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MADCATTRINA's Photo MADCATTRINA Posts: 519
4/26/11 11:06 A

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Absolutely Kathy, couldn't agree more.
A friend bought me a book because she was thinking of me when she read it. When I saw the name of it I instantly thought, there goes another person who thinks this is all in my head.
Not so! This book is about emerging new approach to medicine. Instead of being very specialized our doctors need to be very generalized. There are far too many doctor who rest on their laurels and focus on "running their business" instead of healing and helping their patients. The author doesn't consider anything sacred ground on which he treads lightly; he goes after every weakness of the system.
Due to politics, litigation and greed, I think that the very patients which doctors took an oath to serve have become their adversaries and insurance company are considered the ultimate chess game, using wily strategy to out smart them.
Then there are those few sincere doctors who would go the extra mile but find it too dangerous in the present mentality. Instead they submit to frustration, not being able to help their patients, the pill for an ill methods, staying hostage to politics, docs that are on board with the system as it is, and the insurance companies, with a lack of options.
Again I am only on page 100 and think that this book is amazing. In the first 100 pages I have probably picked up that many small pearls of wisdom. The author is an MD who is the son of a chiropractor.
His father convinced him that he could do more good for people by pursuing an M.D. career. However, what he was taught conflicted with what he had grown up with and once medical training was completed he went on to pursue holistic medical training to combine the best of both.
I am thrilled with this book and encourage everyone who is interested in delving into the, why's of their illness, disability and standard medicine pitfalls, to read Heal Thyself by Pieter De Wet, M.D.
As I read along I keep thinking, that makes sooo much sense. The last part of the book looks like it will be offering specifics. Can't wait to get there.

I.M.MAGIC's Photo I.M.MAGIC Posts: 12,840
4/26/11 12:19 A

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Good for you, MADCATTRINA! I like that you have been proactive in your own healing process. We are all unique, and it takes a while--and a lot of trial and error sometimes--to come up with anything that works...

I've been seeing my current rheumatologist for about a year, and he is a lot more thorough than the first one I saw, who diagnosed the FMS for me. It was such a relief, but as time goes by I realize there are some other issues as well that don't quite fit just the FMS. He agrees. He thought I also had lupus for a while, but the tests are inconsistent--they come back positive one time, and negative the next--and some were never positive-- and there is a HUGE inflammatory response that doesn't fit anything--and some symptoms respond well to prednisone and another of the offbeat types of anti-inflammatory drugs, acetyl cysteine, that they use for CF... (My kidneys won't let me take NSAIDS.) and some don't...

Like I've mentioned on other discussion threads, he's thinking it's another of the 200 or 300+ connective tissue diseases out there... he is anxious to put a name to it, as he says it's harder to know what treatments to try or NOT try if you don't know what it is. He doesn't want to just treat the symptoms and let it go at that, if there is something else that might be more effective...

I don't like just trying drugs on the off chance it might help--that's all my other rheumatologist did, when it comes down to it. This one's SMART. He listens, and he keeps up on the new research--he even told ME about the fMRI studies with FMS--In short, I LIKE this guy! LOL

The thing is, a lot of what regular doctors do is based on unproven theories... there is as yet no definitive answer to what triggers FMS, so treatment is reduced to the palliatives... There is also a placebo effect that can make a huge difference for some of us too. If we believe in a thing strongly enough, it can be true for us...

Sadly, that doesn't mean it will work for anyone else... but the only way to know is to learn all you can, make informed decisions, and try new things. So here we are, sharing what works for us...
Thanks for that. It's what the teams are for, right?



emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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CINDERRELIC's Photo CINDERRELIC Posts: 7,621
4/25/11 11:22 P

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Thank you for all the info.

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MADCATTRINA's Photo MADCATTRINA Posts: 519
4/25/11 11:08 P

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I agree to a certain point. Menopausal women and FMS.
As I have said a thousand times, you are probably sick of hearing it, but when I mention it it is relevant to mention that I don't just have FM but CFS and LD too.
I have heard of lots of women (middle age women mind you) who have recovered from FM once they balanced their hormones including sex hormones and insulin, eat organic and use a few supplements like B complex and D. As I was getting sicker with some symptoms I was recovering from FMS by making these changes as the doctor ordered.
My theory is that life style changes and balance hormones will correct FMS in menopausal women but doctors lump CFS in with FMS. CFS is usually something bigger like a subset of LD for instance or another big condition.
That is my story and I am sticking to it.

MADCATTRINA's Photo MADCATTRINA Posts: 519
4/25/11 10:57 P

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The product I took was through a naturopath, IsoCort (which is cortisol) by Bezwecken. It is the equivalent of bio identical form of Prednisone. Weak adrenals (in our hectic life style) are common and usually heal easily within a few months. He had a low GI diet, thyroid meds and female hormones support with a few vitamins also.
That was the first time that a naturopath (MD's won't acknowlege this condition unless it is to the point of a threat to your life) had a long term plan for me. I had naturopaths in the past offer things from their cupboards or OTC for it. I used them for about 3 months and they worked fine, but without the whole plan to maintain and support them all of the time, I went right back to abusing them cuz I didn't know no better. I do now but my condition is much bigger than just adrenal fatigue. I have Lyme Disease also. I am winning at last though. Some holistic docs use low dose Prednizone for it but I think there are other ways.
There is an adrenal fatigue blog
http://adrenalsupportblog.com/adrenal-su
pport-supplements
and here is an excerpt from it. It may be informative to learn about the condition.

{The treatment of adrenal fatigue usually entails beginning to eat healthier, get adequate exercise, and to learn to relax and calm down. Although it sounds like a simple straight forward it often is not, as adrenal fatigue sufferers are fighting against patterns they may have had for their entire lives.

As you try to fortify the adrenal glands by changing your lifestyle to a healthier one, adrenal fatigue supplements have been shown to aid in the process of recover. Common vitamins that are lacking in adrenal fatigue include vitamin B complex, vitamin C, vitamin D.}
I also used to take a product called Adrenal support that was derived from animal glands and worked wonderfully but I think it went the way of our Armour Thyroid which also was from animals. FDA shut it down. There are products similar out there still but I will have to research to find what they are. Mine were so bad that I wondered if the function would return. It did and now I am crazy vigulant and rarely use medication for it.
Our local health food store is like an expert and I can stand and quiz her. If you have someone knowledgable check that out or find a doc who will prescribe.
Emerson Ecologics is an online supplement store that has a lg selection. In the adrenal support section of their site there is 161 products to chose from. Look for freeze dried enzymes if you can find it.

I.M.MAGIC's Photo I.M.MAGIC Posts: 12,840
4/24/11 7:56 A

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Might be I'm not a 'typical' fibro patient-- if there is such a thing! LOL

Caffeine and I are NOT friends! I tried a few sips of a "power drink" once... it was chock full of vitamins too so there wasn't supposed to be the 'crash and burn' when it wore off-- but OMG...

Heart palpatations, dizzy like falling down drunk, and so jittery and talk about shaky-- It took HOURS to wear off so I could function! Never felt anything like it--WON'T go there again! emoticon

But my youngest brother was 'hyperactive', what they called ADHD back in the day--and no Ritalin in sight! LOL Even as a kid he was always after my dad's coffee cup, to drink whatever he could scrounge. It would put him out like a light...

I suppose it's one of those things you just have to try to see if it works for you...

Kathy emoticon

Edited by: I.M.MAGIC at: 4/24/2011 (07:57)
"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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ABERLAINE's Photo ABERLAINE Posts: 6,409
4/24/11 6:00 A

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My therapist gave me a book on adrenal fatigue. And there I was - right on the first page. I bet if the medical profession treated our adrenal insufficiency, fibromyalgia would disappear!

Lady, I remember studying for finals in college years ago. Everyone "pulled all nighters". So I tried it. After washing down a NoDoz with a few cups of regular coffee, I promptly fell asleep!! emoticon

Nancy
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CINDERRELIC's Photo CINDERRELIC Posts: 7,621
4/23/11 11:07 P

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Thanks for the info on the cortisol. Can you tell me how much you took and where to get it? Yes, I would absolutely think that I would have weak adrenal function. I think a lot of us do because we have exhausted our adrenal glands. I really wonder if it is why we have FM or a result of FM. It is good to know that I am not totally different from everyone else with the opposite drug reaction. This is definitely, a good topic to have posted and one we probably need to explore. Thank you, for posting this topic, LadyinRed.

Edited by: CINDERRELIC at: 4/23/2011 (23:08)
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MADCATTRINA's Photo MADCATTRINA Posts: 519
4/23/11 9:54 P

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Look at you garden lady. Nice picture.
I never thought about us as a group who was prone to this illness but that first paragraph has my picture next to it right down to ADHD and paradoxical effects to stimulants.
Do you have weak adrenal function? A possible explanation for the coffee to go to sleep would be weak adrenal function. Cortisol is natural normal hormone (I think it is hormone. been a long time since I studies such things) made by adrenals. When the adrenals are stressed, too long without food, too many hour switched in full speed on, toxic environmental or mental stress they will produce adrenaline instead.
The coffee could have been knocking out the need for adrenals to make adrenaline/epinephrine and thus more calming.
My doctor gave me cortisol while my adrenals healed and could handle the job again. Some times it gave me energy and some times it was what I needed to sleep. Depended on how those darned adrenals were feeling at the time.

CINDERRELIC's Photo CINDERRELIC Posts: 7,621
4/23/11 9:11 P

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I am not sure about this but here is what I have experienced and have learned. Many people who have FM are high achievers with a tendency toward perfectionism. They are usually the ones who do the most, work the longest hours, and their brains never shut down. Sometimes this is linked with Attention Deficit Disorder (ADD) and a large number of people with attention deficit disorder react opposite to drugs and stimulants according to some parents. This might be where she gets this.

However, though it seems so weird to me, I drank coffee all my life and never had any problems with it keeping me awake until I got off it for a period of time and went back to it. However, iced tea would keep me awake almost all night long. When my husband and I were on the road I actually could not go to sleep without a cup of coffee to put me to sleep. Go figure. I know it makes no sense and it goes against everything we are told but it does happen with some of us.

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YAKIRA_AVIGAYIL's Photo YAKIRA_AVIGAYIL Posts: 953
4/23/11 8:54 P

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I was at the health food store today and was talking to the owner. She said that all fibro patients react to stimulants just the opposite than other people. Has anyone else noticed this?

Yakira AKA THELADYINRED


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