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KRISTI67's Photo KRISTI67 SparkPoints: (938)
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2/15/10 3:22 P

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I was diagnosed with Diffuse Large B Cell Lymphoma on Dec 31, 2008. As of May 19, 2009 (almost 9 months!) I am in remission and just having maintenence infusions of Rituxin every 3 months.

Kristi

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~*Phil 4:13 - I can do all things through Christ who strengthens me.*~


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CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
1/5/10 1:06 A

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TCIGIRL and Shell.... Way to Go on being Cancer Survivors!

"Not Perfection but Progress" in my lifestyle changes.

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SHELLRR68 Posts: 1
1/4/10 11:51 P

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I am a 2 year and 5 month Hodgkins Lymphoma Survivor and pray for many clear years to come!!! (And alot less weight!!!)

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TCIGIRL's Photo TCIGIRL SparkPoints: (44,005)
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12/6/09 9:49 P

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It's been 10 months this time. First time was in '95 with Endometrium and Ovarian cancer. Went cancer free for 14 years till Feb. of this year with colon cancer.

Edited by: TCIGIRL at: 12/6/2009 (21:49)
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CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
12/1/09 10:34 P

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Welcome to the team ENDERIFIC. Congratulations on being a 10 year Survivor!

"Not Perfection but Progress" in my lifestyle changes.

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ENDERIFIC's Photo ENDERIFIC Posts: 31
12/1/09 10:01 P

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I'm new to this team but I saw this question and wanted to share that I am 10 year survivor of an agressive Stage 4 non-hodgkins lymphoma. I was treated with Chemo and eventually got a stem cell transplant back in Oct 99.

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11/17/09 12:07 P

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December makes 23 years my diagnosis!

Hugs,
Cindy

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CIAOBELLA57's Photo CIAOBELLA57 Posts: 590
11/15/09 7:28 A

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3 years ago today I had an upper left lobe lobectomy and clear CT scans since.

Off to spin class and iron pump to celebrate! emoticon emoticon

CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
9/8/09 11:02 A

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Sharon... congrats at being 2 years cancer free!

"Not Perfection but Progress" in my lifestyle changes.

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SHARK2003 Posts: 273
9/8/09 8:37 A

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I just received all of my test results back. I am now 2 years cancer free as of 8/14/2009! On 8/14/2007, 4 days after my AP resection, my surgeon came into my room and told me my pathology report was negetive, NO CANCER! I thank GOD each and every day for giving me this wonderful gift of life.

Calibarb: My thoughts and prayers go out to you as you continue your battle with cancer.

Sharon

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CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
8/3/09 7:36 A

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Calibarb... God bless you as you continue to fight cancer.

"Not Perfection but Progress" in my lifestyle changes.

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CALIBARB's Photo CALIBARB Posts: 39
8/2/09 7:49 P

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I'm glad to have found this thread. I was diagnosed June 2004 with kidney cancer. Now have mets to lung and bone. Am taking Sutent with side effects different every month.

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7/18/09 8:35 A

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I first found my cancer in July of 1981. Nov.of '81 the Doctor told me to" have my family ready to live with out me because I wouldn't be here".
28 years later and I'm still here and sometimes they still need me. OH WELL!!
Best wishes and Gods Blessing to all of you new to the fight.
Artsky

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CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
7/17/09 2:25 P

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You are right Rose! Every day is a gift!

"Not Perfection but Progress" in my lifestyle changes.

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ROSE1953 Posts: 36
7/17/09 6:56 A

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4.5 years ago I had the left upper lobe of my lung removed, and that cancer with it.
2.2 years ago I finished my last radiation treatment for throat cancer.
Every day is a gift.

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CIAOBELLA57's Photo CIAOBELLA57 Posts: 590
7/11/09 10:21 A

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It will be 3 years this November 15th. I use that day because that is the day I had surgery to remove my upper left lung from stage 1a lung cancer.

Dont feel silly about the 2 months; you are still a SURVIVOR and will continue to be a member!!!

Attitude is everything; for me my entire world changed the day I stopped referring to myself as a cancer victim and replaced the term with CANCER SURVIVOR.

Thanks everyone for such inspirational stories. The support from this group is amazing.

SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
7/10/09 3:21 A

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Hey congrats for the 2 months and every day after that. It certainly is a day to day thing - kinda like life. It's a reality altering experience. All the colors are brighter and more beautiful - songs and music is more meaningful. The smells of each summer day linger - Thankfulness, and gratefulness are with us all!

Good night, emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

SBURNIT's Photo SBURNIT Posts: 18
7/10/09 2:48 A

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Wow, reading all the stories here are very inspirational. Congrats to everyone holding their "Survivor Card", prayers and best wishes to all still struggling.

I feel sort of silly saying I have been cancer free for 2 months, with everyone else's stories here, but Yay! me. I'm taking it a day at a time, with The Lord's help.

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MILDEXSPI's Photo MILDEXSPI Posts: 2,879
7/1/09 9:44 P

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emoticon Carolyn. May the next 5 years be uneventful and full of love, life and happiness.
Jackie

Jackie

It's not who you are that holds you back, it's who you think you're not. - Anonymous


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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
7/1/09 2:39 P

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Hey Carolyn, congratulations! I'm SO happy for you! Hopefully I can say the same at the 5 year mark.

emoticon emoticon emoticon emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
6/30/09 4:15 P

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Thanks everyone for sharing on this thread!
I just had a good five year check up after Ovarian cancer!
emoticon to all.

"Not Perfection but Progress" in my lifestyle changes.

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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/27/09 4:03 P

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Hey Jackie, right on girl! Every day is an exceptional day above ground! I'm going to have to get blood work done in July to see if my ca125 is still where it should be. This w/b my 1st checkup after chemo. It's the 3 month mark. I'll have it done when I get back from my 2 day birthday ride. Needless to say I'm a bit nervous about it.

Best to everyone this weekend.

K emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

MILDEXSPI's Photo MILDEXSPI Posts: 2,879
6/27/09 7:33 A

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I was diagnosed with endometrial cancer on March 17, 2008. On April 4, 2008 I had a total hysterectomy and the cancer was determined to be stage IIIA due to additional cancer found on one of my ovaries and cancer cells in the pelvic washings.

The cancer diagnosis alone was a blow. The really difficult part was that I received the call from my doctor while I was at work.

That is all in the past now. Every day is a new day and I'm having a great time living my life.

Jackie

It's not who you are that holds you back, it's who you think you're not. - Anonymous


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HOPE2BE's Photo HOPE2BE SparkPoints: (146,934)
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6/24/09 10:41 P

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Keep up your spirits and your positive outlook. I know by keeping positive things can turn around for you. My prayers for all of you and on Sundays at communion I say a prayer for you all to be healed. Prayers and blessings for all. Hope

Hope
co-leader of Challenged by Arthritis

co leader of Surviving Cancer. My motto is:
If God is for you who can be against you. Romans 8:31
If at 1st you don't succeed try try again

Henry H. Palmer teacher 1840
Tomorrow is a new day


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (165,475)
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6/24/09 4:56 P

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I was diagnosed with stage II breast cancer in May 2003, and it returned in the form of bone mets in April 2007.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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TERJEGOLD's Photo TERJEGOLD SparkPoints: (169,015)
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6/24/09 11:18 A

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There are days when I feel like I have licked this thing for good and days when I wonder if it will ever be over. Dealing with chemo every three weeks for the next three years makes it hard to "move on" so to speak. The huge elephant in the room has taken up permanent residence.

Terje
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GRAMMA_ME Posts: 198
6/24/09 11:16 A

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emoticon emoticon I hope everyone will be a survivor of this awful thing on an everyday bases.

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6/24/09 8:36 A

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emoticon Stephdip on being a survivor. I too am a cervical cancer survivor for 35 years. We can do this all of us. Hope

Hope
co-leader of Challenged by Arthritis

co leader of Surviving Cancer. My motto is:
If God is for you who can be against you. Romans 8:31
If at 1st you don't succeed try try again

Henry H. Palmer teacher 1840
Tomorrow is a new day


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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/23/09 11:34 P

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Excellent Stephdip! Congrats!

K emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

STEPHDIP's Photo STEPHDIP Posts: 247
6/23/09 6:50 P

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I'm a 19 month cervical cancer survivor!

Somewhere out there ...Someone who is BUSIER than you is working out.
-Nike Ad


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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/21/09 2:00 P

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Thanks for the info. I think I'll wait to have it done.

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The unknown monster under the bed is always scarier than the dust bunny reality.

TERJEGOLD's Photo TERJEGOLD SparkPoints: (169,015)
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6/21/09 1:42 P

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My genetic counselor said the fact that I have the gene mutation does not necessarily mean my daughters also have it. But their chances are obviously greater than if I had tested negative for it.

As I understand it, within a year or so, genetic information will no longer be usable in determining your eligibility for or cost of health insurance. Cross your fingers it does get passed in every state or at the national level. Genetic information is really important, particularly when weighing treatment options, but not at the risk of being unable to afford health care.

Terje
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POLKA DOT JERSEY RECIPIENT!

2011 Goals:
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2. run/walk 40+ miles/week
3. lose my last ten pounds by June 1st
4. maintain my weight for the rest of 2011
5. Train for my 60-mile walk
6. Eliminate my quilt UFOs by actually finishing everything I have started


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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/21/09 12:08 P

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Terjegold, no kidding about the insurance? Wow!

If you have the gene doesn't it mean that automatically your daughters do too? The whole idea w/me is to test on behalf of other family members.

K

The unknown monster under the bed is always scarier than the dust bunny reality.

GRAMMA_ME Posts: 198
6/21/09 12:00 P

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you go girl keep up the chin you are a survivor emoticon

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6/21/09 11:58 A

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Before you get any genetic testing, think about how it may affect your insurability. I had the tests done, tested positive for BRCA1 and have really struggled with getting adequate insurance.

I want to test my daughters but am waiting until the laws get fully passed that will protect our ability to retain our insurance if the tests come out positive.

Terje
Captain- Crazy CAMO Crew

POLKA DOT JERSEY RECIPIENT!

2011 Goals:
1. gym class 4+ x/week
2. run/walk 40+ miles/week
3. lose my last ten pounds by June 1st
4. maintain my weight for the rest of 2011
5. Train for my 60-mile walk
6. Eliminate my quilt UFOs by actually finishing everything I have started


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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/21/09 11:51 A

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Damisa,
Thank you for sharing your story with us. best to you with your "Modified" radical mastectomy next week. You are a inspiring survivor. I still have to have that gene test... we'll see what decisions it brings.

Amy - you go girl! emoticon

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6/21/09 10:03 A

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DAMISA, that is a great story of triumph and survival. I will be sending thoughts and prayers during your surgery but I know you will do just fine! You've been doing fine all along which is great!

Terje
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POLKA DOT JERSEY RECIPIENT!

2011 Goals:
1. gym class 4+ x/week
2. run/walk 40+ miles/week
3. lose my last ten pounds by June 1st
4. maintain my weight for the rest of 2011
5. Train for my 60-mile walk
6. Eliminate my quilt UFOs by actually finishing everything I have started


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CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
6/21/09 6:21 A

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AMYC128-- Congratulations on 11 years as a Survivor!

Damisa-- I'm glad that you NOW feel like a SURVIVOR! Yes, you are a Survivor! I pray that your surgery goes well. God Bless you.

"Not Perfection but Progress" in my lifestyle changes.

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DAMISA's Photo DAMISA SparkPoints: (0)
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6/21/09 4:54 A

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For some reason, I didn't receive any emails when replies were posted to this thread, so I am just getting back here.

I was given my diagnosis on December 18, 2009, exactly one day before I was due to fly home for Christmas. I was at work and my bosses sent me home for the day. I flew home, had Christmas with my family, and landed in the hospital with a blood clot exactly one day before I was supposed to return to Florida.

God is good and I thank Him every day for that blood clot because I was extremely nervous about having treatment in the town where I work. In fact, my "rental dad" was planning on sending me to Miami so that I could receive adequate care. I have lots of friends, but no family in Florida. But I am with my family in Pennsylvania, having treatments from the best and the brightest, and working via distance technology.

Am I a survivor - you betcha - and I intend to continue to be one. When I started this cancer journey, my tumor indicator was well into the 200s. It is now 42! My medical oncologist, at my last appointment, finally said the "h" word - "happy." She has been pleased or optimistic about my progress in the past, but cautiously so. She is still reserved, but having her smile and tell me that she was happy put me on cloud 9! Having my brother there to share that news with was phenomenal.

"Modified" radical mastectomy next week scares the bejeebies out of me, but I have a gifted, compassionate surgeon who specializes in breast cancer (and was hand-picked for me by my primary care physician/God-sister). My BRCA test, which my insurance wasn't going to pay for (and did, thanks to my onco's nurse and my nurse caseworker in FL), came back negative for both BRCA genes. I had already decided that, should it come back positive, I was having a double mastectomy. People in my life were concerned about the mastectomy thing, but one thing that comes to mind is an episode of Little House on the Prairie when "Ma" got an infection and read a passage from the Bible: "If thy hand offends thee, cut it off." Well, I am definitely offended, so this right breast of mine has got to go - so that I can carry on.
And I will carry on. My friend in Key West is planning a celebratory trip to Disney for my return to Florida - and I plan to party like a (sensible) rock star! I've also decided to stop putting off working toward my doctorate. It has been a goal of mine since I stepped foot on campus as a college freshman and so it shall be.

Thanks so much, everyone, for the inspiration and the encouragement. And I hope that no one fell asleep halfway through this novel-length post!

Have joy!

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6/21/09 2:37 A

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I have been a Hodgkins Lymphoma survivor for 11 years

Amy ~ Co-Leader of Healthy Life After A Stroke
teams.sparkpeople.com/stroke


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CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
6/19/09 4:20 P

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TKJBSGETTINGFIT... welcome to the team!

"Not Perfection but Progress" in my lifestyle changes.

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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/19/09 1:41 A

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Amen ~ MarilynC. I agree - I believe it's a choice we have as to how we view each day of our lives. Our physical body will respond accordingly.

emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

TKJBSGETTINGFIT's Photo TKJBSGETTINGFIT Posts: 321
6/18/09 5:04 P

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My doctor phoned Christmas night 2007 to tell me I had uterine sarcoma.The surgeon actually sat with the information, in shock himself, for a week. He was worried about the cancer spreading but wanted us to have a nice Christmas, which we did. We had a fantastic Christmas with extended relatives out of state and returned Christmas night after a week and a half of being cared for (after the first surgery) by my parents at their home.

He didn't feel qualified to do further oncological surgery and helped us set it up at another facility 2 hrs away in the same HMO. If he hadn't done the first surgery on his day off just to make sure we got it in for insurance purposes that year, I would have waited 2 1/2 more months for the first surgery, with the cancer growing the entire time!

God works in mysterious ways and one of them was giving me this caring surgeon. Wish he had more experience with oncology, though, LOL. Every Christmas we will thank God for the surgeon who went out of his way to get my surgery in early and who helped us through the cancer experience.


Edited by: TKJBSGETTINGFIT at: 6/19/2009 (11:03)
Fill your minds with those things that are good, deserving of praise, that are true, noble, right, pure, lovely, and honorable.Put into practice what you have learned and received from Me, both from My words and actions. Phil 4:8-9
TERJEGOLD's Photo TERJEGOLD SparkPoints: (169,015)
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6/17/09 10:56 P

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This thread is so positive and uplifting. I've really needed that the last few days. Thank you all so much!

Terje
Captain- Crazy CAMO Crew

POLKA DOT JERSEY RECIPIENT!

2011 Goals:
1. gym class 4+ x/week
2. run/walk 40+ miles/week
3. lose my last ten pounds by June 1st
4. maintain my weight for the rest of 2011
5. Train for my 60-mile walk
6. Eliminate my quilt UFOs by actually finishing everything I have started


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PMCFARM Posts: 4,106
6/17/09 9:55 P

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My kidney cancer was diagnosed the first week in April 2003 & my surgery was April 30th (this is my 6th year). My surgeon & oncologist were clear that it's never considered "cured" but it's so slow growing that remission could be 20-30 years & if it reoccurs you look at new treatment options. At any rate, I choose to see each new day a new beginning to explore living!
MarilynC.

MarilynC.

Gods' will & timing are perfect!


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6/17/09 9:53 P

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I agree with everyone now that I go back to when I was 1st diagnosed it was late Feb. of 1974 when I was 1st diagnosed. I don't think you have to count 5 years afterwards so you are a survivor from day 1. Hope

Hope
co-leader of Challenged by Arthritis

co leader of Surviving Cancer. My motto is:
If God is for you who can be against you. Romans 8:31
If at 1st you don't succeed try try again

Henry H. Palmer teacher 1840
Tomorrow is a new day


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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/17/09 1:26 A

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Damisa, so - what are you?....

A survivor right? - each and every day of life!

emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/17/09 1:24 A

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Congratulations! 23 years and counting - tremendous!

emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

GRAMMA_ME Posts: 198
6/16/09 10:58 A

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Like I said Each and every day I wake up I'm a survivor. And yes I counted from the time i was diagnose.

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6/16/09 1:34 A

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In that case, I have 23 years surviving with cancer. Sounds rather empowering. Thanks for the change in perspective.

Terje
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3. lose my last ten pounds by June 1st
4. maintain my weight for the rest of 2011
5. Train for my 60-mile walk
6. Eliminate my quilt UFOs by actually finishing everything I have started


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SCOTTIEGIRL57's Photo SCOTTIEGIRL57 Posts: 1,286
6/16/09 1:01 A

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So when do you start counting? I found out some time in late October 08 - and I had the staging operation November 13th 08. I guess it's different for everyone. If I use the date of my staging operation - it's been 7 months.

K emoticon

The unknown monster under the bed is always scarier than the dust bunny reality.

CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
6/16/09 12:10 A

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I agree with Gram! I think a Cancer Survivor starts counting from Day 1 that you're diagnosed with the first cancer, not when you go into remission! If someone lives five years after diagnosis/surgery but never does go into remission, she is still a five year cancer SURVIVOR!! Every day counts.

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HOPE2BE's Photo HOPE2BE SparkPoints: (146,934)
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6/15/09 10:22 P

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By his stripes you shall be healed by Christ. Just remember ladies that Christ can change anything that is impossible to you. With God all things are possible. He has healed me twice from 2 things that were incurable and now I don't have it anymore so remember that he can do the same for you. Hope Have Faith.

Hope
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co leader of Surviving Cancer. My motto is:
If God is for you who can be against you. Romans 8:31
If at 1st you don't succeed try try again

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GRAMMA_ME Posts: 198
6/15/09 9:40 P

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hun, any day that you wake up you are a survivor. All ways remember that ok. And good luck with your treatment.

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6/15/09 8:26 P

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I am inspired. Not a survivor yet, but I look forward to earning that title.

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6/15/09 3:48 P

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That's awesome! My docs don't seem to think I will ever be in true remission but they do think I can keep the tumors under control for many years as long as I am diligent and careful. Luck will probably help as well. My Aunt lived with bone mets from breast cancer for more than twenty years and lived until she was past the age of 70.

Terje
Captain- Crazy CAMO Crew

POLKA DOT JERSEY RECIPIENT!

2011 Goals:
1. gym class 4+ x/week
2. run/walk 40+ miles/week
3. lose my last ten pounds by June 1st
4. maintain my weight for the rest of 2011
5. Train for my 60-mile walk
6. Eliminate my quilt UFOs by actually finishing everything I have started


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GRAMMA_ME Posts: 198
6/15/09 3:11 P

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I was A t4 but have been in remission for6 months now emoticon I told my self You are a fighter dont give up. Then the doctor say my cancer can come back. Lets hope and pray for me and everyone else who has to go thru all this.

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6/15/09 1:25 P

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I have had three remission dates but am now dealing with tumors again. Because I have stage IV cancer, I guess I will never again be cancer free in the true sense of the term but I still plan to be "on the green side of the grass" as my Dad calls it for many more years.

Terje
Captain- Crazy CAMO Crew

POLKA DOT JERSEY RECIPIENT!

2011 Goals:
1. gym class 4+ x/week
2. run/walk 40+ miles/week
3. lose my last ten pounds by June 1st
4. maintain my weight for the rest of 2011
5. Train for my 60-mile walk
6. Eliminate my quilt UFOs by actually finishing everything I have started


 current weight: 116.4 
 
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105
IVYLASS's Photo IVYLASS SparkPoints: (121,166)
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6/15/09 12:29 P

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I guess my second surgery, when my doctor got clear margins, is when I should count from. That was June 26, 2008. I remember because 4th of July weekend we celebrated Cancer Free Boobies.

One stumble does not a failure make.

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KIPPY_63's Photo KIPPY_63 Posts: 851
6/15/09 9:27 A

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April 11th, 2003 I was diagnosed with Stage IIIB Nodular Melanoma. I have been in remission since August of 2006.





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LORI2008's Photo LORI2008 Posts: 1,624
6/15/09 9:08 A

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It's been about 13 1/2 months since my diagnosis.

Lori
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6/15/09 8:34 A

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I don't rememeber the exact date but I remember it was in April. Its been 35 years since I had Cancer of the Cervix and the Dr. had told me he had never had anyone that young in his office before with Cancer of the Cervix. I was 24. Now it seems to be a normal occerance.

Praise the Lord Carolyn that you've been Cancer free for 5 years. They say thats the passing mark. Maybe not in all cases but in most it is. I'd say its not going to return. Congratulations. Hope

Edited by: HOPE2BE at: 6/15/2009 (08:36)
Hope
co-leader of Challenged by Arthritis

co leader of Surviving Cancer. My motto is:
If God is for you who can be against you. Romans 8:31
If at 1st you don't succeed try try again

Henry H. Palmer teacher 1840
Tomorrow is a new day


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CAROLYN0107's Photo CAROLYN0107 Posts: 28,614
6/15/09 7:56 A

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Today I celebrate five years of being an Ovarian Cancer Survivor! Praise the Lord! June 15, 2004 my starting date.

What is your Cancer Survivor anniversary?

"Not Perfection but Progress" in my lifestyle changes.

Left Knee Fracture: 3-5-12
Left TKR 6-19-12


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