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LAURABEANS's Photo LAURABEANS SparkPoints: (74)
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4/26/12 10:14 A

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Weather effects me the most also, cold rainy days are the worst!
Try a little stretching or yoga on those days and then take hot bath to keep from stiffening up.
I use epsom salt and Lavender Baby Bath to relax my muscles and my mind...works great!

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LILMISSKRIS23's Photo LILMISSKRIS23 Posts: 10
4/26/12 8:43 A

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Thank you everyone who has responded. I've noticed that my flares get really bad if the weather suddenly changes, especially if it is cold outside. Since the weather has warmed up, I have gotten back a little energy and I have been able to go to the gym more. All of your suggestions are wonderful. I had my first really bad flare for three months but I think it is finally subsiding some. I'm still stiff and sore when I wake up, but its getting better now that I am getting active again, so again thanks! Fibro hugs! emoticon

Instead of comparing our lot with that of those who are more fortunate than we are, we should compare it with the lot of the great majority of our fellow men. It then appears that we are among the privileged.
~Helen Keller


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LAURABEANS's Photo LAURABEANS SparkPoints: (74)
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4/25/12 1:05 P

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my faves... Walking, running (or the shuffle as I call it) both get me out of the house and revive me. And I really like this DVD- "10 minutes solutions Yoga with Lara Hudson". I like it because you can base what you do by how are feeling that day. There are a lot of days I only do 1 of the 10 minutes segments, but it is enough to keep me felling good about myself. It's older so it's cheap, but I actually watch it on Netflix. This DVD is great for those days I don't have the energy to get out and walk or run, this is my "at least I did something today" exercise. The relaxation and flexibility session is great for those low energy days.
Another thing I like is the wii...gets you moving a little on the bad days and you can play it with your family.

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4/24/12 1:26 P

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First, I think that the healthiest thing you can do is focus on how you feel vs. how you look. I gained a lot of weight over the course of the past few years (it took me several years to be diagnosed and learn how to manage my symptoms) - I'm about 60 lbs heavier than I was pre-fibro. One thing I've learned, is that weight loss is more in the food that you eat than in how much exercise you do (While this is important, I think it requires far too much exercise for the average fibro patient to reasonably do without suffering the consequences) -- I exercise PURELY to stay mobile. And I agree with the other poster who said to NOT STOP even when you flare. It will just make the flare up worse and last longer if you allow yourself to stiffen up.

Changing your diet will also help with the energy - i've learned to avoid process foods when possible. I also avoid caffeine as I struggle with hypoglycemia as a symptom and caffeine seems to aggravate it. I think you'll find that if you take care of your diet (not eating less, but higher quality food) and starting slow with your exercise (yoga and zumba are my favorites) hopefully you will get to a place that you can get some results.

I hope this helps. :)

I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
4/23/12 11:56 P

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Any kind of exercise is better than stagnation--but for heaven's sake, START SLOW... Not that most of us have a choice... LOL

Start with fewer reps than you think you can do, and stay with them until they get easy, because they probably won't be at first... and you may need to take frequent breaks when you start out. Then when you're comfortable with it, add NO MORE THAN 5 reps... and do them until they get easy... etc.

Water exercise, especially warm water, even if it's just walking, is great because it takes stress off your joints...

The other thing is, if you have a flare... DON'T STOP. It's one thing if you're sick and have a fever, but if it's "just" the fibro... You can slow down to basics, if necessary, but quitting is not an option if you want to maintain your mobility... and NOT moving makes the pain worse.

WE each have to find our own tolerance levels... read the discussions, and experiment, and you'll see exactly what I mean! LOL

Welcome...

Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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LILMISSKRIS23's Photo LILMISSKRIS23 Posts: 10
4/23/12 10:01 A

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Hi all,

I am 22 and was just diagnosed with Fibro in March. Needless to say, this is a bit of a blow to me since I'm fairly young to be diagnosed with this, but both mom and her sister have it so I'm not shocked. Anyways, so from a combination of fibro pain and fatigue, depression from the fibro, and not watching what I was eating, I've gained ten pounds in the past 3 months. I am super frustrated because I have struggled most of my life with weight gain and finally got to a healthy weight 2-3 years ago and stuck with it, but when I started having the fibro symptoms in January, I stopped going to the gym (when I had been going 5 days a week, two days a week zumba) and started pigging out on food. I also had an H pylori infection around this time where my stomach swelled up to where I looked nine months pregnant and wasn't so I got in the bad mindset of well I look huge anyways I don't have to watch my calories...but I digress

Does anyone have tips to start getting back into exercise? I know I don't have the energy I used to but it seems if I don't do somewhat challenging exercise my body stays at this weight and won't lose. None of my clothes fit and it is very frustrating for me, so any help is appreciated.

thanks =)

Instead of comparing our lot with that of those who are more fortunate than we are, we should compare it with the lot of the great majority of our fellow men. It then appears that we are among the privileged.
~Helen Keller


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
4/11/12 1:53 P

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I tore one of the ligaments that attaches to my tailbone--years ago, mind you-- so I can't use any by a recumbent either... and I have very short legs (26" inseam, folks!) so my stride is too short to make using an elliptical anything less than excruciating! No thanks... I'm looking for one of those 'glider' type exercisers... still haven't found one that will fit my current budget! LOL But I'm a stubborn little critter, and I'm not giving up. Meanwhile, I walk... if you can call the hobbling I do a walk! LOL

Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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GETINLIGHT's Photo GETINLIGHT SparkPoints: (1,531)
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4/11/12 1:34 P

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I've recently begun using my recumbent bike also. I found, by accident, that if the rear supports of my bike are just a little higher than the front (on a downhill decline), that my back doesn't hurt any more :) and I don't have to use a pillow. I put a 1/2 board under the back supports only and I do just fine. I can't use the elliptical or regular bike because of my knees also. Hope this helps.

"Do not wish to be anything but what you are, and try to be that perfectly." St. Francis de Sales.


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SCRAPDONNA SparkPoints: (55)
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4/10/12 4:50 P

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Hi everyone, I'm new to Spark but have had fibro for years. I've just started at the T-Zone here in Canada which is the total body vibration machine. I'm starting low at # 1 and do it for 12 minutes. Guess what, it's not bothering my fibro at all. I'm not doing any of the extra exercises on it, just standing there. I also have OA and am waiting for a new hip (surgery next month) so I'm living most days in excruitiating pain. Taking lots of pain meds. The machine is supposed to give you a workout equal to 1 hour. It's worth a try for anyone who might have a store nearby.

NYTRINK's Photo NYTRINK SparkPoints: (18,193)
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4/9/12 9:10 A

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Augh - this morning I am super aware of my fibro. I've been on a very good path for several weeks - hardly any pain (just aches, really), and able to do some kind of at least stretching exercise most days. Worked my way up to getting back in the pool for laps and on weight machines to build up some muscles that seemed to be withering away.

Things were good,

Then on Saturday I went to the Y, felt very powerful and healthy, and promptly overdid it. I am SO paying the price today. The pain woke me up last night when I tried to turn over in bed (like the old days before any fibro treatment - used to wake up every time, but that hasn't happened for awhile). Rear R hip/back is totally tweaked out right now. I'm sitting in my office chair with a lacrosse ball between my hip and the chair, tryping to break up the spasm.

As well as I thought I was managing things, this is a reminder that fibro never goes away. It requires vigilant management all. the. time.

Just hoping that the physical progress I was making helps me bounce back quicker than I used to!

~Katie

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
4/4/12 8:43 A

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Tried the yoga thing--definitely NOT for me. Too static! LOL

I stay in one position too long, and I'm in big trouble...I found doing tai chi now and again fairly effective... though I do tend to overdo it a bit. I DO love water exercise... I'm currently looking for a freebie place to get back into that ... not sure if my swim suit fits anymore, though. Yikes...

Still, I keep trying...

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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DANCESINRAIN's Photo DANCESINRAIN SparkPoints: (609)
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4/2/12 3:57 P

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I have found water aerobics to be the key for me. I love deep water aerobics. I put on a "aqua-jogger" belt to keep me afloat, and I can jog, dance, you name it, things I CAN'T do on land, with NO pain. I LOVE being in the water. I started last summer with shallow water aerobics, which sometimes hurts, and added deep water last month. I go 5 times a week, and do an hour of each. It's really helped my overall health.

"Life is not about waiting for the storms to pass...it's about learning how to dance in the rain." ~Vivian Greene


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3/9/12 12:11 P

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Try yoga - when I need a low-key day I'll just go to a yoga class. Stretches out all the kinks and helps you sleep better that night, too.

I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
3/3/12 7:05 P

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They're becoming a rarity, Julie, since they are now considered "antique"... LOL Good luck!

Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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JULIEMOM1228 SparkPoints: (45)
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2/25/12 1:43 A

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That is such a great idea, I.M.Magic! I, too, wear out the side of my mattress putting on clothes and shoes - plus I have 2 cats that would love a new hang-out. Thanks for the idea! I will start watching for one on Craigslist or Freecycle.

Julie


Edited by: JULIEMOM1228 at: 2/25/2012 (01:43)
JUST-DUCKY's Photo JUST-DUCKY Posts: 15,335
2/23/12 12:07 P

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I use my recumbent bike. I have to have a pillow behind my back. I recently got an elliptical because I was told they were great for fibro patients, but it kills my back and knees. emoticon

~~Tina ~~


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
2/16/12 10:18 A

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I have trouble getting down on the floor and getting up again--though it's getting easier now that I don't have to--because I do the exercises OFF the floor! LOL

My solution? My therapist told me I couldn't use my bed because most mattresses don't offer enough of the right kind of support, but that an old weight bench or something along those lines would probably work... but I didn't have one, or access to one... then I found this lovely old 1970's coffee table-- as long as I am tall-- for free on craigslist, and got this idea of adding some padding. It's perfect! I get all my lying-down exercises done on it, and just roll off onto my feet.

And, since I put it at the foot of my bed, I can also sit on it in the mornings to put on my shoes, so the edge of my mattress doesn't get so much wear. My furbabies also love it, the heater blows across one end, and it has a little cubby underneath so they lay there and soak up the heat, when they're not playing peek-a-boo (one on top, one on bottom). Free entertainment too! LOL

Fun stuff!

Kathy

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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ALASKASKY's Photo ALASKASKY Posts: 6,159
2/11/12 1:59 P

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That's a good idea. I might even try that too.

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CAROLHARMON's Photo CAROLHARMON Posts: 346
2/9/12 9:38 P

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Hi, fibro friend. Don't be afraid to join a senior's class I did when I was your age and it was great. At the time it was for a different reason but the people were great and understanding. Do what is best for you. emoticon

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ALASKASKY's Photo ALASKASKY Posts: 6,159
2/5/12 2:49 P

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EMANGR2 good luck. Sorry to hear you have to give up running, at least you're being on the positive side and looking for alternatives.

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2/4/12 1:51 P

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I've had to give up running because of fibro. It just wasn't worth the hip pain I was getting, even though I loved the rush after completing a run. These days, I stick to taking long walks, using the elliptical cycle, and doing workout DVDs at home.

Perhaps some of the best DVDs I have are the Maury Windsor pilates DVDs. These were actually recommended to me by my rheumatologist. I find that on days when I am exhausted and still feel the need to work out, these help me relax with slow, fluid movements. Sure, they're not the greatest cardio boost, but they're better than nothing!

Another thing that was recommended to me by my doctor was tai chi. Now, I can't quite bring myself to take a class or even try a DVD, but I am getting closer to giving it a try. At 23, I just feel too young to enroll in the "tai chi for seniors" class offered :) But I have heard really great things! Yoga and pilates have been the best for me thus far.

ROBINCT135's Photo ROBINCT135 Posts: 126
2/3/12 8:54 P

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Walking (slowly) on the treadmill is a good exercise...however, please don't do what I did! (I was listening to a fast tempo song on the radio while exercising, and I stepped up my pace...I wound up running (for about a minute), and just from that short period of running, I wound up with foot pain (bottom of foot, heel). Long story short...I'm still dealing with the pain from my moment of impatience. Wear a good pair of walking or running shoes, and take it slowly!


Robin


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SEDONACAT's Photo SEDONACAT SparkPoints: (61,363)
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2/1/12 7:30 P

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It IS hard to increase speed on a treadmill due to pain but what I try to do is increase it by .1 intervals. Like if I am going 3.0, I will move it up to 3.1 after a few min.and so on. I don't seem to notice small increments. There is a limit, tho but I "fool" my body for awhile.

Good luck and keep trying!!

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ROTTLADY's Photo ROTTLADY SparkPoints: (43,095)
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2/1/12 5:13 P

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I also move slowly but we just have to keep trying. emoticon

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WELDER43's Photo WELDER43 SparkPoints: (152,629)
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2/1/12 2:14 A

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I try to walk my treadmill for 30 minutes at least 5 or 6 days a week. Of course I only walk about 2.4 miles an hour which is not very fast at all. I had to build my way up to that speed but I don't go over that speed.
I you don''t have a treadmill, try walking for as long as you can outside as long as the weather allows you to.


Edited by: WELDER43 at: 2/1/2012 (02:14)
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TEENYSMOM's Photo TEENYSMOM Posts: 4,218
1/31/12 10:00 P

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Between fibro/cfs & a bad back & ankle chair exercises are about all that I can do which does not cause me EXTRA pain for the next day or two. Water exercise I can do as well, but it is a major feat to get in/out of swim suit. That causes me extra pain all by it self!!

~~Starr~~

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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1/31/12 9:31 P

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Thank you all; these are helpful responses. I especially liked the advice about exercise on one's bed because it would keep pain-tender muscles off the floor.



Today is the first day of the rest of my life.
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1/31/12 1:10 P

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Thanks for your tips CINDERRELIC, My issues got worse since I hurt my R knee, so even stationary biking & walking is sometimes difficult and throws my back out as well. I love using the big exercise ball and there are some great ones listed here. Bridges for upper & lower body as well. I stay close to a chair or sofa for stability but it offers great stretching capabilities which can help align the back as well. I also love Qigong & Tae Chi if only a few minutes, it helps raise the energy levels.
Pain has NOT been my friend recently even though it is my constant companion. Staying mobile is a daily goal. Good luck to all of you.
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glenda

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AZULVIOLETA6's Photo AZULVIOLETA6 SparkPoints: (52,898)
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1/31/12 12:57 P

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I find that if I exercise every day, no excuses, my mobility is generally better overall. If I stop exercising during a flare, the flare will be worse and last longer. Lately I have been having flares that involve a lot of leg muscle pain...they seem to last 7-10 days. I keep doing my regular workout as much as I can--swimming, weights/cardio, Zumba. I alternate weight-bearing with non-weight bearing days. Zumba is the hardest, but my instructor is a friend and he knows what is going on, so I just do my best and try not to get too frustrated.

Swimming is always the easiest thing for me...that's where I start when things are bad, after an injury or after surgery. Low impact, warm water.

Dances: salsa (standard/LA), casino, rueda de casino, cumbia Colombiana, bachata, mambo, cha-cha-chá, merengue, reggaetón.

Currently learning: Mexican cumbia, danzón, Cuban rumba

Dances to Learn in the future: flamenco, tango Argentino, samba, belly dancing, bhangra, ballroom rumba


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CINDERRELIC's Photo CINDERRELIC Posts: 7,621
1/31/12 12:12 P

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Here are a few tips I have learned for exercising safely and with support. It is easier to have you to click on the link than to write them all down. Its called Favorite Exercises for Limited Mobility.

www.sparkpeople.com/mypage_public_jo
ur
nal_individual.asp?blog_id=1789118


Edited by: CINDERRELIC at: 1/31/2012 (12:14)
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1/31/12 11:36 A

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Do any fellow fibro sufferers have tips for low impact, renewing-type exercises when one is too tired, sore and/or unmotivated for exercise?

I think that if I did at least mild exercise, it would be better than thinking, "But I can't." However, it's not happening, except for slow walking and stretching.

Today is the first day of the rest of my life.
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