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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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6/23/11 12:51 A

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On that note...my energy level sucks and all I do is walk on the treadmill. We just got it and I'm starting slow. I hate exercise so I'd rather reduce the calories than sweat! At least with the treadmill I can watch TV while walking in the comfort of my living room. Another pain in the butt are the hot flashes and night sweats. I feel this is my 3rd bout of Menopause, when I went through it at 48, when I had chemo and now with Arimidex.


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PINGPONG6's Photo PINGPONG6 SparkPoints: (18,946)
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6/22/11 11:20 P

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THat sounds like me. I've had my metabolism tested, and supposedly I need 1356 calories per day just to exist. But if I eat that much I gain weight, even following my exercise program. I couldn't exercise for 2 months after my reconstructive surgery, and gained 10 pounds without changing my diet.

Guess the good news there is that at least the exercise keeps me from gaining even more!

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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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6/22/11 8:58 P

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Lately my ankles have been really sore when I first get up after sitting or sleeping. I figured it was part of the joint pain that goes with Arimidex so I will deal with it. I live in Phoenix and it is very hot so maybe I will just have that problem in summer? The worst thing is how hard it is to lose weight. If I eat like a normal person I gain, I have to be so strict to lose and the minute I eat anything else like on the weekend I gain the 2 or 3 pounds I lost during the week.

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PINGPONG6's Photo PINGPONG6 SparkPoints: (18,946)
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6/22/11 8:23 P

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I started on tamoxifen and didn't have side effects with it, but a genetic test showed that my body does not have an enzyme required to metabolize the tamoxifen. That's when my dr switched me to arimidex. She said my side effects are normal, except the digestive part is rare. She recommended probiotics for that, and that really does help. She recommended advil or similar for the pain in my hands, but my PCP doesn't want me to take that regularly.

The ankle/foot swelling is a normal side effect that occurs with a lot of standing, airplane trip, and/or hot humid weather. My problem is that I also have to take another med for which that is a side effect, so I guess the problems doubles that way,

So I just try to ignore it as much as possible. emoticon

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JOYSGARDEN's Photo JOYSGARDEN SparkPoints: (34,138)
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6/21/11 10:58 P

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Have you talked to your Dr. about all those side effects? Some of them just don't seem right to me, to be from the meds. I was on Tamoxifin and didn't have strange side effects...


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PINGPONG6's Photo PINGPONG6 SparkPoints: (18,946)
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6/21/11 7:06 P

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Hi all - I'm a newbie to this team - I just found it. I've been taking Arimedex for 11 months now. My side effects include digestive problems, pain in my hands, a thumb that snaps or cracks a lot, swelling in ankles and feet, and weight gain. I have other new pains also but I can't track them to the arimedex like the hands. My hair seems a lot thinner too. Basically I hate it, and the thought of 4 more years taking it is so awful that I just force myself not to think about it. However, if its prevention factor is as good as the doctors say, I will probably stick with it.

I have to say though that the treatments I had (multiple surgeries, radiation) for my early stage cancer were actually easier on my body than this is. Who would ever have thought that?

I would be interested if others have found ways to deal with these issues.

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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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3/22/11 5:15 P

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I'm on Arimedex too since December and I guess I do have some side effects but nothing to keep me from taking it. It is very hard to lose weight but I want to prove them wrong. I know I can do it but I have to twice as strict as I was before.

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EVWINGS's Photo EVWINGS Posts: 3,488
3/22/11 3:31 P

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How are you doing on your meds? I have been taking Arimedex for two months and have still been able to lose a pound a week. My chemo oncologist advised me yesterday that I will have to have this for 5 years. He said a study has been on-going to see if 10 years won't be better than the five. He also said there should be some sort of answer before my 5 years are up. I did have some hair lose, but not sure if from the chemo shots once a week or the radiation. I have only had night sweats once and hot flashes twice. Hope you will do well. Please let us know.

Ev

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JOYSGARDEN's Photo JOYSGARDEN SparkPoints: (34,138)
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2/2/11 9:11 P

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Aren't grandchildren fun?!! I have 7 too, and love them to pieces!


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VALIBABA's Photo VALIBABA Posts: 127
2/1/11 11:08 P

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Thank you JoysGarden! They are two of my seven grandchildren....I have to say that it's the grandkids that keep me going...they bring absolute joy into my life!!!

I so appreciate the encouragement!

Vali emoticon

"He who is fixed to a star does not change his mind." -da-Vinci-


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JOYSGARDEN's Photo JOYSGARDEN SparkPoints: (34,138)
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2/1/11 2:02 A

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Are those your babies? They're beautiful! Good luck, and keep us posted. You will do beautifully!


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VALIBABA's Photo VALIBABA Posts: 127
2/1/11 12:05 A

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Thank you so much Twilightnan, Seawave, and Joys Garden! You guys are awesome for getting right back to me. I'm going to take you at you word and decide to be positive about this and just not worry about it any more.

I do feel so much better!!!! Have a great night!

Vali emoticon and emoticon !!!

"He who is fixed to a star does not change his mind." -da-Vinci-


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JOYSGARDEN's Photo JOYSGARDEN SparkPoints: (34,138)
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1/31/11 10:47 P

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I did 5 years of tamoxifin, and had very few side effects. I had no problem with weight gain (but then I've never had trouble gaining weight - LOL), had some hot flashes, but nothing I couldn't handle, and very few night sweats, and even the ones I had weren't bad.
Any joint aches I had I could handle with a tylenol or an ibuprofen,and since I have osteoarthritis, I'm not even sure the aches came from the tamox. Think positive, and decide you are going to get thru this without lots of problems. Your mental attitude goes a long way in how you will handle it. Make sure you get your water in, and exercise, and eat healthy! Good luck! emoticon


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SEAWAVE's Photo SEAWAVE Posts: 1,182
1/31/11 9:53 P

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I agree with Twilightnan - I don't think anyone knows ahead of time how they may react to hormone treatments as there are so many variables that influence it. Some don't get any side effects at all - maybe you should go with that!

SeaWave

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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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1/31/11 9:26 P

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It's really not so bad. I have been on Arimedex for only about a month now and really don't notice anything. There may be little things like still have the night sweats but nothing unbearable and maybe some joint pain but I'm used to that.
Just go into it with a positive attitude and be thankful you haven't had to do all the treatments.
Good luck and you should do great. 5 years of hormone therapy is much better than the alternative.

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VALIBABA's Photo VALIBABA Posts: 127
1/31/11 8:52 P

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Hi! I hope it's okay I start a new thread. Most of the topics deal with Radiation and Chemo (except the Tamoxifen & weight gain one that I read all the way through). I almost feel guilty (after reading about the hell so many of you have been going through) that my type of cancer (Mucinous Carcinoma) doesn't respond very well to chemo after donig the Onco DX test, we found that I would only have an 8% chance of recurrance without the chemo and at this point my oncologist doesn't recommend it. Blessedly, I didn't have to have radiation either since I had the double mastectomy.

Anyway, I feel like I am a whiny cat for being scared of the hormone therapy. emoticon Will any of you that have been on it share your story with me? I have no clue what to expect (except weight gain) and I've heard that many of the drugs they use make you sick to your stomach (I have a really sensitive tummy emoticon ).

Thank you all for sharing your stories! I pray for your constant comfort and quick recovery! You are my heroes!!!!! emoticon

"He who is fixed to a star does not change his mind." -da-Vinci-


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