Whoa!!! Kathy, I reread the spoon theory just now and also devoured most everything else on that website, watched 5 videos and emailed 4 friends telling them to read the spoon theory. WOW! Wow! Wow! The videos are incredible She also read the spoon theory on one of her sites.
Not only do I have Firbro etc but I did test positive for Lupus or RA a year or so ago. My last MRI said I gave severe arthritis, I don't have an official diagnois on the Lupus because that would label me as Pre-existing for insurance BUT everything indicates a 981/2 % certainty of it. I have a friend who gets so angry when I tell her it is probably Lupus because she says I am self diagnosing. My eye doctor and dentist both, within the last week, have said there is a 50% decrease is moisture levels in my eyes and mouth. . . I knew that. . .but it's official now. I am showing major Raynauld's symptoms.etc. But don't have the expensive diagnosis of all that's going on because I look so normal. I think my husband finally has gotten it and is being very supportive. . . but don't you know what he's going to be watching some videos tonight and so is my friend. .. if she wants to remain a friend.
I am so sorry. . , and I have forgotten you name, honey. . , the one with the husband's disbelief, but we do understand where you are coming from with the disbelieving family
members. Please try to get them to visit the spoon web-site.
I had a total meltdown this past Mon with the culmination of all the diseases and more diagnosis thrust upon me. I just lost it. I couldn't quite crying. I finally got out of the house and found a friend who would listen and take me seriously. It was just getting too dangerous emotionally. . . I think we've worked out some good plans.
I know I'm blabbering, but these illnesses are so. . .frustrating and probably the biggest curse words in the world are, " but you look okay to me. You don't look sick.
change your attitude. Grin and bear it. . . ahhhhhhhh. Sometimes I just want to smack people in the face and say wake up! You are so blessed. If you care, read this!!! Learn, don't judge me. I truly am fortunate to have a husband that has finally gotten it. I feel sorry for him, actually because he is doing so much for me and he never complains. Right now, my biggest frustration is with friends?????? I want them to know how valuable my spoons are and getting showered and dressed and make up take six of them. It's amazing how much you can accomplish in PJ's!!!!!!!
Well, I guess I've kind of gotten into a vent mode. I really do try to be an encourager, but sometimes I'm flinging spoons. It's been that kind of week. But, we can do this!!!
Big hug to all of us. . . big smile too
Edited by: SHIHJABO at: 1/20/2012 (17:48)
The scale doesn't determine who I am. It is made of metal, nuts and bolts. It has no feelings, no compassion.
My worth comes from who I am in Christ Jesus. I mess up too much on my own, but I can do everything with God's help.