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PINK-SOLDIER's Photo PINK-SOLDIER SparkPoints: (111,293)
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3/21/11 2:56 P

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Please post on the new thread set-up for this as of 3/20/11. emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

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"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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1/30/11 4:20 P

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The Taxol is so much better. I sure hope you do well, it's really not so bad, hang in there and it will be over before you know it!

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JANNERUN's Photo JANNERUN Posts: 4,643
1/30/11 12:17 P

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Doing a lot better this weekend thanks! I've been eating the bland things, which was really why my doc put me on the BRAT diet. Bananas, Rice, Applesauce and Toast until you feel like you can hold down food with more substance. So far so good. I thought the nurses put in some anti-nausea drugs in with the chemo (AC) but maybe my body is just rejecting everything. One more round to go on the AC and then start 4 rounds of Taxotere which I hear is a bit better.

Jan

There is no failure in life, as long as you keep moving. One foot in front of the other.


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HEATHER809 Posts: 366
1/29/11 11:34 P

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For my first 4 rounds of chemo (AC) I was give Emend and 2 other nausea medications. Anti-nausea meds were also included in my chemo pre-meds. Other things that helped me was keeping a cool washcloth on my forehead and I found that I was constantly snacking on bland items such as animal crackers or bread. It seemed that when I had a little something in my stomach it would just feel better. (Of course that is how I gained 10 pounds on chemo but for me it was better than losing too much weight or getting sick)

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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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1/27/11 5:45 P

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I'm sorry you feel awful, are you sure you should be dieting at this time? I know my main concern was keeping my WBC up so none of my treatments would be delayed so I ate well and it all tasted great.
Hang in there! When you start the Taxol if that is on your plan it is much better. Perhaps you could get IV nausea meds the next day along with your shot? Are you taking Emend?

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JANNERUN's Photo JANNERUN Posts: 4,643
1/27/11 4:58 P

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I'm trying to have a good attitude--but chemo really is awful stuff!!! I wasn't able to keep anything down yesterday, even water or the nausea pills, so today when I went in the doctor's office for my blood count, the count was low and I was dehydated. Got hooked up to the IV for nausea drugs and to get some liquid in me. Got all done, floated to the bathroom and then threw up again. I'm on the BRAT diet and everything tastes so nasty. Water doesn't even taste good anymore.

Sorry, enough for my pity party but I needed to vent to those who know what it's like.

Jan

There is no failure in life, as long as you keep moving. One foot in front of the other.


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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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1/21/11 7:55 P

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Yes sweetie it IS worth it! YOU are worth it. Chemo can be a breeze as long as we have the drugs! f emoticon

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JANNERUN's Photo JANNERUN Posts: 4,643
1/21/11 3:48 P

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Had chemo #3 yesterday and the doctor did give me some meds for the constipation. Now I can't leave the house today, but I'm clean as a whistle!! The doctor also told me to wear the nausea patch everyday since it is helping. They are a bit expensive, but well worth it.

Jan

There is no failure in life, as long as you keep moving. One foot in front of the other.


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SEAWAVE's Photo SEAWAVE Posts: 1,081
1/18/11 3:34 P

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Um... I got meds for the constipation as well. I wasn't holding down cereal or prunes or anything like that.

SeaWave

Simply being thankful makes life easier.

I am who I chose to be. Stronger. Leaner. Further. Fierce.

It's about taking my power back.

Whether you think you can or you can't, you're right.


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1/18/11 3:28 P

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FIBER ONE CEREAL!!

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JANNERUN's Photo JANNERUN Posts: 4,643
1/18/11 3:04 P

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This has been my problem--lack of information. The doctor or nurses never told me about constantly taking the anti nausea pills--they made it seem like don't take them until you feel bad, and by then it's too late. Just before my 2nd treatment I was told to chew ice during the red devil and I had mouth sores so bad at Christmas since no one told me. Just last week I was told about the ginger drops to keep on hand during the 2nd drug to suck on those during that treatment. It's so good to share this so others who are just going into treatment know, since the doctors & nurses just assume that you have heard this info. Now if someone can come up with a magic cure for the constipation........... :)

Jan

There is no failure in life, as long as you keep moving. One foot in front of the other.


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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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1/18/11 9:33 A

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I agree, I took my anti nausea pills every 12 hours like it said on the bottle. I never got sick or felt sick, i 'nipped it in the bud'! The only bad time was the first time and I felt like I had the flu but slept it off and felt great the next day. The drug Emend is a miracle cure got nausea, that you take the day of and the next 3 days after chemo. Good luck and let us know how it goes. Oh and don't forget to chew ice during the Red devil!

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SEAWAVE's Photo SEAWAVE Posts: 1,081
1/18/11 8:06 A

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They have quite a few meds now to help with the side effects of chemo. I have quite a sensitive stomach, and although I had a bit of nausea I only threw up once in the 8 sessions. Also, they encouraged me to take the anti-nausea meds before I got nauseous - much easier to control than once it's already there!

Good luck with chemo, and keep posting! We're on your side!

SeaWave

Simply being thankful makes life easier.

I am who I chose to be. Stronger. Leaner. Further. Fierce.

It's about taking my power back.

Whether you think you can or you can't, you're right.


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,021)
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1/17/11 1:59 P

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JANNERUN, I am so sorry that you got so sick. That is the one thing that I can hardly cope with. I am hoping today that you are feeling so much better and that you will never suffer again like this for a very long time.
Please keep us posted on how you are doing. We really care.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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1/16/11 8:41 P

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don't even think like that, think you will not have any AND YOU WILL go through it beautifully! I had none and breezed through chemo, mind over matter my dear!

Edited by: TWILIGHTNAN at: 1/17/2011 (14:29)
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IMAGINE_IT's Photo IMAGINE_IT Posts: 7,592
1/16/11 5:54 P

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Since i am about to start Chemo i will stop by this Forum regularly now.
I hope that i won't get many side effects..but of course we all hope for that..don't we? But most likely i will have some..or maybe many of the side effects you mention here.
emoticon to all of you that are going through pain right now. I wish you will feel better real soon.


~Taty



BLC Team: Amber Amazon Warriors


~~~~~~~~~~~~~~~~~~~~~~~~~~~

I know it seems hard sometimes but remember one thing.
Through every dark night, theres a bright day after that.
So no matter how hard it gets, stick your chest out, keep your head up.... and handle it. Tupac Shakur

~~~~~~~~~~~~~~~~~~~~~~~~~~~~


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PINK-SOLDIER's Photo PINK-SOLDIER SparkPoints: (111,293)
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1/16/11 10:29 A

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Take one day at a time my friend, I wish you better days and an improvement on your health. I hope the remainder of your treatments go by quickly. Some dr's prescribe drugs to help, do you take steroids, or other anti-nausea meds. Something may help from your dr.

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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JANNERUN's Photo JANNERUN Posts: 4,643
1/15/11 9:36 P

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What a crazy week I had--I'm two weeks out from chemo treatment #2 and this Thursday I'll have #3, and the past Thursday aternoon I got soooo sick. I wasn't able to hold down any food for about 12 hours and all I did was sleep yesterday. Able to hold down food & finally feeling better today. Just have been wondering if it was the chemo or some kind of flu bug. Any one have an idea? I am going to ask the doctor what he thinks, but I'm just hoping it didn't bring down my white cell count to delay chemo. As much as I dread it, I just want to get it over with!

Jan

There is no failure in life, as long as you keep moving. One foot in front of the other.


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SEAWAVE's Photo SEAWAVE Posts: 1,081
1/13/11 11:20 A

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I also meant to mention that coconut water (for something cold) or hot water with grated ginger (for something hot) worked wonders for me during chemo, when my stomach would take little else (including plain water). Coconut water is "nature's Gatorade" and will replace electrolytes. My son drinks it during soccer games.

SeaWave

Simply being thankful makes life easier.

I am who I chose to be. Stronger. Leaner. Further. Fierce.

It's about taking my power back.

Whether you think you can or you can't, you're right.


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LMK359's Photo LMK359 Posts: 376
1/13/11 11:05 A

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Hang in there all who are going through chemo and radiation. I didn't do radiation so I can't speak of that but chemo was a challenge, but I got through it. I found my stomach very touchy and my tastebuds went wonky so nothing tasted right and my mouth hurt. My food staple was vanilla carnation instant breakfast with a small scoop of vanilla ice cream. Bananas seemed to help make me too.
Support from those around you is so important too. And don't be afraid to ask for help.
Prayers and good thoughts going out to all my cancer sisters.

Lista - in Minnesota

"Be Alive While You Are Alive"

"A pessimist sees the difficulty in every opportunity; an optimist sees the opportunity in every difficulty."


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LOUPATTISON's Photo LOUPATTISON Posts: 46
1/13/11 10:48 A

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When I had radiation, my doc told me to use pure Aloe Vera gel - in fact it is the only thing he recommends. You can get it in most supermarkets or pharmacies for a few dollars - make sure it is pure, no colour or scent. I found it very soothing and kept my skin in very good condition - at the end of the treatments I had just one small irritated area - the rest just looked like I had an afternoon in the sun without sunscreen.

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FIVEOHBARBIE's Photo FIVEOHBARBIE Posts: 50
1/13/11 9:08 A

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Jannerrun, it's truly horrible. My first two just about killed me...literally. After the 3rd, the doc dropped dosage by 25%, and things didn't get wonderful, but they got tolerable. I was instructed not to eat salads, raw vegetables, raw fruit, vitamins, etc. I stopped minding and starting taking mild vitamins, and eating salads and I was able to handle the chemo much, much better. The secret to the salads is to only eat what you fix yourself....soaking all the stuff in salt water for a good while to make any parasite still clinging let loose and die. My fruit of choice was apples, so my mother would peel and slice 4-5 apples and put the slices in a rubbermaid container with a splash of lemon-juice and some Splenda to counter-taste the lemon. I would just eat a few slices here and there when I felt like I could stomach it. It helped me feel about 500% better...even to where I could jog again (lightly) during my 3rd week post treatment-right before I was to have another. Not sure if it'll work for anyone else, but it sure helped me.

SEAWAVE's Photo SEAWAVE Posts: 1,081
1/12/11 2:50 P

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For those doing chemo, if they offer you ice mittens to protect your nailbeds, use them! They made a big difference for me. However, they didn't offer them for the feet, and I'm having problems with my toenails now. Argh! Aside from that, the biopsy from the mastectomy showed no more cancer, so the chemo did its job (I did chemo before the operation).

SeaWave

Simply being thankful makes life easier.

I am who I chose to be. Stronger. Leaner. Further. Fierce.

It's about taking my power back.

Whether you think you can or you can't, you're right.


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JANNERUN's Photo JANNERUN Posts: 4,643
1/12/11 1:56 P

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FiveOBarbie--I will join you in how horrible chemo is. I have side effects from the side effects and I've only been thru #2 out of 8 treatments. Last night I held a little pity party and vented to DH who was so good to listen. Today is a new day and trying to get a better attitude about pushing thru these treatments.

Jan

There is no failure in life, as long as you keep moving. One foot in front of the other.


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FIVEOHBARBIE's Photo FIVEOHBARBIE Posts: 50
1/4/11 5:01 P

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=) Thanks TwilightNan! Chemo was absolute hell for me, but at least I knew what to expect. My hair started growing back before my last treatment, but now my fingernails have started to release from the nailbeds. They haven't come off yet, but they're steadily getting worse-I hope I don't lose them. Everyone tells me that radiation isn't nearly as bad...I guess it's just the fear of the unknown.

TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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1/4/11 2:20 P

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Chemo was easy for me too. Don't be afraid of the radiation, it's actually much easier but a pain in the butt since it's every day. The irritations will be temporary, just listen to their advice.
I posted "Radiation Tips" that was emailed to me by a survivor. If you can't find it I will post it again or Sparkmail you.

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FIVEOHBARBIE's Photo FIVEOHBARBIE Posts: 50
1/4/11 1:16 P

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Yesterday was my last chemo round...it was bittersweet. Although I'm happy to be done with it, I have just adjusted to dealing with it, and the team at the center were so wonderful. Now I have to go on to do the radiation with a different Dr., different team, and I have no idea what to expect from the effects of radiation. The unknown is always the scariest. Everything I was told about chemo turned out to be very mild versions of the hell it was, so I'm not happy about taking on something new. emoticon

SEAWAVE's Photo SEAWAVE Posts: 1,081
10/20/10 6:50 P

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I did treatment 16/25 today, and I have to say it's better than I thought. The first week, I got a slight sunburned look, but it hasn't gotten worse and the tight feeling in the skin is pretty much gone. I'm part of a study for skin cremes, so I can't mess with experimenting with vit E, etc. but I'm glad some of you are finding relief. I'm still fatigued, but am trying to take a daily 20-minute nap, which helps. Also, I went to a Exercise After Cancer session today, and they do stress that continued activity insofar as possible is very important in keeping side-effects at bay, and regaining our normal rythms more easily afterwards.

SeaWave

Simply being thankful makes life easier.

I am who I chose to be. Stronger. Leaner. Further. Fierce.

It's about taking my power back.

Whether you think you can or you can't, you're right.


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MEMARE's Photo MEMARE Posts: 2,173
10/20/10 3:37 P

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I know all about the greasy feeling!
I used to kid hubby that I was his little greased piggy! emoticon
Then I'd sit around with no top to let the air get to my skin and I think that helped too. Good thing there's no one here but me and hubby! emoticon

The itching is what got to me part way through, the doc told me I could use a 1% hydrocortisone cream. It kind of helped but the itching was insane!
emoticon

~~If your dog is fat, you're not getting enough exercise. ~~ ~Author Unknown

Team Leader ~ Rescued Dog Lovers teams.sparkpeople.com/rescueddogs

EST~ GA, USA


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TWILIGHTNAN's Photo TWILIGHTNAN SparkPoints: (17,864)
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10/20/10 12:42 P

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Thanks much! He sugested Aquaphor but said if I want something else to use straight vit e oil as you said. It's all so greasy but if it saves the skin it's worth iT!

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MEMARE's Photo MEMARE Posts: 2,173
10/20/10 12:17 P

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I'm so thankful you aren't having any effects from radiation yet. emoticon Keep using your lotions/oils. I think using pure Vitamin E oil on my radiated area was my saving grace.

I just got back from my post radiation follow up appointment. Doc said: lookin' good! all healed, no need to see ya anymore! emoticon

I hope your reconstruction phase goes seemlessly and quickly for you. emoticon


~~If your dog is fat, you're not getting enough exercise. ~~ ~Author Unknown

Team Leader ~ Rescued Dog Lovers teams.sparkpeople.com/rescueddogs

EST~ GA, USA


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10/20/10 11:06 A

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Today will be two weeks of rads and no side effects yet. I bring Aquaphor in my purse and apply in the dressing room after treatment.
I really don't feel too tired but just tired of the whole thing. 7 months so far of this and many more to go once I can start reconstruction. It will be nice to get back to normal!

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MEMARE's Photo MEMARE Posts: 2,173
10/15/10 7:51 A

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Hi y'all! emoticon Just want to offer support for those going through this crud. emoticon

I'm a month out from radiation treatment and I do have to say to those going through it; keep your life as 'normal' as possible. Keep up with your exercises etc even though you don't feel like it. I did and I believe that's what helped my energy levels stay pretty constant through rads.

My skin has pretty much healed up by now, I am still experiencing extreme sensitiviy in my nipple area where my boosters were done. I hope it subsides soon 'cause it's driving me nuts! emoticon

emoticon Hugs to all my pink sisters, keep fighting like girls...
I hear we fight dirty! emoticon emoticon

~~If your dog is fat, you're not getting enough exercise. ~~ ~Author Unknown

Team Leader ~ Rescued Dog Lovers teams.sparkpeople.com/rescueddogs

EST~ GA, USA


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LAURITA.'s Photo LAURITA. Posts: 840
10/10/10 2:19 P

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I found that rads was when my energy levels reached their lowest, but this is normal. I found it hard to get through the day without a nap in the afternoon. I just allowed myself to rest more, didn't go out much at night etc. When you finish it will start to get better. Hang in there!

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JOCALAT's Photo JOCALAT Posts: 1,036
10/8/10 7:22 P

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Yes I did add more protein especially in the morning around rads treatment...then headed off to workout - I found I had more energy afterwards!! Hope that helps!!

LMK359's Photo LMK359 Posts: 376
10/7/10 9:54 P

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I feel for you girls. Ah memories. 4 years out from chemo and you will get through it and can't believe you did it. I remember my joints hurting so much I would almost fall down stairs. The Neulasta helped the blood cells but it sure did make me achy. I was very exhausted too. My main diet was carnation instant breakfast with a little ice cream and milk. Bananas helped for some reason too. I couldn't tolerate much taste. Even though they eventually did find the right combo to stop the nausea the first chemo round was not good. I remember being pretty much in a slowed down state and just working through it. Take all the help and support you are given. It is definately a gift. Praying for you.

Lista - in Minnesota

"Be Alive While You Are Alive"

"A pessimist sees the difficulty in every opportunity; an optimist sees the opportunity in every difficulty."


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SEAWAVE's Photo SEAWAVE Posts: 1,081
10/7/10 12:25 P

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I'm now on day 7/25 of rads, and my energy seems to be disappearing. I've never been a sound sleeper, and the combination is getting me exausted quite quickly. I'm falling back asleep - literally sitting in my chair! - from about 8:30-11:30am. Then I have lunch, get ready for the hospital, and leave. Seems I'm not getting anything done - especially my exercise! I wondered if perhaps a higher protein breakfast might help. Any advice?

ETA - correction: I'm doing rads, not chemo (did that in Jan-June!)

Edited by: SEAWAVE at: 10/8/2010 (10:22)
SeaWave

Simply being thankful makes life easier.

I am who I chose to be. Stronger. Leaner. Further. Fierce.

It's about taking my power back.

Whether you think you can or you can't, you're right.


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FIVEOHBARBIE's Photo FIVEOHBARBIE Posts: 50
9/29/10 8:29 A

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Thanks for all the help everyone. I got really dehydrated and went back to my doc first thing Monday morning. My WBCs were dangerously low and I seem to have gotten some sort of viral infection on top of that. I got two bags of drip and a shot of Neulasta for the blood cells, and I feel much better now. Lost 12 lbs last week... =( But now food is staying on my stomach. We'll see how the second round goes in a couple of weeks. I just keep thinking "1 down, 5 to go." Good luck with those rads Seawave! I feel assured you've already topped over the hardest hill.

PAT3ONTHEBACK's Photo PAT3ONTHEBACK Posts: 269
9/29/10 12:01 A

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FiveohBarbie--the steroids will wear off slowly, so you shouldn't have the shortness of breath for too long. There might be some new symptom wanting to take its place LOL. I had to keep reminding myself that this is a good thing, all the symptoms; because they tell me the chemo is wreaking more havoc on the cancer than it will on me. I'm bigger. Much bigger than the cancer.

I think that if you keep up some exercise, Seawave, that you will be better off in the long run. Right now is probably a golden time for you--the chemo symptoms are starting to fade and the aromotase inhibitor (tamoxifen or similar) hasn't started yet. Keeping up strength was more important than endurance or aerobics; but any exercise is like gold.
emoticon Use your support! Now's the time!

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SEAWAVE's Photo SEAWAVE Posts: 1,081
9/27/10 8:50 A

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chemo & rads messages below:

fiveohbarbie - I did my chemo from Jan-June this year. First four rounds were doxorubicin, and cyclophosphamide. While there was some nausea, it was controlled with the anti-nausea meds and drinking a ginger infusion. The fatigue got to me nearly right away with those treatments, though. The last four rounds were docetaxel (taxotere). That's where the pain kicked in, strangely enough on the 5th and 8th rounds (6th & 7th were ok). I could hardly move, and my husband was following me around when I would go up/down stairs to the washroom in case I fell. Alternating between extra strength Tylenol and Advil was all I was advised. My docs were thrilled that I had maintained my weight nearly exactly, despite it all. Also, I went into chemopause right off the bat (my last period was the day before I started chemo) and I'm hoping it will turn into menopause (I'm 49). I had a bilateral mastectomy (no reconstruction) in mid-July, and still have edema from that (ugh). Hope your start was just the shock, and it goes more smoothly from now on.

My rads start tomorrow (every day for 5 weeks), and I'm hoping to escape with few side-effects and be able to continue what little activity I have started. The exercise has already led to some improvements in my back, so I am loathe to give them up. Any advice would be appreciated!

Edited by: SEAWAVE at: 9/27/2010 (08:57)
SeaWave

Simply being thankful makes life easier.

I am who I chose to be. Stronger. Leaner. Further. Fierce.

It's about taking my power back.

Whether you think you can or you can't, you're right.


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PAT3ONTHEBACK's Photo PAT3ONTHEBACK Posts: 269
9/26/10 3:45 P

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You are on new territory from my experience. Those drugs were still in trial when I had chemo.

But obviously, one of the side effects is pain so bad that you can't move. I would hope that is what they would call "severe" (I do!) and you shouldn't have pain like that. I hope your Dr. is discussing this!

On the other hand, I definitely spent a lot of time curled on my recliner. Days I got up and moved around went better than days I didn't. I just felt really stiff but mostly sick to my stomach. but not specific pain in back and legs which kept me from moving. I also became depressed (3 days after each dose the worst) and was able to do more when on medication for that.

Most patients, once they know how they react to their regimen, will be able to figure out in advance what to expect and what to do to treat it before it hits with the next round. I am sure you and your Dr. will be able to anticipate this pain and treat it better on the next round.

emoticon Hang in there--stay tough!

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FIVEOHBARBIE's Photo FIVEOHBARBIE Posts: 50
9/25/10 11:56 A

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I started my first week of chemo this week. I had no idea it would be sooo debilitating! I've never hurt so bad in my life. It didn't hit me until two days after the treatment, and then I couldn't do anything all week. I've just now felt like getting on the computer. Mostly all I've been able to do is stay curled up in a ball. Do the next treatments get any easier? Before this I was running several miles and working out. This week if I check the mail my heart is racing and I'm short of breath. The nurse said that's because of the steroids. And the pain in my lower back and legs is bad enough that I can hardly move at times. It's docetaxel/carboplatin. Is it normal for it to be this bad?

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8/6/10 10:56 A

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Love, hugs and prayers going out to all of my bc sister's facing side effects, hope things ease up. God be with you all. emoticon emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

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8/5/10 2:09 P

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Donna I can only hope that the side effects you are experiencing will diminish as quickly as possible. It sucks that treatment makes us feel so sick, but in the long run it is often worth it. I pray that your treatment is successful. Hang in there. emoticon

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6/8/10 9:38 A

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Donna, I am so sorry for the rough times you are having. I would hate to be looking at *several weeks* of that. The only thing to distract me from the sick feeling during chemo was alternating between reading and doing some mindless chore--dishes, watering, sweeping, washing folding laundry.

My leftover symptoms include a drippy nose and dry eyes, plus some nueropathy in hands and feet. Numbness at the lymph node removal area. I had to get carpal tunnel surgery because my thumb quit "working." I made the mistake of not checking with my Oncologist before surgery--she said after that if the carpal tunnel was due to chemo that it might have gotten better on its own. Would have liked to skip that surgery!

My Dr. said the way to get the nerves to grow back on their own is to keep exposing the skin to stimulus--massage, textures, hot, cold. Mine has gotten better without proactively doing any of that. I pretty much just ignore it now. I'm 3.5 years out from the end of treatments.

Also, there are joint issues. I can't say for sure, but some of my issues started before cancer, so I don't know if treatment caused, exacerbated, or interrupted them! I look at treatment as aging me a few years. Now I have gotten younger again. Not as young as I was, but healthier for sure.

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It's bad enough to BE sick, but it really stinks when you also FEEL sick. This is where I'm at now, too. I finished the radiation, but the side effects are lingering, & I'm told this can go on for several weeks. They radiated my neck, so my throat took the worst beating. I have a tremendous sore throat, a tickle in my throat that gets me coughing & gagging, nausea, & of course, vomiting. This is EVERY day ALL day long! I just feel miserable.

Donna (Upstate NY)

"Even monkeys fall out of trees."

"Suffering is the tuition one pays for a character degree."

"Accept your diagnosis, but never your prognosis."

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6/4/10 10:53 A

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How true. I have an appt next week with a neurologist for my neuropathy in my feet. I did not have a reconstruction - totally my choice but my ribs are still tender from the radiation. I try to put it aside but those darn feet trip me up everytime I get out of the car. I'm glad to be doing as well as I am and glad that I found SP. Have a great day!

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6/3/10 9:55 P

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Getting rid of cancer sure is hard on your body. 4 years out and I still suffer from neuropathy in my feet, numbness on my right side where they removed the lymph nodes and surgery with reconstruction. If I just didn't have those side effects I think I could get past this. Does anyone else struggle with these memories?

Lista - in Minnesota

"Be Alive While You Are Alive"

"A pessimist sees the difficulty in every opportunity; an optimist sees the opportunity in every difficulty."


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5/28/10 11:30 A

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Today is my last radiation treatment. I'll still have chemo -- I'm told, probably for life, but it will be nice to be over the radiation. I've had quite a few side effects from it.

Donna (Upstate NY)

"Even monkeys fall out of trees."

"Suffering is the tuition one pays for a character degree."

"Accept your diagnosis, but never your prognosis."

home.roadrunner.com/~andydonna


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5/27/10 10:12 A

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I remember that feeling of finally being able to get out. Good luck with the remainder of your radiation. I had surgery, chemo and then radiation. Three years later I am doing well - really pushing my exercise. Time seems to go very slowly while you are in treatment and then suddenly time flys again.
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5/27/10 9:46 A

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emoticon Donna. emoticon Keep fighting! emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

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I'm re-starting my radiation this Wednesday. I'll have 3 treatments this week & 4 next week, then will be done. After this, I'll only have to worry about the chemo. Having a low WBC has been a pain because it traps me in the house, so I hope this gets under control. I went to 2 stores (2 different days) this past week, & that's the first time I've gone any place other than a doctor's appointment for months. It took a lot out of me, but was nice to get out.

Donna (Upstate NY)

"Even monkeys fall out of trees."

"Suffering is the tuition one pays for a character degree."

"Accept your diagnosis, but never your prognosis."

home.roadrunner.com/~andydonna


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Sounds like you are having a rough time. Hope you doctor will listen to you and make some accomodations. I will be praying for you.
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5/7/10 10:15 A

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The toothpaste which I got from my dentist is called GC MI Paste Plus, vanilla flavor, by Recaldent GC Corporation. It is a topical creme with calcium phosphate and fluoride. It is made in Japan. It does come in other flavors, the vanilla agreed the best with me. Good luck on getting it!

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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5/4/10 4:53 P

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I don't know the name of the toothpaste, but your dentist will know. All I had to do was tell him I had breast cancer and would be getting chemo and radiation and he started bagging up stuff for me!

One stumble does not a failure make.

Everything in moderation.


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5/4/10 2:23 P

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Thanks for your input. Does anybody know the name of the prescription toothpaste? I am going to the dentist on Monday and I want to ask him about it.
Thanks,
Dee

PACE Yourself ~ Positive Attitude Changes Everything.
Positively,
Dee


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I hope they post-pone things until you are ready and feel better. Praying their is healing in your skin. I remember when I had rad. in 04, they told me to let the skin air out by uncovering it, I don't know if that will get the healing going, but anything could be tried. Hope that pain pill is working NOW Donna.

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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I've actually lost 45 pounds since I started chemo last fall, so the weight gain isn't a given apparently. I was on Taxol for 6 months & have a little tingling in my fingers & sometimes my toes, but not too bad.

Right now I'm more worried about radiation. I had 15 out of 22 scheduled treatments & ended up with 2nd degree burns. I still have 2 very raw spots, one of which is where I need to place the lidocaine patch to get rid of the pain in my neck during the treatment. It was the only way I could make it all the way through the treatment. I can't put a sticky patch on raw skin, though. They want to give me the last 7 treatments starting today, but I don't feel ready for it. I'm going to ask if they can wait another week for me to heal. To top it all off, I woke up with a tremendous headache that starts in the back of my neck & comes up to my temples. I just took some Oxycodone, so hopefully, that will kick in soon.

Donna (Upstate NY)

"Even monkeys fall out of trees."

"Suffering is the tuition one pays for a character degree."

"Accept your diagnosis, but never your prognosis."

home.roadrunner.com/~andydonna


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5/4/10 10:13 A

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Certain drugs may cause neuropathy. It is my understanding that the Taxol family of drugs cause it the most. I think it may effect people in different ways. Also for the mouth issues from chemo, special toothpaste helps...I will try to get the name of the one my dentist prescribed, it was much better than say Biotene, which is over the counter.

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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5/4/10 8:25 A

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Is neuaropathy gauranteed if you have to have chemo? I am so hoping I don't need it - but am told I probably do. They will know for sure after the surgery.

My mom has leaukemia and she had chemo as well and has the neuropathy so bad at times she can't pick things up!

Boy, I am really trying to stay positive and stay in the moment without projecting too much but it seems like everytime I turn around there is another thing that will not be so great ~ and I was worried about going bald and gaining weight? Now I'm told I won't feel my hands or feet? hmmmm. lovely. :(

PACE Yourself ~ Positive Attitude Changes Everything.
Positively,
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5/4/10 12:03 A

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Thanks ladies!
I still have hope then as it has only been a year. But if I have to live with it so be it. I'm alive and kickin'!
Hugs,
Jo

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5/1/10 9:47 A

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Neuropathy is a common side effect. for some it goes away, for others it may take 3 years or not completely going away ever, that is what my Oncologist told me. I have neuropathy since dec. 08 while on chemo. it has improved a little, but not completely. I have it worse in my feet. There are stretching exercises that can help improve "feeling", also B vitamins and exercise may also help to improve it. I believe over time it will get better.

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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5/1/10 9:10 A

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That's neuropathy and is a common side effect. I don't remember mine being so bad, but I do remember some numbness and tingling. Mention that to your doctor. He may be able to do something, or it might be like your taste buds (which my chemo doctor cheerfully told me he was destroying), that it's something you have to live with until treatment is done.

One stumble does not a failure make.

Everything in moderation.


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5/1/10 3:01 A

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Hi,
Wish I would have known about some of these things like the toothpaste before this. (I finished treatments almost a year ago!).
I read that red wine is supposed to help with some of the side effects after I finished too!
Does anyone have anything that helps the pain and numbness from chemo in the hands and feet. Some days are really bad and others not so much. Not sure what makes them worse on some days.
Hugs,
Jo
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4/28/10 10:50 A

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I can say that treatment has come a long way. Doctors now have medicine that can treat a lot of the side effects. I had no vomiting, no nausea, just a bit of queasiness that went away with the pills I was prescribed.

The thing that kicked my butt was the Neulasta shot. Toward the end I felt like I'd been run over by a Mack truck. I even asked at the chemo office if I could get something stronger than OTC pain reliever. It just so happens the doctor was out and the PA I saw couldn't prescribe narcotics. It turned out to be my last shot anyway, but those were tough.

Oh, and go see your dentist before you start chemo. Chemo and radiation can be very hard on your teeth, and my dentist gave me prescription strength flouride toothpaste as well as a non-alcohol mouth rinse.

One stumble does not a failure make.

Everything in moderation.


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4/28/10 10:25 A

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This is a new thread to allow us to discuss our treatment plans, concerns, or to vent about it. We can discuss side effects, types of treatment and medication's used for breast cancer. Join in when you have an issue to discuss. Together we will manage the side-effects of bc drugs, with support and guidance from each other. emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

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