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GIRANIMAL's Photo GIRANIMAL SparkPoints: (34,665)
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10/22/12 6:33 P

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Ah, see, such a wealth of information here! Thanks, Sandy! Sorry to hear it's a tender spot for you too. I don't suppose your rheum. also told you that about anxiety-like physical symptoms but without feeling fearful or, well, emotionally anxious? Sheesh. I am pretty sure life does not NEED to be so complicated. emoticon

Edited by: GIRANIMAL at: 10/22/2012 (18:34)
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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,945
10/22/12 4:22 P

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GIRANIMAL,

When was diagnosed with fibro, many years ago, my rheumatologist told me that tenderness at the base of the sternum was typical for a fibro patient. I still have it today.

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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GIRANIMAL's Photo GIRANIMAL SparkPoints: (34,665)
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10/22/12 3:16 P

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OMG, costochondritis! Or the rarer Tietze's syndrome. I forgot all about this, but you just reminded me, Lisa!

It was a little bit different in that it felt more like a rib out of place, but I did have a chiro say that I probably had that, oh, I dunno, a couple of years back. And a search confirms now -- it's common in fibro patients. (What pain ISN'T, LOL?)

I don't know how it connects to the pseudo-breathing thing I get, or maybe it doesn't at all!



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Angie
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TURTLESLOW14's Photo TURTLESLOW14 Posts: 7,227
10/22/12 2:42 P

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Yes I have experienced that with the sternum, I had such bad pain that they thought that maybe I had pulled a tendon somewhere but it didnt show on the xrays. It took my pain nearly 3 weeks before I could breathe without from sharp to tender pains. I truely believe it was from having a severe panic attack, the one that sent me to the ER since they could not find anything to say this is what caused my pain. I would still say going to a dr is very important just in case a tendon has been pulled, however there is really nothing you can do for it but take pain meds and wait for the pain to pass.

Lisa(AKA...Kitten)
Harvest moon Septemper BSG
Sensational Sisters August BSG
Current Weight 220 (September 2, 2014)
Highest Weight 225(October 20, 2013)
Goal Weight 125
1st goal weight- 5% =11 lbs--212 lbs (13lbs lost) May 19th 2014
2nd goal weight -5%= 11lbs--
3rd goal weight-5%= 10 lbs--
4th goal weight- 5%=9 lbs--
5th goal weight5%=9 lbs=lbs
6th goal weight 5%= 8lbs= lbs
7th goal weight 5%=8 lbs--
8th goal weight 5%=8lbs--
9th goal weigh


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10/22/12 2:42 P

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Hi gals! I agree, the blogging suggestion is a great one since I can't seem to identify any triggers. But like a lot of fibro patients, I have a type A personality with a tendency to stretch myself too thin, so there's a chance I am just not paying close enough attention.

Also, I wanted to clarify: the tenderness is sort of at the very bottom of and below my sternum, the very top of the space between the ribs. If I push on it, it's uncomfortable, but sometimes it does also make me feel like I am getting more air, even though I am never actually short of breath to begin with -- I can inhale fully, it just feels like it's not, I dunno...going where it needs to? Sorry! I know that's very muddled. I have been trying to explain it to doctors for a couple of years now (on and off) and still can't find more accurate words! (For the record, I have had lung functioning tests, heart tests, my allergies retested -- I am not asthmatic -- and even gallbladder ultrasound based on the location!)

Anyway, thank you again for your sharing and willingness to help!

~*~
Angie
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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 518
10/22/12 2:13 P

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Hi Lisa. Your suggestion to blog while having an attack is really interesting to me. Most of the time I do know what sets me off, but occasionally I will have an attack seemingly for no apparent reason. Writing about the experience to find a pattern seems like it would really be helpful. I'm not hoping to have another attack any time soon, but when I do I hope I can remember your advice if I'm not too freaked out! This may help Giranimal determine what's going on, but I still wonder about the tenderness to touch at her sternum. Have you experienced that?

Cathy

Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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TURTLESLOW14's Photo TURTLESLOW14 Posts: 7,227
10/22/12 1:54 P

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It does sound like anxiety/panic attacks to me. I have had lots of them over the last 3years and what you are describing is very much like mine. I even went to the ER once because I really thought I was having a heart attack but all my tests came back fine. Most of the time they are only supposed to last a few minutes up to a few hours, I have had mine last all day long for no real apparent reason that I could find at the moment. I know I have some triggers and I try really hard to avoid them. And yes I have also been told that anxiety and depression go along with fibro sometimes its the Fibro causing the anxiety and depression or the anxiety and depression and the stress brings about the Fibro. It may help you to blog when you are having these attacks, like what you are doing, where you are, what the weather is around you, the people around you, your feelings at the time, being as specific as you can then as you get more and more documentation look for patterns.......that is what I do and have done and is the reason I am able to find some of my triggers. I hope that your day today is not to bad and that you have some peace. My thoughts are with you because I can feel your pain.

Lisa(AKA...Kitten)
Harvest moon Septemper BSG
Sensational Sisters August BSG
Current Weight 220 (September 2, 2014)
Highest Weight 225(October 20, 2013)
Goal Weight 125
1st goal weight- 5% =11 lbs--212 lbs (13lbs lost) May 19th 2014
2nd goal weight -5%= 11lbs--
3rd goal weight-5%= 10 lbs--
4th goal weight- 5%=9 lbs--
5th goal weight5%=9 lbs=lbs
6th goal weight 5%= 8lbs= lbs
7th goal weight 5%=8 lbs--
8th goal weight 5%=8lbs--
9th goal weigh


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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 518
10/22/12 1:50 P

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Hi Giranimal. I have chronic anxiety, and I also have occasional panic attacks. My panic attacks aren't always triggered by something specific, sometimes they just come out of nowhere. Everything you describe -- sweating, nausea, tightness in chest -- goes along with a panic attack. However, you mention tenderness to the touch at your sternum, and you don't mention a racing heart or a feeling of fear. So this does not sound like typical anxiety or panic attack to me, but of course I'm not a doctor and I don't know you. If you're like me, you're probably trying to self-diagnose. With all the weird symptoms I have with fibro, it takes a lot to get me to the doctor anymore. But in your case, it might be worth a visit to ease your mind, especially since it seems to be getting worse. Good luck to you, and I hope you start feeling better.

Cathy


Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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GIRANIMAL's Photo GIRANIMAL SparkPoints: (34,665)
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10/22/12 11:43 A

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Hi all! Hope you're feeling your best today. I am not emoticon and am rather confused by the past few days. Thought maybe you'd have some insight!

For quite some time off and on I have what I can only describe as trouble breathing (even though it's really not). It's not asthma or anything like it. I've had a half dozen tests and my lung function, etc., is fine. And I AM getting enough air, it just feels sort of tight in my chest and actually tender to the touch right below my sternum, sort of where the rib cage comes together. Does this sound familiar to anyone? Docs have suggested it's acid reflux. Dexilant did help for a while, possibly, but it's hard to say since it comes at goes at will and lasts for hours and hours (usually all day!) once it starts. It makes me feel sort of foggy and kinda wiped out too, like it's hard to focus on anything but it. Some also have suggested anxiety, but I have been hesitant to accept that because there's absolutely NO emotional trigger.

So both days this weekend it happened again, only worse -- I also got sort of hot flashes (sweaty but clammy) and felt nauseated and just kind of woozy. I decided to go to yoga yesterday anyway, hoping it would help. (It did. Plus, my instructor noticed something was up right away and I think he kept an eye on me -- so nice!)

Now I am wondering all sorts of things: a) does this actually sound like anxiety to any of you? b) how many people with fibro also have anxiety? and especially c) is this ever just part of a flare for some of you? Because despite minimal pain last week (felt pretty decent for a change!), I slept in both days this weekend (so tired!) but then TERRIBLY last night, and today I am super achy and (no surprise) foggy. And the pain feels deeper than typical post-yoga soreness has so far. You know, in that super-awesome classic fibro way.

Any input would be greatly appreciated. I hope you all are faring better this lovely Monday morning! emoticon

Edited by: GIRANIMAL at: 10/22/2012 (12:44)
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Angie
~*~


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