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ANYANKAH's Photo ANYANKAH SparkPoints: (2,338)
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Posts: 21
7/4/13 10:42 P

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Let me just say, you are an inspiration. I love reading about stories about people who have beat the odd. I too am a fellow CHDer. I am a 38 year old female born with Tetralogy of Fallot. I have had a BT shunt at 1 1/2, Tetralogy "repair" at age 3, pulmonary valve replacement at age 19 and 2 ablations at age 35. I admire your positive attitude! I have struggled a lot with positivity and I have not had nearly as much procedures and surgeries as you. Good for you!

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TJKILBORN's Photo TJKILBORN Posts: 278
3/14/12 11:04 A

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I'm just going to keep this short, sweet, and to the point!

I got an S-ICD (subcutaneous-implantable cardioverter defibrillator) implanted on Thursday, April 14th, 2011. What they originally thought was A-fib is actually Ventricular Tachycardia. That means I'm at a very high risk for sudden cardiac arrest (heart attack).

I am a 28 (29 in June) year old woman.

I have an enlarged heart (a little more than twice the normal heart size), CHD, and have had so far that I can remember:

11 Open-heart surgeries
14 Electrocardioversions (defib shocks to get heart back into normal rhythm...was in the high100's to low-mid 200's heart rate)
12 Cardiocatheter procedures
1 Failed Cardiac Ablation
Numerous other heart-related procedures
I'm still not "FIXED", numerous future operations/procedures will be due as medical technologies allow...
AND I'M ONLY 28!!!

Averaged, that's approximately 1.45 heart-related procedures EVERY YEAR THAT I'VE LIVED.

My docs didn't think I'd live past the age of 5 BUT I'M STILL HERE!!!

Despite all that I've been through, I've found myself telling others that "I'm the most optimistic, positive person I know!"

I have never found myself wishing that I didn't have to go through it all. It has been with me my entire life and will continue to be. If I didn't have these issues, then I wouldn't be the person I am today! I wouldn't change ANYTHING that has happened. Keep your chin up, ladies and gentlemen! Hope, determination, and love for everyone & everything are the keys to living the life and finding the cure!

I'm still here!

It's easy to make a buck. It's a lot tougher to make a difference!
What difference have you made lately?
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