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FLUFFYWONKENOBE's Photo FLUFFYWONKENOBE Posts: 2,006
8/22/14 10:41 P

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Welcome to the team, and thanks for openly sharing your stories. God bless you.

"I love you, Lord; you are my strength. The Lord is my rock, my fortress, and my savior; my God is my rock, in whom I find protection. He is my shield, the power that saves me, and my place of safety." (Psalm 18:1-2, NLT)


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PINK-SOLDIER's Photo PINK-SOLDIER SparkPoints: (116,029)
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8/21/14 9:10 A

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emoticon emoticon emoticon emoticon and emoticon for sharing your brave stories, you are your own heroes! emoticon emoticon emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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STRAWBERRYPYE Posts: 64
8/21/14 3:36 A

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Well here goes I too used to come to spark people do weight loss and recipes. I have started chemo after having found out I had a lump under my left arm pit and followed by all the tests I had a mastectomy and well this being my last chemo followed by radiation....I had gained a whopping 18 lbs. I want to exercise and eat healthy more than ever

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COMEUNDONE87's Photo COMEUNDONE87 SparkPoints: (37,762)
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6/27/14 1:36 P

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Hi all, I'm new here so I thought I'd start by telling my story.

At age 40 on July 12, 2013 I was diagnosed with DCIS in my left breast and had some abnormal non-cancerous cells in my right breast. My breast surgeon suggested lumpectomy and possible radiation. Then she heard my family history - Paternal Grandmother with breast cancer, 5 of her 6 sisters with breast cancer and a paternal aunt with ovarian cancer. After hearing all that she said I should consider genetic testing and asked if I would consider a mastectomy if the genetic test came back +. I was totally unprepared to hear that. I went ahead with the genetic test and while we were waiting for those results she ordered and MRI to get a better look at things. Well the MRI then lead to a Ultrasound biopsy which then added IDC stage 1 to the whole diagnosis. I was scheduled to have a MRI guided biopsy (which looked totally scary) for another area that they couldn't find on the ultrasound. 2 days before that appointment I got the results of the genetic test and I am BCRA1+. Well I got out of having to do the MRI biopsy by having a bilateral mastectomy.

So on September 9, 2013 I had a bilateral mastectomy with immediate diep flap reconstruction. It was a very long 10 hour surgery and a very long recovery. I had a rare complication where blood flow was compromised to the mastectomy skin during surgery and that skin ended up dying and had to be removed. I had 5 months of 3x a week wound care to heal the 8cmx5cm oval open wound. Because of that open wound my chemo was postponed and didn't start until I was 11 weeks post op (They don't wait longer than 12 weeks and 6 weeks is the norm) Oh and I am so thankful that I went with the double mastectomy because when the final pathology came back not only did I have the DCIS and IDC in the left breast but I had 2 DCIS tumors in the right breast also that were never detected.

Even though my lymph nodes were clean I still had 4 rounds of AC, 4 rounds of dose dense taxol and I have a year of Herceptin because the invasive cancer was Her2+. I still have 7 months of the Herceptin. I can't wait to get this port out.

Because of the BCRA1+ I also had an ooperectomy (ovary removal) 2 months ago. The instant menopause is no fun, but I lowered my chance of ovarian cancer from 60% to 6-8%. No brainer there. So because my tumors were also ER+ I am on Arimidex for the next 5 years.

5 years ago I came here to loose weight and lost 60 lbs in 9 months. Now I'm hoping to loose 35 lbs in the next 6 months.



First Goal: Loose 27 lbs by December 1, 2009 - GOAL MET NOVEMBER 6, 2009!

Second Goal: Loose 57 lbs by June 1, 2010... GOAL MET APRIL 3, 2010!

Third Goal: Loose 60 lbs... GOAL MET APRIL 24, 2010!

Forth Goal: Loose the 35 lbs I gained due to surgery and chemo!

Fifth Goal: Never have to make another weight loss goal!


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KSESSIONS's Photo KSESSIONS SparkPoints: (52,519)
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3/31/14 2:36 P

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Welcome to the group! I hope that you are recovering well from surgery. Cancer diagnosis and treatment is a scary thing but you are not alone. I will keep you in my prayers for a full recovery and for the strength and support that you need during this time Hang in there! emoticon

PS: breastcancer.org and the american cancer society are great resources and also offer support.

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RANAFERREIRA's Photo RANAFERREIRA Posts: 13
3/30/14 8:29 A

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Hi, I just found this team. I am 34 years old, a mother of two and had started my latest streak on SP back in December which helped me lost about 8 kg until February. Then I found a lump on my right breast and got it check by ultrasound on Valentine's day. In a matter of a month I got diagnosed with breast cancer and had a double mastectomy with reconstruction. The tumor was a triple negative and had invade one limphonode. Now I am at home recovering from surgery and thinking about how am I going to beat this to make sure I raise my two young kids. It is a very scary time in my life and I have been emotionally eating since I found out about the cancer, but I know that is probably the worst thing I can do. Today I though about checking on SP if there is a support group for people going through the same thing. Hopefully we can help each other in this difficult time.
emoticon emoticon

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KSESSIONS's Photo KSESSIONS SparkPoints: (52,519)
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2/21/14 12:47 P

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Good morning! I pray that your treatment goes well and that you remain strong. A positive attitude goes along way. Take of yourself! emoticon

Kris

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JEN040219's Photo JEN040219 Posts: 405
2/20/14 4:06 P

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Hi, everyone....

I'm Jen, 41, mother of 3, and I got my HER-2 positive breast cancer diagnosis 3 weeks ago. My sentinel node is infected, too, but PET doesn't show that it's made it anywhere else. I've got one of my 6 cycles of chemo in, and I'm happy to have the treatment available to me and blessed I caught it before it got way out of hand. Overall, I'm feeling more fortunate than doomed, and I'm thinking that's probably the right attitude to have.

Have been Sparking for 7 years and am so pleased to have found this team. The wealth of knowledge, support, accountability, inspiration here is simply unequaled. I'm hoping to get my head out of my hiney with regards to my health (which I've taken for granted in the past). I need to eat cleaner, and I want to really monitor my weight throughout treatment closely so I manage it well, and I'd like to do what I can to keep "the environment" stable so it doesn't wake anymore of these naughty cells up once I get through all this.

Because I haven't ever done it before, the fact that all of you are here and I can learn from your experiences is a huge comfort and a gigantically awesome resource. I thank you all for your help in the coming months!!

Be well,
Jen

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PINK-SOLDIER's Photo PINK-SOLDIER SparkPoints: (116,029)
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1/5/14 1:32 P

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emoticon emoticon emoticon emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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KRISTINA-S's Photo KRISTINA-S SparkPoints: (14,250)
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12/19/13 9:43 A

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Joined this team today. I was diagnosed 3 years ago with stage 2 IDC with no lymph node involvement. A lumpectomy, chemo, & radiation to treat. We moved cross country earlier this year so just recently got established with a new doctor. I would like to lose at least 30 pounds by next summer, and then some more after that. I have been married for 20 years and we have 3 boys ages 12, 9, and 7.

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KSESSIONS's Photo KSESSIONS SparkPoints: (52,519)
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11/2/13 1:32 P

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Good luck! I hope your reconstruction surgery goes well! emoticon emoticon

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LUCILLEMARY2's Photo LUCILLEMARY2 SparkPoints: (5,544)
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11/1/13 3:47 P

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hi first off I am glad to find this spark team. Last August I had my screening mammogram then went home. The hospital in the next town phoned and said they wanted to do a digital mammogram. It came back saying there was something suspious. They recommended a biopsy. That came back inconclusive so then they did a core needle biopsy. I still wasn't worried to much but on the day after my birthday my family doctor called me to her office to tell me I had cancer. It was 8 cm but we never felt any lumps. I had a macectomy on December 20. I then got a staph infection. I got out of the hospital 2 days before Christmas. I will be cancer free 1 year this december. I am lucky in some respects as I just have to take tamoxifen. This has given me a second chance at life so I am going to make the most of it. I have 100 lbs to lose and I will get it done. I am still waiting for surgery, they are going to do a reduction on my good breast then reconstruction on the missing one. I also have to have a mammogram every six months on the good one.

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KSESSIONS's Photo KSESSIONS SparkPoints: (52,519)
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10/29/13 3:06 P

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Not a problem! I hope that you tolerate the medication and remain cancer free! emoticon

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ANGELALD1958's Photo ANGELALD1958 Posts: 245
10/29/13 2:59 P

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KSession, thank you so very much for sharing that information with me. It helps to put my mind at ease. I hope you do not mind me reaching out to you once and a while to share more info as I began taking the medication.

Nothing tastes as good as being thin feels.


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KSESSIONS's Photo KSESSIONS SparkPoints: (52,519)
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10/29/13 2:44 P

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I was diagnosed with Stage I invasive ductal carcinoma in February 2013. I also had a lumpectomy and 21 radiation treatments. I've been on Tamoxifen since June as I am currently peri-menopausal. I haven't had a period since I started the medication though. The main side effects I have experienced on the medication are an upset stomach the 1st week or 2, and hot flashes. My oncologist started me on 10mg twice per day which I have tolerated pretty well so I've continued taking it twice a day instead of 20mg all at once. I exercise 5-6 days per week which also helps with the hot flashes. I have a strong family history of breast cancer and want to do all I can to decrease the likelihood of reoccurrence. Good luck!

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ANGELALD1958's Photo ANGELALD1958 Posts: 245
10/29/13 2:06 P

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Hello,

I had my breast cancer diagnosis in March 2013 at the age of 55. I had stage -0- DCS. I had a lumpectomy and afterwards I have undergone 35 radiation treatments, no chemo. I have tried to convince myself that it was no big deal because in was caught early; however, how small I want to make it, my emotions can not be fooled. My mother had her first diagnosis at 55 same as me, with IBC, then she had Colon Cancer, and lastly she had Bone Cancer. She fought and seem to have won a lot of little battles but evidently lost the war. My medical oncologist has suggested I start taking Tamoxifen. I have been reading up on it on the internet, needless to say I'm anxious and would appreciate some real life experience with this medication.

Nothing tastes as good as being thin feels.


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BECKYANNE1's Photo BECKYANNE1 SparkPoints: (155,793)
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10/28/13 8:34 A

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Welcome to the team!

There is a lot of support here at SP and you will get support from this team also. I haven't been thru what many of you have, but I am here for the support.

Good Luck! emoticon

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LISAMARIAC SparkPoints: (1,525)
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10/25/13 4:41 P

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The dietician pulled up my chart even as we made the appointment--she knows of the diabetes and the cholesterol issue--and even my recommended goal weight of 125. But she says the Chemo has the priority--so you do want your weight stable, and not further stress your body, and to make sure you have enough fuel to be as healthy as possible. The nurse administering the drugs compared Chemo to running a marathon. (Among other things, drink tons of water!)

I don't know if that means I shouldn't lose *any* weight--I think it's more rapid weight loss that's a concern. And right now, even though they'd have put me on orals, I'm using insulin precisely because of the chemo. So it may be they just want me to let the meds control the diabetes and cholesterol for now, and make sure I have enough calories in me. I guess I'll find out Monday.

And thank you for the link to Breastcancer.org. I'm definitely going to go exploring!

Edited by: LISAMARIAC at: 10/25/2013 (16:42)
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10/25/13 2:48 P

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I just switched from Evista to Tamoxifen about 2 weeks ago. I was experiencing a lot of leg cramps while on Evista. I haven't noticed any new side effects from the Tamoxifen yet.

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THE_RED_BIRD's Photo THE_RED_BIRD SparkPoints: (13,595)
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10/25/13 2:04 P

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I'm Trish, from Ohio, a 17 year survivor. I was diagnosed at 46 with invasive lobular carcinoma stage IIB. I had several surgeries and chemo, no recurrence. I began gaining weight on Tamoxifen and have done the yoyo thing for the last few years. I joined SparkPeople this summer - I love the trackers and being able to get motivated whenever I need a little boost.

emoticon

Edited by: THE_RED_BIRD at: 10/25/2013 (14:04)


~ Trish, Southern Ohio ~

BLC 25 Violet Virtuosos

BLC 24 Crimson Butterflies (withdrew due to family crisis)

You don't get what you want. You get what you work for.

One choice at a time.

It’s a journey, not a race.

Celebrate something every day.

Don’t let the perfect be the enemy of the good.





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KSESSIONS's Photo KSESSIONS SparkPoints: (52,519)
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10/25/13 12:34 P

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You've certainly had a lot thrown at you all at once. When you meet with the dietician, make sure they address your diabetes and cholesterol along with the chemo. The main thing at this point is eating to keep your energy levels up the best you can and keep your weight stable until you get through your cancer treatments. Breastcancer.org is a wonderful resource. I used it during my breast cancer diagnosis and treatments earlier this year. I pray that everything will go well for you. Hang in there! emoticon emoticon



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10/24/13 7:32 P

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Hi, I found a lump on my breast in mid-August and finally went into the doctor in early September--I had avoided doctors for years. I was diagnosed with Stage Two Breast Cancer on September 25th, with lymph node involvement. It's an invasive, aggressive cancer, and I'm positive for the HER2 protein--so it's inflammatory breast cancer. When I went into a Pet Scan on October 2nd to make sure it hadn't spread, my blood glucose was so high they couldn't do the test--so it turned out I have Diabetes too. (It hadn't spread.)

I just started Chemotherapy on the 17th. I'm being infused with Docetaxel (Taxotere), Carboplatin, Tastuzumab (Herceptin), and the newly approved for Stage 2 Pertuzumab, which is kinder to the heart than what they were initially going to put me on. I'm also taking Dexamethasone orally, which is a steroid--and raises blood sugars. I'm to go thru 6 cycles of 3 weeks, then mastectomy (or lumpectomy if the tumor shrinks enough, though I'm told that's unlikely) then radiation treatments, then hormone therapy. Although I'm confused if the inflammatory part of the pathology report changes things, because the nurse at chemo told me people usually get Herceptin for a year, not four and a half months after this diagnosis. So more questions to ask--I'm accumulating them.

So far I'm tolerating the chemo well. None of the scary things they've warned me about has happened. I'm a little low energy, but otherwise feel fine. And I had a Port put in, so really Chemo was no ordeal--other than the length--in at 10:45AM out at 6:15PM. I'm told the sessions will get shorter in time, but that over time I'll also feel weaker. I think my biggest problem right now is what to eat, although the Cancer Center has a nutritionist and I'll be meeting with her Monday. I was 197 when the doctor first weighed me in early September. I lost weight even before the diabetes diagnosis without dieting. Stress? Then after that diagnosis I was told I should limit starches, dairy, protein, that my meals should consist of a protein about the size of a pack of cards, half cup of carbs, and fill the rest of the plate with veggies. No juices, sweets, etc. I also turned out to have high cholesterol so I've basically been eating 4 ounces of fish or turkey or chicken, 1/2 cup of rice or quinoa or half a pita and lots of non-starchy veggies for lunch or dinner. Breakfast has been either the high protein cereal my diabetes educator recommended (Kashi Go Lean) with soy milk and blueberries or veggie omelets and a piece of toast.

I'm now down to 184--but now there's another problem. I only briefly spoke to the dietician over the phone when I made the appointment, and she told me you should actually keep your weight stable thru chemo--that the chemo puts enough stress on the body. Thing is I have not a clue how to get in the calories and still eat the way they've been telling me to for the diabetes. Hopefully I'll get more guidance Monday, but that's where I stand.

Edited by: LISAMARIAC at: 10/24/2013 (19:54)
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8/26/13 1:29 P

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I just had my 2 year anniversary in July. I am happy to report that all is good!!. I still have some chest pain in my breastbone from time to time but my oncologist said that is just some inflamation from the radiation. I can just take aleve for the pain.

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ISPARKLE77's Photo ISPARKLE77 SparkPoints: (13,035)
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8/20/13 10:04 P

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Hi,
My name is Pam and I am a two time cancer survivor. I was 39 when I found my own lump in my right breast. I had a lumpectomy and six lymph nodes in my armpit removed and then was taken back in for surgery the same day for a mascetomy as it was a couple centimeters bigger than they had realized and felt this was the best option for me. Thirteen months later it had metastasized to my right side of my neck and along my collarbone. I then had chemo, raditation and a bone marrow transplant. I am here now because the Lord had a purpose for me to survive. He is not finished with me yet. I have now been cancer free for 18 1/2 years. I do have lyphadema in my right arm and I wear a compression sleeve daily. It is part of my wardrobe. I was diagnosed eight years ago with a rare, incurable auto-immune disease of the skin called Dermatomyositis. I have to go to the hospital every six weeks for IVIG (intervenious immune globulin) IV's. I go for four days in a row for four hours each day. I have been on prednisone for this disease for all eight years which has caused me to become a diabetic. I was diagnosed for that about two years ago. I do control the diabetes with diet and exercise. I am looking forward to getting to know you ladies. I wish everyone a wonderful week.

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MOONGLOWSNANA SparkPoints: (74,617)
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6/13/13 3:43 P

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Hi Caroline! emoticon You have a had a busy and no doubt, trying, year. I'm glad all of that is behind you. Our team will support you in any way we can. I had a bilateral mastectomy on Valentine's Day this year. I just woke up fro a nap so I can relate about finding energy. I am doing reconstruction now with inserts to be replaced by implants later. I didn't have to do any follow up chemo or radiation and I am grateful for that. I tried chemo 8 years ago, and had reactions so I couldn't continue. Our paths to wellness vary because there is no "routine" when it comes to breast cancer. I have lots more weight to lose than you, but I join you in that journey as well. emoticon We can do it! emoticon

BASILIC's Photo BASILIC SparkPoints: (18,507)
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6/13/13 12:45 P

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Hi everyone, I'm Caroline, I was diagnosed at 51 with Stage IIIB inflammatory breast cancer (IBC) at the beginning of 2012. I was ER/PR negative and very Her2 positive. I was on a drug trial for 24 weeks, followed with modified radical mastectomy, 6 months of chemotherapy (AC, then Taxotere with Herceptin) and finished up with an addition 3 months of Herceptin. After taxotere, I also had 1 month of radiation (twice a day). I had my port removed on May 17th. I'm now officially done with treatment. I'm working on getting my energy back and would like to drop 20 lbs over the next year. I have more to lose, but I need to save some of my fat for DIEP reconstruction and a B cup. If I don't chicken out, I plan to have the reconstruction some time next year.


Edited by: BASILIC at: 6/13/2013 (14:35)
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MOONGLOWSNANA SparkPoints: (74,617)
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6/10/13 10:13 A

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Cupcake - Hoping that things are going well. Are those pesky drains out? I hope so , and I hope you are healing well. I'm thinking about you and praying for the best!

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6/9/13 11:45 P

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CUPCAKE, so happy that you shared your story with us. emoticon
emoticon that you will heal really well.

Please know that we are here for you to give you support.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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6/9/13 11:09 A

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emoticon for sharing. emoticon my thoughts and prayers are with you. emoticon emoticon

if you need any extra support. emoticon SPARKMAIL me, I will be happy to help if I can.

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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CUPKAKE137's Photo CUPKAKE137 SparkPoints: (9,133)
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6/5/13 11:12 P

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So here is my latest update had my double mastectomy on the 28th also had reconstruction at the same time. Guess it was a good thing that i had such large breasted and wanted to go way smaller. Got the final pathology and my cancer went from stage 2 to stage 3. Evidently my tumor grew 2cm in less than two months. Good thing I found the lump when I did. The fertility treatments went well so I have some options later in life. Hoping everything will go well and the drains will get removed tomorrow then I can heal a little before my chemo starts. Hope everyone is well.

"Cancer touched my breast so I kicked its ass!"

“Courage is not the absence of fear, but rather the judgment that something else is more important than fear.”

“You never know how strong you are until being strong is the only choice you have”


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KSESSIONS's Photo KSESSIONS SparkPoints: (52,519)
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6/5/13 1:16 P

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My name is Kris and I'm 45. I was diagnosed with stage 1 invasive cancer of the left breast on 2/11/13. I had a lumpectomy with sentinel node biopsy on Feb. 28 the. My nodes were clear and my cancer was hormone positive. I developed cellulitis to the incision under my arm, ended up on antibiotics and my surgeon had to open up part of my incision requiring me to pack it 2 times daily. I started radiation treatments on Apr. 18th...2 days after my daughter's wedding. Unfortunately, this delayed the healing of my incision even further. I had a rough time with all the side effects from my treatment and had to take a break from exercise. I'm done with radiation now and well on the way to healing! I 'm tolerating Tamoxifen so far with little side effects. I'm looking forward to getting back to my life!


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BECKYANNE1's Photo BECKYANNE1 SparkPoints: (155,793)
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4/12/13 8:23 A

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Thank you for the update Lisa. I'm not sure what all of those numbers mean except for the stage 2 part. Please keep us up to date.

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4/11/13 11:03 P

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OK official diagnosis is stage 2 grade 3 triple negative. I have more tests to do. I will have surgery just need to figure out what to decide. I have to have chemotherapy for at least 4-6 months. May needs radiation depends on how the sea tests go and what my decision is with surgery. Many more appointments and doctors visits to go. But that's the scoop on me right now

"Cancer touched my breast so I kicked its ass!"

“Courage is not the absence of fear, but rather the judgment that something else is more important than fear.”

“You never know how strong you are until being strong is the only choice you have”


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4/11/13 10:17 P

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I too was diagnosed in January of this year with stage 1 breast cancer.. It was found on my routine mammogram. It was only the size of grains of salt. something I would not have found on self exam. my oncologist told me had i postponed the mammogram by as little as 3-4 months I would be looking at a much different diagnoses. I have had 3 surgeries and am only having to do radiation.. I have a total of 30 treatments and am down to the last 6 treatments with very minimal side effects. I just started getting pink at the end of last week. It mainly itches. the cream they gave me helps. I do not have to take meds after radiation just lots of mammograms over the next 5 years.

I have for the most part maintained my exercise regime. I have had to work back into running and am still planning on running a 1/2 marathon at the end of September. Until the dr said I could start running again I walked everyday. I have maintained my weight which is what my goal was. I had already lost my weight through weight watchers and had just become a lifetime member when this nightmare started. To maintain my lifetime membership and not have to pay I have to be within 2 pounds of my goal which I have done.



Edited by: SWINKIE57 at: 4/11/2013 (22:21)
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4/9/13 8:02 A

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Lisa-Sorry you have to go thru this. The waiting is what's hard. I waited extra time but I was confident that it wasn't cancer. My Dr. didn't think it was either. My slides were sent to Mayo for a 2nd opinion and they kept requesting more slides. Finally the Dr. called and told me it was Cancer. Didn't see that one coming. Mine was a stage 1 so I was very fortunate. What helped me thru the waiting was walking. I would take long walks. I'd start out crying and halfway thru my walk, I'd start feeling better. I hope you find out the results real soon. Please keep us posted.

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4/8/13 2:35 P

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I know it is freaky, but just calm down while you wait to see what the pathology actually shows. No reason to freak out yet. Even if it shows cancer, they may be able to get it all out when they do surgery. Take a deep breath and do what you need to to hold it together. I am sorry that you have to go through this. Have you had surgery to remove it? They will look at the lymphnodes. After seeing the surgeon, if it is cancer, you will probably see and oncologist to see what the course of treatment should be. Different factors will determine if you need chemo or possibly just radiation. They do not do mastectomies as often anymore. They try to save the breast and lumpectomies with radiation are seen to be just as effect to not have recurrence of breast cancer.

emoticon emoticon

Faith

Edited by: LIVINMYDREAMS at: 4/8/2013 (14:39)
Faith
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Jan 1st 2015 - goal Onederland !!!**************************** One can never consent to creep when one feels an impulse to soar!


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4/7/13 12:03 P

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Hi my name is Lisa... I just found a lump in my left breast it is at least 4cm with positive margins (like last week) have had the core biopsy done and the breast surgeon I saw pretty much told me it was cancer. Then she saw that my lymph nodes look abnormal too. I am still waiting for an actual diagnosis. But I am not going to lie I am freaking out! I am only 28.. and sitting here waiting for this call is driving me crazy. I am trying to find out as much information as I can. It is driving my boyfriend crazy though. But I want to be informed I want to know what I should expect. Any insight or help would be greatly appreciated.

"Cancer touched my breast so I kicked its ass!"

“Courage is not the absence of fear, but rather the judgment that something else is more important than fear.”

“You never know how strong you are until being strong is the only choice you have”


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4/6/13 12:02 P

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Thanks I am sure I will get good input.

Faith
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4/6/13 2:01 A

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Hi Faith!

I didn't have to do radiation, but I started with Tamoxifen and had no weight gain, but have since switched to Arimadex and have found that to be diff. I'm sure others here can give you great advice about the radiation treatments. Good Luck!

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4/5/13 5:53 P

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Hi, my name is Faith. I was diagnosed with Breast Cancer in January of this year I had 3 surgeries within in 2 weeks time. I believe there is no more cancer in me. I am doing radiation treatments now and I guess I came here to see how others are doing with it all and what side effects if any etc.
I did not need chemo, which I am very happy about and need only 20 treatments. I only have 7 more. Then I will be taking a pill a day for 5 years. I big question I have is if any of you who are having radiation only are having trouble progressing with your weight loss? That is one thing that is bothering me the most as I have had significant weight loss in the last 18 months but now seem stuck.

Faith
RTKR - 6/23/11 - 305
Sept 2011 - 315
LTKR - 7/26/12 - 257
Jan 1st 2013 - 241
Jan 1st 2014- 231
Jan 1st 2015 - goal Onederland !!!**************************** One can never consent to creep when one feels an impulse to soar!


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MOONGLOWSNANA SparkPoints: (74,617)
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3/23/13 10:08 A

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Thank you Beckyanne1! I was getting a little anxious, but I think I'm up to it. We'll see on Tuesday. I know what you mean about looking in the mirror. My breasts seem to have moved to the sides. I do want to see how they look when filled out even a little. I hope this is all worth it. Time will tell. emoticon

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3/23/13 9:05 A

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I just went thru this. I had someone with me the first couple of times, but didn't really need them. You may feel a pin prick when they stick the needle in, but that's about it. The filling is painless. You may have a bit of pain afterwards from your skin stretching, but that also goes away after a bit. I had more pain after the expanders were put in than when they were filling them up. You may have some pain from your skin and I think muscle stretching after every filling, but it goes away after a bit. My Dr. offered me pain meds but I still had leftovers from my surgery. To me it was just awkward going and having them filled. My Dr. would say they are starting to look like breasts and I would say to myself, are you kidding? They don't look anything like breasts. Under a shirt yes, but looking in the mirror no. I have scars and I haven't had nipples added yet and I'm not sure if I really care. I just wanted something to fill my clothes out and to look more normal.

Good luck and you'll do just fine.

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3/23/13 1:49 A

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emoticon Stay strong. You beautiful ladies are my inspiration.

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3/19/13 6:25 A

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Next week my doctor will begin to fill the inserts that he placed after my bilateral mastectomy. I am increasingly anxious about this and will call his office today with some questions, but thought I would ask you all some of them as well since I am having strange dreams and can't sleep which has been happening for the past three nights. I know that pain is subjective and different for all of us, but can anyone describe the pain sensation when filling begins? Do you think I can drive myself to and from this appointment? If I take Tylenol before the appointment will it be enough? It's kind of just for moral support anyway. It's kind of my "fear of the unknown" which cancer brings to all of us that has me worried. After this first filling appointment I will know what to expect and can prepare my mind for having these procedures done. Can someone share their story with me or help me prepare a little bit, ahead of time? Thanks for listening as I get this off of what is left of my chest!

emoticon emoticon emoticon

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3/11/13 10:46 A

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Welcome to the team!

Glad to hear things are going well for you. That diagnosis is very scary, but afterwards I found myself a much stronger and determined person.

Good Luck on your journey!

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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,081)
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3/10/13 11:21 P

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emoticon to a great team. I am glad that you are doing better.
I wish you the very best health! emoticon emoticon

I also want to get a few pounds off this spring. I bought a Nutri-
Bullet and have started making lots of green smoothies. I am
not sure if I will lose weight, but I know it is healthy for me. They
make a terrific meal.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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3/9/13 11:28 A

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emoticon emoticon I wish you the best! emoticon emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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TAUNNYALITE's Photo TAUNNYALITE Posts: 38
3/9/13 11:25 A

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Hi, I'm Taunnya. I'm 43, married and the mother of 3 children who are 6, 9, and 16. I felt a lump in my left breast in the spring of 2012, immediately feared cancer, but put off doing anything about it. A classic burying my head in the sand approach. We had another traumatic event happen in our family at that time, and I was dealing with that, so it was easy for me to put it on the back burner. I finally went to see my OBGYN in July. He felt the lump, but wasn't concerned. However, he sent me for my first ever mammogram. The mammogram showed not one, but two masses in my left breast. I then had another mammogram, a couple ultrasounds, and core biopsies. Though I had originally suspected cancer, I guess I had convinced myself that they were just cysts. I was shocked when the radiologist said she was very concerned and suspected cancer. My OBGYN called me on my oldest son's 16th birthday to confirm my worst fears.
I went to see a surgeon who went over the results of the biopsies and explained to me that I had 2 tumors, about 3 cm each, and at least 4 smaller nodules, all located near each other. One of the tumors was pressing against my chest wall. He strongly suggested a mastectomy rather than a lumpectomy. My tests came back ER+/PR+, Her2-neu -. The cancer was a mucinous kind, which is more rare, and typically has a decent prognosis. Because of the size of the tumors and the broad areas affected, the clinical staging was IIIB.
I had a mastectomy and had lymph nodes removed, 5 of which were positive for cancer cells, though a couple had just microscopic amounts. I recovered well from the surgeries ( I had only had sentinel nodes removed first, then went back to have more removed when the sentinel nodes showed micro-metastases). I had a PET and CAT after the mastectomy that showed no other suspicious areas, so that was encouraging.
My oncologist recommended 4 cycles of AC, which I've finished. I just completed my 4th out of 12 weekly cycles of Taxol. Then, I will move on to radiation. I've done very well with the treatments, with mild symptoms and no problems keeping food down. I haven't been nauseous at all. I did lose 9 pounds over a couple of weeks, but that was because I had a bad cold, and it affected my appetite for a while. Once I felt better, I gained back 7 over the course of a few weeks.
I pretty much put any thought of dieting on hold once I was diagnosed and started treatment. In a way, I think I gave myself license to just eat whatever I wanted. I know I hear the doctors and nurses at my treatment center recommend that to patients, but I think that is more for those who have trouble keeping their calorie intake UP. I don't have that problem emoticon
I've been a member of SP for awhile, though I'm sporadic at using the website. I'd really like to rein in my eating... the steroids make me hungrier, but I know I need to choose healthier foods. That's why I'm back, hoping to get some insight from others who are or have been there.



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2/1/13 10:41 A

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emoticon Lauren, wishing you continued health! emoticon emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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UCDAVISCHICK Posts: 2
1/13/13 4:28 P

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Hello :o). My name is Lauren, I am 27, and I am proud to say that I am a breast cancer survivor of almost 1 year! Last year, I decided to do a self-exam which I had never really done before. I found a lump in my left breast and decided to have it checked out. Glad I did because after having a biopsy...turns out it was cancer. I felt like my world stopped when I received the phone call the confirmed my worst fears. I was 26 and busy planning my son's 1st birthday. BUT...I caught it early. I had a lumpectomy on February 21, 2012. My lymph nodes and margins were clear. I was stage 1 with triple negative. Because of my age and the aggressive nature of my cancer, my doctors decided to hit me with the heavy artillery. I received chemotherapy and radiation. It was not fun but I was determined to stay positive and be open about what I was going through. My journey has made me stronger and I love my new outlook on life.

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1/7/13 9:00 A

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Welcome to the team!

Rhonda-I had stage 1 BC in my left breast. I decided to have a double mastectomy because I had calcifications in the right breast that they biopsied years ago. Turned out, they found a 1cm BC in the right breast also. Because of my mastectomies, I didn't need radiation or chemo either and I'm on Tamoxifen right now and will be possibly switching over to Arimidex in a couple of weeks. I will be on that for at least 5 yrs. I consider myself extremely lucky that I have the Dr. that I have.

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NEVIS2013's Photo NEVIS2013 Posts: 48
1/4/13 3:58 P

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hello, I am also a 12 year survivor (February). I just got back on sparkpeople after 3 years not following any plan. Found out back then I had RA also and had to make adjustments for that in my mind. Back today for the first day.


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1/4/13 2:43 P

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Thanks Celeste! I think I did too. Jeannie wishing you all the best!

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1/4/13 12:52 P

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Rhonda - considering your family history, I say you made a good decision.

Celeste
12+ year BC survivor (8/18/2000)


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1/4/13 12:51 P

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Jeannie - wishing you all the best!!

Celeste
12+ year BC survivor (8/18/2000)


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1/4/13 12:49 P

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I posted this on a different topic yesterday. Maybe this is where I should have come?

Good morning. I can't find a topic for 'new members' and this one had the most recent activity, so I'll start here emoticon

As you see in my signature area, I am a 12+ year BC survivor. Had lumpectomy (left breast), 18 lymph nodes removed, 4 months of chemo, 35 radiation treatments, 5 years tamoxifen, 2 1/2 years femara. No problems with the Tamox -- but the Femara was a killer!!! Joints hurt sooooooooooo bad. I finally told the doc "no more!!!" And since things were going so well, they had no objections. Took about a month, but after getting off the Femara, I was actually able to squat down again emoticon I really feel for those going through that now - but we do what we have to do to survive!!!!! emoticon


Celeste
12+ year BC survivor (8/18/2000)


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1/4/13 9:27 A

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I am not sure if this is where I am supposed to introduce myself, but thought I'd give it a try. My name is Jeannie. I am 66 years young and live in SE Florida. Right around the time to have my yearly mammogram in October I felt a lump in my right breast. Sure enough it was suspicious and I had a needle biopsy done in November. That was followed up with a lumpectomy and lymph node dissection on 12/10. Thank God the lymph node came back negative. I am seeing my surgeon today for a follow and will find out the definite course of action, but they have been saying 6 weeks of radiation with 5 years of meds. I'm glad I found this team. I know it will be very supportive and informative. Thanks !

God does give you second chances, so embrace them!!!



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11/8/12 7:44 P

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My story starts with a very conscientious doctor. 4 and 1/2 yrs ago I went in for my yearly mammogram. My doctor saw some spot on the mammo that he didn't like so he sent me back for another mammogram of higher resolution. He still didn't like what he saw so he sent me to have a needle biopsy (this was not fun). The test came back positive, however I was lucky and it hadn't even started to form a lump. I then went to the oncologist. I had DCIS stage 0. I then met with the surgeon who gave me several options. However since I have a strong family history of not only breast cancer on both my mom and dad's sides of the family but other cancers as well I knew what my decision was going to be. This is where my story has a neat (if you can call it that) sort of twist. On April 7, 2008 I had a double mastectomy, 13 yrs to the day and by the same surgeon that my mother had her single mastectomy with. She has not had any reoccurrance of her breast cancer. I took that as a good omen. Since my cancer was caught so early and I chose to have both breasts removed, I did not have to go through any chemo or radiation. I know some may think my decision was a drastic measure, but I do not regret it. I have been very lucky to have both a very supportive husband and family.

Edited by: RHONDAJB80 at: 11/8/2012 (19:46)
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10/1/12 3:39 P

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Can I ask a question? I am a 2 1/2 yr stage 2A triple negative breast cancer survivor. I was stage 2A because of the size. There was no node involvement and no attachment of any kind. But because the tumor was 3.5 cm it was stage 2. My oncologist told me anything between 2-5 cm is stage 2 automatically. And all the research I have done verifies that. Here is my question. On 5/22/12 Druidprincess said she was a stage 1 and that she had 2 tumors. One was a size 4 cm and the other was a 5 cm. How can that be? Isnt that automatically a stage 2? Very confused! Thank you in advance for any feedback.

HOPEISINTHEAIR Posts: 399
9/28/12 1:49 P

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Thinking of all of you are new to this b.c. stuff.. 7 years ago this week I had the surgery that helped begin the healing of the "invasion" of cancer. I am thankful for this website so I can see how others are dealing with or have dealt with their own stories.
Who knew that just a casual exam Aug of 2005 would find me hear feeling grateful for the journey and other interesting things I have learned since that time.
I hope each of you find a moment of peace in your day today as you reflect on your inner strength.
GRADE 3 /15 POSITIVE NODES. LEFT SIDE . LUMPECTOMY/ CHEMO/ RADIATION/ AND NOW homonal therapy to keep me well.
later and much love and hope to all .



Lore


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9/2/12 10:08 P

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Nancy, thank you so much for sharing your story with us. I am so glad
that all things seem to have worked out well for you. I know none of it
was easy at the time, but I believe women who have BC, have so
much strength and we do what we must do for ourselves.

You are a brave woman, and we are happy that you have joined us.
You will find many good friends on our team. Continue to enjoy the
happier days ahead.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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9/2/12 7:50 P

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Good evening,

I am so glad I found you all! I am a breast cancer survivor and here is my story...

In January of 2009, I decided being obese was no longer an option and joined WW and a gym. Eleven months later, I had lost 50 pounds and dropped from a 22/24 to a 16W! I was feeling great and going strong.

Right before Thanksgiving, I went for my annual mammogram. A week later, they called me back and determined there was something (a small calcification of about 3mm) in my left breast...I could wait 6 months and return or get it biopsied right away. I chose the biopsy...December 22 was the day of my diagnosis...DCIS...some might say...What a Christmas present! but I consider it a blessing. You can't fix what you don't know is broken!

I met with a doctor at Dana Farber in January, had a lumpectomy in February. It was to be followed by radiation, but the edges did not come back clean. Another needle biopsy was done and determined the area was too large for another lumpectomy - a mastectomy was in my future.

Oddly enough, when I asked about my right breast, he didn't think it needed to be looked at. This just did not feel right to me, so I went for a second opinion at Mass General. The doctor I met there did not hesitate to send me for an MRI within the week and guess what, there was a mass lurking behind my right nipple the mammogram did not detect! I chose not to have another biopsy. ALWAYS trust your gut, ladies!

On June 21, 2010, I had a bi-lateral mastectomy with immediate reconstruction. The entire surgery was 14 hours! After my surgical oncologist removed my breasts and tested the lymph nodes (thank God they were clean!), my reconstructive surgeon moved my belly tissue and some ab muscle to my breasts by disconnecting and reconnecting the blood vessels (DIEP flap and a Tram flap). Sort of a boob job and tummy tuck in one! ;) It turned out it was cancer in the right breast as well, so it was a great decision to do both at the same time. And because I had been working out, but was still heavy, there was plenty of tissue/fat to move and I was healthy and strong enough to bounce back after that surgery with no complications. Since my lymph nodes were clean, I did not need chemo or radiation.

This was a wake up call for me in many ways. I had been moving through life, not really living, just surviving. I was unhappy in my marriage for a long time, and breast cancer actually gave me the courage to tell him our marriage was over (had been for many years). After my lumpectomy, I told him he had to leave by the end of March. My youngest got confirmed in April, my oldest graduated high school in late May and then I was ready for my surgery.

Eight weeks later I returned to work. I have seen first hand the power of faith and prayer. Family, friends and coworkers all stepped up to help is ways large and small. Life is beautiful!

Now it is time to get back on the weight loss and exercise track again. It has been over 2 years since I have been cancer-free, the last remnant of my divorce was completed at the end of July (we sold the house and split the stuff and proceeds), and now it is time for me to refocus on a long, healthy and happy life. Someday, when my boys have a family of their own, I want to be around to experience that with them.

Thanks for reading and letting me pour it all out...closing with a prayer for all of you..

May you be happy,
May you be healthy,
May you ride the waves of your life.
May you find Peace, where ever your life takes you. --Aruni Nan Futuronsky

I, too, am looking forward to our journey together!
Nancy

DAWNCHARRISE's Photo DAWNCHARRISE Posts: 36
9/2/12 1:07 P

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Good morning my fellow warriors,

I want to introduce myself and say that I am so happy that there is a cancer group available to share and encourage.

I have used Sparkpeople before and have had some success but this time is different. After being diagnosed with DCIS, high grade with necrosis last March, Something that started as a lumpectomy with a lymph node removed ended up as a mastectomy because after two surgeries they could not get a clear margin.

Looking back I feel so blessed to have had a mastectomy because when the pathology came back it showed more DCIS without markers (dead cells) in other areas and a lumpectomy would not have included them. The only concern I still have is for my other breast and in that I can be more proactive in incorporating what I have learned from various books on the Nutrition for preventing cancer in my current diet along with more exercise and hydration.

I recently found a great plastic surgeon who has been voted the Best in Seattle. I had done research on the different procedures, none being too easy, and had gone to support groups to ask questions and talk to others who have made different choices and their outcomes. When I went to see the surgeon I had made a decision on doing the TRAM where they take skin and fat from the abdomen and make the breast. My reasons were two fold, one is because If I got an implant instead, it would mean that in about 15 years I would have to have it replaced which meant more surgery, and second, I liked the idea that my breast would be all me and that I would get a tummy tuck which would take care of the extra skin along with the fat I have as a side benefit to the reconstruction of my breast. The doctor said something that I had not thought of and that was at my weight right now, if they took the skin and fat from my tummy and I continued to loosed weight, the abdomen fat would shrink down faster than my other breast that is breast tissue. So my choice was I could wait until I lost the weight or I could give it my best effort and loose as much as I can while I have an expander placed, along with the reduction of my other breast, and then when it is the desired size I will have the option of either an implant or the TRAM. I liked this idea so the surgery is scheduled for November 14 which is the soonest I could get in and at that point at least I can get all of this started.

This comes to why I am back at Sparkpeople. I know that if I check in every day and take advantage of the tools and the information and the support from others who are trying to accomplish the same thing, that I would get the best possible outcome.

I am so blessed to have my faith, to have the support of a wonderful husband , grown children, and wonderful friends who have been there for me this year during this challenge. I feel stronger than ever and feel confident to handle anything life throws me and hope to be of some value to others who need encouragement.

So here I am ready to give it my best to loose the weight and be as healthy as possible for this reconstruction planned and I am excited to be having surgery that is a choice rather than a necessity.

Thank you for sharing your stories and I am looking forward to sharing our journeys together.

Edited by: DAWNCHARRISE at: 9/3/2012 (03:26)

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JESSIG5's Photo JESSIG5 Posts: 2,418
7/17/12 8:20 P

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Nancy, I wish you weren't qualified to join this team but since you do, then WELCOME! You will find a lot of support and understanding here.

Best Wishes

emoticon

One day at a time; one pound at a time.

BECKYANNE1's Photo BECKYANNE1 SparkPoints: (155,793)
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7/17/12 7:08 A

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Welcome Back to SP!

Sorry to hear about your BC and other issues you have going on. Good Luck!

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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,081)
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7/16/12 11:01 P

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Nancy, so sorry to hear all about your BC and other problems. Best Wishes
in losing your 40 pounds. emoticon

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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7/16/12 12:47 P

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Hi All,

I joined SP 7 years ago. At that time I was sick and obese from a thyroid disease that had gone undiagnosed for quite some time. I finally got that under control and lost over 100 lbs. I maintained a healthy weight for about 4 years and then was diagnosed with cancer. Between forced inactivity, medications, and quitting smoking, I am back to needing to lose about 40 lbs.

So far I've been through chemo, multiple surgeries, and radiation for inflammatory breast cancer. I am still on herceptin infusions and just started long term use of an aromatase inhibitor. Some where along the way I also developed a bum knee (osteo arthritis) that had really put a major crimp in exercise and functional activity, but I got a cortizone injection lasst week and am tentatively testing out how much I can get away with before it starts screaming at me again.

So here I am again, surviving but not yet thriving, but ready to get on with it.

Motivation without information is useless.

Willpower is nothing more than wishful thinking.

Discipline is practicing something until it becomes a habit.

There is a big difference between surviving and thriving.

Tutling Our Way to Success http://teams.sparkpeople.com/turtling
30 Minute Fitness http://teams.sparkpeople.com/30minutefit




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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,081)
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6/12/12 8:52 P

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emoticon back to SP! I am sorry to hear that you have been through
so much since you left. BC Is really tough in so many ways. But what a
blessing that most of the members here, are BC survivors!

Like you, I had gotten my notice to get a mammogram, but I kept putting
it off. After a few weeks, I decided I'd better go and get it over with. I too,
had BC in one breast in 2010. I chose to have bilateral mastectomies.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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JESSIG5's Photo JESSIG5 Posts: 2,418
6/12/12 12:47 P

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Welcome back to Spark, Donna. I am sorry you have been through so much but maybe now you are on your way to a new healthier lifestyle. You will find many teammates here who understand and they can be very supportive.

Good luck.

One day at a time; one pound at a time.

NORTHERNHOPE SparkPoints: (1,104)
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6/11/12 11:27 P

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I have just joined Sp....for the second time and much has happened in that time. May 18th of last year I had surgery for breast cancer. I can rember when I went for my regualarl mamogram....I was actually not going to go as they had always been negative. Anyway, I got a letter a couple of weeks later requesting that I come in for a diagnostic mamogram. Once that was done it was immediately read and I was told that I would need a follow up Ultra sound. Now I was scared. The day came for the Ultra Sound and there it was....in plain sight. I was an ICU RN and it didn't take rocket science to know what I was seeing. There was no surprise when my doctor immediately referred me to a surgeon who ordered the biopsy.

That was done quickly in less than a week....it turned out to be positive. My hubby and I decided that if possible we would have a lumpecomy done. Luckily, It was less than .5 cm and stage one. The lumpectomy was preformed. Unfortunately, I developed an allergy to the blue dye used to show which lymp nodes were affected. There was only two! Again good news. I was on IV therapy for the next two weeks to conteract the infection caused by the dye.

The surgery was followed by six weeks of radiation. I found that very had to deal with towards the end as I was blistered and uncomfortable. The hot sweats that followed were no fun either. I have just completed my first year. I have four years of tomoxifen left. I hate the drug and the hot sweats but that is minor compared to what alot of women have to put up with.

Luckily I have a wonderful husband who stood stead fast beside me and a supportive family I am so blessed. I forgot to mention that I am 63 years old.

Donna

Edited by: NORTHERNHOPE at: 6/11/2012 (23:30)
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6/11/12 11:09 P

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To Druid Princess

I just read your post and couldn't help but be moved. I wish I was there to sit and talk the hours away with you or atleast give you a hug. I can't make what you have gone through any better but atleast you will know that you are not alone.

Donna

Edited by: NORTHERNHOPE at: 6/11/2012 (23:13)
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FHAR451 SparkPoints: (39,127)
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6/9/12 10:16 A

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I was diagnosed with DCIS, Stage 0, right breast on June 16, 2011. I had a lumpectomy with removal 2 lymph nodes.ea on July 25th. Prognosis is good. My surgeon said it was larger than they thought, but they did get all. I developed an infection at the surgery site, so it took longer to heal than normal. I went thru 6 weeks of radiation treatment. Last day of radiation was 10/31/11. I am taking evista for the next 5 years. I went for a followup mammogram in March, 2012 and they saw something suspicious on my left breast. Went thru another biopsy -THANK GOD it was benign. I still get pain in my radiated breast every now and then, but for the most part I am feeling good. Right now I am having problems keeping my blood sugar levels normal. I have type 2 diabetes,on medication, no insulin. I wonder if it has anything to do with my medication for breast cancer.

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