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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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12/26/12 1:59 P

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Excellent news, except for not getting new medication. Hope the improvement continues. A calm bladder is such a huge relief!

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ABERLAINE's Photo ABERLAINE Posts: 6,289
12/25/12 5:02 P

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I never heard from the pharmacist, so I never got a new drug. The vesicare seems to be working better and I've put away my big Poise pads. Now I only need little panty liners for urge incontinence (when I cough or sneeze).

emoticon

Nancy
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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12/8/12 12:35 A

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Hi, Nancy, That's a LOT of money for a prescription! I wonder why the doctor prescribed this drug, instead of an older, less expensive one, maybe with fewer and less scary side effects. Makes one wonder... But I'm a suspicious sort, anyway.

It's good that your bladder is healthy. Now the question is why the problems? I have the same questions for myself, and it always comes back to the fibro. I know fibro isn't supposed to be an inflammatory illness, but it seems to me that inflammation has a definite role here.

I hope your new med is helpful and easy on your body. Having a calm bladder is a wonderful thing, once the opposite has been experienced.

Hoping for a calm and happy weekend for us both!
--Beth.

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ABERLAINE's Photo ABERLAINE Posts: 6,289
12/7/12 2:48 P

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Hi Beth,
I saw the urologist this morning. He checked my bladder and found it to be in good health. I think he agrees with me that I have an overactive bladder because he prescribed "myrbetriq".

Unfortunately my insurance doesn't cover it and a month's supply without insurance would cost $280! The pharmacist has a call into him for a different, more common drug that an insurance company would cover. I'm just as glad because the side effects were staggering.

At least I've gone as far as I can; I now have answers, if not solutions.

Nancy
Co-Leader: Fighting Fibromyalgia
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Leader: Buffalo Bills
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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12/4/12 9:54 P

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"Why is it that we can't take one drug to help with one condition without creating a brand new condition?"
Nancy, you just won the prize for the best question of all time. Side effects are a huge problem. That's why I refuse to take Lyrica or Cymbalta. Too many possibilities for problems from the drugs. I don't know what the answers are, other than not need the drugs to start with. Now, wouldn't THAT be nice! I think an option is complementary medicine, combining western and so-called alternative medicine. That said, none of the 'alternative' irritable bladder remedies I've tried have helped much. Not sure where to go from here. If I had unlimited funds I could go consult a naturopath, and an herbalist, and have weekly massages too. And not need to work, which would decrease my stress levels, and we all know that helps!
Sending good thoughts for you doc appointment. Hope something good comes of it for you.
--beth.

Edited by: PURPLEDRAGONM at: 12/4/2012 (21:54)
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ABERLAINE's Photo ABERLAINE Posts: 6,289
12/4/12 7:53 P

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I see the urologist for the first time this Friday. In the meantime, I've stopped taking Abilify which is a mood enhancer to help my SAD. But one of the side effects, written in tiny lettering, is bladder problems.

Why is it that we can't take one drug to help with one condition without creating a brand new condition?

Nancy
Co-Leader: Fighting Fibromyalgia
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BLUEBIRDNANNY's Photo BLUEBIRDNANNY SparkPoints: (5,081)
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11/30/12 3:49 P

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I go through this all the time. Hence I completely (almost) ignored the last episode... then I got a fever and low back pains. Sinus and fever blisters on end AND inside nostrils didn't help.

Started my normal remedies for back pains, sinus, fever blisters and urinary incontinence.

But the fever was different... thought had got what was going around. But............. my normal I can always go & go & go turned into trickling!!!! With urgency within 1 minute!!!!

Finally to Dr... for "respiratory" (have asthma too) and urinary differences. Yep... throat still reddish. Lungs thankfully clear. At first negative on urine bacteria..... then while still in with Dr they came back and said a delay showed bacteria!!!

So it wasn't my bad back or normal incontinence but an infection. Bronchial/throat/nasal infection too.

And I was ignoring it all as normal flare ups of different conditions I have!!!!! Fever of 100-100.9 for a week and half despite Norco (which contains Tylenol) was the real factor that kicked me to action.

That which I Will to happen in truth, I will put action behind to achieve and the Lord will help me if I ask IN BELIEF!


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
11/29/12 9:33 P

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Have you been checked for diabetes and/or kidney disease? A simple blood test... urinary frequency is one of the MAJOR symptoms of uncontrolled diabetes, so it's definitely on the list of things to look into... I have both. Not fun... but knowing is better than not, since there are things you can do...

Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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11/25/12 3:53 P

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Hope the Detrol helps you. I take the tiny 1mg dose, but not every day. I'm so sensitive to medications that the doctors get frustrated with me. I have to find my own dosing for most of them, a balance between function and side effects. I will say that it's nice to have a quiet and calm bladder sometimes.

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TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (35,458)
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11/25/12 1:16 P

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I sure hope it helps. Let us know if it works.

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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ABERLAINE's Photo ABERLAINE Posts: 6,289
11/24/12 2:34 P

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I'm going to ask my doctor about Detrol. Vesicare isn't working at all.

Nancy
Co-Leader: Fighting Fibromyalgia
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Leader: Buffalo Bills
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Dream it. Do it.


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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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11/16/12 1:33 A

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I looked at Cystex today. Unfortunately, the active ingredient is a NSAID, which I cannot tolerate. Humph. Guess I'll stay with the Detrol, although I can't take it every day. Oh, well. I do appreciate the information, regardless.
--Beth.

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CAROLHARMON's Photo CAROLHARMON Posts: 345
11/14/12 5:29 P

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Yes that is it, sorry about the spelling. emoticon

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ABERLAINE's Photo ABERLAINE Posts: 6,289
11/14/12 3:40 P

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I found an otc product called Cystex. Could that be what you're talking about, Carol?

Nancy
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Leader: Buffalo Bills
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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11/14/12 11:18 A

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Hi, Carol. I can't find any information on the otc med Cystics. Does it have another name? Where do you buy it?
Thanks!
Beth.

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ABERLAINE's Photo ABERLAINE Posts: 6,289
11/14/12 9:47 A

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Carol, thanks for the suggestion of the OTC medication. My prescription of Vesicare doesnít seem to be working at all. I see my doctor next Tuesday. Iíll ask her about taking Cystics.

Beth, I stopped using Equal years ago, but I still use Sweet & Low. I have Stevia in the house and think Iíll switch to that. I love coffee and when I make it, I use half decaf and half caffeinated. Iíve gained about 20 pounds over the past few years and am trying to lose it. Another good reason to be serious about weight loss!

Thanks ladies!


Nancy
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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11/4/12 11:15 A

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Hi, Nancy. I, too, have the old urgency and frequency. VERY annoying and inconvenient. (Thank you fibro... emoticon ) I use Detrol 1mg, as needed, if I am going to be traveling or in a situation where I don't have control of my schedule. If I take it too often it gives me a sore throat, so I use it selectively.

I've also found that artificial sweeteners, especially aspartame (Equal, I think. Sorry, having a brain foggy morning!) cause me to have awful bladder spasms. Needless to say, I avoid those! I use stevia when I don't want sugar. Caffeine is also a trigger for my poor old bladder. Black tea is a very occasional treat, green tea is better tolerated, but mostly I drink herb teas.

My weight loss also seems to have helped decrease the problem! Yay for an unexpected benefit!

Hope some of this helps, and know you have a kindred spirit.

--Beth.

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CAROLHARMON's Photo CAROLHARMON Posts: 345
11/3/12 8:17 P

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Hi, I also have bladder spasms and I use an otc med. called Cystics. It has worked for me with no side effects. Ask your Dr. about it. It is for bladder spasms.

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ABERLAINE's Photo ABERLAINE Posts: 6,289
11/3/12 7:32 P

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Thanks for the comments and concerns, ladies.

I've been to see a nurse practitioner in the urology department twice now for what I thought was a UTI. Nope, just bladder spasms, no burning. Had a CT scan last Monday. Results: all negative. In December I have an appointment with the urologist himself.

In the meantime I'm doing Kegel exercises and making myself visit the bathroom every few hours. I also started VesiCare earlier in the year when I had only stress incontinence. Now it's much worse. But I'm handling it. I hope the doctor can suggest something.

Nancy
Co-Leader: Fighting Fibromyalgia
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Leader: Buffalo Bills
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TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (35,458)
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11/2/12 9:14 P

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Always check with your doctor for anything like this. However, I do know that bladder spasms are experienced by a small per cent of people with fibro. There are other conditions that can cause spasms as well. I hope you can find some relief!
emoticon

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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ANNAKOUKLA's Photo ANNAKOUKLA SparkPoints: (76,336)
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11/2/12 2:17 P

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I have not experienced this. Have you spoken to your doctor? I hope you feel better.

"Forgiveness is the fragrance a violet sheds, after a heel has crushed it." ~Mark Twain.



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ABERLAINE's Photo ABERLAINE Posts: 6,289
11/2/12 2:01 P

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This is a subject that not many people talk about. I'm just learning about it. As a matter of fact, I have an overactive bladder (spasms). (So that's what Depends are for!) emoticon I've had UTIs before, but this is much worse. And there doesn't seem to be a cure. And I'm not THAT old!

Anyone care to comment about this very sensitive topic?

Nancy
Co-Leader: Fighting Fibromyalgia
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