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JENQUEENOFCHAOS's Photo JENQUEENOFCHAOS SparkPoints: (8,238)
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1/30/11 11:09 P

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My great-grandmother, my grandmother, and one of my aunts have all had BC.
A few years ago my grandmother was featured in an American Cancer Society calendar as a 40+ year survivor.
I am 41 now and have been getting annual mammograms since I was in my 20s.
My doctor was surprised to learn that with a 3 generation history that my aunt did not have the BC gene.
I am hoping to end this generational streak!

Inch by inch life's a cinch,
Yard by yard life is hard!



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GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,500
10/29/09 11:48 P

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Thanks so much for sharing your story. WOW you have really had a rough couple years. I am glad that is all behind you now and you are working on becoming healthier. Congrats on being a SURVIVOR!! I am a 10 yr survivor!!
HUGS, Kathy

Co-leader of Breast Cancer Survivors and Those Who Care



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TRISHAANN56's Photo TRISHAANN56 Posts: 5,453
10/28/09 1:04 P

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I'm a bit different, I had cancer in my breast but it was a type of cancer that can occur anywhere in the body. Very fast moving.

So the drugs usually used to treat breast cancer were no use. I had my breast removed and nine lymph nodes were involved. I also had trouble healing from the surgery and had three versions. It took ten months for it to heal.

Went through chemo. Had a really bad time with it. For some reason I had goal in mind of making it to my 50th birthday. Which I did and then had go into nursing home for eleven months to get back on my feet.

Been on my own again for little over 2 years. After my last check up with oncologist which went great, I stopped feeling like eat and be merry for tomorrow you may be gone, and decided it was more then time to watch my weight.

Sorry the post is so long but that my story.

"When I have a little money, I buy books; and if I have any left, I buy food and clothes."
Dediderius Erasmus Roterdamus

We are so accustomed to disguise ourselves to others that in the end we become disguised to ourselves.
- Francois de La Rochefoucauld


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BETHISBEAUTIFUL's Photo BETHISBEAUTIFUL Posts: 782
1/21/09 8:53 P

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Welcome Lalaty!

You will love it here and I am sure you will get al the support because people here spark with kindness.
I read your story.I still have 2 1/2 years to go on Tamoxifen...
I don't understand why do you need to Take Aromasin after being on Tamoifen for five...
Elizabeth


"Success is not final, failure is not fatal, is the courage to continue that counts."
Winston Churchill


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PENNLOR's Photo PENNLOR Posts: 4,004
7/23/08 7:11 A

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Just read your story, it was a bad year for you(2001). Glad your doing better and you're on the right track to get to your goal weight. Keep up the good work. I start on Tamoxifen around Sept., I'm hoping I don't gain any weight. I just have to keep up with the exercising and watch my food intake. Maybe do a little more exercising to make sure I don't gain.

Lorraine
Balto., MD

Look To This Day
Yesterday is already a dream and tomorrow is only a vision...
But today well lived, makes every yesterday a dream of happiness, and every tomorrow a vision of hope.


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GRAMMYSKIDS58's Photo GRAMMYSKIDS58 Posts: 2,500
7/23/08 12:19 A

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Thanks so much for sharing your story with me! Wow what a year 2001 was for you. I did Tamoxifen also, when I finished that they put me on Femara but I only made it a month. My bones and joints hurt so bad that I could hardly walk. Thank goodness my dr toook me off and didn't put me on anything else. Now I am trying to loose the weight I gained from my ordeal.

Co-leader of Breast Cancer Survivors and Those Who Care



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LALATY152's Photo LALATY152 Posts: 856
2/21/08 6:28 P

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OK, I am so totally new to this, it's taken me a while to figure out how to get to where I could write something (my son says I'm technology challenged)

I was diagnosed w/BC in Oct 2001 (2001 very weird year for me - started w/slipping on ice and shattering my right shoulder 2-1-01), my BC was on the left side. Had gone for a "routine" once-a-year mammogram...didn't even leave, was taken to the ultrasound room, was "held" until the radiologist could come and talk to me, and told me he had already called my physician and that I needed to talk to them that day.

To summarize: was told I had something suspicious about the size of a quarter (no lump I could feel, no lump the doctor or surgeon could feel even when they knew where it was. Had a lumpectomy on a Friday, had the follow up appt & got path report on Tuesday...all I saw was carcinoma written over and over on the paper, also saw "no clean margins"...everything else was a blur for a while. The surgeon was very nice would explain some things and then give me time to cry and get it together and then explain more. I opted to have a mastecomy that Thursday. He let me borrow his book called something like "Every Woman's Decision" it was huge and I was intimidated, but when I opened it that night there was a paragraph that talked about a woman who felt like she had control of her life getting diagnosed w/cancer and being thrown on to the rollercoaster ride of tests and treatments...it was the perfect description to what I was feeling. I read that book well into the night.

Wednesday I went to talk to a counselor, and told him I was taking "my puppies" for 1 last outing...and had worn my sexiest low cut sweater, it felt like a very good day.

Thursday late in the day I had the mastectomy. The next morning the nurse told me they were discharging me. I told them I wasn't going to leave, that I had only been in the room about 10 hours, had not had anything to eat since Wednesday night other than a couple crackers, and I wasn't going to leave until at least 24 hours had lapsed since I got out of surgery, told her to tell the doctor to cross out the discharge order. And he did, and then he talked to me (it was a surgeon covering my surgeon's pts for the day) I talked to him, and he told me "if it's OK w/you I'll discharge you tomorrow". Told him that was much better.

I only had to do 3 months of A/C chemo...no radiation therapy. I didn't mind losing my hair. When it came back my oncologist told me I had the curliest hair he'd even seen. Eventually I could stick a pic in it and the curls would hold it...it was that baby fine hair, so my co-workers would "pet" my head. I didn't mind giving myself the neupogen injections, if you gotta do it, you gotta do it.
I had problems with the major fatigue starting after the 3rd treatment...so major that once my son thought I had died because he had screamed my name about 10 times before I could pull myself back from where ever I was and open my eyes. But I/we got though that.

I finished my 5 years of tamoxifen, with it's lovely industrial strength hot flashes.

I am now on Aromasin, which I do not like it's side effects, so once in a while I take myself off it for 1 week to pull out of the thickest part...then I start again for another 2 months or whatever until I can't stand it anymore. They had tried me on Arimidex, and Femara before the Aromasin...those 2 were absolute nightmares for me.

So since 02-01-01, with all the wonderful medical issues (ie due to the severity of my shoulder injury I also had "no bending, leaning, reaching, lifting, pushing, pulling, stretching, or walking (if I felt there was any risk of tripping or falling) restrictions for 1 year, I also was unable to lay down to sleep and had to be nearly sitting up to prevent my shoulder from rolling backward. Also for a long time being on 3 meds that cause weight gain.

So I managed to gain around 140 pounds...So here I am, feeling not the best because of the Aromasin...but feeling compelled to do something to get my weight back into a reasonably normal range...and to do whatever I can to get my health back into some semblance of control (as much as I am able to control it).

I look forward to meeting as many supportive people as possible, and in turn being as supportive to them as I can.

Your best is going to change from moment to moment; it will be different when you are healthy as opposed to sick. Under any circumstance, simply do your best, and you will avoid self-judgement, self-abuse, and regret...Don Miguel Ruiz




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FLUFFYWONKENOBE's Photo FLUFFYWONKENOBE Posts: 1,979
1/24/08 8:49 P

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Those of you who are survivors have a story and those of us who care would love to hear it!

Please feel free to share your stories with us, you can tell as much or as little as you are comfortable telling. I want this team to be a place of comfort and support for you.

**PLEASE DO NOT REPLY TO THIS THREAD.**
TO POST A TOPIC, CLICK THE "CREATE A NEW TOPIC" BUTTON.

"I love you, Lord; you are my strength. The Lord is my rock, my fortress, and my savior; my God is my rock, in whom I find protection. He is my shield, the power that saves me, and my place of safety." (Psalm 18:1-2, NLT)


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