and the IR to accompany it, which led my doctor toward this diagnosis. PCOS is a syndrome..not a disease. I used to have IBS..also a "syndrome". It was and is my understanding that a syndrome is reversable. I no longer have IBS..but for 4 years I always had to be close to a toilet, i would never go to someone else's home for dinner, and dinner and a movie??forget about it. But, through many avenues i've licked it, i have absolutely NO symptoms, however, I still consider myself to"HAVE"IBS..and if I were to get myself stressed out and eating improperly i'm certain it would rear it's ugly head once again. I want to believe that is will also be true with this PCOSyndome. From everything I've read and what my doctor has told me, weight loss,(incredibly difficult as it is) is the key. By the way, this isn't the criticism of which you've invited :o) I'm just shedding light and giving another point of view. My best to you, Chris

Health of Body & Spirit, Chris
GAL 5:19-20
TOMMIEHANNAH's Photo TOMMIEHANNAH Posts: 88
4/18/08 5:28 P

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Correct me if you think I'm way off: I take criticism well!

But the way I see it is this.

A) Women with PCOS have symptoms of hirsutism because their ovaries are unable to produce the right amount of estrogen or progesterone to level the amount of androgen (testoserone) that the cysts strangling the ovaries are producing. The insulin resistance is also a symptom of what these cysts are doing to your body which makes weight loss incredibly difficult. HOWEVER, after women are FINALLY diagnosed and given the correct dose of medication that works for them, weight loss becomes easier for those who are trying to lose weight (i.e. I've been working out like a maniac for the past six months and haven't budged the scale, but I also stopped gaining weight. I'm hoping that eventually the scale will start moving downwards after the right dosage for me has become clear)

What I'm trying to get at is this: Losing weight is the primary goal for most PCOS patients, yet, it's very difficult. Normally, losing weight will stop the cysts from creating the wrong hormonal imbalance, thus lessening the symptoms the imbalance creates, i.e. hirsutism, acne, oily skin, abnormal periods or no periods at all, migraines, high cholesterol, insulin resistance, inability to lose weight. MOST PCOS patients cannot lose weight without serious help from medication or herbal remedies (finding the right remedy for the individual patient could take many months!) Once you are able to lose weight, you are taking back some of the control that you didn't have to begin with, lessening the CYSTS control (and the havoc they wreak on a woman's body)!!

By the way, I bought my spearmint tea today! I'll let you know how that goes.

What I would like to hear from women is this: how many women have had to have surgery to have the cysts or ovaries removed? I finally got an appointment for an endocrinologist, BUT it's not until September 10th!!! That's five months from now. Luckily, my OBGYN has prescribed a OC (Yasmin) and Aldactone, along with Vaniqua (the face cream that is suppose to help reduce the growth of facial cream)

With the upmost support,
Monique

Goals!
I will reward myself each time I reach a 5% weight loss of my current weight!


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STYLGRL's Photo STYLGRL Posts: 2,574
4/18/08 12:33 P

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That is a very discouraging comment from your doctor,I certainly hope it isn't accurate. I have only been on the SP site for a month or so, but I've been pretty active reading different posts here. It seems to me allot of gals have said their symptoms have reversed once weight loss has been accomplished.. Lets put the question out there. If anyone reading this has experienced a noticeable difference in the growth of facial hair, please share those encouraging details, Thanks, Chris

Health of Body & Spirit, Chris
GAL 5:19-20
CATIATM's Photo CATIATM Posts: 35,022
4/18/08 11:22 A

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Gosh, I'm trying to lose weight. I'm blond, but I'm growing a dark beard! I'm insulin resistant and having trouble losing the weight. I'm reeeeeeally hoping that weight loss will help, but one doctor told me that once the follicles are activated, losing the weight doesn't make them stop. It just keeps even more hair from growing.

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MARRSMAMA's Photo MARRSMAMA SparkPoints: (23,043)
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4/17/08 5:19 P

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Yes, I too am on metformin. I started back in June. I am not on anything else, but my doctor said he was going to start me on aldactone this coming June when I see him again.
Initially I lost 10lbs on the metformin, but that was it. After that I just maintained rather than gained, however I wasn't activly trying to eat better or exercise either. Since joining Sparkpeople in January I have been losing weight and have even started having fairly regular periods. The facial has just started to appear to be less. I guess time will tell if it'll be gone for good or not.

My laser treatment is scheduled for May 28 now and I'm hoping to know more by then maybe as I don't want to keep postponing if I'm gonna have to go through with it anyway.

Thank you both for your input :)

Edited by: MARRSMAMA at: 4/17/2008 (17:19)
Dawn,
Nova Scotia, Canada

"Your body keeps an accurate journal no matter what you write down"

"You don't drown by falling in the water, you drown by staying there"

January-June fitness minutes:
3725 (cardio: 3215)

2008 fitness minutes: 11,171
Distance walked in 2008: 462.7km (287.5mi)
Distance biked in 2008:
614.9km (382.1mi)


 current weight: 250.0 
 
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STYLGRL's Photo STYLGRL Posts: 2,574
4/17/08 4:42 P

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I do take Metformin, but to be clear, I never had the superfluous facial hair. I'm lucky that way, I do have IR and all of the other symptoms of PCOS,, and have gained alot of weight for no apparent reason, and could not lose it...no matter what I tried. Now on Metformin,( for 4 months) I feel so much more myself in general, have begun to lose and got a period after not having one since last June. So..things are looking up..i just wish the weight loss would come off quicker..but at least i've stopped gaining. :o)

Health of Body & Spirit, Chris
GAL 5:19-20
TOMMIEHANNAH's Photo TOMMIEHANNAH Posts: 88
4/17/08 4:27 P

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Are you also taking medication, Metformin?, Aldactone?, an anti androgen? Those seem to help with the hirsutism as well, but if you are able to lose weight, it lessens the cysts ability to produce the different hormones which cause hirsutism in women, i.e. too much estrogen, or too much androgen (testosterone).....This is why women with PCOS need to lose weight, however, many women also get insulin resistance with PCOS that makes losing weight very very slow or none at all!!! Congratualations on your weight loss! OH! And congratulations on the hair loss!

Goals!
I will reward myself each time I reach a 5% weight loss of my current weight!


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STYLGRL's Photo STYLGRL Posts: 2,574
4/17/08 4:27 P

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I was just diagnosed 4 months ago, and i'm lucky to only suffer through a couple of chin hairs that I'm able to pluck. In regards to your question, I would "guess" that the facial hair as well as many other symptoms would lie dormant once we lose weight. It is my understanding that weight loss will reverse the PCOS, however we will still have PCOS, therefore without the proper diet, exercise and medication it would rear it's ugly head again. I would hold off since you are doing so well losing weight..good for you!!!

Health of Body & Spirit, Chris
GAL 5:19-20
MARRSMAMA's Photo MARRSMAMA SparkPoints: (23,043)
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4/17/08 2:27 P

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Has anyone here dealt with facial hair and then found it went away after weight loss?!
I have lost almost 40lbs so far and am now starting to notice that the facial hair seems to have lessened. I was scheduled for laser treatments to start, but have postponed it. I am curious as to whether the hair will continue to diminish as the weight comes off, or atleast if anyone else found that it did.


Dawn,
Nova Scotia, Canada

"Your body keeps an accurate journal no matter what you write down"

"You don't drown by falling in the water, you drown by staying there"

January-June fitness minutes:
3725 (cardio: 3215)

2008 fitness minutes: 11,171
Distance walked in 2008: 462.7km (287.5mi)
Distance biked in 2008:
614.9km (382.1mi)


 current weight: 250.0 
 
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