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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
3/30/13 8:42 A

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For now, I'm trying to ignore it. I'm hoping by not paying attention to the itching it will get tired of bothering me and go away. But if it gets much worse, my next step will be a neurologist since nothing else has worked.

Cathy, Co-Leader
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"Any day that my gratitudes exceed my expectations is a good day..."


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MEG-NATALIA07's Photo MEG-NATALIA07 Posts: 679
3/28/13 9:06 P

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The itching is only when I'm really overloaded or doing treatments too aggressively (MMS/enema, supplements), so as long as I work with my body at a much slower pace the itching seems to have stopped. I now consider it feedback. Because it seems to be a symptom and not a cause, I don't plan to follow up with a neurologist, if it comes back and I can't manage it then I will certainly consider it. But for now, it doesn't feel necessary. I'm keeping my fingers crossed. What about you?

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I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
3/27/13 11:14 A

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Hi Meg... since your DO suggests a neurological connection, will you be following up with a neurologist? I have considered seeing one, but keep putting it off.

Cathy, Co-Leader
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"Any day that my gratitudes exceed my expectations is a good day..."


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MEG-NATALIA07's Photo MEG-NATALIA07 Posts: 679
3/27/13 10:17 A

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All right! At my appointment with my osteopath (D.O.) he explained that the itching/hairs twitching sensation is a neurological symptom. That something is overloaded in my brain. At that time I was had just barely started an MMS enema as recommended by my other natural physician to help with what's been stressing my gut. Even at it's lowest dosage, I was having these symptoms: uncontrollable itching, sensitivity to sounds, irritability, headaches, nausea and inability to get to sleep and stay asleep. My natural physician also confirmed that I had this reaction because my system was overloaded with toxins, and was too toxic to take anything else. So we backed off the enema treatment an are working on probiotics, and bolstering the good stuff and helping my liver, especially, slowly detox the crap it's been dealing with. I'm sleeping so much better. I know the enema will help, but I'm not ready for it yet.

GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
pinterest.com/willdance4joy/


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MEG-NATALIA07's Photo MEG-NATALIA07 Posts: 679
2/28/13 12:35 A

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I am currently not taking any prescriptions or pain meds. I am taking specific supplements from an PhD acupuncturist.

GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
pinterest.com/willdance4joy/


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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
2/27/13 11:49 A

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One of the side effects I had when taking Savella was feeling as if all my hair was standing on end together with a tingling scalp. Most of this went away when I stopped taking the Savella, but the tingling scalp remains, as does the relentless itching. I try to ignore it during the day, but some nights I wake myself up with my hands up there scratching away. At least it's only my head! Several visits to the dermatologist and discussions with my doctor have proven fruitless.

Cathy, Co-Leader
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"Any day that my gratitudes exceed my expectations is a good day..."


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MEG-NATALIA07's Photo MEG-NATALIA07 Posts: 679
2/27/13 12:14 A

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I have just started this awful itching at night. The only way I could describe it was as if the hair all over my body was moving and driving my crazy. I have had some terrible sleepless nights. A vitamin deficiency or hormone issue? Really. Wow this is fascinating...

GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
pinterest.com/willdance4joy/


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MRSSHOWME's Photo MRSSHOWME Posts: 252
11/16/12 2:07 P

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I think that is one of the most frustrating things about the whole Fibro mess - how what works for one person will have no effect on another and horrifying side effects on yet another. I absolutely hear you on trading the annoying itching for pain relief.

I just got home from yet another doctor's visit - sometimes I think I spend more time at doctor's offices than with my family! This was a visit with my primary care doctor, and in some ways I think it was a good visit though - we had a very thorough discussion about all of my symptoms and went over results of sinus CT and thyroid uptake tests I had this week. Sinus really didn't show anything so we are back to the drawing board with those issues (but did show there was no need to continue antibiotic therapy after 6 weeks of various ones - but I am still running a low grade fever that has no apparent cause.) My husband is frustrated and wants me to start over with a new doctor but I really don't want to, and especially after today's visit where I am absolutely sure he is listening to me and is about as perplexed as I am as to what is going on in my body. After a 45 minute consultation with a lot of questions and discussion he told me he wants to think about it a while and do some research and will get back to me about maybe running some more tests. He said, as I have been feeling but didn't outright say, that though he does not doubt that I have fibromyalgia, that something else may be going on to be causing such extreme and debilitating pain and fatigue and general weakness. Oh, and the thyroid uptake did show some hyperthyroid activity after all the bloodwork showed no thyroid issues. My neck has been swollen for several months, I've had trouble swallowing and an ultrasound found multiple small nodules. But again, that doesn't cover a lot of other symptoms but I feel somewhat justified that yes, there is something going on with my thyroid. I am so frustrated all the way around!

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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
11/16/12 11:49 A

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MrsShowMe, it's interesting that you had an increase in leg cramps and restless legs from the Tramadol. I was recently diagnosed with restless leg syndrome, and the doctor told me that he often suggests Tramadol for his patients that can't tolerate the drugs usually prescribed for RLS. I have found it to help my legs, but I usually take it with Tylenol, so maybe it's the Tylenol that is helping me. It sure is weird how everyone reacts differently to medications. It's pretty much trial and error, isn't it? Thanks for your comments; I really do believe Tramadol is responsible for my itchy head, but I guess I'd rather scratch a little than be in a lot of pain.

Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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MRSSHOWME's Photo MRSSHOWME Posts: 252
11/16/12 10:23 A

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I have a lot of issues with itching too, but I've chalked it up to use of hydrocodone until reading this. I did have that side effect when taking it before post ankle surgery. Topaz, I think it *could* be a side effect of the Tramadol because it is a mild narcotic pain reliever. The problems I had with Tramadol was an increase in leg cramps and restless leg (and it really wasn't helping much.) I hope you find a solution that helps all the way around!

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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
11/7/12 9:52 A

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Thanks, Margie, for taking the time to try to help me. Fortunately, I have no open sores on my scalp -- just a lot of itching that I'm trying to get under control. I'm thinking I may try the aloe you suggested. I've tried everything else, maybe that'll work! I'm all for a natural remedy, because prescription meds sure haven't helped.

Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
11/5/12 3:43 P

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Oops-sorry it posted that last one twice.

Topazturtle- I am glad you asked your doctor if you are unsure of anything, first .Try natural itch control with honey and aloe vera juice. A splash of honey for the ‘band-aid like’ air-borne bacteria guard covering and holding in the trace sugar as of, Sugars that Heal’ nutrients, in natural organic cold pressed aloe vera juice. Aloe Vera can be bought by the gallon and used only teaspoons per day internally and externally and store the rest in a cool dark place; it saves more of the naturally occurring mannose. Mix these two fluids about one ounce of each in a dish and place this volume of mixed ‘itch control’ into a small container; pour one teaspoon at a time into your palm and dab finger tips of other hand in it then massage gently around the edges and on top lightly touch the soft crusting, do not break the skin. But fresh is best so use each batch no more than a day or two. A little bit can lock in the healing and protecting powers to promote faster healing to reduce that annoying itch. The indication of scab tearing will give a sticky finger tip as a result should that hand slip into scratch mode. It is amazing what can be had in a common kitchen idea found here in the land of milk and honey. This gives those curious fingers approval to touch. Go for a clean fortifying assertive measure instead of guilt. Allow approval to apply ‘skin food’ to improve the feeling away from that itchy condition, help moisturize the area, and inspect with sweet effect to your heart’s content twice a day. I am not a doctor just a home remedy user. Keeping damp wash cloth handy to catch the extra drips and cleanses the fingers does a swift clean up of sticky surfaces.

Essential oils are pretty heavy for this and a lot of diluting would be needed maybe with nut oil (omega-3 fatty acids). This simple step does ensure that you will do a lot of hand washing to keep germs off finger tips and scalp. The basic ingredients are usually non-allergenic and have no additional preservatives, safe on most types of skin unless you are allergic to any of these ingredients. Comfrey poultice would be good yet messing in the hair and arnica is not recommended by doctors to be placed on open skin. But Arnica is recommended up to daily of ten days before the cutting. Arnica lotions would have been great as a pre surgery fast skin healing technique in preparation of those closure locations, used by some homeopathic pros. These kitchen tools should be fine for your little head hole.



The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
11/4/12 12:27 P

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My scalp itches unbearably. I often wake up in the middle of the night scratching my head. I try to keep my hands off it during the day, or at least just using my finger tips rather than my nails. But when I scratch during my sleep, unfortunately I don't have any control and I wake up with a sore, tender scalp. When I mention it to my family doc or my rheumy, they look at me like I'm nuts. I have been to two dermatologists, and have been treated for seborrheic dermatitis and for rosacea. Nothing seems to help. I use Scalpicin for temporary relief. The only med I take that mentions itching as a side effect is Tramadol. Has anyone experienced itching with Tramadol? If I have to stop taking it, I will be in quite a fix as Tramadol has been the only drug that works for my pain that I can tolerate (other than Tylenol). Any insight would be appreciated.

Cathy, Co-Leader
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"Any day that my gratitudes exceed my expectations is a good day..."


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BGRN13's Photo BGRN13 SparkPoints: (8,692)
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9/2/12 10:07 A

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Just throwing in my experience w/this. A few years back, my dr put me on Cymbalta. Soon after that, I was itchy all over! Since it was Nov, I assumed it was dry skin & tried all kinds of things to get it to go away ( lotions, creams, oatmeal baths, benadryl, special soap, etc). It was driving me bonkers!!! It seemed to almost get worse w/dress, so Christmas w/the in laws was awful!

When we got back after the holidays, I called my dr & he tried to tell me it's not listed ad a side effect. But, he took me off of them & I went to Savella. Haven't had it since! Drs don't know everything! (Gasp!) :)

Good luck!

*Good moms have happy children and dirty floors."

*You must be the change you wish to see in the world." Ghandi





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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
9/1/12 3:35 P

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krystallia- I have an allergy/intolerance to the things that thicken color sweeten emulsify all our medicines prescription and over-the-counter. I do not touch aspirin or regular vitamins. Mine are carefully pharmaceutical clean and doctor regulated. At my last visit she said the “B” capsule is good and I still may need more “B12”. My one and only prescription is ‘compounded’ (make custom) to keep out the things on my no-no list. I found them by exploring me and foods-medicines and health/beauty products and household cleaners, then writing down my feelings with the belief of ‘if you bite it you must write it. It seems like a bother to my specialist but I feel improved by keeping unwanted things out of my system. If I do not have the pain and swelling I do not need medicines to complicate and hide it.

Carolian- my suggestion is to visit the spark page of a newbie and read her detailed examples of what malnutrition of vitamin “B12” (cobalamin) does to a body. Her itchy hands are an early stage of this. Those pills from the doctor may leach out some of the vitamins the body reserved for itself but with the use of whatever medicines; you may want to add more to your diet in the form of a supplement and a doctor can help pin point the solutions to your itch. Food alone or food with a common multi-vitamin may not be enough. Here is a link to those words she saved for us to read, and her Spark page is open to the public to read. Go into the deeper section to learn more then thank her in the comment section of her page to let her know you stopped by her Spark page, if you feel the need.
www.sparkpeople.com/mypage.asp?id=M7
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Also the National Institute for Health has a vitamin book out and the guide says that if one “B” vitamin is low all the others, because they work together in harmony, may need a little more, too. The water base ones, yes; some of the more oil base-like vitamins to a lesser degree, as in niacin (also known as, “B3”-nicotinic acid vitamin PP). They say you can have more than enough of 12 without harm, but I do not see the need to work the kidney any more than is necessary. The rest is just money spent to flush it unused and a mild form of stress.

Edited by: MARGIE100%PURE at: 9/1/2012 (15:43)
The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
9/1/12 3:30 P

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krystallia- I have an allergy/intolerance to the things that thicken color sweeten emulsify all our medicines prescription and over-the-counter. I do not touch aspirin or regular vitamins. Mine are carefully pharmaceutical clean and doctor regulated. At my last visit she said the “B” capsule is good and I still may need more “B12”. My one and only prescription is ‘compounded’ (make custom) to keep out the things on my no-no list. I found them by exploring me and foods-medicines and health/beauty products and household cleaners, then writing down my feelings with the belief of ‘if you bite it you must write it. It seems like a bother to my specialist but I feel improved by keeping unwanted things out of my system. If I do not have the pain and swelling I do not need medicines to complicate and hide it.

Carolian- my suggestion is to visit the spark page of a newbie and read her detailed examples of what malnutrition of vitamin “B12” (cobalamin) does to a body. Her itchy hands are an early stage of this. Those pills from the doctor may leach out some of the vitamins the body reserved for itself but with the use of whatever medicines; you may want to add more to your diet in the form of a supplement and a doctor can help pin point the solutions to your itch. Food alone or food with a common multi-vitamin may not be enough. Here is a link to those words she saved for us to read, and she page is open to the public to read then than her if you feel the need.
www.sparkpeople.com/mypage.asp?id=M7
73
55.


Also the National Institute for Health has a vitamin book out and the guide says that if one “B” vitamin is low all the others, because they work together in harmony, may need a little more, too. The water base ones, yes; some of the more oil base vitamins to a lesser degree like niacin (also known as, “B3”-nicotinic acid vitamin PP). they say you can have more than enough of 12 but i do not see the need to work the kidney any more than is necessary the rest is just stress.

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
CAROLIAN's Photo CAROLIAN SparkPoints: (107,664)
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9/1/12 4:27 A

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have had terrible itchy hands for no reason the Dr said it was weather related it lasted 3=4 weeks theb syopped, Some of my friends at the lupus group have had the same this year we are all on different meds so they are not the cause. Hope you get yours sorted emoticon

My name is Carol I live in UK Leader of DISABLED/FIBROMYALGIA & MORE
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KRYSTALLA's Photo KRYSTALLA Posts: 1,094
8/21/12 4:37 P

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SHERIFITZ1,

You can develop allergies to medications over time. I used to be able to take a particular antibiotic for several years when I had an ear infection then suddenly one year I had to stop taking it because I had developed an allergy to it. A very bad allergic reaction to it, so rare that my doctor told me I can't take it again cause the next time I did it would probably kill me. And because it is part of a family of meds I have to be extremely careful and now when a doctor has to give me an antibiotic or any type of prescription medication they go to the books to make sure it doesn't have it in it or any of the other medications I have had allergic reactions to.

So yeah be careful with medication cause just because you haven't had a bad reaction to it before doesn't mean you can't have one.

Lisa

Eastern standard time zone.


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
8/20/12 2:41 P

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You are welcome. I am delighted that you do not have a thyroid issue. emoticon

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
SHERIFITZ1's Photo SHERIFITZ1 SparkPoints: (2,455)
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8/20/12 12:03 A

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Thanks for the info!! My doc just tested my T-3 level as part of the search for what might be the source of all of the itching and it was fine so we can rule that out. We actually think it might be a reaction between two of my meds, Savella for fibro and Topamax for my seizures. The Savella causes excess sweating (and CAN cause itching but I've been on it for two years and haven't had the issue so why now?) and the Topamax won't allow you to sweat so you have to be careful you don't get heatstroke.

We've changed my meds up and we'll see if that works. In the meantime, you can be sure I'll be trying your lotion recipe!!!

Courage isn't always a lion's roar- It is sometimes the heart at the end of the day saying, "I will try again tomorrow."


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
8/19/12 2:51 P

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Its four alarm time! I know this one well! I learned to find the foods of irritation and alternate with other similar foods of nutritional support. I, too, have given up almost all dairy products. And my itching would show when I was most tired like at the late PM hours. Also this may be a sign of hormone imbalance. Mine was thyroid T3 insufficiency so not sweating enough is a symptom of my condition. I learned to go clean without prescription drugs. I was weaned off of all of them through guidance from a Nutritional Specialist. For this immediate remedy and to put out the fire quickly; I used my own homemade formula of coco butter lotion and the concentrated drops of peppermint essential oil about 10-20 drops per ounce of coco butter then put this blend into a soap pump for easy dispensing. A fast solution is the peppermint lotion meant for foot care.

My back was the worst. It became a practice when the family saw me losing my smile and begin to droop and scratch they would pamper me with a cup of nighttime herbal tea and clean hands at the ready for applying lotion, to keep my hands busy and mouth quiet so they could focus on exposing the itchy area and smoothing it on to the places where it hurts. I would literally ‘ooh and ah’ with the cooling affects of peppermint for that nightly skin fire then wait a few more minutes until it was almost dry before putting on night wear. When no one was around, because I would often bow out of outings, I would then apply my custom lotion with a wash cloth pushed into the strap of a long handled back brush. The extra inches of the long handle helped to get the lotion on fast to reach the odd middle of my back put out the itchy skin fire. They knew that regular reaching to scratch would have me dancing in awkward positions and make them laugh.
emoticon

Edited by: MARGIE100%PURE at: 8/19/2012 (15:02)
The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
SHERIFITZ1's Photo SHERIFITZ1 SparkPoints: (2,455)
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8/15/12 2:36 P

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Thanks for all of the input!! I have an appt with my doc today and we already did a kidney and liver panel so if my kidneys are the issue we'll know. I also found an article in Fibromyalgia News indicating that there have been studies done by a doctor in Switzerland that show our skin pores are abnormal and that inhibits us from sweating normally, which kind of sounds like what you were saying, and would also make sense for me with the side effects of my Topamax and Savella combined.

To my new best friend who said her doctor put her on a new fibro med and it went away, do you remember which med it was?

Thanks for giving me some direction to pursue so I don't feel like I'm just stuck with this forever!!

Courage isn't always a lion's roar- It is sometimes the heart at the end of the day saying, "I will try again tomorrow."


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REDELAINE1990's Photo REDELAINE1990 SparkPoints: (22,575)
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8/15/12 4:40 A

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I get itchy often all over my body too but particularly my back. Something that has worked for me is when I haven't ate cheese for a while and other dairy products. I notice that partciularly this week as I was eating plenty of dairy on my holidays (vacation) last week so the itch is bad. It could be anything though but for me it seems diet related.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
8/14/12 7:37 P

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I have a couple of issues with itching as a symptom: the first is neuropathy. When nerves aren't being nourished properly due to circulation or damage, the itching is what I get when they are trying to "reboot." It's annoying, and no amount of scratching helps because it's internal... and medication doesn't do it either. Doing some activity that encourages movement of the affected part (usually my hands) can make the process shorter sometimes, but other times there really isn't anything I can do.

The second issue is another hard one to deal with: chronic kidney disease. Because my kidneys are not working effectively, I have more toxins in my perspiration than I would otherwise, and it's very irritating to the skin. I don't sweat normally, either, so that adds to the problem since I can't flush them out right... and that itches in all the places you can't reach, especially the middle of my back.

I don't know if others have problems with this because of fibro, but I do know that a lot of the medications used for fibromyalgia are neurological medications or things that affect brain chemistry, which ties in with nerve issues... and those DO cause itching, as well as phantom pain, burning sensations, etc...

...You might want to have your rheumatologist or primary care refer you to a neurologist to check out the possibility. Quality of life can become a real issue if this continues unchecked...

emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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8/14/12 4:56 P

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I had itching also, and sometimes would burn like I had a sunburn even though i had not been in the sun. My doctor put me on a med for fibro and it went away



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8/14/12 1:33 P

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I'm wondering if anyone else might have experienced, or be experiencing, similar symptoms to what I've come down with. All of the logical causes have been ruled out so the possibility that it's a weird fibro symptom is my only hope. My rheumatologist has never heard of anything like this in connection with fibro so you folks are my only hope.

About six weeks ago I started developing body wide itching with no visible reason for it. There are no hives, no bites of any kind or any environmental factors such as new detergents or foods that could possibly be an allergen.

The itching is severe enough to keep me awake at night and a prescription antihistamine stronger than Benadryl has minimal effect on it (although it IS really good at causing a hangover effect that makes me sleep all day the next day which is REALLY inconvenient!)!

Any experience or thoughts that might get me out of this mess? Any help is greatly appreciated and will most definitely include karmic reward!!! Possibly chocolate.

Courage isn't always a lion's roar- It is sometimes the heart at the end of the day saying, "I will try again tomorrow."


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