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AKIASNANNY's Photo AKIASNANNY Posts: 334
7/6/08 11:27 A

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I'm with HIPPIEGURL. I don't think they make it a policy although it may seem that way. My mom and brother both got it on the first try w/o an attorney. And it DOES vary from state to state as there is a list (directly from SSA) on the % of people in each state that are approved on the first try...KY was like 26% and IL was 33% I think (I will try and find the link again).

JADZEA MAY ~ I am sorry that the people you know have had such a hard time getting disability. It is frustrating I'm sure.

~~Vicki~~
*~*~*~*~*~*~*~*~*~*~*



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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
7/6/08 3:04 A

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I don't think so, my daughter is in WI and my son in OR.

It's Only Temporary

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'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,951
7/6/08 2:30 A

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I was just going by my own personal experience, and by my brother's - his was approved the first time around, although he did have a lawyer. I wonder if it makes any difference from state to state?

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
7/6/08 12:34 A

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I know of quite a few different ones that have had to apply a 4th time. My son and a number of friends. My Daughter has 4 different debilitating health issues that each would get her SS and she has been turned down 3 times. She now has an Attorney. One of the SS workers back in 96 told us that, that was their policy as SS knows that many will get discouraged and not re apply. Even had the Dr's tell me that when I was doing his paper work. On the 2nd go around, I just photo copied all the papers and then just transfered the info and added the new Dr's reports.

It's Only Temporary

Member of:

JW's On the Narrow Path Teams

'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,951
7/5/08 11:57 P

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Jadzea May,

I don't believe SS makes it a policy to deny you three times, as I was approved the first time I applied for
SSI without a lawyer.

Sandy

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
7/5/08 7:38 P

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Kathy, SS makes it a policy to deny you 3 times before approving you. A Lawyer early on helps big time.

It wouldn't hurt to copy, past and print off this list and have all you symptoms highlighted to take with you.

JFBRAD56 gave us this list.
I am posting the symptoms of fibro that I compiled from the books. I would never have connected some of these things!!

CENTRAL NERVOUS SYSTEM SYMPTOMS
• dragging fatigue that worsens as the day goes by
• exhaustion at the end of the day
• irritability, nervousness, and anxiety
• depression, apathy
• impaired memory and concentration (fibro fog)
• headaches, migraines
• insomnia (difficulty falling asleep, staying asleep, or falling back asleep)
• non-restorative sleep (waking up unrefreshed)
• sensitivity to light, smell,. and sounds
• chemical sensitivities

MUSCULOSKELETAL SYMPTOMS
• pain most often in the back (upper and lower including neck, shoulders, and buttocks), in the arms (wrists, elbows, shoulders), hips, legs, thighs, knees, ankles, feet, and chest wall
• pain described as throbbing, burning, stabbing, stinging, grabbing, with intensity that varies from hour to hour and can increase with cold or damp weather, anxiety, stress, and activity
• being able to predict a change on weather by an increase in certain symptoms
• muscle spasms and cramps
• widespread stiffness in muscles, tendons, and ligaments
• pain typically worse in the morning and may improve somewhat during the day, but will return in the evening
• numbness of the extremities or face
• diffuse pelvic pain
• chest wall pain (chostocondritis)
• Temporomandibular joint pain, facial and head pain originating in the neck area
• feelings like electrical impulses in the muscles
• restless legs
• feeling of general weakness often described as “poor stamina”
• joint hypermobility
• plantar arch or heel pain

GASTROINTESTINAL SYMPTOMS
• Irritable bowel syndrome
• gas pain, bloating, and constipation
• diarrhea
• nausea
• hyperactivity
• crampy abdominal pain that can be intense and unpredictable
• heartburn

GENITOURINARY SYMPTOMS
• vulvodynia
• vulvar vestibulitis
• vaginal spasms or cramps
• burning discharge
• increased menstrual and uterine cramps
• dyspareunia (painful intercourse)
• bladder pain
• recurrent bladder infections
• interstitial cystitis
• dark, pungent urine that burns

DERMAL SYMPTOMS
• crawling feelings
• itching, scaly patches
• rashes (many varieties) in strange patches
• small areas of pimples occur
• perspiration that is pungent and irritates the skin
• sensitive allergic skin
• dermatographia is fairly common
• Raynaud’s syndrome

MISCELLANEOUS SYMPTOMS
• excessive nasal congestion and mucus or post nasal drip
• brittle nails, inferior hair quality
• scalded or metallic mouth sensations
• bitter (sometimes even salty) taste in mouth
• eye irritation, or blurring, burning eyes
• ringing in the ears or popping sounds
• vertigo, dizziness
• low frequency hearing loss
• heart palpitations
• non-cardiac chest pain




It's Only Temporary

Member of:

JW's On the Narrow Path Teams

'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
7/5/08 3:24 P

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Vicki,
Been there, and it bites!
There are some good ideas for you!

Just another suggestion... Since you are involved with an SSI case (an appeal, I assume) when you see your PM for that last visit, see if you can get a forwarding address and phone number so the lawyer can contact him/her for a statement when that hearing comes around!

I didn't have a lawyer last time, and didn't do that, and the SSA went back to a doctor they COULD reach who hadn't seen me in six years! Needless to say, the statement he gave didn't include any current information (including the fibromyalgia and kidney failure!), and the case was denied. This is the third time I've filed and been denied because of this type of thing~ but I have a lawyer now so hopefully there won't be a problem.

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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AKIASNANNY's Photo AKIASNANNY Posts: 334
7/3/08 11:06 A

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Dizzy emoticon

How tacky of the office not to inform you before the doctor left!!! I am grateful that my dr. at least is making sure she sees everyone before she leaves. That will give me a chance to talk to her and tell her my fears of switching docs. Hopefully she will head me in the right direction before she goes.

Bottom line, having to fill a new doc in BITES cause you never know how they are going to want to treat you.

Let us know how you get along with this new doc.

~~Vicki~~
*~*~*~*~*~*~*~*~*~*~*



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MOM910's Photo MOM910 SparkPoints: (11,186)
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7/3/08 2:03 A

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Man oh man oh man can I relate to this one!!! On Monday I called the doctor's office to make an appt with my primary care physician. I have been seeing her for y ears as has my husband and we both trust her. Although we moved 4 years ago we continued seeing her despite the fact that there was a much closer office... Anyway, we were told that she was GONE!!n yup!! gone. no warning, no notice, just call for appt and get told. (Seems the office knew for 2 MONTHS and just didnt notify us!!) So here I was having a problem (my bp is dropping and causing me to be dizzy) and no doctor to see. So we called the main office and changed primaries and since we needed a new doctor, we also changed offices so we dont have to travel so far. I met the new doc and she seems OK, but it really stinks to have to rehash things your doctor should already know. Now I have to play wait and see to see if I will get any help. I have to have a carotid doppler test and had blood work today, but I cant see this doctor again for 3 weeks because she is going on vacation........ so in the meantime... just call me DIZZY!!

love and peace, Ann
One day at a time!
Inch by inch its a cinch! Yard by yard, very hard!!
all time high...337lbs Mar. '07 291
Jul07 268 (joined SP)
August 07 250
June 08 198
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Feb 09 175
Nov 09 157
WW lifetime 157 lbs

Today's Thought
I am but one, but I am one;
I can't do everything ,
but I can do SOMETHING;
What I can do, I ought to do,
What I ought to do, God helping me, I


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AKIASNANNY's Photo AKIASNANNY Posts: 334
7/2/08 2:50 P

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Yes PATIENCEW ~~ wonderful tip! Am definitely going to do that! emoticon

~~Vicki~~
*~*~*~*~*~*~*~*~*~*~*



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MR2HORSES's Photo MR2HORSES Posts: 2,776
7/2/08 1:18 P

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PATIENCEW.....Thanks for the reminder...I knew that trick but had forgotten it...... Great Tip....

"There is tremendous happiness in making others happy, despite our own situations. "Shared grief is half the sorrow, but happiness when shared, is doubled." Author Unknown
PATIENCEW Posts: 329
7/2/08 11:06 A

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i actually take in a list of what each dx is I have and the treatment I am on, along with treatments that have and have not worked. I worked in the medical field for a number of years and our charts are not fully read by a new doctor, so i dont rely on it. I make sure they know upfront first visit. Then I ask what their views are iwth fibro and so on.

I started doing this with taking care of my dad. We (he and I) carry a list of his main dxs and all his meds on us at all times. As well as his diffibulator info and history of past stroke. It comes in very handy. I am now beginning to carry mine as well.

 
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AKIASNANNY's Photo AKIASNANNY Posts: 334
7/2/08 11:00 A

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Unfortunately, insurance is an issue as I am on Medicaid. emoticon

emoticon for those of you that have gone through this after the fibro dx: Did you try and explain your issues to the new dr. upfront? Or did you let him/her get the info from your medical records? I'd love some pointer on how to do that w/o sounding like a whiny, lazy drug seeker. So many people look at us that way and I KNOW that fibro is real and it can be debilitating.

emoticon

~~Vicki~~
*~*~*~*~*~*~*~*~*~*~*



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PEACELOVER's Photo PEACELOVER SparkPoints: (6,236)
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7/2/08 9:34 A

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Oh yes I can sure relate! The doctor who worked so hard to be certain it wasn't anything else and confirmed the fibro ended up leaving. I went to the same practice and saw the owner doc and we didn't hit it off very well at all. He acted like the FM was my excuse instead of having empathy for me. I was thinking of changing and then I moved. Now I think I may have another doc that is not empathetic but he is new for me so I will give him a chance. Unless insurance is an issue I hope you are able to find a good fit. I like your plan to stay with the NP. I think they can do almost everything.

PEACELOVER - Peace is a conscious action which develops into an unconscious reaction. bit.ly/beYSUI
PATIENCEW Posts: 329
7/2/08 8:27 A

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I know what you are going through. I have lost my primary doctor too. I have been seeing him for 3 yrs and was probably the best doctor I have ever had. he is leaving to go back to school after many years in primary care, he is now going into onocology. I can see him being awesome with it but it hurts. Not only has he left but I can not even see anyone in his practice because of high bills now. He has helped me to see the independent doctor in our area (our medical is a whole huge corporation)so it helps for the primary but I have no specialists for at least 1-2 yrs. I have only seen this doctortwice because of asthmatic bronchitis I have right now so I dont even know what his views are with fibro and such.

I wish you well. Keep praying and hopefully a fantastic doctor will enter your life. Just ask alot of questions up front.

 
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PEBBLESGMC's Photo PEBBLESGMC Posts: 16,380
7/1/08 11:56 P

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That's awful, I'll be praying for you! emoticon

I am so worth this!!
Nothing tastes as good as thinner feels!!
I do random acts of kindness.

A woman is like a tea bag, You never know how strong she is until she's in hot water..... Eleanor Roosevelt

Life isn't about waiting for the storm to pass, it's about learning to Dance in the rain..... Saeeda


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,951
7/1/08 11:46 P

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Hi Vicki,

I know just how you feel! I've lost my primary over the years several times, and also my gyno and just last year I lost my endocrinologist of many years to forced retirement. The medical group where I go has a recruitment policy where they pay the new hire Dr's whatever they earn for the first 2 years, and then a generous salary after that, but many hightail it after the first 2 years and leave the group high and dry, and the patients suffer for it.
I have some very good links for finding new docs and
would be glad to share them with you - see below.

Sandy


www.revolutionhealth.com/doctors

www.functionalmedicine.org/findfmphy
si
cian/form.asp


www.holisticmedicine.org/displaycomm
on
.cfm?an=1&subarticlenbr=49


Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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MR2HORSES's Photo MR2HORSES Posts: 2,776
7/1/08 10:32 P

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I hate that for you. Just remember when one door closes another opens. You may find someone even better... Have Faith....

"There is tremendous happiness in making others happy, despite our own situations. "Shared grief is half the sorrow, but happiness when shared, is doubled." Author Unknown
AKIASNANNY's Photo AKIASNANNY Posts: 334
7/1/08 10:19 P

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My PM doc's nurse called me this afternoon and told me that my dr. is leaving the practice in Sept. emoticon I don't know any details...just that she wants to see all of her patients before she leaves and that she will be referring us to either the PM center across town or another doc (she mentioned a name & they might be there at that office, but I'm not sure). I have heard awful, awful things about the PM center across town.

I am soooo upset!!! I have been seeing her for 4 years. She is the one that diagnosed my fibro. She is the ONLY dr. I have found that has really worked with me on meds, injections, etc. trying to get me to be able to function better. We had made great progress in that. Not to mention, she is SO understanding. Now I have to start all over again.

And the whole disability thing...Grrr!! Yes, SS will be able to get my records from the 4 years I've seen her, but that's not the same as having her to "talk to" if they have questions etc.

I know that stressing over it won't do anything but make me a mess. I see my NP at the end of this month and I'm going to talk to her to see if she can take over a lot of what the PM doc was doing...some I know she can (Cymbalta & Lyrica)...but not sure what her limits are on the pain meds and muscle relaxers. Then they moved my appointment with the PM dr. up to Aug. 7th so, I'm going to try and explain to her how I feel about "starting over" and see what input she gives me.

Why is it ALWAYS 2 steps forward and 1 step back????? Have any of you dealt with this particular situation or have any advice for me???
emoticon

Edited by: AKIASNANNY at: 7/1/2008 (22:19)
~~Vicki~~
*~*~*~*~*~*~*~*~*~*~*



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