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PEANUTMJ SparkPoints: (200)
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2/23/13 3:18 P

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SAM-e plus my anti-depressant and regular vitamins; don't take anything for pain but just completed a 30-day cleansing diet plan (Isagenix) that improved my sleep, reduced my pain and helped me loose about 7 lbs.

CAPEBRETONMOM's Photo CAPEBRETONMOM Posts: 209
2/5/13 7:00 P

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I've been on Lyrica for two weeks now. Anybody else had any luck with it? I was on amitriptyline for a couple of weeks, but it made me too groggy and sleepy. Then the doctor prescribed nortriptyline. That didn't make me as groggy, but I didn't see a huge difference in pain level/better sleeping. However, I was only on that for a couple of weeks as well, when a specialist officially diagnosed me as having fibromyalgia and put me on the Lyrica. It seems to have helped somewhat with the pain (especially headaches), sleep may be a bit better, but I'm still waking up frequently through the night. So far the only big side effect I've noticed is dizziness through the night/early morning. Hoping it doesn't add too much weight (I'm already way overweight!). Anybody else tried Lyrica? If so, how did you do on it?

Cheryl

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NINTENDOADDICT's Photo NINTENDOADDICT SparkPoints: (821)
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2/1/13 12:34 A

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This Cymbalta is actually working!! For the first time in 2 years I am having little to no pain and even sleeping well. I don't care if it only works for a week...I am so grateful for even a week of relief!!!! :)

"Never let a problem to be solved become more important than a person to be loved." Thomas S. Monson
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1/30/13 12:09 A

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I just switched from Savella to Cymbalta yesterday....(after 3 panic attacks in one week). I'm a little nervous about the Cymbalta b/c I have always been a little too happy (some people have said). Today I guess I felt the serotonin releasing into my body and I started kind of feeling like eventually I might end up on the news as being the only person in the world who explodes with happiness....I was definitely being overdramatic, but it is weird how it feels when it releases...still not sure if this is going to work yet, but we'll see.

"Never let a problem to be solved become more important than a person to be loved." Thomas S. Monson
Namaste


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2010JOURNEY's Photo 2010JOURNEY Posts: 3
1/29/13 4:51 P

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You should see a homeopathic doctor and not treat yourself if you are not well versed in homeopathy. What works for one person may not work for another. The homeopath will look at the totality of the symptoms and then prescribe. I took a spider remedy first which helped but did not cure. Then I took apis mellifica a couple of times and have been symptom free for a year. You do not continue to take the remedy after the symptoms are gone.

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LOKIVADE Posts: 13
1/27/13 7:55 P

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@2010JOURNEY
hi there - i would be really interested to know the remedies he put you on? and how often do you take it? thanks!

Edited by: LOKIVADE at: 1/27/2013 (19:59)
LOKIVADE Posts: 13
1/27/13 7:43 P

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Ive been using MagSense for a little while now and its the only thing aside from Percacet that takes the pain down well. Its a powder or Magnesium and Malic Acid. Plus a few other vitamins and minerals. It also works for a couple other women that I have recommended it to. But it does taste like crap LOL.
I do not take perscription drugs for it. Just have been sucking it up for many years. I think they may cause more harm than good.

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9/18/12 12:46 P

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i tried lyrica and cymbalta, both seemed to lose effect after a year. now i take amytriptaline (m/s i know) but only as needed. i dont like to take "meds" my mom has similar health issues and takes about 10 pills a day, ugh! i also am a firm believer in Medical Marijuana. Dont wanna start a debate, just saying, for me, it works. Maybe once a month, during a "flare up", the pain goes away and i sleep like a baby. but, not a daily or even weekly thing. but, for me, it helps. PLEASE STAY AWAY FROM THAT "SYNTHETIC MARIJUANA" or "SPICE"! its deadly and so bad for you!! only prescription, medically approved marijuana. Just being honest.and im not encouraging illegal drugs of any kind!!!

LEMAVIS Posts: 1
9/6/12 1:36 P

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I've been having a hard time with using medications to help with my symptoms, but recently read a few interesting things on supplements, that have been really helping me alot:

1.) Flaxseed Oil Supplements help reduce inflammation.
2.) B-Vitamin Complex Supplements help with energy levels.
3.) Fibro patients also tend to be deficient in Magnesium. (A vitamin which helps regulate muscle and nervous system function) If you take Calcium/ Magnesium/ Zinc supplements in the evening, it can help you sleep and relieve pain/ muscle cramping. (This is also newly recommended for RLS patients.) My readings indicated Fibro patients are recommended to take no more than 2,000mg/ day.
4.) 5-HTP Supplement can be helpful with easing bouts of depression with Fibromyalgia.
5.) Probiotic supplements (Such as Acidophilis Pearls) help with IBS symptoms, associated with Fibromyalgia.

Hope this helps!

SARAHTAIT's Photo SARAHTAIT Posts: 25,760
5/16/12 8:53 A

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No..I haven't heard of this drug but am interested in knowing how you do with it....always wanting more info if something helps someone. My doctor finally relented and gave me tramadol but after being on vicodin it does not help much these days...which makes me wonder if my fibro is worse or I am just getting older...hmm

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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GIRANIMAL's Photo GIRANIMAL SparkPoints: (34,221)
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5/8/12 4:23 P

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Soooo...because I wasn't getting much relief from the Tramadol, my doc just switched me to Nucynta. Anybody know anything about this drug?

First dose nothing, second dose knocked me OUT for like 5 hours (of course, I'd just had several sleepless nights with severe back pain/spasms, so maybe I just really needed the sleep) and after the third dose I woke up with a VIOLENT migraine (cold sweats, tremors, nausea) but I can't say with certainty that it was a side effect and not the rain that had moved in...so just curious if anyone's familiar with it. So far, luckily, fourth and fifth doses seem A-OK!

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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
5/7/12 8:06 P

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I have no insurance so all of my meds/vitamins/herbs were given (prescribed to me) by my chiropractor and my acupuncturist (acupuncture school) - when I was seeing them.

I also took the enzymatic line of things for fibro and it was great, but expensive. The above things were longterm solutions for me because I had to pay out of pocket for it.

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NEWVINE's Photo NEWVINE Posts: 4,608
5/6/12 10:27 A

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Amlodipine for circulation. vitamin B for muscles emoticon

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5/5/12 6:23 A

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My bloodpressure was uncontrolable due to my pain so I am on Fentanyl patch every 3 days, and oxycodone prn, I also use ibuprofen for occasional breakthrough pain, though my BP is up again and pain has been bad lately so probably need to change meds again. I also take Imitrex for migraines, and albuterol inhaler for asthma. I am on a whole slew of vitamins and supplements, I recently found that I am defecient in vitamin D and CoQ10 so I am on 50,000 Mg D2 once per week and 300 Mg daily of Ubiquinol, I have had a bit more energy since taking these. I hope that the energy will continue to increase.

Blessings and Peace,
Candi


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SSCHARDT SparkPoints: (72)
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4/30/12 1:40 P

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Oh my goodness - with a diet free of all those things what is left for you to eat?
I have found that excess sugar makes my fibro get cranky - and too much acid in my diet is bad as well, but aside from that I don't take extra dietary precautions.

I would like to find a supplement that took care of excess water retention as well as pain and inflammation. But haven't found one quite yet.









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GIRANIMAL's Photo GIRANIMAL SparkPoints: (34,221)
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4/30/12 1:33 P

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I've just been formally diagnosed by an integrative physician, and so far his approach is low doses of:
Tramadol for pain
Amrix as muscle relaxant and for sleep
Armour thyroid (I have thyroid symptoms too)

And a SLEW of supps. I forget what all's in the proprietary blends, but I am taking the combo of them all to ease muscle pain, improve sleep and boost serotonin:
Brain Energy
Myo Malate
5-HTP
St. John's wort

And the ones I remained on because I know they help:
Fish oil
CoQ10
B complex
Probiotic
Vitamin D3

Plus Rx's for yoga and meditation, which I am trying to work into my days!

And so far I am maintaining my gluten-, dairy-, soy-, egg-, corn-free diet, plus really trying to minimize sugar.

So far I have had a few days that I feel a bit better, but it's only been about a month. I follow up with the doc this week, and I am curious about what he might tweak based on my feedback.

Edited by: GIRANIMAL at: 4/30/2012 (13:34)
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SSCHARDT SparkPoints: (72)
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4/27/12 5:11 P

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I take 200mg of celebrex in the AM, with a multivitamin, DHEA, Bromelin and Omega 3 and at night 30mg of Cymbalta.

3 times a week I take Rx strength (50,000 units) of Vit D - but that is because my bloodwork shows a low reading - when bloodwork shows things are normal it will be dropped.

I never take anything that my bloodwork doesn't indicate I need - for example the Rocky Mountain Labs group can run a DHEA test, which showed I was amazingly low.

I think its important to remember supplements are essentially medications - at least most are the base ingredient for a prescription of some sort - so they need to be respected and handled with care. People seem to forget that and often think vitamins that aren't needed are flushed from the system, but not all are - for example vitamin K, some of the minerals...etc.

Edited by: SSCHARDT at: 4/27/2012 (17:12)
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4/25/12 8:03 A

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I was diagnosed with Fibromyalgia 4 years ago and I am happy to say that I am not taking any medication!!! I went thought the whole medicating process. I was on Cymbalta and Lyrica. The side effects were not worth it and I wasn't getting any pain relief.
I now take only supplements and try to eat healthy and exercise. I must say I feel pretty good :)
I take a calcium/magnesium/vitamin D 2-3 times a day, 5-htp, and flaxseed oil and Vitamin C. When I do have a flare up, I get into the hot tub with some epsom salt and some Lavender Baby bath...this really helps a lot!
I am starting to get myself back in shape. Thankfully I have only gained about 15 pounds the last few years, but I am working on getting rid of it and taking my life back!

Edited by: LAURABEANS at: 4/25/2012 (08:08)
LUNARCHILD3000 Posts: 2
4/10/12 3:25 P

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I had really terrible side effects from both Cymbalta and Savella and Gabapentin as well. I finally got fed up and decided to try to take as little medication as I can get away with. I have tramadol and meloxicam for pain and gabapentin on an as needed basis as well and daily I take prozac. I use willow bark tincture as an herbal treatment for pain 2 times daily and it works better than the other meds ever did and without the side effects (except it tastes bad). I also work for an amazing D.O. who gives me trigger point injections every few months. They don't feel great when you do them but they really help ease the pain in the tight spots and trigger points. And the best medication ive found of all.....losing 45 lbs and being active even 5 minutes every day and cutting out gluten, refined sugar and limiting caffeine and alcohol. It's not easy and it's not fun but I was always hurting before and having side effects from meds so now I feel so much better managing things differently.......not trying to preach just want to share with others since Ive been lucky to get such great advice from others as well

CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
3/28/12 5:41 P

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My sister is going through all kinds of problems like I have...adrenal fatigue, candida, food allergies, fibro...she lives in Kansas City and sees a wonderful doctor there. The doctor is online as well so you might want to consider ordering some of her products. Her name is Dr. Nancy Russell. She has some books too. Thought I would pass this around.

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TOREDEM Posts: 2
3/28/12 3:58 P

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I made 3 changes about 2 months back and feel the best I have in about 4 years.

-Shifted from Syntheroid to Armour Thyroid. (Only mention this one because many other Fibro sufferers also have thyroid issues).
-Started taking Culturelle Probiotic once a day after first meal. (Tried a less pricy brand but it just didn't do jack, lol, so spring for the proven one)
- Mix 0.6 oz of chia seeds into juice every morning. (That's about 2 Tbsp if you don't own a scale). Chia is super nutritious and a great source of fiber.

Hope this helps someone!


CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
3/3/12 12:13 P

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Girls, check the side effects of Cymbalta. I got off of it after 5 months just because of it AND I am now on Gabapentin but I am getting off of that one too. These drugs can make our problems even worse! Good luck!
God bless you and yours-Cindy

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SARAHTAIT's Photo SARAHTAIT Posts: 25,760
2/18/12 12:04 P

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I've had to change up my medication plan since my husband passed away and I no longer have pharmacy benefits. I am still on vicodin and the phentanyl patch but have started natural meds:vitamins, fish oil, St. John's wort! I went to get my cymbalta filled and it was $2000 for one month...oops never mind. Can't afford that one! Hope to get some coverage this October when the season opens.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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PEGGIE57's Photo PEGGIE57 SparkPoints: (91,180)
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2/17/12 11:30 P

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I've been taking Gabapentin for a couple of years & the last 9 months or so I've been using Amytriptyline for sleep. The Amytriptyline is working quite well for sleep. But, when I wake up, I am in a lot of pain. Today was very bad. But, an unexpected cold front came through . It was sunny & nice when I got up. By lunchtime, it was snowing heavily & sticking to the grass.

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2/17/12 10:29 P

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I just started on Cymbalta today and I'm nervous because I always get harsh side effects from medication. Otherwise I take Vitamin D regularly and that really helps, along with yoga and walking. I think exercise has helped me with daytime pain more than anything, but I'm still aching, tired, and having strange over-sensitive nerve reactions when anything touches my skin.

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2/9/12 10:28 A

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Taking neurotin and ambien both at nite need something for pain during day looking into cymbalta

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VALELYS SparkPoints: (5,812)
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1/7/12 9:13 A

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I'm on Cymbalta for depression and pain. Also take 6,000 IU Vit. D per day, B-12, COQ10, Fish Oil. I am finding that when I eat sugar (candy, desserts, soda), I experience much more muscle pain. I'm thinking about eliminating wheat from my diet to see if that helps. The last two weeks have been a nightmare of pain. I also do warm-water therapy 2-3 times per week.

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1/5/12 11:34 P

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I take Gabapentin300mg. TID. I take other meds to prevent migraines that also seem to help the fibro such as Amytriptyline50 mg at bedtime. My neurologist wants to make sure I get a good night sleep. So, here I am up at 11:30 pm on the internet!

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SCOT4EVER's Photo SCOT4EVER Posts: 2
1/5/12 3:20 P

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50,000 iu of Vit D once a week
1500 mg of Calicium (broken into 3 doses of 500 each)
250 mg. of magnesium - these 3 help with my sleep disturbance
1000-2000 mcg of sublingual Vit.B12 for neuropathy pain and numbness
8-10 grams of fish oil (enteric formula). That's 3 capsules at each meal
400 mg. turmeric (herbal for inflammation)
Diet consisting of no wheat and no dairy, no sugar

Advil and Flexeril for pain - I can't take narcotics and won't go on other meds like Lyrica because of dangerous side effects.

I find if I stay true to my diet, my symptoms are much less. I wish I could find something for the overwhelming fatigue I'm experiencing right now.

It is so like me to stick to my goals!


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KTCWMOM's Photo KTCWMOM SparkPoints: (2,962)
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1/4/12 9:07 P

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I've also heard that megadoses of fish oil help, but I don't know the amounts. Was on it for a while but it hurt my stomach.

Remember why you're doing it

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Lose 80 pound total (to bring me to healthy BMI)

Goals:
Lose 5% body weight (@ 228)
Lose 10% (@ 216)
Lose 15% (@ 204)
Lose 20% (@ 192) - also, no longer obese!
Lose 25% (@ 180)
Lose 30% (@ 162)
GOAL WEIGHT 160!


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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/4/12 1:43 P

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Hi girls!
My Naturopath has me on Vit C, Progesterone, DHEA, Vit D. She gives me IV supplements that also contain more C and Potassium and the B vitimins. I am on the 3rd of the 4th IV and it is just now starting to help but I definitely feel better since I started taking the above supplements. I also have adrenal fatigue so this makes a difference too. I sure hope this helps some of you. Its not normal to hurt as badly as we do.
Cindy

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1/3/12 1:12 P

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2010JOURNEY
Glad your doing well!
I am interested in Homepathic.What are you taking for it? Herbs,supplements? I really cant afford to go.
Thanx for your posting.

One day at a time sweet Jesus!


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1/3/12 8:51 A

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I'm on Cymbalta for depression and fibro. When I forget to take it I realize just how much it helps my pain. Does nothing for my fatigue, however.

Remember why you're doing it

Starting Weight: 240
Goal: 160
Lose 80 pound total (to bring me to healthy BMI)

Goals:
Lose 5% body weight (@ 228)
Lose 10% (@ 216)
Lose 15% (@ 204)
Lose 20% (@ 192) - also, no longer obese!
Lose 25% (@ 180)
Lose 30% (@ 162)
GOAL WEIGHT 160!


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1/3/12 1:13 A

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I'm on Meloxicam (Mobic) just started it back in Oct. I have not run into any other fibro people on this, but when I went to see a Reumatologist, she confirmed that she thought that was right for me, so ??? I just take tylenol for headaches too. But I am still in pain. My goal for Jan is to make an appt with a Naturopathic Dr and see what they have to say, and start herbal therapy and vitamin supplements. But I want to talk to the Dr first because I have no idea where to start.

Bekah :o)



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1/2/12 10:10 P

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i am curious to know which supplements the homepaths put youse on for those that have gone that route :) i have used laser therapy treatments for my fibro and the results were the best ive ever had...it lasted about 6 months or so...need to go again for treatments..it is along the same lines as accupuncture.. wanted to also ask if anyone has experienced magnesium and or reflux drugs making things worse for you? i seem to experience more pain when takiing these

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1/2/12 9:10 P

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I'm on 60mg of Cymbalta and take magnesium at bedtime. The dosage of Mg depends on how I feel that day or how much energy I expended over the usual.

Blessings,
Heidi

Proverbs 3: 5-8 "Trust in the Lord with all your heart
and lean not on your own understanding; in all your ways acknowledge Him, and He will make your paths straight. Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones. "




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KNIGHTINGALE Posts: 2
7/28/11 3:33 P

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I also went to a homeopath and have been fibro free for 2 years. It only took two months to be completely free of the usual fibro symptoms like body pain, exhaustion, sleep disorders, brain fog, etc. I continue to see my homeopath to help heal the organs in my body that have been damaged from 8 years of fibro and prescription meds. I am now healed enough to do Bikram Yoga, which also helps in greater healing for the body and mind. My homeopath is Salt Lake Homeopathy in Utah. His name is Dr. Gene Harkins - he's been healing fibromyalgia for years, along with a whole lot of other things. emoticon www.saltlakehomeopathy.com

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7/27/11 4:00 P

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Lyrica, Celebrex and Tramadol..
BUT, big but here.. Question
I have lost my Rx coverage until January of 2012,, CAN I LIVE WITHOUT ANY FIBRO CARE? I have arthritis, diabetes, fibro, high BP, high cholesterol, asthma, diabetic neuropathy, carpal tunnel(supposed to have surgery very soon). Must decide which meds I can live without, literally, I am thinking the fibro and arthritis and asthma meds ... the co-pays cost more than I make in a month!!!

Anybody have input, I would appreciate it.. thank you in advance,,

SIX YEARS SPARKING!!

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2010JOURNEY's Photo 2010JOURNEY Posts: 3
7/26/11 9:34 A

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I have actually just reached my one year anniversary of being pain free. I went to a homeopathic doctor for my post traumatic stress disorder and he prescribed a homeopathic remedy that helped immensely with the PTSD. But he was not satisfied that I was still in pain from the fibromyalgia. So he did more research and prescribed another remedy and it worked. I have been pain free for one year. Homeopathy treats the whole person so he did not feel my treatment was complete until he tackled the fibromyalgia. I would recommend anyone who wants a life altering event to see a certified homepath. emoticon

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7/15/11 2:29 P

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I am on Amytriptyline and Napricin. The Amytriptyline seems to help me "deal" with the pain. The Napricin does nothing. I do exercise and that sometimes helps and sometimes makes it hurt worse. I also gets massages which can really hurt at the time but help later. I came to realize that there are different levels of severity with Fibro. I dont have it as severe as my sister. She cant stand to exercise, get massages and is heavily medicated. Hugs go out to all you that have severe Fibro.

AWSCEARCE1's Photo AWSCEARCE1 Posts: 9
7/10/11 5:22 P

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During particularly bad flares I have take a supplement called FibroMalic. It is composed of magnesium and malic acid. An herbalist friend of mine recommended it but I was skeptical. It was truly amazing at how quickly my body responded. Vitamin B shots have been helpful. Soft fibro hugs to all emoticon

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FATJAIL's Photo FATJAIL SparkPoints: (6,797)
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7/7/11 11:38 P

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Co-Q 10, Cymbalta



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EHATTERY's Photo EHATTERY Posts: 7
7/4/11 12:47 P

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Currently only taking Effexor (been on many different types - this is the latest) and birth control pills ( for the hormones and to lessen the very painful periods) I try to stay away from as many prescription drugs as possible.
Supplements: I take Magnesium ( product called Natural calm) helps with muscle cramps
3000 mg VIT C, 3000 Omega 3's ~ Vitamin B complex, and try... (very difficult for me) try to eat only lean protein veggies and fruit ~ stay away from processed food.
My latest addition is Organic unfiltered Apple Cider Vinegar 2tsp with 1tsp organic honey in a glass of water prior to each meal - helps with energy, inflammation and many other things..


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6/30/11 12:03 A

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I take Gabapentin(Neurontin), Amytriptyline & Zolpidem . The last 2 are to help me sleep. My daughter gave us a 6 inch temperapedic foam matress. It helps both myself & my husband to sleep better. He has a lot of back pain from all the lifting he does.

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SHORTYRN's Photo SHORTYRN Posts: 6
6/25/11 6:40 P

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savella
skelaxin at night
zoloft (panic disorder)
celebrex (OA)
metformin (diabetic)
singulair (severe allergies/asthma)
baclofen as needed
tylenol #3 as last resort for pain
multivitamin
B-12
calcium/vit D

Well behaved women seldom make history......


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6/22/11 12:00 P

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I would love to see a naturopath and try a more holistic approach. I switched to a vegetarian diet last fall and stuck with it for about 4 or 5 months, but then life just got in the way. My boyfriend refuses to eat vegetarian and it just got to be too much cooking 2 separate meals every night. He was dead set against eating any main courses that were vegetarian - wouldn't eat beans, eggplant, nothing w/ soy, so I just gave up and I am very disappointed in myself for doing so. I do still keep our diet more focused on fish and white meat chicken, but he would eat red meat every day if he had his choice.
My doctor has told me that a gluten free diet may benefit me, but I haven't worked my way up to that yet.
I do massage at least once a month to help with the fibro as well.

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6/22/11 10:32 A

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I see a Naturopathic Doctor and my Primary. So between the two I take Cymbalta, Amino Detox, ( 10 days- a yeast die off treament to give me energy), Sam- E, Travacor, cannot eat refined carbs anymore. Put myself on a Vegetarian Diet because I function better.

On my way to feeling WAY better than I have in years. Also acupuncture helped and began the process.



"In difficult moments behave like a duck, keep calm and unruffled on the surface, but keep paddling away like crazy underneath.
-Author Unknown

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6/21/11 5:32 P

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I take the following:
Cymbalta (60mg PM & 30mg AM)
Flexeril - generic (10mg 3x daily)
Topamax (200mg 2x daily) to prevent migraines
Ativan (1mg at bedtime)
Celexa (40mg)
Ambien-CR (12mg) don't take every night
Lidocain patches
Vicodan (10-500 as needed for pain)

I also take the following supplements
Centrum Silver Multi VItamin
Citrical Max (2x daily)
Vit D (5000 IU daily)
Fish Oil (1200mg x 4)

Medications I've tried in the past:
Gabapentin (Neurontin) - side effects were not acceptable - blurred & double vision, tingling in hands & feet
Lyrica - side effects were not acceptable - gained 50lbs in six weeks
Trazadone - worked great as a sleep aid for about 2 years and then just lost it's effectiveness
Ambien - (regular - I now take CR) - I would fall asleep, but didn't stay asleep
There have been others, but I can't remember them now.

I'm not completely satisfied with the medications I take now - Cymbalta makes me very groggy, but it does seem to work better than anything I've tried previously. My doctor actually wants me to take 60mg twice a day, but there are days I can't even take the 30mg dose during the day because I'm already fighting to keep my eyes open.
I also take ibuprofen to control my pain as much as possible w/out having to use the vicoden.

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6/20/11 4:21 P

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I have tried soo many medication and this is what works for me:
wellbutrin and Pristiq
topamax (because of it I have acne so I take minocycline)
norflex ( 2 times a day)
to sleep half a pill of remeron
every 2 weeks I take 10 days of naproxen (I stop 14 days inbetween treatments)

For pain relief I take oxycontin every 8 hours (twice a day wasn't enough even with the same dose divided in 2, every 8 hours works better for me)

for breakthrough pain I take oxycodone as needed every 4-6 hours. Now that I'm feeling better I don't need it every 4 hours.

Because of the narcotics, I have to take colace daily + senokot (both prescribed) because they constipate be badly even if I eat a lot of fiber.

I take a multi-vitamin and if needed I take xanax for PTSD..

It was a long and difficult road to find the right meds, I'm happy that my dr and I have found them. I'm also blessed with a great Dr (been with her for over 15 years) and a great pharmacist. I trust them 100% and they support me totally. When I tried some pain meds that messed me up, my pharmacist helped me and got in touch with my dr to find a solution FAST. It's a lot of pills but with them I can be active and feel normal again. For the first time in over 18 months I don't feel constant pain. Not more than 3 months ago I only wanted to die because of the constant pain so I've accepted the meds because they save my life.

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6/19/11 8:06 P

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Hi, Thanks for the warning. I was on it for 4 months in 2009, and went off it cold turkey, because of side effects.I thought I would give it a try again, I have only been on it 7 days, as it was the end of a prescription I had when I was on it it 2009. I called my pharmacist to see if the shelf life was still good, and she said yes. I tried it again and only had 7 pills left and it did the same thing to me! Disturbed my natural sleep pattern, being hypothyroid I can't be doing that, as most thyroid hormone are produced in the body during the resting, deep sleep hours of the night.Which I can never get while on Cymbalta! So, I'm off Cymbalta again. I wish I did not have side effects because it really is a miracle drug for me! But I can't tolerate it! I surely wish I could!!!!

Thanks for your reply!

Shelley

To say that I am made in the image of God is to say that love is the reason for my existence, for God is love.

Co-Leader of PA. largest SP teams, Keystone Slimdown, with 192,125 Spark people members.

Co-Leader -Philadelphia is on The Move

If you live in the PA. area,Please come join us!! All are welcomed!!

All the time God is GOOD and God is GOOD all the time!


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RATPRINCESS's Photo RATPRINCESS Posts: 46
6/19/11 5:48 P

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Anyone tried Tofranil before? Apparently an antidepressant kinda med which is supposed to be good for neuropathic pains...

Ratology Reloaded is my blog dealing with everything in Ratology ratologyreloaded.blogspot.com/

Disability in Ratology is the place where I share the things I encounter related to disability ratologydisabled.blogspot.com

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6/19/11 5:28 P

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Be care with the Cymbalta, You may need to taper off like most meds in that drug class.

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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6/19/11 9:38 A

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I'm taking Cymbalta ,and Trazadone and Valium for sleep (which I absolutely hate- as it leaves me feeling fatigued and foggy for most of the morning) but with Cymbalta, you need to take something for sleep. Most people do anyway.
I also take 2 oxycodone -325 each morning for pain, and two Alieve for pain in the evening.

I also take the following supplements

Ester-C (1000mg daily)
Vit.D3 (liquid)(1000mg daily) it has stopped all the tingling in my feet and hands
Vit B12 (liquid)
3 TBS daily of Extra virgin coconut oil
Selenium
Potassium
Magnesium
B-complex
Cinnamon caplets 9 2 daily for glucose control-as I have diabetes)
OsCal Ultra
1 asprin a day for heart.

Thats about it! Still struggling daily. I want to stop the Cymbalta.I don't like the way it interrupts my natural sleep pattern. I'm taking my last one today in my prescription and not getting it refilled.I want to try to go it without the Cymbalta. I don't like the side effects.




To say that I am made in the image of God is to say that love is the reason for my existence, for God is love.

Co-Leader of PA. largest SP teams, Keystone Slimdown, with 192,125 Spark people members.

Co-Leader -Philadelphia is on The Move

If you live in the PA. area,Please come join us!! All are welcomed!!

All the time God is GOOD and God is GOOD all the time!


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
6/18/11 3:07 P

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I do not take prescription meds that contain additives/preservatives/and stimulants. I am intolerant to all OTC pain relievers because of the junk with the med. I have found other ways to remove pain through finding the causes of my pain and stop doing it. I avoid gluten, corn, soy, and Belladonna plant family whole and processed foods, hormone and/or antibiotic laced dairy and eggs (I have gone so far as to make my own cheese to ensure accuracy in my personal research). Then some months of going this clean; I discovered sulfites hurt in a collective manner. I will consume a clean whole food for three days and on that third day if my liver gets unhappy and tells my gut, joints, muscles and head to hurt I mark it in my journal.

These steps of journaling and food testing are what a doctor could never do for me. They can provide expensive allergy testing but the true results are in my happier body. Even my doctors are amazed at my conclusions. Sulfites and sulphonamides are a hidden evil in processed food, prescription and OTC meds, and even in some pure organic whole foods. These things I avoid or use sparingly as I do not give up a food easily.

I appreciate a cleaner system with a lot less pain and inflammation. The social ramifications have been intense which I emotionally work through in several ways. This procedure has also reduced Candida throughout my body. I do not make the pain so I do not need the meds. This has been a fabulous effective solution to many of my painful sleepless nights.

My own supplement training by a doctor of Nutrition has been extensive as I have had Fibro for more than 5 years. Some supplements I use daily and some I use in as needed situations. I am winning over infections too; because as my knowledge of health and supplement use improves and my body gets stronger the foreign things get rejected at the door, do not stay in my system, and recovery is faster. Once an endocrine organ goes down others will follow unless natural steps are taken. An MD can not fix health decline with synthetic drugs; Science and laws suits have proven this axiom.


The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
6/12/11 1:01 P

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I'm currently on Cymbalta, Trazodone, Celebrexe, Clonzapen, Omeprazole (because of the Cymbalta), and Kariva (for D.U.B. not fibromyalgia). I tried Gabapentin, but didn't like the effects it had on me.



Virginia,MN

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6/11/11 12:48 A

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Wow, I feel like I'm really over medicated reading this thread! My doctor disagrees. As long as the pain abates, I'm ok with that. I'm currently on:

Gabapentin
Trazodone
Naproxen
Vicodin
Symbicort (I get spasms in my vocal cords, which leads to choking, and it helps the Asthma too.)
Flonase (not for Fibro, but for sinus polyps)

Just started:
Baclofen
Topamax

It's Ambure. Pronounced like Amber. I'll also answer to Red or CRC.

~~~~~~
My Fibro blog is at: capriciousgardens.blogspot.com/

Ravelry ID is Crazyredheadchick

Twitter ID is Crazyredheadchk


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SUZZIEQ81 SparkPoints: (822)
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6/7/11 2:09 P

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The main medication to help with the pain that I use is Ultram. But this I try not to take often as it increases the shakiness in my already shaky hands.

I started taking Folic Acid and Vit B-12 due to deficiencies in both that my neurologist tested for. Those have helped with the shakiness and tingling that I get.

Other than that I just take Vitamin D, Fish Oil, and a multi-vitamin. The doctor wants me to go on Cymbalta but since I manage my flares pretty well with physical therapy and personal training, the cost wasn't worth it (my insurance doesn't help pay for much of it and I personally hate popping pills, I have a hard enough time with all the vitamins!)

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6/7/11 1:43 P

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I was on Lodine for pain for probably 5-6 years and then changed to Celebrex for the pain about 3 years ago and Elavil to help me sleep at night. In April at my doctor's appt. she said my blood pressure was 150/80 which is really high for me. She said it could be from the Celebrex. After I left I started thinking I've been taking meds for so long I don't know what I feel like without it. So I stopped the Celebrex it's been about 2 mths. now. I almost feel like the Lodine and Celebrex wasn't really helping much. I'm a little more sore and stiff in the AM. I'm trying to get back to exercising in the morning. Started on Monday. One thing I found out which I didn't expect was that I was sweating a lot over the last year or two. I thought maybe it was pre menopause. Gyno. said no after testing. I was changing my clothes at least twice a day just because they felt damp from sweat attacks. Since stopping Celebrex the sweating has subsided almost to nothing. Don't know if this helps anyone or not. Thought it was interesting.

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NANASAMM's Photo NANASAMM SparkPoints: (19,145)
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5/30/11 9:45 P

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I take gabapentin at night for sleep and Cymbalta during the day. I also take hydroxychloroquine for OA...not sure if it helps Fibromyalgia at all.

I didn't know one of gabapentins side effects was weight gain. Guess it's been awhile since I've read the pharmacy literature on it.. Hmmm between that and insulin no wonder..

Edited by: NANASAMM at: 5/30/2011 (21:48)


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SHERRYMAGOO Posts: 3
5/17/11 4:30 P

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I had tried so many anti depressants and pain killers &steroids that just weren"t worth the trouble....either they knocked me out which made it worse because as you know if you don't keep moving before too long you won"t be able to or they just didn't give me enough releif to even bother withem.In 1996 I was actually bed ridden for 3 months,Everyday after work my husband would literally carry me into the Drs office for adrenaline and cortizone shots.He then put me on a prednizone dose pack and it worked enough I was able to push my self a lil more everyday till I could turn myself over in bed and then make it around the house and eventually i was able to go on walks.However it was short lived because it started breaking down my skin.My neighbor brought me over an amino acid called L-Argenine.I kindly explained to him there was nothing that would help i just had to live this way....I had tried everything and there was no miracle cure!Just to humor him I took 2 pills a day for just a few days and to my surprise it was so affective I wouln't dare run out today!Body builders take it and in a nut shell it allows your body feed more oxygen to your muscles.Its great for your brain heart muscles.Its about $20 a bottle and I prefer the capsules over the tablets.Today I still don't feel too well a lot of the time but I am a local truck driver working about 60hrs a week.

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PICKIE98's Photo PICKIE98 SparkPoints: (266,902)
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5/16/11 5:41 P

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Went on tart cherry capsules for joint pain which is also from arthritis. Taking tramadol for pain as needed, stopped the relafen to see if side effects ebb..

SIX YEARS SPARKING!!

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MAGISCHE's Photo MAGISCHE Posts: 44
5/14/11 11:53 P

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Right now the doctor has me on Cymbalta, generic Flexeril, and Mobic.
Question: Has anyone had elevated levels of CRP before when your blood work has come back? I haven't had any infections, and my rheumatologist was a little miffed because my CRP was elevated but my tests for Lupus and RA came back fine... Has anyone else had this experience? What caused it?? This was before I was on any of my meds, BTW.

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TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (35,458)
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5/14/11 9:18 P

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I used to take Savella with good results but became allergic to it.
My kidneys react poorly to NSAIDS and like Kathy, I want to keep my kidneys!
Right now I am on gabapentin before bed.
I take Ambien every night.
I just started on Ultracet for pain. I used to be on Darvocet and then the FDA pulled it off of the market. Bummer!

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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SEDONACAT's Photo SEDONACAT SparkPoints: (61,113)
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5/13/11 4:17 P

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I just take Ultram in the AM for the pain and stiffness. Once in awhile I take another one during the day. I usually just put up with the pain that I get later in the day. If it's really bad, I eat something and take either ASA or Aleve at bedtime. These do not like my GI system so I take Aleve rarely.

The rest of my meds are vitamins, extra D, calcium.

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ABERLAINE's Photo ABERLAINE Posts: 6,304
5/13/11 1:22 P

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I've been on Cymbalta and trazodone for years. The first helps with the fibro pain, the second helps with sleep.

As for supplements, I take a magnesium/malic acid combination, Omega-3, calcium, ATP+, extra vitamin D and B-12.

If I need it, I take Klonopin for anxiety.

Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
Leader: Buffalo Bills
-----------------
Dream it. Do it.


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
5/12/11 7:52 P

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I take small daily doses of Vicodin with larger doses for breakthrough. No NSAIDs, I'm allergic to some, and my kidneys won't handle the others... I'd rather keep my kidneys! LOL
I used to take acetyl cysteine, but Medicare won't pay for it, because FDA hasn't approved it for that purpose. Go figure.

Everything else we have tried I've reacted badly to, so this is what I've got...
Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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DIANAPHOENIX's Photo DIANAPHOENIX Posts: 354
5/12/11 10:40 A

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Sleep is a major issue with me, so I take trazadone and gabapentin at night. Ultram in the morning helps prevent the onset of pain, and sometimes I take it again during the day. I use vicodin very sparingly, usually when I have a social situation and don't want pain, or the fatigue from pain, to prevent me enjoying myself. Tolmetin, and NSAID, works best on my headaches.

What is OA? Osteo arthritis?

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SMIDGON's Photo SMIDGON Posts: 4,197
5/12/11 9:51 A

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My dr. will ONLY prescribe Savella, and, its starting to not 'cut it'


~+~

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"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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GWEILO19 Posts: 241
5/12/11 9:40 A

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Always good to do a med check.

Between fibro and OA, here's what I'm currently on and what I'm about to try:

currently on--

Norflex ER
Ultram ER
Tylenol (to treat the headaches that come from the Ultram)
Topamax (to stave off the headaches that come from the Ultram)
Just had Botox injections--in the hopes of getting off the Topamax and Tylenol. (Yes, Botox has been approved by the FDA for the treatment of migraine headaches, and I've had one since 2004... no exaggeration.)

Once the Botox has been vetted (or not) I will be trying Cymbalta now that it's been approved for the treatment of OA.

Can only do one change at a time.

Always trying to lessen the medication, maximize the pain relief and strengthen the muscles and joints. And lose weight!!! It seems to take forever, but I am getting there.

Here's some stuff that did NOT work for me...

Limbrel
NSAIDs (can't take them due to fatal allergy)
Amitryptilene (sp?)--weight gain was not an acceptable side effect
Gabapentin--weight gain was not an acceptable side effect, nor was the double vision


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SARAHTAIT's Photo SARAHTAIT Posts: 25,760
5/12/11 9:13 A

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just wondering what others are finding helpful for their fibro!

I'm on a fentanyl patch and vicodin for break through pain. I also take Cymbalta and muscle relaxers!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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