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9/22/14 9:53 A

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Thank u Ezz for the info.
My Dad has Dimentia so his coherency is in and out. He refused 2 tests (scopes) to find the bleeding. He is back at the nursing home now they gave him a unit of blood and now its just a waiting game as to when he'll need more. He has a case manager but as long as he knows his name and birthdate there is nothing we can do.

Theresa-WV
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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/19/14 10:45 A

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Nobody can sign a consent for their spouse unless they are declared medically incompetent...and your Mom would need a power of attorney that includes the ability to sign for him. You could have a geriatric psychiatrist in as a consult and he can make the determination about your Dad. I had a funny feeling that consent was not going to fly...

Everyone, when in the hospital, should make full use of the advocate system..if the hospital has one. most hospitals do now...they also have case managers that get you ready for discharge. They make sure the equipment you need is at your house before you get home, etc...They want a smooth transition to home after discharge so there are not repeated admissions...

If you need any questions answered about the hospital system in general I will try to help as I've worked in the acute care setting until I was disabled...((((((((( hugs)))))))))

Ezz woman

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To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

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9/19/14 8:05 A

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emoticon Ezz for the info. I will check into it. My stress was increased yesterday. My mother signed the consent for my Dad to have the scope and when they got him downstairs to the OR he refused to have the test. The doctor asked him a couple questions and said he was able to decide for himself. So we don't know where the bleeding is coming from. When he entered the ER on Tuesday night his blood level was at 11 and then yesterday it was at 8 so there is a slow leak somewhere and when they give him the blood thinners for the blood clots in his legs it increases the bleeding. Hopefully they'll not give him anymore blood thinners.

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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/18/14 8:12 P

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I do understand what you are going through...I have taken care of many patients like your Dad and it is very difficult for the caregivers..they have patient care managers in the hospital that can help you. get a health care surrogate document done...they usually do them in the hospital and they don't cost...that is very helpful. hopefully they will find where he is bleeding from and stop it quickly...my parents died when I was 45. I miss them very much. I wish they could have lived longer, but I'm glad that they didn't have to go into assisted living or an SNF...My SIL lost her Mom, who was 96, and then her Dad 3 months later...very hard...
Be patient...and do the best you can, but realize that you have to get rest to be able to help your Mom...((((((((((((hugs)))))))))))

Ezz woman

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To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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9/18/14 8:01 A

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Well I hope u enjoy ur trip to the UK. Sounds like alot of fun. Wishing u some cooler air. If we could bottle it I would send u some. Its been cold her for 4 days now.

Well I've been off routine for several days now. My Dad has been very ill for 2 wks now in the hospital. He's bleeding internally but they don't know where they are doing a scope down through the throat to the stomach today to investigate. He's scared and is trying to say no but he has dimentia so my mom has already signed the paperwork. Its a sad situation when ur parents get old. He will be 79 in November. He has Parkinson's real bad and the dimentia is just starting. So I have been real stressed and depressed.

Edited by: MOMO7YROLD at: 9/18/2014 (08:08)
Theresa-WV
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I can do it, You can do it, set ur mind to it.
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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/17/14 9:36 P

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Everyone says that it is going to be a cold winter. Last year the North had an awful winter, but there was a high pressure area sitting off the coast that prevented most of the Northern air from trickling down to us...I don't want the North to have an awful winter, but I gotta have some cold air...I stay indoors most of the hot summer months...even though people say everything is air conditioned, just stepping outside for a few minutes takes my breath away...and then I feel just awful. The only relief is the rain because the dark clouds cover the sun...
We are going to the UK and sailing back home from there so it will be fairly cool until we hit Bermuda and then it will start to warm up as we head South...so I will have some relief and then hopefully some cooling when we get home...
I wish we could bottle the darn stuff!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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9/15/14 7:49 P

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Esmerelda that would be cool if we could bottle it up and share it. I saw a thing on FB where the Meteorologists are saying it gonna be record snowfalls this winter.

Theresa-WV
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/14/14 8:34 P

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They say it's going to be a cold winter...I'm hoping for some of it down here...if I could bottle it I would and send it North to you so we could trade!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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9/14/14 1:28 P

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Wish u could send some of that hot air up north to West Virginia its been cold here for the last 3 days. Unusual weather for this time of year.

Theresa-WV
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/14/14 12:50 P

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Let's get rid of this hot air in Florida! LOL!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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MELLY3183's Photo MELLY3183 Posts: 1,960
9/14/14 11:54 A

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Hi TEam!! Let's make it a great week!!

"You have to believe in yourself when no one else does. That's what makes you a winner." - Venus Williams

"I am who I am today because of the choices I made yesterday." -Eleanor Roosevelt


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MOMO7YROLD's Photo MOMO7YROLD SparkPoints: (41,640)
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9/3/14 8:38 P

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Yup YW emoticon

Theresa-WV
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/3/14 2:32 P

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Thanks...lots of Vit C too! emoticon

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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9/3/14 2:26 P

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Rest alot and drink plenty of fluids to help u get over that cold. Hope u feel better soon.

Theresa-WV
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/3/14 12:53 P

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I'm good for another 6 months at the neurologist. Now I have to get my blood pressure fixed...

Boy, were you lucky! In Florida they just love to get you for nothing...and when they really need to ticket some of these crazy drivers there isn't an officer anywhere...
I still have that cold so I'm just doing small things around the house...that will keep me busy and I'll rest I between...
Good luck with the doctor apps. Hope everyone stays healthy...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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9/3/14 10:09 A

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O I've been stopped and warned 4 times the last time I was told it would be a $450 fine. The only thing that was saving me from a ticket is I kept insurance on it. Never let the insurance go.
Good luck with ur dr. apptmnt. I have a dr apptmnt every week bc I see 5 different doctors for different reasons many health probs. Plus my DH & DS have apptmnts also. I get to where I don't want to leave the house sometimes. I just want to relax and chill.

Theresa-WV
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/2/14 8:05 P

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Glad you are going legal. I can't believe you hadn't got stopped and ticketed...I know there are extenuating circumstances in this economy of ours...

Still getting over this cold, but a little better today to do some house cleaning and do a doctor's appt...thankfully my doctor appts are not as frequent as they used to be....I can have more time for myself...
Take it easy and go slow...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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9/2/14 4:24 P

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I had a busy day today. I'm just getting to my sparking usually have this done by 10 am but I had to walk my son to school and got in my half mile walk doing that came home did my 40 crunches then had to get ready for an intake apptmnt that I had at a doctor's office. Then had to go to the court house to pay the taxes on my car so I can get the tag legal tomorrow. I've been driving around illegally for 2 yrs. Gonna get it legal tomorrow. Gonna have another busy day tomorrow actually this whole week is busy with apptmnts and legal stuff and shopping. Phew its wearing me out just thinking about it. LOL Hope everyone has had a terrific Tuesday.

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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
9/2/14 10:15 A

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I'm sure all of us are absent at one point or another so don't worry about it. I go into "foggyville" several times a year....especially after the holidays...and now I have a stinking cold!
On a very positive note....my trip to Long Island was wonderful and I had a grand time visiting family and friends...
I hope to be around a little more too...
Hope your problems ease...I will put in some heavy duty prayers...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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9/1/14 8:17 P

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I apologize for my absence. I have been battling my own demons. We are going through alot right now. Not only my MS probs but financial and my sons Autism and the main reason is my own team Daily Fitness Challenges Team. It has gotten a burst of energy that I wish I could keep up with. I will really try to at least check in with. I'm doing yoga now plan on doing it daily because it seems to loosen my muscles up some to function daily. I was going to a physical therapist bc I had gotten real weak. Even while doing exercise. Hope everyone has had a wonderful Labor Day.

Theresa-WV
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
7/10/14 2:56 P

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I'm doing a lot better than I had been and I'm so happy about it...today I went swimming with my grandchildren and had lots,of energy...everyone has a drug that helps them...I'm on Copaxone and so far so good...little up and a little down....but I basically feel good...

I also started taking Co Q 10 400 mg twice a day ( from my doctor ) and I think that is helping too....plus Vit D3 5000 iu. I also take Hair/Skin/Nails and Vit B12 sub lingual. I finally feel healthy...I have to add some Vit C to that...

Hope everyone is doing well....

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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AMLYWE's Photo AMLYWE SparkPoints: (9,338)
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7/10/14 8:08 A

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Hi ALL! I just beat another damn attack!!!!! I ended steroids on Sunday and just back to work with most of my functions back!

Having to tell yet another boss about MS was not fun... It had been 4 years since my last attack and I owe that to Gilenya! I was having an attach every year there for awhile.

I celebrated 9 years of kicking MS's butt this June and looky here... July rolls around and it decides to pay a visit. I don't care what studies say - Stress sets this stuff off for me.... Work just recently go really crazy + My family and I just had to move my Granny into a Alzheimer's nursing home .... BAM = numbness, weakness, almost lost complete function in my left hand.

I call it God telling me I need a break!

Hope everyone else is getting through the summer OK.

~ Remembering how good I feel after a good workout to push through any speed bumps along my Journey


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
7/4/14 3:15 P

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Thanks for the encouragement! If he doesn't listen he will get sicker...sure hope he listens...
sooner than later...



Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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MAPGEEK's Photo MAPGEEK SparkPoints: (18,248)
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7/4/14 8:13 A

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Edmerelda- I know how frustrating it is to try to encourage your husband to do all of the things that we know will help and he just doesn't do it. I had that problem for years and then one day he just decided to do it all on his own. What's really aggravating is that after he started doing it he kept telling me things that I'd been telling him all along.Obviously, he hadn't been listening. :) You're mom is right. You can't make them drink. Just continue to be supportive.

emoticon indeed on the weight loss. That scale is just so hard to move.



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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
6/27/14 10:50 P

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Hello everyone! So far my energy is up and the naps are few and smaller...Yay! and its official on the doctor's scale that I lost 5 lbs...
emoticon
My DH came home from the doctor the other day and he made it to official diabetic before me! technically the number has to be 6.5 or over...I'm 6.2 and he got a 6.51...believe me I am not jealous. He was told to loose weight too...He has ended up with Stage 3 hypertension...

I tried to teach him stuff, but he is not into learning as yet...I'm trying to get him to journal his food too...he isn't into that either...oh well can't win them all...when he is ready...you can lead a horse to water, but you cannot make them drink...my Mom's favorite saying...

Hope everyone has a great weekend...I think I got a bonus spin today...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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6/27/14 9:47 P

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I keep posting to the team wall and decided to take an extra moment and post to a thread! Have a wonderful weekend everyone!

Team Leader of
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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
6/9/14 4:36 P

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Today was not a frenzy of having to do things...a nice relaxing day until I started to make lunch and opened the cherry tomatoe container that I had bought a couple of days ago and it was filled with mold...I ended up with my first headache in a couple of weeks...that went in the garbage...wish I could have saved it to return it, but too afraid of the mold spores getting out... emoticon
Does anyone know a way to make the emoticons work on the iPad...I can add from my own emojis...but I don't know if you can see them...?

Thankfully feeling better...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
6/8/14 9:45 P

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I went to journal my food for yesterday and I thought I ate myself silly and I had stayed in bounds! WOW! What a feeling!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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DAWNUH's Photo DAWNUH Posts: 6,437
6/8/14 8:45 P

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Yes, I was thinking the same thing about the lack of posts! emoticon

You are doing a great job maintaining! Yay You!! emoticon

What I am looking for is not out there; it is in me.

-Helen Keller

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
6/8/14 10:42 A

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I guess it's summer time..no one is posting...but I am still feeling good and hopefully will continue to post....
Thankfully my weight is remaining stable and I continue to journal. That is most important to me as it keeps me on the straight and narrow. I'm also still energetic and no nap yesterday. So far so good!
I hope everyone is starting off with a great summer! 😀

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
6/2/14 10:53 P

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There are a ton of Gluten Free products coming out now...I have chocolate chips that are the "bomb" for my sweet tooth and they are nut free gluten free...

You can tell your sister that the ships have stabilizers that make the ship not even feel like it's moving. Then you take a room in the bottom off the ship in the middle. No rocking there and you can triple it by taking a cruise when the seas are usually calm...but I don't mind the rocking...we were in hurricane force winds on one cruise. It was great! Only we missed a port...the Captain couldn't move is out of the way as the storm developed right over us...you can't fool with Mother Nature....
So far I'm holding strong. Major projects are completed. The floor looks fabulous and I still havemt had a headache...I went to visit my granddaughter today and she is allowed to have the class bunny for the summer. He is adorable, but my eyes were burning...his name is IHOP...very clever! And he's cute!
I'm just praying for this to last a bit longer...I'm having so much fun!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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6/2/14 6:42 P

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You are rocking it for sure, ESMERELDA1220! Loving the warm but not Too hot weather. As I stated before, my sister has struggled with her sinuses so I mentioned taking the Cruise Choice to her and I loved her reply: "Yeah, Donna.... but it'll hafta be a big boat so I don't get seasick." Sounds like my sister - she's too worried about getting sick sometimes. She recently asked if I've had my gluten levels checked, because many time symptoms we have with our MS mimics some gluten intolerance symptoms. "Yep, Anne that's true, but I know I have it. I've got the cool marks on my brain to prove it!" was my reply. Hahahahaha!
Keeping a positive outlook on things helps me to continue to feel good. Thanks for your great thoughts to add to the positive vibe I'm in. emoticon

Edited by: DAWNUH at: 6/2/2014 (18:43)
What I am looking for is not out there; it is in me.

-Helen Keller

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
6/2/14 9:58 A

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Today is another good day start! My weight is holding, but hopefully with the increase in my activity it will start going down...feeling good...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
5/30/14 2:09 P

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My daughter is going to have the surgery too. she just had allergy testing and is allergic to everything! I'll be helping with the kids...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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DAWNUH's Photo DAWNUH Posts: 6,437
4/14/14 7:24 P

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Ah-ha! So you've found the supreme remedy for icky sinus problems - just take a cruise!! Sounds like a perfect remedy for everyone! emoticon

Happy to have you back!

What I am looking for is not out there; it is in me.

-Helen Keller

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
4/13/14 9:53 P

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Hi everyone! Just returned from a 7 day cruise and considering all the food they put out I did very well...I get on the doctor's scale this Thursday...

Hi EMSSBEARS...Well, I have no clue how my Spark Level shows up, but I will look and see...I don't remember doing anything, but then I have MS brain (such a wonderful excuse )...
On the cruise I had no congestion that I could think of and now that I am back in Florida I have that congestion so I'm guessing allergies...plus my sinuses are clogged up...yuk! I think I should live on the ship...this was not an expensive cruise and it was on the Royal Princess. I will put my pictures on Shutterfly and see about a link..oh I will be asking about the shortness of breath...that is still an issue...will let you know...
Hi Vicki Hi Chelsea!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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4/8/14 11:30 P

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ESMERALDA1220- I have been having the congengestion and shortness of breath too but I haven't mentioned it to MS dr yet will be interested in what yours says I don't see mine again for a little while. I have a no-MS question for you how do you get your SparkPoints Level to show up below your ticker on your display?

Beth
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4/8/14 9:38 P

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emoticon

YOU NEVER FAIL UNTIL YOU STOP TRYING ...albert Einstein ..


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4/1/14 7:27 P

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Wow, have a wonderful and relaxing time on your cruise! I've never gone on one, but just picturing it leaves me feeling relaxed.
I'm not a jewelry shopper, but I LOVE to find beautiful statues or paintings that I can put up in my home.
Have you had these cold-like symptoms for awhile? My sister has had some recently these past couple of months, and it just Never seemed to want to go away! A change in diet has helped some, but I think an increase in relaxation strategies are the true healing medicine for her. emoticon

Edited by: DAWNUH at: 4/1/2014 (19:29)
What I am looking for is not out there; it is in me.

-Helen Keller

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
4/1/14 7:12 P

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We are going on a 7 day cruise to the Caribbean. We won't get off in port as they have a mosquito borne virus going around and we have been to St Thomas and St Marteen. Too many jewelry temptations in St Thomas anyway. I want to relax on the ship while most everyone goes off. I think the sea air will be good for me, but when I get back I have a doctors appt and I really need to go...I feel short of breath...mostly congested and it's not going away. I'm getting tired of it and from it ! I am glad the infusions helped you! That's the most important thing.

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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DAWNUH's Photo DAWNUH Posts: 6,437
3/31/14 9:39 P

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That's what I felt I got! I understand it sometimes takes 3-4 infusions before one feels the effects of it (this was my 4th infusion). I definitely felt it this time! Feeling more confident while I am walking is the best feeling ever. emoticon

What I am looking for is not out there; it is in me.

-Helen Keller

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
3/31/14 8:42 P

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You had me scared...but believe it or not....there is an infusion of triglycerides, but used for something totally different.
As far as spelling goes...I thank goodness my iPad corrects a ton of my spelling mistakes....it also says really weird things, but I'll take it...

I really wish I could get an infusion of energy...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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DAWNUH's Photo DAWNUH Posts: 6,437
3/31/14 6:24 P

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Oops on me! I take Tysabri. Or Typsybri. Or Tiesaebreee. And yes, My spelling is that bad. emoticon

So it was my monthly tysabri infusion. And it helped me to feel stronger. Smarter? Not really. But stronger for sure. emoticon

What I am looking for is not out there; it is in me.

-Helen Keller

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
3/30/14 9:36 P

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Dawnuh....hi! What kind of infusion...I have never heard of infusing triglycerides...would love to know about this...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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DAWNUH's Photo DAWNUH Posts: 6,437
3/30/14 7:28 P

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Yes, I am finally checking in. Sorry I've been so absent! emoticon

Doing well, and had an Awesome infusion with trygliceride (sp?) recently. I felt strong and left with such vigor! emoticon

Here's to an awesome week for all. emoticon

What I am looking for is not out there; it is in me.

-Helen Keller

MELLY3183's Photo MELLY3183 Posts: 1,960
3/30/14 12:51 P

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emoticon quick check in because I have to get ready for work soon. Hope everyone has a great week!

"You have to believe in yourself when no one else does. That's what makes you a winner." - Venus Williams

"I am who I am today because of the choices I made yesterday." -Eleanor Roosevelt


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3/30/14 10:17 A

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Hi everyone! I'm checking in...LOL! I was in a deep post holiday funk and it seems to be lifting. I had my colonoscopy...Joy of joys...and I'm good for another 5 years.

Now I hope to refocus my energies on Spark People. I have been having some MS issues, but I'm working to overcome them...

Hi Chelsea & Vicki...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
3/14/14 5:28 P

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That's good. I figured that' sweat they would do. It's 10 mg less a week which is no big deal. I take mental health breaks from the shots and I've done just fine...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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EMSSBEARS's Photo EMSSBEARS SparkPoints: (93,949)
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3/11/14 9:23 P

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I did call the Shared Solutions and found out - the Autoject is the same for both the 20 and the 40 so I can continue to use the same one. Thanks.



Beth
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"Aim for progression, not perfection."

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3/11/14 7:55 P

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My doctor is waiting for a couple of years to see how the study is for three x a week. Technically, if you do a sub q injection it is supposed to be no more than 1 cc. Teva might be putting the 40 mg in a more concentrated form to keep it at 1cc. You would have to ask about that...call the shared solutions people...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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3/11/14 11:00 A

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I have a couple of questions for those of you that have gone from the Copaxone Daily to Copaxone 3 times a week (1) Did you use the Autoject to take your shots? and (2) Did you have to get a different one for the 3 times a week shots?


Beth
Arkansas
"Aim for progression, not perfection."

West Highland White Terrier Fans co-leader

BLC25 -
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Your Superpower is Vampirism
Your Weakness is Tummy Rubs
Your Weapon is Your Water Rusty
Your Mode of Transportation is Unicorn
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3/11/14 10:56 A

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Haven't heard of it but would be interested in hearing what your results are.

Beth
Arkansas
"Aim for progression, not perfection."

West Highland White Terrier Fans co-leader

BLC25 -
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Your Superhero Name is The Shining Sword
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Your Weakness is Tummy Rubs
Your Weapon is Your Water Rusty
Your Mode of Transportation is Unicorn
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3/9/14 10:59 P

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The Wahls Protocol comes out on 3/13/2014. I have pre-ordered my copy. If anyone would like to try this way of treating their MS I would love to have a partner or two as we figure how to follow the plan that Dr. Wahls lays out in her new book. I don't know about many of you but I have been progressively been going in a direction I just don't want to go and I figure this is worth a shot and from everything I have researched so far it can't hurt. Let me know by dropping me a sparkmail if your considering giving it a try.


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3/9/14 8:38 P

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PRINCESSNIBBLESS- great job on the recumbent bike. I love the thin mints - I have never tried the lemonade ones. I ate a thin mint one the other day to celebrate my 4 pound loss while I was doing my strength training - not sure what that says about me, but at least I stopped at one.

ESMERELDA1220 - so sorry you are having a flair up right now. I hope that cutting out the meds will give you the energy you are searching for and that all the unwanted side effects will disappear immediately you definitely do not need that.

Beth
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"Aim for progression, not perfection."

West Highland White Terrier Fans co-leader

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ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
3/9/14 8:15 P

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Have doing basically nothing...going through some sort of flair and had trouble swallowing and fatigue, awful headaches... I cut out two more meds with MD approval. Singulair and Xyzal. They were for my allergies... But they were giving me side effects...hopefully some energy will appear...

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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PRINCESSNIBBLES's Photo PRINCESSNIBBLES Posts: 653
3/9/14 7:17 P

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I managed 45 minutes on my recumbent bike today, watching Undercover Boss/Employee and a bit of The Little Couple. I went to Wally World and actually remembered to get what I went there for. The Girl Scouts were out, and I of course got some cookies. Thin Mints for sweetie, and the Lemonade ones for moi. Have a wonderful day!



*Kim* in Nevada


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3/9/14 2:18 P

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I will be praying that all goes well with the memorial. I will pray that you have peace of mind and get much needed rest . Hope your grandmother has a happy birthday. Great job on the steps this week and the Spring cleaning you are doing great, keep up the good work and take good care of yourself. You are worth it and I am proud of you.

Beth
Arkansas
"Aim for progression, not perfection."

West Highland White Terrier Fans co-leader

BLC25 -
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Your Superpower is Vampirism
Your Weakness is Tummy Rubs
Your Weapon is Your Water Rusty
Your Mode of Transportation is Unicorn
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3/9/14 11:50 A

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Hi Team - Just wanted to do a quick check in, I've been so tired lately with work but was able to get some Spring cleaning done yesterday (I even almost made it to 10k steps). This week we're having Karl's memorial and then my grandma's birthday is on Wednesday, it'll be a tough week for me but I'll good.

Hope everyone has a great week! Leo and I are slowly waking up this morning. Keep pushing!

"You have to believe in yourself when no one else does. That's what makes you a winner." - Venus Williams

"I am who I am today because of the choices I made yesterday." -Eleanor Roosevelt


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2/1/14 9:19 P

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Technology used to freak me out. I was so afraid to learn how to use a computer, but when I got my job at Boca Hospital a whole world opened up for me. I felt great and my brain just soaked up everything and I learned to use other machines thanks to a great mentor when I started there. I even went back and took some college courses...I carried a 3.8...

I enjoyed the gym and I really want to get back. I just don't have the energy...you would love the treadmill...it is easy and relaxing. I use my iPad or put on my music...then I do about two miles...after that I do some strength training free weights and other stuff???I take about 90 minutes....I think once I'm only sitting once a week I will have more energy....Cami is almost 2.5 years old...very good child, but you can't leave them alone for a second...
You can be an honorary G'ma....

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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DAWNUH's Photo DAWNUH Posts: 6,437
2/1/14 3:42 P

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Whoah, no kidding about the crazy weather! I live in the midwest where snow loves us, and ice gives us kisses too. I like winter weather, but it's hard to get out and walk sometimes.
Just got back from a walk around a local mall which is pretty much closing up, so there aren't many stores open. Which makes is great for many folks to drive over and just walk walk walk around. Loved it! It's so good for us, so I gotta keep on going. I have to admit, I have never tried a treadmill walking machine. Perhaps I'll try one when/if I'm not nervous about getting it to work right.
Technology in general stresses me out. I'm from Ames, Iowa - that's where the computer was invented, or so I've been told. So why the heck does it freak me out?!? Ugh. It just annoys and frustrates me. I'll get over it one day. Maybe when I'm 80. emoticon
So glad you got the chance to spend time with your granddaughters! I hear it's awesome to have grandkids. Since I've yet to have a baby, this may not be in my future. So I can praise from afar! emoticon

What I am looking for is not out there; it is in me.

-Helen Keller

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1/26/14 6:19 P

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Hi! I had my granddaughter overnight. We went out for walks to feed the ducks. Not big walks.for some reason I do great on the treadmill but walking around just hurts...that isn't TMI for us MSers...that is one of the things that we get stuck with...

I wish I could get some of the energy back that I had after I came home in November...it just upped and went. Struggling to stay away from bad foods...it's good to belong to SP...

I would take 54... Maybe even 1 degree....the heat just kills me...just wish we had straight 60s-70s for a couple of months in a row... This year has had crazy weather!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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DAWNUH's Photo DAWNUH Posts: 6,437
1/26/14 3:20 P

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Good afternoon everyone!
Just got back from an awesome walk around the neighborhood I live in. Weather in the Midwest never allows us to get bored, that's for sure. It was 54 degrees as I'm out walking! Love Love Loved it. Weather folks caution us to not get used to it. Tomorrow we'll wake up to 1 degree. Yes, that was not a typo - 1 degree! emoticon

My neurologist suggested I continue to get moving for my health and to combat constipation one can get through the meds I am taking. (tmi?!? sorry...) This is a suggestion I welcome and hope to keep up. emoticon

What I am looking for is not out there; it is in me.

-Helen Keller

ESMERELDA1220's Photo ESMERELDA1220 Posts: 3,215
1/25/14 10:09 A

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Hello everyone!
Saturday! The bathroom is almost finished and is looking beautiful...it exhausted our pocketbook so we will have to wait with other projects...
I'm still trying to get my body to move...and I have this funny lumpy feeling when I swallow...anyone have that? If it doesn't go away it to the doctor I go...

I saw the eye doctor and that's doing good...
Should be a nice weekend. My granddaughter, Cate, is coming to stay over...that's a fun time...
Hope everyone has a great weekend!

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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1/19/14 1:35 P

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Hi everyone!
It's Sunday and I'm actually getting some stuff done. Since we had the shower pan leak it has been rough cleaning up my Christmas decorations and having all the junk for them to fix the bathroom. We started on 12-26 and we are still going...they had to rip out all the bathroom tile and lay new tile...and we had to get new flooring in the bedroom where all the water went...so it's a process and I'm taking it one day at a time....
Christmas was wonderful and my family was over so that made the end of the year great and now a new year is spinning....
Ezz

Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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1/16/14 11:40 A

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Hi Chelsea! Hi everyone...
I haven't been ignoring the team...just trying to keep afloat...we finally have the men in to start the tile work in the bathroom. We had the shower pan break and it went through the wall to the back bedroom and we had to clear it all out and it has made the house a mess...my energy has gone in the dumper and I went to the doctor to have my thyroid meds adjusted...

My daughter and her family are all sick...so it's been hectic on its own... I am trying to get motivated and start to journal and get back to the gym...
Hugs to all!
ezz



Ezz woman

Strong yet fragile...
To sin by silence makes cowards of men...Abraham Lincoln

Give unto others as you would have others give unto you...

There is a reason and a purpose to everything in life...


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12/28/13 10:27 A

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No, I don't. It is a bit pricey for me. I will keep trying to figure it out. I really like the thought of this exercise. Winter and me and ice do not coordinate well.

GrammyShay


Psalm 27:1 (NCV)
A Song of Trust in God
Of David.

The Lord is my light and the one who saves me.
So why should I fear anyone?
The Lord protects my life.
So why should I be afraid?


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AWESOMECHELZ's Photo AWESOMECHELZ SparkPoints: (29,467)
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12/28/13 9:09 A

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I am not fully sure.....If you have the SP Activity Tracker emoticon , it computes it for you. Do you have one?

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12/28/13 8:05 A

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Checking in. emoticon Headaches are still here, but better. Every day now since right before Thanksgiving. Neuro, ENT, Gyno, Family.......has no idea. Another round of docs in January. emoticon I do have a question...I was reading 'something' about 'walking in place'. They called it *mini sparks*. How do I add that to my fitness tracker? I hope everyone has a good day emoticon www.sparkpeople.com/secrets.asp?tip=
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384_mini_sparks_




Sherri

GrammyShay


Psalm 27:1 (NCV)
A Song of Trust in God
Of David.

The Lord is my light and the one who saves me.
So why should I fear anyone?
The Lord protects my life.
So why should I be afraid?


 current weight: 210.0 
 
218
205.5
193
180.5
168
MOMO7YROLD's Photo MOMO7YROLD SparkPoints: (41,640)
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12/28/13 6:59 A

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ya I'm trying to get back on my sleep schedule. Since school has been out since the 19th of Dec. I been staying up late and getting up early so I think my body was trying to tell me to get back on schedule so I went to bed at 8:30 last night and got up at 4 this morning. I prefer to get up at 5 but sometimes my dog gets me up at 4 to go out. So I just stay up. This way I get my sparking done early and then I can get my exercise done before my son gets up.

Theresa-WV
leader of Daily Fitness Challenges Team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60848


leader of SP Class Oct 27 - Nov. 2 2013 team www.sparkpeople.com/myspark/groups_i
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leader of North Central WV team www.sparkpeople.com/myspark/groups_i
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I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


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12/28/13 5:02 A

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I like TerrificTheresa. I don't think changing your name will be a problem but you can ask. emoticon
You're up early like me today. My plans today are to go to the library to return some items, do some extra cleaning today, do a couple of exercise DVDs, prepare the Sunday School lesson for tomorrow, and then relax. I may continue to tweak my new goals for 2014. emoticon

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12/28/13 4:33 A

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Thats a great idea. I'm thinking toughTheresa or terrificTheresa. What do u think?
I just joined the BLC 24 so I'll have to ask the leader if a name change will be a problem first though.

Edited by: MOMO7YROLD at: 12/28/2013 (04:34)
Theresa-WV
leader of Daily Fitness Challenges Team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60848


leader of SP Class Oct 27 - Nov. 2 2013 team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60747


leader of North Central WV team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=41616


I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


 current weight: 173.2 
 
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151.75
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AWESOMECHELZ's Photo AWESOMECHELZ SparkPoints: (29,467)
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12/27/13 11:16 A

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I have changed my name twice now and each time is for a specific purpose. The first time I changed it so people would know my name right away (Chelsea41063). This time I wanted something new for the new year to make me feel good and encouraged. My friend, Carol, has the name AWESOMECAROL55 and I asked her if I could use it too and she said yes. I think calling yourself awesome is encouraging. emoticon Think of your goals here in SP for the new year and think of a name of strength and fun, and you will love it. You could be emoticon too! emoticon

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12/27/13 7:09 A

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I like ur new username. I really need to change mine also my son is going on 9 yrs old in March he's no longer 7 but I just can't seem to decide on a name thats fitting.
I'm glad to hear u haven't been sick this fall and winter. I used to b sick all the time then it seemed to go away for a few years and now since being diagnosed with the ms its all hitting me again. ??? Don't know y. But ya I'm definitely gonna take the second round of antibiotics to make sure its gone.
I'm looking forward to the new year definitely its been a rough 2013 for us so hoping and praying 2014 will be better.

Theresa-WV
leader of Daily Fitness Challenges Team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60848


leader of SP Class Oct 27 - Nov. 2 2013 team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60747


leader of North Central WV team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=41616


I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


 current weight: 173.2 
 
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AWESOMECHELZ's Photo AWESOMECHELZ SparkPoints: (29,467)
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12/26/13 4:37 P

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I feel like you, feeling like today is like starting over and I need it! I don't mind holidays, per se, but they disrupt my schedule. I didn't do too bad with my eating, though, so I think the SP way of thinking is sinking in. emoticon

I used to get bad sinus infections and they are so miserable and painful. I don't blame you for wanting to refill the medicine. This Fall has been my first time in a few years that I didn't get sick and I am so grateful. I hope you continue to get strong. I am looking forward to new goals here in SP and a new year. emoticon emoticon emoticon emoticon

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12/26/13 8:40 A

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Hello Chelsea. Good morning. Yes the antibiotic is starting to work I don't have all the pain now that I did have. I may/probably will go ahead and get the refill and take it to make sure its gone. I was miserable. Thank u for asking. So how was ur Christmas? Mine was ok sure glad its over though. I feel like today is a new beginning for me. Speaking of new beginning, I've been lazy for a few days I need to get my exercise done. TTYL emoticon
Ur Friend, Theresa emoticon

Theresa-WV
leader of Daily Fitness Challenges Team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60848


leader of SP Class Oct 27 - Nov. 2 2013 team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=60747


leader of North Central WV team www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=41616


I can do it, You can do it, set ur mind to it.
fall down, get up, dust off, move on


 current weight: 173.2 
 
181
171.25
161.5
151.75
142
AWESOMECHELZ's Photo AWESOMECHELZ SparkPoints: (29,467)
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Posts: 9,579
12/26/13 8:20 A

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I am so glad Theresa! You started your medicine 6 days ago. Is it working? I know you have had this for a while and in the winter, it is hard to get rid of colds and flus and sinus problems. emoticon

I am glad I get to go back to a normal schedule! emoticon Today I hope to do some cleaning and maybe go to the library, and I want to work on my New Year's goals. I LOVE new beginnings! emoticon



Leader of "Inner Healing - Sexual Abuse" Team

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