Let me just say, you are an inspiration. I love reading about stories about people who have beat the odd. I too am a fellow CHDer. I am a 38 year old female born with Tetralogy of Fallot. I have had a BT shunt at 1 1/2, Tetralogy "repair" at age 3, pulmonary valve replacement at age 19 and 2 ablations at age 35. I admire your positive attitude! I have struggled a lot with positivity and I have not had nearly as much procedures and surgeries as you. Good for you!
I'm just going to keep this short, sweet, and to the point!
I got an S-ICD (subcutaneous-implantable cardioverter defibrillator) implanted on Thursday, April 14th, 2011. What they originally thought was A-fib is actually Ventricular Tachycardia. That means I'm at a very high risk for sudden cardiac arrest (heart attack).
I am a 28 (29 in June) year old woman.
I have an enlarged heart (a little more than twice the normal heart size), CHD, and have had so far that I can remember:
11 Open-heart surgeries 14 Electrocardioversions (defib shocks to get heart back into normal rhythm...was in the high100's to low-mid 200's heart rate) 12 Cardiocatheter procedures 1 Failed Cardiac Ablation Numerous other heart-related procedures I'm still not "FIXED", numerous future operations/procedures will be due as medical technologies allow... AND I'M ONLY 28!!!
Averaged, that's approximately 1.45 heart-related procedures EVERY YEAR THAT I'VE LIVED.
My docs didn't think I'd live past the age of 5 BUT I'M STILL HERE!!!
Despite all that I've been through, I've found myself telling others that "I'm the most optimistic, positive person I know!"
I have never found myself wishing that I didn't have to go through it all. It has been with me my entire life and will continue to be. If I didn't have these issues, then I wouldn't be the person I am today! I wouldn't change ANYTHING that has happened. Keep your chin up, ladies and gentlemen! Hope, determination, and love for everyone & everything are the keys to living the life and finding the cure!
SparkPeople, SparkCoach, SparkPages, SparkPoints, SparkDiet, SparkAmerica, SparkRecipes, DailySpark, and other marks are trademarks of SparkPeople, Inc. All Rights Reserved. No portion of this website can be used without the permission of SparkPeople or its authorized affiliates.
SPARKPEOPLE is a registered trademark of SparkPeople, Inc. in the United States, European Union, Canada, and Australia. All rights reserved.