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MARTHA-ANN's Photo MARTHA-ANN SparkPoints: (85,961)
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8/1/08 3:25 A

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I can't help with any advice as I didn't have chemo but you guys are awesome, so matter of fact.
You're the best and I'm thinking of you all with love and great admiration. emoticon
Martha-Ann.
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martha-annsmiscellany.blogspotMartha-Ann, Yorkshire, England.

You are welcome to browse my photos at www.flickr.com/photos/martha-ann www.flickr.com/photos/martha-ann

And read my poems and prose on my blog page at martha-annsmiscellany.blogspot.co.uk

It does not matter how slow you go as long as you don't stop. Confucious.

You only get out what you put in.


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ANTEEKER's Photo ANTEEKER SparkPoints: (13,802)
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7/31/08 7:34 P

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Hi everyone.

I have a chemo question?
I just had my first session on Friday. The gum tissue upper inside of my mouth feels like an alligator skin. Any suggestions on oral hygine?
I got an infants soft tooth brush, should I use an oncology mouth wash?

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Michelle
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SHEMARIE's Photo SHEMARIE Posts: 385
7/31/08 5:30 P

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HI Ivy, Just letting you know I am thinking of you. I called the red stuff, the red kool-aid!!! Then I had Taxol too, I had a few side effects from that also. But the funnest thing I did at times was to answer the door without a cap or head wrap on. Poor UPS guy!!!!!! My grandkids were alot happier when I grew my hair back.My rad treatments were done the end of Jan. IF you can make sure you put your special aloe vera jelly on before like a few hours before it really helped me from burning. I hope your doing as best that can be expected. IF i can get through it anyone can!!!!! best wishes Sheila

I hope to strive to be healthy and happy again. Love to my grandsons: Elijah, Dallas , Trace, and Aiden and Hunter and a new grandchild no.6 is Gunner !


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STEPHDIP's Photo STEPHDIP Posts: 247
7/31/08 3:33 P

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Listen to all of us talking, matter of factly, about our treatments and such...we ROCK!
Cancer doesn't have anything on us!


Somewhere out there ...Someone who is BUSIER than you is working out.
-Nike Ad


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (167,792)
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7/30/08 3:44 P

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I didn't get my radiation til after I was done with chemo, and then my doctor wanted me to rest and recover for a month before I started the rads. I started the Tamoxifen though about 2 weeks after my last chemo. No longer on that one, currently on Faslodex for the hormonal treatment.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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IVYLASS's Photo IVYLASS SparkPoints: (123,304)
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7/30/08 12:23 P

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Once chemo is done, I start the radiation. I may or may not start the hormone therapy at that time...that's still to be determined.

One stumble does not a failure make.

Everything in moderation.


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STEPHDIP's Photo STEPHDIP Posts: 247
7/30/08 11:11 A

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I don't know how they come up with the protocols but for me...I got chemo in conjunction with radiation. They aren't sure if the chemo boosts the radiation or vice versa. What they do know is that both together kill it faster and more effectively!

Congrats with being half finished! YEA!!


Somewhere out there ...Someone who is BUSIER than you is working out.
-Nike Ad


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LORI2008's Photo LORI2008 Posts: 1,624
7/30/08 9:57 A

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Thanks, Vicki! I thought about it this morning and realized that getting all three drugs at the same time for the entire 16 weeks instead of 2 the first half and 1 the second half was definitely a much more aggressive approach.

Lori
VALLEN112's Photo VALLEN112 SparkPoints: (4,231)
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7/29/08 9:37 P

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Hi Lori
I think I can answer this...
Oncologists all over the world are conducting clinical trials to find the most effective modes of treatment. During these clinical trials they will have one group, for example, use the currently acceptable treatment - say two drugs, then give the "experimental group" a combination of those two drugs plus one. notice I never mention a placebo (sugar pill) those are not give at this level of clinical trial.
When they get the results of the trial they will compare the effectiveness of one mode of treatment to the other... and then come to a concensus as to what is better for the patient and then put it out as a new statement for treatment.
This is a worldwide phenomena and there is alot of sharing of ideas and results so that this information is shared for the benefit of the patients, not necessarily the researchers.
Hope this helps a little as to how they have come possibly with your combination of drugs.
Vicki

Vicki
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LORI2008's Photo LORI2008 Posts: 1,624
7/29/08 9:24 P

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Some day I'd really like to be able to find out how the doctor decides which combination of drugs to use, how many weeks apart to set each treatment and how many treatments the patient should have. Do they just work from a cheat sheet? Okay, you had this stage and this or that negative/positive so you get this, this and this, every X weeks for X times.

How come I'm getting all three at once instead of split up?

Lori
MOM2ACAT's Photo MOM2ACAT SparkPoints: (167,792)
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7/29/08 8:17 P

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Hurray for being half done!

Lori, I had almost the same drugs, Adriamycin and Cytoxen (not sure if I'm spelling it right) first, I had those June, July and August of 2003; after I was done with those, I had 12 weeks of Taxotere.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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IVYLASS's Photo IVYLASS SparkPoints: (123,304)
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7/29/08 1:33 P

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I'm getting Adriamycin (the Red Devil) and Cyclophoshamide (sp?) during this round. The Adriamycin they give me in a syringe, takes about 10 minutes to press the plunger, and the C-stuff I get via IV.



One stumble does not a failure make.

Everything in moderation.


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LORI2008's Photo LORI2008 Posts: 1,624
7/29/08 1:06 P

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Are you only doing one chemo drug at a time? I get three different drugs each time I go for treatment - Taxotere, Adriamycin and Cytoxan.

I'm glad your appetite has been better! My hair started to fall out badly right before my second treatment so I buzzed it down to stubble. But even that started to feel horrible and I started to have a very patchy look. So last week I shaved it all off. I actually feel a lot more comfortable now. I wear my little hats and what my co-workers have come to call my pirate scarves when I'm out in public, but I don't bother when I'm at home unless the air conditioning gets a little cool.

Take care of you!

Lori
VALLEN112's Photo VALLEN112 SparkPoints: (4,231)
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7/29/08 9:31 A

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Okay - two funny stories about the benedryl sleep:
first, once I slept thru treatment and they were trying to wake me up for my doctor's appointment... and I woke up typing on my laptop... except I didn't have my laptop with me... lol
second, I found out that when I start to get sleepy I have to put away my knitting... apparently one time I didn't and when I woke up a couple of hours later I had improvised so well on my pattern that I had to rip the whole thing out because I couldn't figure out what I had done... again lol.

Buy really colorful, shady hats (okay, I live in Arizona, not much shade.)
Take care of yourself.
I have my #18th Chemo of Carboplatin, plus the 12 I took 2006/2007 of Taxol alone makes a total of 30 chemos...so far... not trying for a record, just fighting for my life!
Vicki

Edited by: VALLEN112 at: 7/29/2008 (09:29)
Vicki
Help Break the Silence...Talk About Ovarian Cancer


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CAROLYN0107's Photo CAROLYN0107 Posts: 28,678
7/29/08 8:42 A

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So the Benadryl put you out this time. That makes the time go faster, right? I'm glad you're doing ok. Sorry about the hair falling out but I'm sure you were expecting it. The summer hats are fun ones at least! Keep us posted.

"Not Perfection but Progress" in my lifestyle changes.

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Left TKR 6-19-12


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IVYLASS's Photo IVYLASS SparkPoints: (123,304)
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7/29/08 8:32 A

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I am halfway through my first treatment. After that, it's four treatments of Taxol.

One of the pre-meds they give you is Benadryl, in case of allergic reaction. The first time it made me a bit sleepy, and I dozed for about five minutes. This time, it put me right out. The nurse said I was probably nervous the first time, which kept me awake.

I ate both before and after treatment, but my hair is starting to fall out. I'll be sporting the GI Jane look soon! If that's the price to pay to keep the Ladies, I'm okay with it.

I'll be drinking lots of water and taking it easy. Thanks, everyone!

One stumble does not a failure make.

Everything in moderation.


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