I read a book years ago 'Overcoming the Pain of Inflammatory Arthritis'. It is available on amazon.com. The author Phyllis Eisenstein describes terrible pain she eventually lessened with Pantothenic Acid which is vitamin B5. I have had flares of Fybromyalgia myself, not as bad as you describe, but B5 might help. I suggest reading this book.
Fitness Minutes: (2,560) Posts: 178 1/1/14 1:44 P
I went to a my dr here in Canada. He tried a nerve blocker called Gabapentin or Neurontin. It seems to help the pain. It blocks the pain signal from the brain to my body.
Don't get me wrong, it is not perfect by far. It helps and makes a lot of my days manageable. I still have a lot of pain as I have a long list of health issues. But without my Gabapentin, I would be in bigger trouble. It is a pain manager.
Research it out on Pacific Rheumatology in Seattle. I had a Rheumy there and he was awesome to say the least. He is also talking about this same drug and the work it does.
Nothing is perfect for us. However for each of us, different things work. We never know if we do not try it. What is good for me may not be for you.
I hope you have better pain managed days. One small step at a time.
Jan Barrie, Ontario Canada Eastern Time Zone
current weight: 198.0
Fitness Minutes: (1,518) Posts: 176 12/31/13 11:10 A
Thanks y'all for your help and kindness. I know I haven't come back here or anywhere on sparkpeople, but I am back now. Hot baths do help. I have a lot of issues with medication though. I can only take Cymbalta and I think I wore it out. I am currently taking flexeril and Motrin. Its the only thing I can get right now. Sometimes it helps, sometimes not.
It's quite true that for some people, certain foods can trigger flare-ups. For me, gluten has no effect one way or another--but keep me away from any artificial sweeteners! Yikes!
I'm diabetic as well as having fibro (actually, I have a long list...LOL) and can't use ANY of the sugar substitutes on the market without setting myself up for a major flare-up... I just tell people I'm allergic, 'cause I might as well be. And yes. It really IS exhausting being in that kind of pain.
I'm having a bit of a mild flare-up myself from doing too much on a good day... we walk a line between doing enough to make a difference and doing enough to do set ourselves back... and the line changes every day!
Oddly enough, and I've said it before, even the worst flare-ups I've had have eased when I started learning to work through the pain. You do need to let it take it's course, but as hard as it may be, stretching is key to getting the nerve signals back on track.
My rheumatologist and my physical therapist both told me that the longer I stay down, the worse the pain will get...and the harder it will be to get out of next time. Apparently I have to give my muscles and nerves something else to do besides scream at me--and for me, that's where the heat and the bath--or the ice-- and the meds and so on come in.
I start with itty bitty movements... and if that's all I can do, it's what I do until I can bump it up.
My heart goes out to you, sweetie...
Hope the worst is over soon...
Edited by: I.M.MAGIC at: 8/26/2013 (18:50)
"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm! P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!
Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL
Life comes in si
Pounds lost: 10.6
Fitness Minutes: (980) Posts: 96 8/26/13 10:55 A
I'm so sorry you're hurting so much. I hope you're feeling better by now, but if not, just keep doing what all these wonderful people have already suggested. I just wanted to tell you I have pain like that sometimes, too. I see a neurologist and he's great. If your dr. isn't helping, it's time to find a new one. Anyway, hang in there and take care of yourself. Gentle hugs!
"Goodbye. Be good. Take care of yourselves, and don't leave the path." ~ Gandalf
MSMSLIN--you poor thing! I am so sorry you are going through such pain!
Sounds like you skin and muscles are hyper sensitive right now and the nerve communications are going crazy. A painful cycle of inflammation and miscommunication of nerves.
Does heat help? I know that anything touching your skin must sound terrible. But would you be able to manage a soothing bath? Epsom salt baths can help detox toxins and you absorb the minerals, especially if you add additional real sea salt. If you can manage it, it may relax your muscles and body enough so that you sleep better that night. It's all temporary relief though.
Something I did a year ago that helped me have less frequent flares and manage the inflammation in my body was get the gluten out of my diet. Everyone is different, so I don't pretend to know anything about you, but if you find it helps, at all, why not?
I hope you feel better! keep hanging in there.
GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.
I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts. pinterest.com/willdance4joy/
current weight: 138.7
Fitness Minutes: (134,254) Posts: 27,339 8/24/13 9:38 P
I too, know the pain and have a DR. that understands. He is willing to work with me, trying different meds. I still have pain daily but can work with it as long as I have the pain meds and my sleeping pill. The flares are very painful and as you see, one has to let the FM have it way and when the flare eases, start doing a little more slowly. Relaxation, meditation, focusing on anything but pain, etc. all work. I also do deep tissue massage that is not comfortable during the massage but do unknot some of the knots so that I can have a day or 2 of some relief. But if you look into that be sure the one you try is well versed in working with FM. Many don't know how to deal with us. We are the unknown because we never know when or where the pain is going to hit hard. Hang in there. Try not to stress and try not to focus on the pain. It's amazing what your mind can do to help you!!
Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner. Try to be all that you can be. Work at it a day at a time.
"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)
With God all things are possible.
If you have the courage to begin, you have the courage to succeed. ~ David Viscott
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Fitness Minutes: (1,518) Posts: 176 8/24/13 4:51 P
thank you for writing back I really appreciate the ideasI guess I really wanted to know if it is supposed to hurt that much then I guess it is. I took extra pain medicine and now I'm just chillinthank you so much again
So sorry you are in so much pain. It sounds like you are in the middle of a flare. Yes, the pain is out of this world. It's very frustrating to not be able to stand or sit and laying down is a problem too. I have been through this lots! What I would do at this point is medicate with pain reliever, soak in a nice hot bath for as long as you can tolerate, get into some comfy clothes and head to the bed or couch, stuff lots of pillows around you and chill. At this point I am normally tired. I suffer great fatigue with my flares so sleeping for me is never a problem. But if you are not tired watch TV or read a book. Just chill, you are out of commission until this flare is over. Do not try to tough the pain out by not taking the pain reliever. Take it every 4 or 6 hours like it says or else you are always chasing the pain and it just makes it harder on your body. A muscle lubricant like Deep Cold or A535 works good for me too.You need to go to your Dr. and make him understand what you are going through or get him to send you to a Rheumatologist to diagnose you and get you on the right pain medication. I hope you feel better soon. If you do this let me know how it works for you. Take care and get some much needed rest.
Maslin, are you seeing a rheumatologist, or just a general practitioner? A rheumatologist is well trained in the conditions of Arthritis and Fibromyalgia, and if he/she a reputable physician, WILL help you with your pain! I see a wonderful rheumatologist who is doing everything he can to ease my pain. Maybe you can talk to your pharmacist to see if they can recommend a good rheumatologist in your area. Even if you have to travel a little bit, it would really be worth it for the relief. If I didn't have my meds, I would probably hurt as much as you do. I took off my pain patch before I showered the other night and forgot to put on a new one before I went to bed, and when I woke up in the morning, I could hardly move. I stood up and it felt like there were rocks in my slippers. Yes, I know your pain!
Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!
You are successful the moment you start moving toward a worthwhile goal. -Charles Carlson
Pounds lost: 65.0
Fitness Minutes: (1,518) Posts: 176 8/24/13 2:03 P
Like I said in an earlier post, I don't know much about this disease and y'all are the only people I've spoken to who has it. I want to know if its supposed to hurt this bad? I woke up screaming in pain, I couldn't move and its a good thing I wear diapers at night. Everything my body touches hurts. I can't ,well I can but it freaking hurts, to sit in a chair, lay on a bed and today the bottom of my feet hurt so I can't stand. Please tell me if this is how y'all feel too or do I have something else? The doctors act like they don't believe I hurt this much and I feel like I have to persuade them to help me. I go to the hospital, they won't help me. Would someone please help me?
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