Author: Sorting Last Post on Top ↓ Message:
PASMITH8 SparkPoints: (28)
Fitness Minutes: (0)
Posts: 1
3/31/12 3:09 P

Send Private Message
Reply
Look at Dick Cheney, he lives with an LVAD for quite awhile before having a transplant this week, I hope your wait is shorter than his and that the call comes soon.

TECHDOC's Photo TECHDOC Posts: 115
3/22/12 12:39 P

My SparkPage
Send Private Message
Reply
Yes, i can do exercise that does not elevate my heart rate.

Hearts4Bart www.hearts4bart.com


 current weight: 211.0 
 
286
259.5
233
206.5
180
MARISERV's Photo MARISERV SparkPoints: (6,992)
Fitness Minutes: (1,262)
Posts: 1,592
3/22/12 9:48 A

Send Private Message
Reply
What about some gentle yoga movements TECHDOC? emoticon

Marion

Leader - You're The Boss of You
Leader- Healthy Hearts

Every Morning is a New Beginning



 current weight: 189.7 
 
194
189
184
179
174
TECHDOC's Photo TECHDOC Posts: 115
3/21/12 11:13 A

My SparkPage
Send Private Message
Reply
I wish i could work out! Havng an LVAD and RVAD. Just because you do something that would raise your heart rate. The pumps do not go faster so once you burned the oxygen you would pass out. I learned this walking too fast at the mall ... LOL

Hearts4Bart www.hearts4bart.com


 current weight: 211.0 
 
286
259.5
233
206.5
180
LINDA!'s Photo LINDA! Posts: 89,747
3/21/12 12:12 A

Community Team Member

My SparkPage
Send Private Message
Reply
I certainly do hope that you get a heart soon!!

Linda - Florida
Flylady:Peace is Mine Team Leader

PTSD Team Leader

Flylady Sparkers Co-Leader

IBS Team Co-Leader

Emotional Eaters Co-Leader

Turquoise Titans
Co - Leader

BTS Yellow Roses - Assistant (Round 1)
BTS Golden Suns
Assistant (Round 2)
-
BLC23 Ivory Falcons
BLC 24 & 25
Fabulous Feisty Foxes
Co-Captain & Leader
BLC 26
Spicy Sparkologists
Co-Capt


Total SparkPoints: 197,005
 
150,000
162,499
174,999
187,499
199,999
SparkPoints Level 21
TECHDOC's Photo TECHDOC Posts: 115
3/20/12 2:44 P

My SparkPage
Send Private Message
Reply
I so can't wait til i can grow my own heart. There are 30 trials in Massachusettes and 16 in Tennessee that i know of. I hope it comes here soon!

Hearts4Bart www.hearts4bart.com


 current weight: 211.0 
 
286
259.5
233
206.5
180
JBRESSLER6 SparkPoints: (650)
Fitness Minutes: (100)
Posts: 14
3/14/12 3:40 P

My SparkPage
Send Private Message
Reply
On March 4, 2011, I had some chest pain while at the gym working out. It got worse and my sister took me to the ER. The next morning, I had a catheterization. A 70% blockage was found in my right coronary artery and a stent was inserted. I had a very stressful year. I am pretty much stress free now. On Feb 25, 2012, I had a second episode of chest pain, much worse than the previous one. Again, I was taken to the ER. My EKG showed only mild changes. My troponin was normal. The next morning my daughter and I were walking the halls, again I had the chest pain. My doctors decided I needed a cath. That was done the next morning. There was another blockage in the RCA, below the first stent, that was 90%. Another stent was inserted. That was 2-1/2 weeks ago. I'm feeling great once again and hope to keep it that way. I started my cardiac rehab today and have been following a heart healthy diet since I was discharged from the hospital.

 current weight: 192.0 
 
192
180.25
168.5
156.75
145
NEALSNEWS's Photo NEALSNEWS Posts: 74
3/14/12 2:00 P

My SparkPage
Send Private Message
Reply
Dear Bart,
On March 12th, 2012 our 32 year old daughter (the mother of five children and one on the way) went to bed walking and woke up paralyzed. Because of misdiagnosis she will not walk again. My heart went out to you as I read your story. Life as we know it can change in a day.
Our daughter has found support with friends and decided this is her "opportunity" to face a challenge and live life as fully as she can. All of this didn't happen overnight but was a journey for her and her family.
You have my heart and my prayers. Alicia has a website that is designed for handicapped people where you might find support and get encouragement from. Aliciareagan.com or enjoyingtheride.com are her two websites. I pray that you find strength and enlargement in your trial--I know it's a very real and huge one!

Tami Neal

"..and the blood of Jesus Christ his Son cleanseth us from all sin. I John 1:7b


 Pounds lost: 0.0 
 
0
10.275
20.55
30.825
41.1
MOMMY445's Photo MOMMY445 SparkPoints: (150,185)
Fitness Minutes: (104,803)
Posts: 9,157
3/14/12 12:29 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
Sending many hugs and prayers,Bart!

 current weight: 341.0 
 
356
339.5
323
306.5
290
MAHOUSIY SparkPoints: (20)
Fitness Minutes: (60)
Posts: 1
3/14/12 9:15 A

Send Private Message
Reply
Bart, I'll keep you in my prayers. Nothing is imposible to our GOD- He is our helper and he answers our prayers.


MRSWHITEWOLF's Photo MRSWHITEWOLF Posts: 13,314
3/13/12 11:15 P

My SparkPage
Send Private Message
Reply
Very incredible and very similar to my story. I keep on going. It is not easy. I am hoping for the stemcell...the technology is there too.

"It's a GREAT DAY to be Alive" "Be nice to someone, Everyone needs someone to lean on" "I CAN DO IT, YOU CAN DO IT!"


 current weight: 157.0 
 
233
204.75
176.5
148.25
120
LINDA!'s Photo LINDA! Posts: 89,747
3/13/12 8:18 P

Community Team Member

My SparkPage
Send Private Message
Reply
I am so happy that I read this. It really touched my heart. Sending prayers.

Linda - Florida
Flylady:Peace is Mine Team Leader

PTSD Team Leader

Flylady Sparkers Co-Leader

IBS Team Co-Leader

Emotional Eaters Co-Leader

Turquoise Titans
Co - Leader

BTS Yellow Roses - Assistant (Round 1)
BTS Golden Suns
Assistant (Round 2)
-
BLC23 Ivory Falcons
BLC 24 & 25
Fabulous Feisty Foxes
Co-Captain & Leader
BLC 26
Spicy Sparkologists
Co-Capt


Total SparkPoints: 197,005
 
150,000
162,499
174,999
187,499
199,999
SparkPoints Level 21
JANINE542's Photo JANINE542 SparkPoints: (1,127)
Fitness Minutes: (1,720)
Posts: 5
3/13/12 5:07 P

Send Private Message
Reply
Wow what an incredible story. What courage you have Bart and your family, to go through such a tough time. I send you and your family prayers, blessings and love to help support you all and hope you have your new heart very soon.

Janine emoticon

Only as high as I reach can I grow.
Only as far as I seek can I go.
Only as deep as I look can I see.
Only as much as I dream can I be.


 Pounds lost: 9.0 
 
0
9.75
19.5
29.25
39
MARISERV's Photo MARISERV SparkPoints: (6,992)
Fitness Minutes: (1,262)
Posts: 1,592
3/13/12 3:43 P

Send Private Message
Reply
Hi Bart,
I just read your story and visited your Spark page. In 1962 my dad had a massive heart attack and died at age 39 . I believe that if if my dad had the medical treatments available to him that you have available to you today, he would have lived a long life. You are blessed. I will keep you, your family and your doctors in my prayers.

Marion emoticon

Marion

Leader - You're The Boss of You
Leader- Healthy Hearts

Every Morning is a New Beginning



 current weight: 189.7 
 
194
189
184
179
174
TECHDOC's Photo TECHDOC Posts: 115
3/11/12 7:18 P

My SparkPage
Send Private Message
Reply
Bart Rodr, a long-time resident of Edmond, Oklahoma and son of Vicki and George Hicks of Canton, GA, suffered a massive heart attack in 2009 at the age of 36. Bart did not have a history of heart disease, nor did he have high blood pressure or cholesterol. He and his family led a normal, healthy lifestyle.

Bart attended Edmond Public Schools until September 1989, when his family relocated to Roswell, Georgia. He finished his high school years in Alpharetta, Georgia where he met and married the love of his life, Jennifer. In 1995, they celebrated the birth of their first child, Nicholas. Bart and Jennifer relocated their family to Edmond, Oklahoma in 1998. In 2000, they celebrated the birth of their second child, Zachary. While working full-time and raising his family, thanks to some help from his employer, Bart was able to put himself through college. He obtained his MCSE Certification (Microsoft Certified Systems Engineer). In 2005, Bart went to work for a design-marketing firm in Oklahoma City. By 2008, Bart was promoted to Information Technology Administrator.

On July 18, 2009, Bart while mowing the lawn, at his employers, began experiencing painful symptoms, he could not breathe and his head hurt. He thought he was having a stroke. He was rushed to the hospital ER, where after examination, the doctor labeled his symptoms as being over-heated and sent him home.

About nine hours later, Bart was still feeling extremely ill and his wife decided to take him to another hospital ER. As soon as he was examined, they discovered that a blood clot had broken loose in his leg and was lodged in the left anterior descending artery of his heart. They took him to surgery immediately where two stints were placed in his heart. However, because his heart had been deprived of oxygen for so long, the damage was extensive. They call this type of myocardial infarction the "widow maker" because people rarely survive. Bart did survive, though; but his life will never be the same. This "fluke" and the initial misdiagnosis have dramatically changed Bart's entire life.

Bart immediately had to change his lifestyle and eating habits. He was constantly sick and nauseous, had an erratic heartbeat, low blood pressure, and was very weak. He was put on a "heart healthy" diet where he lost over 60 pounds. He was given many medications to try to sustain his heart, but every heart medication is designed to treat high blood pressure, which Bart has never had. These medications would make his blood pressure drop dangerously low. He was rushed to the emergency room multiple times due to low blood pressure where he was given IV fluids and sent back home after his blood pressure had come back up. This was his "life" for over two years.

In August 2010, Bart's physicians decided to do exploratory surgery to see if there was anything they could do. What they found was that his heart was extremely weak and was barely functioning, which led to congestive heart failure. It was not getting better, but weaker every day. Bart's cardiologist, Dr. Phillip Adamson, was perplexed and called Bart an "anomaly". Dr. Adamson accepted Bart into a new clinical trial headed by his cardiac team in partnership with St. Jude's Hospital.

In October 2010, Dr. Collier attempted and failed to install a Heart Pod into his heart. In November 2010, they reattempted to insert the Heart Pod and this surgery was a success. Bart was the youngest patient to receive a Heart Pod. Heart Pods are a small device, about the size of a silver dollar that was designed to allow doctors and patients to monitor their heart conditions from home. They monitor blood pressure, Left Atrial Pressure and transmit data to a handheld computer. Data is then synced to a computer and sent to the treating physician. Data obtained from these devices help the physicians ascertain what medications are needed to prevent congestive heart failure and other heart conditions. The results from the Heart Pod were not good. Doctors did not give Bart long to live.

Because Bart's heart was actively dying, his physicians decided they were going to have to take more drastic measures. In September 2011, Bart underwent open-heart surgery to implant an LVAD, better known as a mechanical heart pump, after which he was kept in ICU for six weeks. In November 2011, the first LVAD failed and they rushed him back to open heart surgery to replace it. An LVAD is a "bridge" to a heart transplant, as it is a temporary device that will only last three to five years. Bart no longer has a heartbeat or blood pressure. He carries around his life in a bag...two large batteries and a miniature control system (computer) attached to some leads that are attached to his mechanical heart pump implanted in his abdomen.

Bart is currently at home trying to lead a normal life. At least, as normal as he possibly can while he is waiting on a new heart. His family has incurred a huge amount of medical expenses. Jennifer's insurance has only covered a small portion of these expenses. There will be more expenses, when a heart is found that is compatible.

Hearts4Bart www.hearts4bart.com


 current weight: 211.0 
 
286
259.5
233
206.5
180
Page: 1 of (1)  

Report Innappropriate Post

Other Healthy Hearts MOTIVATION & SUCCESS Posts

Topics: Last Post:
Did You Eat Your Fruit & Veggies Today ? 11/26/2014 9:10:53 PM
what you had no vegetable!!!!! 7/31/2014 11:15:09 AM
cafe giving 3/26/2014 10:25:43 AM
Quit Smoking Today - FEBRUARY 9th 3/20/2014 10:34:43 PM
i WAS frustrated 2/18/2014 8:22:14 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=22857x9777x47025125

Review our Community Guidelines