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*SPARKING* with multiple sclerosis!

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  FORUM:   GENERAL CHECKING IN & YOUR SPIN NUMBER
TOPIC:   Describe that symptom 


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ESMERELDA1220
ESMERELDA1220's Photo Posts: 3,102
4/17/14 5:28 P

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I understand about chickens...I've gotten better over the years. Perhaps he can just give you a medrol dose pack. Ask him...all he can say is "no"....why be in pain...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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MALLEN211
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4/17/14 7:26 A

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I did tell my dr,he is the one who wanted IV steroids for me.....so not going to happen. This pain will eventually pass....may take months but worth it to not have IV treatments ---yes I am that chicken of IV treatment :-)


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ESMERELDA1220
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4/16/14 10:29 P

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Hi there...please tell your doctor, because you might not necessarily need an IV drug...at least let him know what's going on....

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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MALLEN211
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4/16/14 2:51 P

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Dear Doctor,
My right leg keeps getting electrical impulses that run from the knee to the ankle and makes it weak I have trouble using the treadmill because it gets so weak it gives out and this is scary to me.. I hate IV drugs so I will not take steroids. Just wanted to make you aware of the new symptom. Thanks for listening to me doc..............


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MOMO7YROLD
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10/20/13 3:52 P

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emoticon for the emoticon advice. I will call him tomorrrow morning. emoticon Theresa emoticon

Theresa-WV
leader of Daily Fitness Challenges Team www.sparkpeople.com/myspark/groups_i
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220
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10/20/13 12:18 P

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Perhaps you could call your doctor and let him know what you are feeling and maybe he can prevent something major from happening...
emoticon

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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MOMO7YROLD
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10/20/13 8:19 A

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Today i've got that nagging tingling feeling in my spine again. I haven't had this feeling in a long time. I hope it doesn't mean something bad is bout to happen.
Theresa emoticon

Theresa-WV
leader of Daily Fitness Challenges Team www.sparkpeople.com/myspark/groups_i
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leader of SP Class Oct 27 - Nov. 2 2013 team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60747


leader of North Central WV team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=41616


I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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MOMO7YROLD
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10/19/13 8:37 A

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My right side went completely numb so I thought it was a stroke as I do have heart, cholesterol, and blood pressure probs. Well still today my right leg is tingly from knee dwn. I had another episode where my whole body was numb and paralyzed I was hospitalized for this one. I was given a couple shots of steroid and feeling and movement came back it was so weird. I have alot of days where I'm foggy headed and tingly in spots some times many spots. Right now my right hand is numb, both legs from knee dwn and my lips are tingly.
Theresa emoticon

Theresa-WV
leader of Daily Fitness Challenges Team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60848


leader of SP Class Oct 27 - Nov. 2 2013 team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60747


leader of North Central WV team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=41616


I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220
ESMERELDA1220's Photo Posts: 3,102
9/23/12 5:52 P

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I think I would ask him what the heck is so "vague" about you said...You said I'm so weak I cannot get out of bed....I have severe dizziness and severe nausea....What is his problem....oh what....let me guess....Could it be he's a man?

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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RAFFERM
Posts: 482
9/23/12 1:05 P

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My doc told me yesterday I was being too vague--what is vague about being so dizzy i couldd not lift my head off the pillow, was so nauseous even dry heaves would have felt good and was so weak I could not move!



RAFFERM
Posts: 482
9/16/12 6:38 A

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there are times when I do not feel! My arms and leg are numb and they won;t move!



STEENY71
STEENY71's Photo Posts: 76
9/3/12 9:16 A

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Interestingly, I had a bout of Bell's Palsy just weeks before I had a huge flare-up that led to my quick diagnosis.

Here we go (yet) again!

Goals:
5 lbs = new earrings
10 lbs = another pair of earings!
15 lbs = ?



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ESMERELDA1220
ESMERELDA1220's Photo Posts: 3,102
7/10/12 3:00 P

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Ask your doctor if you can take Provigil. It is off label for MS...but it works...It is normally used for sleep shift disorder and narcolepsy.

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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GOALOFLOSING
GOALOFLOSING's Photo Posts: 1,401
7/10/12 10:12 A

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Dear Doctor,
I have been experiencing fatigue lately.

Dear Team,
I am tired all of the time. It doesn't matter how much sleep that I get. I feel foggy, like nothing is clear. I feel like all of the colors in life have faded to a more duller version. I am not alert and I miss the feeling clarity.



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KMOORE1967
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6/18/12 12:16 A

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Someone asked me one time what it feels like to have MS. I replied "Well, how do you describe a feeling that isn't there, but you feel it?"

Dear Doctor,
If I have Bell's Palsy, then explain my hand, my arm, and my leg.

There are more things in heaven and earth, Horatio, than are dream't of in your philosophy.


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ESMERELDA1220
ESMERELDA1220's Photo Posts: 3,102
6/5/12 7:57 P

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My brain never works....and I am the one trying to fix my BFF's computer! OYE!
Ezz
PS...I think I got a 1....ick!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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LYNNANN43
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5/19/12 8:31 P

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Dear Neurologist: My brain & eyes don't work together sometimes, especially when I stop running...

~~~ Lynn ~~~ Pittsburgh, PA

Nesting Phoenix

The Secret of Health for both mind & body is not to mourn for the past, worry about the future, or not to anticipate trouble, but to live in the present moment wisely & earnestly. ~ The Buddha

"The world's just not as sparkly as you want it to be. We should all carry some glitter and add a little bit along the way." via SleepTalkinMan on Facebook


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ESMERELDA1220
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5/19/12 2:12 P

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Unfortunately, doctors are programmed like that...that's probably why it took them years to diagnose me....they also look for hallmark symptoms...not the ones that are few and far between...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


Total SparkPoints: 50,506
 
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GOALOFLOSING
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5/19/12 9:36 A

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Dear Neurologist: I've been experiencing leg pain, but it has gotten better.

Dear Team: It feels like there are a million tiny knobs throughout my leg and they are all being twisted in different directions, constantly. It only lasted one night, thankfully, and since the morning after, the leg has been very tired. I've tripped over it once, but each day it seems to be getting better.



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GOALOFLOSING
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5/19/12 9:22 A

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Do you have a hard time describing the symptoms you are experiencing with MS? Use this area to describe what you're feeling in whatever way makes most sense to you! No need to be technical here; just let it out!

I'll never forget my first consult with my neurologist in December, 2011. I was trying to explain what I later found out were vertigo-like symptoms. In the beginning, I didn't know what vertigo was. The best description that I could give my neurologist was that "it feels and sometimes looks like I'm on a cruise ship." For somebody who has been on five cruises, that is what made the most sense to me. Of course, what I meant was that it felt like the room was swaying and I could see the room sway along with the feeling.

My neurologist seems to be more receptive when I say, "I have been experiencing vertigo-like symptoms, again." He knows, for the most part, what I mean. Here, in this forum, you can describe your symptoms in whatever way makes most sense to you.

Edited by: GOALOFLOSING at: 5/19/2012 (09:31)

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