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CONCERNED85's Photo CONCERNED85 SparkPoints: (4,161)
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3/6/13 12:06 A

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I have a back doctor that diagnosed my fibromyalgia and prescribed physical therapy for me 3 times and started meds to help with the pain from fibromyalgia and changing them when they didn't work. She helped get me a tense unit that helps with muscles that really hurt and a thericane for muscles that are really being stubborn. She does my trigger point injections that help for 2 to 4 weeks; they are the muscles that have been the worst during the time between appointments. I changed my regular doctor that really explains things in real english and takes the time to answer any questions I have. He understands the other physical health things that are common to have when you have fibromyalgia and I have a lot of them. I have a MI doctor that prescribes the meds I need for that and changes meds or doses for those issues. They all have access to the records and information on conditions so they can make sure the meds will not conflict with eachother. I am really lucky to have these doctors that understand all the conditions I have and basically work together to help me.

You can do all things you set your mind to. You can do all things through Christ that strengthens all. Challenge to remind myself of this daily. sparkpeople.com


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PICKIE98's Photo PICKIE98 SparkPoints: (295,476)
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3/24/11 5:50 P

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Any physician that "refuses" to help a patient does not have the patient's well-being in mind, is not living up to their hippocratic oath. The true sign of a good caregiver in any capacity is the ability to admit they personally cannot provide the direct help, but will freely and gladly refer and/or recommend alternative methods, people,etc to complete the transaction of patient/doctor helping relationship. A paitent should never have to, nor ever DO leave a treatment room without receiving any of the above. If any medical "professional refused to do that for me, I would immediately replace them and report them to the hospital Chief of Staff. Most people do not realize that they have the power to do this. Chief of Staff decides if the professional is at fault, is worthy to be on staff at that hospital. NO doctor wants to be reported by a patient.

Edited by: PICKIE98 at: 3/24/2011 (17:53)
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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
3/22/11 7:03 P

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I want to thank Magic for her insight. I agree with her sentiment. I have seen a serious drop in pain by giving my body the power to heal by an avoidance of all that causes pain, I find. Then, a doctor and I see a reason to stop using a product or food. The mechanical body parts that were sick before fibro will or may always be there in less than sound condition. The multi-symptom relieve I have is only from natural sources. The daily vitamins and detox program are from clean pharmaceutical sources; no additives or preservatives my body would respond in an allergic or inflammation causing ways. I reach for whole foods of organic philosophy when possible due to availability and budget allows, which does sit high as a priority of choices lately. Removing stimulants, excitotoxins, yeast, baking powder, or any of the foods I know I am intolerant of; has helped to clean the pipes. My skin crawling symptom is gone most of the time. When I have a cross contamination or try something on purpose; the pains and signs return for a few days then gone again when that thing is not in me. Small weight loss is now possible. It shows a little downward progress at each appointment. It took time and journaling to find the ‘ouch’ foods I must stop consuming. It took wonderful doctors of many disciplines to capture the truest cleanest way to get to pain –less and sleep more. Stopping the insulin resistant cause has shown an amazing landmark of pain reduction. I am mostly pain free and the return of energy sits in an unknown category as I attempt to follow directions of many types of doctors. This is what it took to approach and heal slowly. Good question!



Edited by: MARGIE100%PURE at: 3/22/2011 (19:07)
The greatest love story is your own.
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Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
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CEKER9's Photo CEKER9 SparkPoints: (12,728)
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3/20/11 12:15 A

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I recommend a naturopath... when I was seeing medical doctors, they only gave me "stuff"... medicines that made me sicker. I finally started going to a naturopath. I have had several and you need to know they have different specialties just like medical doctors. There are some that use homeopathy, some strictly herbals, some strictly vitamins, and some manipulation similar to chiropractors, and some a combination of various specialties.

I actually go to a naturopath that does mostly vitamins now although I have been through all of the above and they all have had a piece of the answer. I still have daily pain, but the intensity of the pain is *way* less than it used to be... I think that it can be alleviated/lessened, but not cured. I was diagnosed about 30 years ago, but from the symptoms had it a couple more decades. I have times when the pain is so light that I don't notice it until I have a massage or a chiropractic treatment.



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TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (36,744)
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3/19/11 7:44 P

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My rheumatologist has been a real blessing. I am lucky my internist sent me to see her.

ps....I have never heard of anyone recovering from fibro either.

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
3/19/11 2:27 A

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Trying to find the right words! LOL

I don't have a naturopath any more. Besides my PCP, I have seven--or is it eight?-- specialists I see because of various health issues... life is too complicated sometimes...

At this point in my health care, I don't see a naturopath doing anything different from what my PCP does, which is keeping tabs on labs and coordinating what all of THEM do, y'know? LOL

Besides, My insurance won't cover alternative care... and I can't afford to pay for it myself! LOL

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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SASSYTHING52's Photo SASSYTHING52 Posts: 11,102
3/19/11 12:34 A

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Um, I love naturopaths what???

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
3/18/11 8:05 P

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Um, I love naturopaths, and went to one for a long time... they are usually well informed, and very bright and extremely helpful... that was a long time before I was diagnosed, but... where did yours hear that people got better from fibromyalgia? I was definitely under the impression that it can be managed but not cured... hm.

Here's a definition of the disorder I came across online (about what everything I've read has to say too)...

www.nfra.net/fibromyalgia_definition
.p
hp


"Fibromyalgia is an increasingly recognized chronic pain illness which is characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue tenderness, general fatigue and sleep disturbances. The most common sites of pain include the neck, back, shoulders, pelvic girdle and hands, but any body part can be involved. Fibromyalgia patients experience a range of symptoms of varying intensities that wax and wane over time...

...Symptoms usually appear between 20-55 years of age, but children are also diagnosed with fibromyalgia syndrome.
Pain and severe fatigue may keep FMS sufferers from their chosen profession and unable to perform common daily tasks.
Fibromyalgia pain continues throughout a person’s lifetime."


I know I get fibrofog...so it's totally possible that just maybe I'm just misreading this, can you explain it to me how it gets better? I haven't seen any sign of it doing so for me... and from reading the posts, few of us have... emoticon

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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MADCATTRINA's Photo MADCATTRINA Posts: 519
3/18/11 12:02 A

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Naturopath was more helpful than all the MD's that I went to but after two years he had taught me how to eat properly and balance my hormones (insulin being a hormone too) but after two years he told me that most people get better from fibro after this long. He suggested that perhaps there was more going on and I look around for a Lyme Disease literate doc. I hemmed and hawed because there was were I started and was distracted with fibro and Chronic Fatigue and adrenal fatigue etc. Actually all were true but a sub set of Chronic Lyme Disease and toxicity symptom set. I am now seeing an environmental medicine MD and have been very impressed. He specializes in diseases like Parkinson's and autism. He is like the ant and the rubber tree plant. I have been seeing him since August and what he suggests is expensive and slow but I am seeing relief.
In other words FMS and CFS are themselves a set of symptoms. What is causing them? Finding the right doctor is not easy. If you are anywhere near Worcester MA I can give you his name. I drive two hours each way to see him and let me tell you the trip is getting old. Well worth it but long day driving four hours and paying so much money. Shouldn't be so hard to get better, should it? Another hint, you are seriously toxic. Good Luck. Cat

I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
3/17/11 4:10 P

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A lot of doctors are leery of getting involved in pain management because of the addiction issues that can arise.

If I were you, and I felt like I needed a pain management specialist, I'd go through a rheumatologist to get there--simply to confirm that what ails you IS fibromyalgia, and not one of the 300 or so other related issues... your current PCP can refer you. And there are a lot of different treatments a rheumy can try that your regular doctor might not know... If he can't help you, they will refer you forward.

As for being scared... I don't blame you. Meeting new people can be intimidating under NORMAL circumstances, but when you are looking at someone else planning your life for you... well.

My mother was in the health profession, and she taught me to look at meeting a new doctor as a job interview--and I AM THE ONE HIRING. ME. Doctors go to school for a very long time, to learn how to care properly for other people... but they don't know me, or the body I live in. I am in charge of my life and my body, and unless I'm unconscious, I am making the decisions.

To quote a character in a book I'm writing, "Courage isn't about having no fear. It's about moving through it to the other side. The other side of fear is where we win."

Finding the place where you win is worth working toward, so take your life back into your own hands and go for it!...and let us know about your progress, I'll be cheering for you!

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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DMCCAUGHAN SparkPoints: (0)
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3/17/11 3:10 P

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I've seen suggstions on rhumetologists, pain management, etc, but I'm not sure which one to use! My family doctor refuses to do anything even associated with pain management, and to be honest, I'm scared to death of new doctors.

“Time is free, but it's priceless. You can't
own it, but you can use it. You can't keep it, but you can spend it. Once you've lost it you can never get it back.” --Havey MacKay--


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