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CJSAMPSON298's Photo CJSAMPSON298 SparkPoints: (2,693)
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5/10/12 8:38 A

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After I was diagnosed in 2000 with Fibro I gained over 100 pounds. I lost 50 pounds of it, but am now fighting with 15 pounds that goes off and comes back and goes off. I need to get it off and another 30 to 50 pounds if I can. I hate being Obese.

Blessings and Peace,
Candi


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SARAHTAIT's Photo SARAHTAIT Posts: 26,278
4/3/12 12:32 P

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Krystal..I am in the same boat as you...no pharmacy insurance so I can't afford meds....but I agree with you totally that moving and exercise may help with our pain...in fact I am working on finding out for sure....I walk 2 miles per day but recently added strength training which I believe will help alleviate pain (after I get rid of this soreness)

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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KRYSTALLA's Photo KRYSTALLA Posts: 1,094
4/2/12 9:30 P

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When I was first diagnosed with fibro over 20 years ago, both my regular doctor at the time and the rhuemotolgist both had mentioned that my at the time recent sudden weight gain had to do with my developing fibro, and they each wanted to make sure that any medications they put me on would not cause any additional weight gain as a lot of them can and do. They had also each told me that it is harder for people with fibro to loose weight. I really wish I still had those doctors but they no longer practice, they retired, or wish I could find ones like them.

I have not been on either of the two medications that most of the people have mentioned. Part of that is because over 5 years ago I had lost my full time job and lost my insurance, that is the main reason. I also do not want to be put on meds that can cause me to gain more weight among other side effects. I also have allergies to a few medications although they are mostly antibiotics that I am allergic to, I do not want take some that could cause another major allergic reaction. Right now I take each day at a time, I know I am in pain daily every day varying in the intensity, but I try my best to not let it bother me. Yes I have some very bad days that I can't move or do much. I have found that when I was using the Wii Fit a few years ago regularly for the yoga and strength training exercises on it, along with some others exercises on it, I was able to slowly start doing more and had more flexibility. I also like others have mentioned in other posts in the summer do water exercises in the pool when the weather is good. For other reasons I had stopped doing them, but will probably cover that sometime in a blog, but for now I know I need to get back to doing those exercises again and start slowly like I did when I first started them.

Good luck on your journey and hope you have more days with less pain or pain that is somewhat tolerable then days of the worst feeling pain.

Lisa

Eastern standard time zone.


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SARAHTAIT's Photo SARAHTAIT Posts: 26,278
4/2/12 12:24 P

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Starr...I was on 200 mg of cymbalta for about a year....I am off of it now because when my hubby died I lost my insurance and can't afford it. I think that is the max dosage for it.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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TEENYSMOM's Photo TEENYSMOM Posts: 4,546
4/2/12 11:21 A

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Patty,
You sound a lot like me. I have tried Lyrica, but gained weight on it. So I have been on Cymbalta since that, 2 years now.

Like you, I also found that it really is helping keep my pain down. The winter before last my husband was admitted into the Veteran's hospital, which is an hour drive from our house. So, I would stay with him all day, then drive home at night. And be back up there early the next morning. Well on the 3rd day of this very hectic schedule for me, I left the house without taking ANY of my medication. By the time I made the trip back home that night, I was really hurting A LOT more then usual. I thought it was just the extra strain on my body from spending all day at the hospital and all the time that I was spending driving a long distance. The next morning, on my way back to hospital and was in serious pain and realized that, yet again, I had forgotten to take my morning medications. And then it finally hit me why I was in so much pain. Had not had my morning dose of Cymbalta for two days. As soon as I got home that night, I put my weekly medication dispenser in the car, so that I would have it with me the next day. That next day, after having all my Cymbalta in me, the pain was not as bad. And the day after that the pain was back to "normal". So I found out that Cymbalta really does work on Fibromyalgia pain. I learned the hard way, but I did learn.

It is often that I feel like a zombie, I am almost always sleepy, and if I have any energy at all, it is very low. I hate it. But nothing that can be done......as far as I know.

~~Starr~~

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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PATTY1728's Photo PATTY1728 Posts: 295
4/2/12 10:17 A

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I currently take 30 mg of Cymbalta in the a.m., and then 60 mg at night. I think 90mg a day is the most that can be prescribed. But don't quote me on this. I'm not 100% sure. I also take 300 mg of Lyrica dayly. Don't know if it is helping me or not. Would like to dose down to see if there is any difference in how I feel. I have lost about 19 lbs in a year, so I guess I should not complain, but that is weight I gained while being on all this medication. For me I know Cymbalta works. Last year my doctor tried to take me off of cymbalta. Once off it completely, my worse pain was back. Doctor put me back on. Frustrating. Some days I feel like a complete Zombie. Always sleeping, not much energy. I am always grateful for my good Days however!

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TEENYSMOM's Photo TEENYSMOM Posts: 4,546
4/1/12 9:43 P

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I am also having problems with TSH levels. Endo keeps raising/lowering and changing medications. This has been going on for 2 years now, with no results in sight. I hate it. The only other Endo is a 2 hour drive away, which I am not able to do.

~~Starr~~

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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SASSYTHING52's Photo SASSYTHING52 Posts: 11,096
4/1/12 9:33 P

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medicines will cause you to gain and fibro goes with that especially if ur tsh is high or low im not sure im going thru that now

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TEENYSMOM's Photo TEENYSMOM Posts: 4,546
4/1/12 9:33 P

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I took Lyrica 2 years ago, gained 8 pounds in less then a month!! I told my doctor that I did not care how much pain I was in, I am not going to take a medication that makes me gain MORE weight.

Now I am taking Cymbalta. 30 mg in the morning and 60 mg in the evening. As far as I know, I have not had any weight gain because of it.

Does anybody know what the highest daily dose is that a person can safely take of Cymbalta?

~~Starr~~

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,953
4/1/12 9:23 P

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Are you taking Lyrica for your Fibro? That in itself will make you gain weight.

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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TEENYSMOM's Photo TEENYSMOM Posts: 4,546
4/1/12 9:22 P

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My Dr. said that having Fibro COULD make it more difficult to loose weight....she did not say that having Fibro would MAKE me gain weight!

But it figures!!

~~Starr~~

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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BKLYNBROAD's Photo BKLYNBROAD Posts: 36
4/1/12 8:35 P

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For years I subscribed to the Fibromyalgia Newsletter. I recently let my membership lapse, but received an online bulletin from them last week stating that they've just found that those of us with Fibro have a certain genetic marker that makes us gain weight. I'm going to have to renew my subscription in order to get more information on this topic, but was wondering if any of you are aware of this.

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