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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
11/3/13 3:14 P

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BGRN13, You are absolutely right that we can only do so much, and that we shouldn't apologize for who we are or what we need to do to take care of ourselves. I totally agree.

But... Is it really a waste of time to educate people? Does that kind of discrimination or misconception stop if we just ignore the issue? How is it that more people know about fibro now, if no one tried to find answers and explain it?

...for me, I say it once. Point them in the right direction. If they ask questions, I try to answer them. It they don't, oh well. At least then I can let it go, knowing I've done my part in eliminating misunderstanding, and what they do with the information is up to them.
Just sayin'...
Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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10/30/13 5:15 P

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I hope you know it's not all in your head! It's hard to be like us and no one can "see" anything, so we must be ok. Can you "see" cancer? Heart issues? Asthma? MS? Nope. I was diagnosed when I was 20 and the term "fibromyalgia" was very new. I'm now 40, the word is better known, but a lot of people are still ignorant. Don't waste your time trying to convince people. You don't need to explain yourself. Esp. to people like you described. Life's too short! YOU know what's wrong and YOU know it's not all in your head. If they don't get it, that's their ignorance issue. You can only do so much. Don't apologize for who you are or what you need to do to take care of yourself. Somedays, you're the only person you can count on.

Good luck!!!

*Good moms have happy children and dirty floors."

*You must be the change you wish to see in the world." Ghandi





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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
9/27/13 10:17 P

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I was SO glad that a friend sent it to me...LOL
I'm glad if it helped a bit...

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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JAMER123's Photo JAMER123 SparkPoints: (225,884)
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9/22/13 9:00 P

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Good article, Kathy!! I wasn't aware that these type of studies have been done nor the results. Much appreciated!
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Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


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JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
9/22/13 9:53 A

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Thanks, everyone for the great articles. I totally forgot about the spoon theory. I wish I would have thought of that during the discussion. Oh well, now I'll remember it for next time.




Virginia,MN

I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
9/22/13 8:23 A

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We all have those moments... it kind of goes with, sadly.
I love the Spoon Theory--it explains what it's like to live with lupus, but is also SO applicable to our situations.
Here's something else that may help:

www.anapsid.org/cnd/diagnosis/brainp
ai
n.html


Kathy emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,949
9/21/13 9:46 P

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Jeannie, there's another article called The Spoon Theory- But You Don't Look Sick. It's very good, especially if you have Chronic Fatigue Syndrome along with Fibromyalgia, as I do.

www.butyoudontlooksick.com/navigatio
n/
BYDLS-TheSpoonTheory.pdf


Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
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9/21/13 9:38 P

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Jeannie, I was looking for the article called Chronic Pain which describes FM well and I have shared it with others that don't believe. Can't find it but here is a link to a copyrighted article that has a lot of good info! Hope this helps a little.

fmscommunity.org/

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


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JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
9/21/13 4:22 P

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Thank you so much. I think that just might help. I had to post it to my facebook account, so other friends and family might get it.

Edited by: JEANNIE1238 at: 9/21/2013 (16:28)


Virginia,MN

HIPPIEGURL's Photo HIPPIEGURL Posts: 4,949
9/21/13 2:32 P

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Hi Jeannie,

Here's a great article that your roommate needs to read. You can either plop your computer down in front of her to read it or email it to her. It says it all to the uninformed!

www.healthcentral.com/chronic-pain/c
f/
slideshows/top-10-things-not-to-say-R>to-a-fibromyalgia-patient/we-all-get
-m
ore-aches-and-pains-as-we-get-ol
der/?ap=825


Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
9/21/13 1:56 P

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So I have a new roommate who thinks that fibromyalgia is all in my head. That if I didn't think about the pain it wouldn't be there. No one thinks of the pain 24/7. It's there and we just go on with our lives the best we can, but he just doesn't get it. Thank goodness I'm waiting on a reference, then I'll be able to move out of here and into a place for the elderly and disabled. But until then I have to put up with this guy's questions and I really have no clue as how to get it in his head that it's not at all in mine. To top thinks of I'm getting a divorce and my husband warned the guy about my early bedtime and they laughed about it. Hence why I'm getting the divorce. I do go to bed early most night, because I want to try and squeeze in as much sleep before 5:30 comes around. The not getting the whole, I don't get a full nights sleep ever. No one with fibromyalgia does. It's been studied. It just really bugs me. We work so hard to live with this horrible condition and when our friends and family won't listen to explanation it' not right. I know it not a nice thing to think, but some times I wish they could live through a few of my worst flare up days to get an understanding and gain some compassion.
Sorry about the vent,
Jeannie

Edited by: JEANNIE1238 at: 9/21/2013 (14:05)


Virginia,MN

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