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MZZCHIEF's Photo MZZCHIEF Posts: 9,269
8/28/14 12:40 A

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LTF
Glad you came back with your update! Always great to get good news!

Frannie,
I'm not sure if using distilled water will help you out, bc your water may be fine. But it won't hurt to try!

Be well
: )
Mzzchief

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FRANNIEPAT's Photo FRANNIEPAT Posts: 161
8/27/14 10:28 P

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That's great-it worked for you! I think I will try using distilled water and see if I see an improvement. Currently, my weight loss has stalled. Thanks, Mzzchief

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LTFROMBC's Photo LTFROMBC Posts: 567
8/27/14 8:12 P

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Just wanted to give you all an update from my original post on this topic. It has now been 3 months since I moved from Synthroid to Synthroid/Cytomel Combo therapy. I feel absolutely wonderful. My blood work is great and I have lost a lot of the symptoms that seem to have come back full force after 3 years of medication (Constipation, Cold, Tired etc) even though we have been adjusting the Synthroid every 6 months as needed. I have also lost 4 pounds since switching as well. I probably could have lost more, but I have not done any exercise for 3 months as my doctor and I attempt to try and heal a very badly torn muscle in my arm. So I will continue on with the T4/T3 combo and see what my next 3 month check up reveals. I will keep you posted after my next checkup in Novermber.

There is no such thing as failure: only early attempts at success!

Lori
Kimberley, BC, Canada

MZZCHIEF's Photo MZZCHIEF Posts: 9,269
8/27/14 11:16 A

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Hi Frannie!

Great question!

Yes, distilled water has nothing in it save for water... and I believe some dissolved carbon dioxide formed in the distillation process which makes the pH slightly acidic.

So yes, you are right!
Mineral water or hard tap water that is not contaminated with flouride, bacteria, traces of pharmaceuticals, pesticides, herbacides and other industrial contaminents, chlorine and chloramines, is far better for you than distilled water. Because of the load of dissolved minerals...mainly magnesium and calcium, " hard " water contains, which our bodies can use and which we really need to work at getting into our diet.

You can't see these valuable minerals unless you precipitate them from solution. If you've ever had a water quality test, it's pretty dramatic what happens when they add ... i think its potassium hydroxide? A cloud of calcium and magnesium forms in the previously crystal clear water.

You can also see the build up of mineral scale in your shower, on your faucets. These minerals are removed in the distillation process.

Calcium, magnesium are great for the body, but you don't want them around when you are taking your thyroid hormone, bc they bind it. That's why if you supplement, it's suggested you wait 4 hours after you take your thyroid hormone.

So if a person is having a problem absorbing their thyroid medication, my suggestion is to take these minerals and contaminates out of the equation by taking one's thyroid meds with water that doesn't contain anything but water. That would be distilled water!

Adding a bit of vitamin C to this water also increases the bioavailability of levothyroxine.

Be well
: )
Mzzchief



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FRANNIEPAT's Photo FRANNIEPAT Posts: 161
8/26/14 2:23 P

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Mzzchief-saw your response recommending to take Synthroid with distilled water. Is that because of possible fluoride? I have well water and no fluoride and reverse osmosis on my drinking tap, but this summer I had them add a mineral cartridge because I read RO takes out just about everything and the minerals added make the water more alkaline and healthy. However, couldn't find the exact minerals on the company website and my installer was supposed to check and get back to me but never did. I assumed the minerals are similar to the usual mineral water that one buys. Appreciate your informative posts as always-thanks!

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MZZCHIEF's Photo MZZCHIEF Posts: 9,269
8/25/14 1:28 P

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HI My!

In cases like yours, I usually go to the user's Spark page to get an idea how old they are, what they are about, as that sometimes gives me a few clues, but it looks like you haven't set yours up yet.

First off, I am so sorry to hear that you are suffering and hope we can help you here with this.

So what happened a year or so ago?
Did you enter perimenopause/menopause?
Did you experience a lifestyle change or some other stress filled event?

Just looking at your TPO antibodies its clear that your thyroid is under massive autoimmune attack. Are you taking iodine, kelp or some other sea veggie? Or a supplement that contains it?

Do you drink well water or city?
Do you take your med with a full 8 oz glass of water?
Do you have a high fiber cereal for breakfast?
Do you eat a cereal with iron and a full day's worth of vitamins?
When do you take other medications, vitamins, minerals, supplements in relationship to your thyroid meds?

Are you on a generic med?
What are you Free T3, Free T4 and TSH numbers?

How and where are you storing your thyroid medication?

Without knowing the answers to these questions, here a a few things you can start doing today

Take your thyroid medication:
1. with a full 8 0z glass of DISTILLLED water, to which you have added a bit of vitamin C. Distilled water can be had at Walmart for 88 cents. Distilled bc all minerals have been removed. Vitamin C, bc its been proven that levothyroxine is absorbed better with this added. You can buy powdered ascorbic acid (pure vitamin c) or add some fresh lemon juice if you prefer.
2. Wait an hour before food or beverages (which you are doing).
3. Wait until lunch to take your other meds, vitamins, minerals.

TPO activity:
Eat a brazil nut per day, a tablespoon of brewers yeast or buy some selenium methionine 200 mcgs, and have one per day for a couple of weeks. Selenium can help knock your TPO antibodies down, if you are deficient in this mineral.

Consider changing to a brand name thyroid medication.
Store your med in an airtight jar, perhaps in a bedroom drawer away from sun and moisture.

As for your heart rate.. there's a syndrome known as "white coat syndrome" where blood pressure and heart rate will increase when in the doctor's office. I would check your heart rate when you are home alone, relaxed.

I think you would benefit from supporting your adrenals with a multi b vitamin and vitamin C. These are used by the adrenals, they are essential to their function. I'd take the B in the morning, bc it can cause some people to become a bit too alert if taken later in the day.

Hope to hear from you soon!
Welcome to our team.
: )
Mzzchief



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Never underestimate the value of getting out of your own way.

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8/24/14 10:51 A

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I had been on Levothyroxine for atleast 5 years, maybe more and had done fine until around a year and half ago. I have gained about 30 pounds in the last 6 months. My TSH continues to rise and is currently 38. Tpo Antibodies 8440.9 I/mL. I've known I've had Hashimotos for years. I've always took my medicine the correct way - on an empty stomach first thing in the morning, no food for an hour. After going from one endo to another telling me I must be taking it wrong, I found a rheumatologist because I was in so much pain. He upped my thyroid meds which helped stop the pain for a while. I was still exhausted. He got me in with another endo who switched me to name brand which did nothing. I'm now taking 225 Synthroid and having palpitations and swelling everywhere. My endo was going to give me T3 until she saw my pulse was 110. She told me to see my regular doctor for the pulse thing. I did and now I'm on metoprolol to slow my heart rate and she has since added 5mcg T3. I feel like the T4 is too high. I am 5'5" and 200 pounds. Does this sound right? I still feel like crap.

KALI511's Photo KALI511 Posts: 1,059
6/10/14 9:31 A

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My schedule seems a bit different to everyone else but it's all about figuring out what works for you. :)

.075 synthroid & 2 cytomel at 3:30am and go back to sleep until 5:30

5mg cytomel at 10:00 AM

5mg Cytomel at 2:00 PM (unless I eat a late lunch, then it's 3:00pm)


Tiana from North Shore, IL

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MZZCHIEF's Photo MZZCHIEF Posts: 9,269
6/1/14 12:42 A

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hey LTF!

Well the stock answer on this forum is that you've got to try it for yourself to see if that works for your particular body and life style.

Many of us who were okay with Synthroid to begin with, me for example, need to add Cytomel (T3) to our T4 meddie as we get deeper into per-imenopause.

I take my T4 at nite before bed with a small chunk of T3, and a larger chunk of T3 in the morning, no T4. I take it sublingually on days that I've eaten too close to bedtime.

Works for me now, but I went thru various combinations/times of day as my hormonal status/lifestyle shifted.

: )
Mzzchief

New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

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FRANNIEPAT's Photo FRANNIEPAT Posts: 161
5/25/14 11:35 P

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I was on Synthroid and started gaining after losing about 60 lbs. First 5 mcg Cytomel added, felt a little better, but wt still going up, then on 10 then 15, taken as 5 three times a day with Synthroid at bedtime. Then I went hyper with shakes, palpitations, so we backed the dose down. Still had problems but wt still going up. Finally no Cytomel, and even went down on the Synthroid and still gaining wt but heart stuff finally went back to normal. So I tried upping the Synthroid, from 63.5 to alternating 100 mcg with 88 mcg. and on that my TSH now down to .39 and T4 and T3 just below the middle range, but no hyper symptoms-and the best thing wt actually going down VERY slowly, with alot of work, so I have hopes of eventually getting to my optimal weight! Each person is different and reacts to the same meds in different ways!

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LTFROMBC's Photo LTFROMBC Posts: 567
5/25/14 2:15 P

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I have been taking my Synthroid/Levo since being diagnosed before I go to bed. The doctor put me on once daily Cytomel. I was just wondering if I should take both in the PM or stagger them to get the best results.

Edited by: LTFROMBC at: 5/25/2014 (14:20)
There is no such thing as failure: only early attempts at success!

Lori
Kimberley, BC, Canada

ROMANTILLY's Photo ROMANTILLY Posts: 7,614
5/25/14 1:48 P

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I take Levothyroxine and Cytomel. I started out initially on Levo only, but then quit losing weight and started gaining. My doc had not run my T3 in a while, so we ran it and it was low. I tried taking Selenium to help my body convert the T4 to T3, but it wasn't enough. He started me on Cytomel, 5 mcg twice daily. I take my Levo and Cytomel first thing in the morning when I get up with the kids - about 6:30 am. I then take the second dose of Cytomel at bedtime. Your meds should be taken on an empty stomach. My levels have been good for over a year, and I will see my doc next month for my annual exam and check my levels then.

Lisa L. South, RN


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YICHE12's Photo YICHE12 SparkPoints: (179,679)
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5/25/14 1:17 P

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I take exactly that combination and I take them together first thing in the morning on an empty stomach. It works very well for me as my levels are very stable.

Edited by: YICHE12 at: 5/25/2014 (13:53)
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LTFROMBC's Photo LTFROMBC Posts: 567
5/25/14 10:57 A

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Wonder if anyone else is taking a combined drug approach to dealing with their thyroid. Recently, after discussing it with my doctor we moved from taking straight Synthroid to adding in Cytomel. I have always taken my Synthroid at night before going to bed. To get the best results should I be taking the T3 medication at the same time or at a different time? All the drug information says is to take at the same time every day. What works for others?

There is no such thing as failure: only early attempts at success!

Lori
Kimberley, BC, Canada

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