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BROADBRUSH's Photo BROADBRUSH Posts: 1,806
6/7/13 2:40 P

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pain is pain is pain - so that is a hard question to answer - take today - everything hurts and i had to go to the clinic for blood work. they could not get any blood (small veins) - but i endured the tying of the rubber band - back and forth from arm to arm - the poking - the needles in and out looking to puncture one . the one they found collapsed - after one vile but they needed seven.
i hurt - inside and out - of course the RA kicks in all the time too. so i guess i would summarize by saying my worst fibro symptom is my body and brain DO NOT FUNCTION in a flare up.





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SMIDGON's Photo SMIDGON Posts: 4,261
5/29/13 6:33 A

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It's been awhile since I have been on here. And, it seems I am 'getting worse'!

My GP saw fit last fall to take me off Savella! The only thing that helped me at all! He said it was because HE didn't like it! I have other issues since I have been on here last! Since going off Savella; I have gone from hot stabbing, burning pain all over, to being chilled to the point at times of actually 'shaking' from coldness! Very seldom am I without my cardigan made of sweatshirts

I have coughing [since last fall] along with 'strangling' feeling; chest discomfort; and extreme fatique! Continue fatique; different places, different times discomfort to the point of a 'chafting' sensation! It's hard to explain! As far as wanting to sleep; how about 24 hr. a day! Promises a lot of things; no follow through.

I did find a dr. who will check out your heart w.o a referral. He ran tests on my heart like they do standard procedure; my heart is perfectaly healthy! PTL!!!

But, I want to go back to a rhumtologist ??? And another dr.. But, guess what; diffentally have to hav referrals! GP says I am doing "Pretty darn good!!!"

Now, I am atempting to take matters into my own hand. Taking what I have to work with; and, researching, to see if I can 'help' myself!!!

Edited by: SMIDGON at: 5/29/2013 (06:35)
"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (35,458)
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5/28/13 9:54 P

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I get chills frequently. In fact, I am cold a lot.


Please, please, please mention the bloating to your doctor. It is probably nothing but sometimes it is the only symptom of ovarian cancer. Please check it out.

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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EMMADC1's Photo EMMADC1 Posts: 382
5/24/13 11:32 P

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Hi,
Does anyone also suffers from extreme blotting and chills beside the regular burning, stabbing pains all over??

Please help I am going crazy with all the pains and symptoms.

Lord give me the strength to be the best that I can be with the gifts you have granted me.
And, if I fail hold me in your loving arms and let me know that you will always be with me even when all others have left.


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LILPUT1964's Photo LILPUT1964 Posts: 90
10/11/11 10:59 P

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Lately, emotions- crying. Second (because I can hide it better than emotions) is achy muscles. My TMJ is acting up lately, too.

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5/15/11 10:42 P

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Have you been checked out by a doctor for fibro? If not you might want to get a physical. Have they checked your hips lately?

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SMIDGON's Photo SMIDGON Posts: 4,261
5/15/11 8:38 P

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I'm beginning to wonder if the fibro. and CFS is making my bp issues where they are today!

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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5/15/11 8:22 P

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it just freaks me out trying to figure out where the next pain will be. the weather here sucks right now so i am all over the place. fibro-fog- last week my family and i had an appointment and we never did make it, because i forgot the paper at home with all the important stuff on it, and i have been doing that for awhile now, i actually thought that i had alshiemer. i use to have people ask me how i keep it all together and now i am reduced to pieces of paper all over the house. i also am a firm believer that stress is the key to this whole thing. it is so nice to have people that know just how i feel and i just feel so terrible though i feel as if i am dumping my garbage on you, but i am happy to know that we are all out there just waiting to help, read and be compationate with each other . if others can not ,we can be with each other. i keep you all in my prayers and hope they find a cure soon.

METALMAMA2 Posts: 34
5/15/11 1:25 P

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I would have to say my worst symptom is the fatigue. When things are in hyperdrive I can sleep 12-14 hours a day. As this is not an option for me with my job the fatigue gives me severs brain fog. When the weekend comes around all I want to do is sleep. Working out during these phases is nearly impossible.

TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (35,458)
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5/15/11 8:06 A

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The bursitis in my right hip has been awful but starting to improve. Now it is getting worse again and my left hip aches too! Last night I had a burning pain at the back of my left armpit. Two days ago it happened on the other side. I have no idea what that was all about!

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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5/14/11 11:32 P

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I know how you must feel. Last year I had 2 total hip surgeries and couldn't hardly walk. I am doing so much better. I am on cymbalta and Gabapenten (sp). Right now it has been helping pretty well.

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SMIDGON's Photo SMIDGON Posts: 4,261
5/13/11 7:09 A

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Yes, I have been to drs, and specialists. I have tried everything they have suggested. At present the only thing that has helped is Savella. And, I fear that may be losing its power. Then what?

I can go for a while without my cane. Won't go w/o it if I have a parking lot or such to go across on my own. If I can reach out and touch furniture or walls I'm okay.

Bless you all.

~+~

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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5/12/11 9:35 P

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Fibro. is not fun. Have you gone to a docto to see if he can help you with medication? I take med. 2 and other 3 times a day. Lately, t has been undercontrol. But other times it isn't. Good luck.

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VIEVIE63 SparkPoints: (0)
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5/12/11 7:27 P

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lord do i hear you. i find it really hard to be stopped in my tracks also, today i can not even walk so out come the handicapped crutches. when i am a little better i use a cane. i also know what you mean by the whole body fatigue. but the the fibro fog is driving me crazy i have little papers all over the place and have to have my husband present for any important matters . there is a little side of sunshine and that is the nice times are a coming and we will feel better soon.

SMIDGON's Photo SMIDGON Posts: 4,261
5/12/11 9:55 A

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I, too, Sarah have the all-over bod ache with deep muscle 'burn' Along with that. being stopped cold in my tracks. Like a robot being turned off!

emoticon

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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SARAHTAIT's Photo SARAHTAIT Posts: 26,171
5/12/11 9:10 A

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my worst symptom is the unbearable ache all over! it is really severe!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


Leader:

Yorkie Lovers

Fibro Sisters


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SMIDGON's Photo SMIDGON Posts: 4,261
5/10/11 5:31 P

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I too feel 'fire' in my muscles and utter fatique [CFS} also Fibro.. I take Savella for the Fibro.. At times I fear the meds are losing its power.




"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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5/9/11 10:47 P

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Good job. I will check on any shoulder exercise I might have. Have a great day.

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TENDERBEAT's Photo TENDERBEAT Posts: 29
5/9/11 10:06 P

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I'm new to this team and my heart goes out to all of you hurting people! I don't know anyone close to me who has fibro but now I feel that I'm not alone in this struggle.I experience pain is all over my body, I feel like a one big bruise. Sometimes I feel "fire" in my muscles. When I walk, the bottom of my feet hurt. When I attempt to ride my bike, my bottom hurts, etc. Last week I went for a mammogram and almost fainted from pain. The key for me is to find humor in something everyday. Also, I found that walking is the only thing that doesn't hurt much and something I enjoy. I also encourage you to find God in your darkest moments because you are loved! :)

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WISEDUP1's Photo WISEDUP1 SparkPoints: (40,301)
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5/8/11 9:55 P

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Thank you for the stretching ideas TRY2KEEPGOING! I am going to try it out as soon as I am off. SUCCESS-AMT, Yes, I love walking. Today I walked 2 1/2 miles. :)
Any good stretching ideas for the shoulder? I like the towel stretch that sparkpeople suggests but wonder if there were others. Also, I decided to take out the Hip Flexor in the strength Training routine and this should help!
Thanks again for the ideas and support!

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5/8/11 9:32 P

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I am glad to hear you say this. It seems once you start to walk it gets in your blood. Ha! Even if you walk for 15 min. , 30 min. or longer, every little bit helps. Have a great day.

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5/8/11 2:00 P

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I feel your pain WISEDUP1, Literally. I have bursitis in my hip and have been doing physical therapy for almost a month. It is helping but it is a slow process. I go back to the doctor tomorrow so we'll see if that is what I keep doing or if it is time for a cortisone injection.

The physical therapy involves slowly stretching the hip. If you are feeeling pain when you do it, you are doing too much. It is the band of muscle going from the front of the hip down to the knee. Do a lunge with the foot from the affected side up on the edge of a chair. Tuck your pelvis in and then slowly lunge forward. You should feel it in the anterior hip and thigh. Another is to rest the ankle of the affected side on on the opposite thigh or farther down the leg if you feel pain. Slowly bend forward to stretch the afected hip. Again do these to stretch, not feel pain. Be sure to ice your hip several times a day to decrease the inflammation.

This bursitis is really a pain. My doc told me it would take at least 8 weeks of stretching and strengthening to get improvement. I am doing better but still have a way to go. Good luck and I hope this helps.

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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WISEDUP1's Photo WISEDUP1 SparkPoints: (40,301)
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5/7/11 6:39 P

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SUCCESS-AMT, thank you for your kind words. I am looking forward to some nicer weather to walk out doors. :)

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5/6/11 3:12 P

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If the pain when doing the exercises is to much then do something else. If you can walk and not fill the pain then walk more. You poor thing, if it hurts to much you are doing as much as you can. Sounds as if you are really trying to do it right. Have a good day.

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WISEDUP1's Photo WISEDUP1 SparkPoints: (40,301)
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5/5/11 10:20 P

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I feel your pain. I have Bursitis and started taking Piroxicam almost a month ago. It about kills me to do my strength training cause the repetitions esp, in the hip cannot seem to do it. I push myself as much as I can. sigh...I just don't know what is the appropriate amount to do. Seems like 15 mins/3x week is it with my walking almost daily. Do any of you have exercises or stretches that help relieve some of the pain?

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5/5/11 7:05 A

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i HOPE THINGS ARE GETTING BETTER FOR YOU. ARE YOU ONSNY CERTAIN MEDICATION. I AM ON CYMBALTA 2 TIMES A DAY 60 MG, PLUS GABAPENTIN 300 MG 3 TIMES A DAY. I ALSO TAKELOWER TAB 3 TIMES A DAY. IF I WASN'T ON THIS I DON'T KNOW HOW I WOULD MAKE IT THROUGH THE DAY. EVEN WITH THIS I SOMETIMES STILL GET PAIN ON CERTAIN DAYS. GOD BLESS YOU! HAVE A GOOD DAY.

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VIEVIE63 SparkPoints: (0)
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5/4/11 10:03 P

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well hello again,i have been having the worst week in a long time the pain travels continuosly all over. today i have a migrain coming on . the thing is i am so stressed out i am selling my barber shop and we are in the final stages of the sale . it is really nerve racking. i have to sell my business because i can not take care of it as much as i would like to. i will not be diffined by this illness either but it sure has changed my life and i do hope that after it will be sold that i will feel better, not having so much stress all the time. i am also sending out positive energy to all of you out there that need a helping hand just to get on with your daily chores.


p.s. our better day's are coming girls we will be able to get out and do instead of watching others

Edited by: VIEVIE63 at: 5/4/2011 (22:04)
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5/3/11 9:30 P

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I was on celebrex a few years ago. The Gabapenten (sp) it fdor Fibro. It was the main medicine before Lyricia. My insurance would't pay for the Lyricia so they put me on the Gab. 3 times a day, and the cymbalta I take 2 times a day. I hope your doctor can help you. Try to do what exercises you can do even if you set in your chair and do some.

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JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
5/3/11 7:28 A

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I'm on cymblta and celebrex for pain. I have an appointment with my doctor to see if there is anything else that I can do to relieve some of the pain. I'm a lot worse when I'm not taking either of my pills, but on the bad days it seems like they are only working a little. I do the stretching and walk a little so I don't get why my flair up keep happening. I have noticed that I have become extremely sensitive to sounds, which do cause some flair ups.



Virginia,MN

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5/2/11 9:33 P

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Are you on any kind of medicine. I am on cymblta, it is for depression and pain. It is exspenisive. I also am on gapentin (sp). These things really seem to help me. Maybe you could get your doctor to put you on some medicine.

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TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (35,458)
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5/2/11 7:49 P

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Jeannie--I am so glad you get help when you need it!

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
5/2/11 7:01 P

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The pain get so bad at times, I want to do something to harm myself just to feel a different pain. I have to restrain myself from doing anything, but it's not easy. In the past I have tried to commit suicide. The days I feel like this I tell my husband and mom right away so they can keep an eye on me.



Virginia,MN

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5/2/11 12:05 P

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Welcome! I hope we can help you. It is so true that Fibro. does hurt badly and it moves around a whole lot. Have a good day.

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GLORIANANA's Photo GLORIANANA SparkPoints: (6,041)
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5/2/11 11:38 A

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Welcome Auntnaysdiet,

No your not crazy the pain is real and it does hurt to do exercise, but from what the doctor's say it's best to do some exercise. I is horrible to wake-up every morning with a new place that hurts. I have had this for years but was not diagnosed until about three years ago. Doctors used to look at me like lady your crazy and there is nothing wrong with you, if only they new how we feel. I know none of us want to feel the way we do so why would we make it up. Well I welcome you to our group and I hope that you will be able to share how you feel here. emoticon

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AUNTNAYSDIET Posts: 2
5/2/11 9:45 A

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I am new to this group but just reading over some of the posts have already helped. I am NOT crazy the pain DOES shift around and exercise DOES hurt! I've begin a yoga class but there again I do have to watch it.

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4/25/11 10:18 P

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I have myself doing that too. If we just didn'tget that pain. Have a good day.

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GLORIANANA's Photo GLORIANANA SparkPoints: (6,041)
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4/24/11 2:42 P

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This year has been the worst yet for me. I hurt from the waist down especially in my knee's but also on the left side of my waist and hip. I went for and MRI and they say that I have done something to my knee and may need knee surgery. well the the weather isn't helping me much this year either. My doctor tried wanted me to start on the Cymbalta but my insurance wouldn't cover it, So now I am back to square one.

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JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
4/24/11 8:27 A

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VIEVIE, I do that. I didn't realize it until you mentioned it. I'm going to need to find a different way to deal with it.



Virginia,MN

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4/21/11 7:57 P

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i hope smeone out there will underststand this great revelation that i have just have i noticed that everytime i am having a really hard time with the pain i usually turn to comfort food to hep me through it. i geuss if my hands are busy feeding my face i did not realize that i was doing his till tonight. now if i can just find a way to get through this .

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4/21/11 11:42 A

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this has been a really hard spring for me my whole upper body is really getting picked on i can almost feel my bones shifting . my hands are really hard i can not even knit which is my favorite passtime. the bones in my arms feel as though they are going to break at any moment. i hope they find something for this illness i am tired and feel terrible most of the time.the temperature is not helping mind you. i am also elly tired of the fog i call my kids by other names then their own and sometimes the wrong word comes out and i have to search to find it , it just makes my life a little harder because have to explain to people all the time why i can not alway's talk normal i have two languages to run through, it can get frustrating. but oter then that i keep my chin up and my constant permanant smile . the trick is to find something funny in everything that you do even if you make a mistake. vie ie

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4/20/11 8:59 P

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Yes, it would be nice if someone would come up with a complete cure. I ad two total hip surgeries. I haven't been in a bath tub for everal years. But I bet that just doing some exercise in the tub helps. It is that aching all over especially in my arms and shoulders. Have a good day.

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SALESSE's Photo SALESSE Posts: 2,795
4/20/11 8:37 P

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Hi

I was just reading about when you exercise you end up hurting yourself, did you ever try to exercise into water ,even in your tub at home
I do that every morning to stretch in my tub and it help a lot , it i easier on the joint, i would say especialy my back .

BUT the tiredness is so awful , i find it very hard to do my housework, i do a little and have to go lay down and i fall asleep it seem whatever i sleep i am always tired , anyway i do really widh somebody would find a real medication or something for this fibromyalgia so that we
would be able to live again




























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4/8/11 3:32 P

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Well in you case I guess you have realoly got to go very slow so you can exercise etc. without hurting yourself. In the long run I beleve you can do it.

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JEANNIE1238's Photo JEANNIE1238 Posts: 2,522
4/8/11 10:00 A

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Tammie I have the same issues with the exercising. I end up hurting myself also. Even with starting out slow and sticking to a 10 minute session.



Virginia,MN

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4/8/11 1:07 A

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I usually go to bed anytime between 10 and 11 and sleep till 7. Sometimes I feel like I didn't sleep at all. If I take juice before bed it keeps my blood sugar low enough all night that I sleep better. I don't journal, but I do know that anything too exciting or stimulating late in the evening will keep me awake more. No action movies or late parties for me very often. Melatonin didn't work for me, but I take 5HTP and it helps. With this program (SP), I struggle with the fitness part. I usually hurt myself whenever I try anything, no matter how slow I start. My mind is willing, but my body won't do what I tell it to.

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4/7/11 10:16 P

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Are you sleeping how many hours a night? Do you keep a journal and write down whateve might be sressing you out? I have been usuing melatonin at it has been helping me. Last nigh I woke up 3 different times and went to the bathroom. This is the first time I have done this in a long time. Have a great day!

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4/7/11 9:15 P

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Belle - I did lots of research and get my supplements from immunesupport.com. They specialize in research for Fibro, CF and alzheimers. Just recently I found out my thyroid was low and that has helped with fatigue. I do take supplements for sleeping, and if I have a glass of juice before bed, I sleep better. Something to do with my blood sugar and adrenalin in the middle of the night. I am hypoglycemic as well.

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4/7/11 8:05 P

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well this sure has been a really weird week. last tuesday i went in to the hospital for an operation to have my uterus removed, things could not get worst i was sure of that. well i was wrong for the three day's i was hospitalized and two day's home i could not move either of my arms they hurt so bad. i even had a bad re-action to the morphin. i am glad to be back and feeling better this has been the best two day,s in the longest while. i thank god for these special day's and hoping you all are felling better. vie vie
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4/7/11 4:06 P

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Tammi /
Are you taking any medications? i also was diagnosed in the early 90s and until 2 yrs ago if i got 4 or 5 hours sleep a night, it was a good night.

the changed my meds 2 years ago, and things are so much better. i am able to function, work full time, take care of my son, and the best part -- sleep at night. I still have the daily pain, and the occasional lovely flares, but overall i am much better.

if you do take medications or even supplements, you might want to look at them and see if any one pill or a combination of a couple items could be causing your sleep issues.

Actually after i wrote this i made the assumption that you were not sleeping -- but i realized being tired may have nothing to do with your ability to sleep. But, anyway, you might want to looks at your supplements.

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4/7/11 3:21 P

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Great! You have taken charge of your life and of Fibro. I am glad that you are able to do what you can. Plus get the massage oooooevery two weekks sounds wonderful. Have great day.

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4/7/11 3:14 P

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I have had it since 1995 and I don't let it define me. I did some research and take many vitamins and supplements to control it. I notice that it settles somewhere for a while, then picks a different spot. Right now it is in my hip and lower back, but for the past two years it was my shoulder and bicep. I also struggle with the fatigue. this past year we budgeted for me to get a massage every two weeks and chiropractic maintenance on the opposite weeks. I am able to be involved in a part-time job and community theater.

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3/31/11 5:48 P

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You are so right. It seems to move where ever it wants to. I hope you are feeling better.

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