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TOPIC:   WEEKLY CHECK IN 9/27 - 10/3 


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102654
102654's Photo Posts: 9,787
10/2/09 4:34 A

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Hello all, just checking in as I am having my third surgery in 3 weeks later today. So might not be on for a couple days. Just wanted you all to know that I am thinking of all here. Take care and Blessings to all. Diana

Baby steps, one at a time, and you will achieve your goals. Never, Never give up.


 


BACKMOON
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9/30/09 8:39 A

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Morning all!
Cool this morning 60 degrees out. Maybe hit 80 today.
Off today so have to get caught up on what I couldn't do during my work days and need to finish up my homework before class tonight.

Cathy I feel for you with the pup. We have a 16 week old and it's hard to keep things out of his mouth.(LOL)

Off to exercise. Have a great day everyone.

Rick

You have come to far to be controlled by a cookie!
Life is God's gift to you. What you chose to do with your life is your gift to God.
Three things I believe in and would die for:
My God,
My Family,
My Country.
Leader
TOPS MEMBERS
Co leader
Sparks with Lupus

www.flickr.com/photos/backmoon/


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102654
102654's Photo Posts: 9,787
9/30/09 12:26 A

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I do hope your sleep helps I do know how things get when we watch grandchildren, I get so wiped out that I am out of things most of the time later.
Take care all. HOpe this finds all doing well. Blessings, Diana

Baby steps, one at a time, and you will achieve your goals. Never, Never give up.


 
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CAPISTRANO
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9/29/09 8:43 P

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Hello all
Just a quick note as I need to get to sleep. DH and I have been babysitting the grandkids today and again tomorrow. Plus we have a new addition of a puppy. She had us running all day as she was into everything, chewing the babies toys, eating the 4 yo toys, crayons, paper, anything that was not up and out of the way and she jumps up on all of us. She's 5 mos old and is a hound mix, about 30 lbs. She was more work than the 2 grandkids put together.

I'm feeling sore and my legs hurt. Sorry I don't have time for individual messages. Sending prayers for you all and thinking of you.

Cathy


Other Resource: Peace is to be found only within, and unless one finds it there he will never find it at all. Peace lies not in the external world. It lies within one's own soul.


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102654
102654's Photo Posts: 9,787
9/29/09 12:59 P

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Melissa, I didn't mean that you didn't dicipline, I was just trying to think of ways to help but clearly I am not an expert and you the mom are with your children, you are there and you also know them best. I applaud you and all parents who are actively involved with their children that isn't the case many times at least in the world we live in now. But, I am glad that you are with someone that will help you out as the extra stress is most difficult. Stress and Lupus are well not a good mix, I do know that first hand,I am trying to work on that as well. The troubles you are having are difficult to say the least. My youngest grandson is very determind well that is what I am calling it at this point, but we will have to see what the future holds, I see some of these type of things going on with him, he is only 18 months but wow, my daughter and son in law have their hands full. But I think your ways of handling the potty trouble and the wallpaper was terrific!!!! They should be published. YOu got new wallpaper or paint even if you weren't planning for it but I am sure she learned a good lesson, but her determination is kind of scary. You are being wonderful parents to care enough to do something about it now, to help her in the future, I have one sister that she was like this forever and my parents delt with it by giving in to her all the time and now they are gone and she is really struggling in life, as mom and dad are gone. So she is kind of drowning in her behavior. The type of help your giving your daughter is and will always be worth it. I will say prayers that this new doctor will help in all ways possible, so that your stress level can diminish, for your health.
Please keep me updated, on your mom dad, and your own trials. I do like to pray specifically, and prayer support has always helped me. So I thought maybe I could help out with prayer, I know that Rick and Cathy, and many others on the team believe in prayer support. We care. I apologize if I said things to offend you Melissa as I didn't mean that at all. Please forgive me if that is what you thought. I do have a undergrad pschology degree, but by no means am I an expert. But my prayers are with you hun.

Rick, I am glad your hand is healing finally, but hopefully this will be a good help for you, I know my shoulder replacement took me an entire year to recover from but now it is in better shape than my left shoulder. I will continue to pray for your recovery.
Cathy, hopefully you are doing better.
Tiger, hope your DH is better.
Melissa keep us updated on your mom, and dad ok?
Dorothy, and Ginny, all the rest on the team there are so many of us, but we only hear from some, we would all love everyone, when possible to post, we all help one another when we do. Take care all, Blessings and Love to all, Diana

Baby steps, one at a time, and you will achieve your goals. Never, Never give up.


 
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BWCAGRL
BWCAGRL's Photo Posts: 3,220
9/29/09 9:38 A

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Morning everyone!
Getting ready to get into our routine today. Going to stay very busy today. Just went through bills and have one to pay today...the others I will go through tonight with DH.

Rick...that's great news about your hand...are you limitted in some activities (chores) because of it too? Hope your classes are going well.

Diana...discipline hasn't been a problem for us. We've used some great techniques from the Love and Logic parenting series for the past two years and they work great with our son. We don't nag, yell or continually use time-outs...we often let natural consequences be their own punishments. That way we're able to stay calm and supportive. For example...recently my son (4)has been having accidents in his underwear (poopy). I didn't say much at first, but when it became a pattern I let him know that he was big enough not only to get to the potty on time, but to wash out his own dirty underwear when he had an accident. It only took one time of washing before he figured out he'd rather just use the potty.
I'm pretty creative with 'punishments' when we need them. When my daughter tore wallpaper in the bathroom because she was angry...I had her finish the job...she removed all the wallpaper, washed the walls and helped prime and paint. I helped, but she got the message about doing damage to the house. (And I got a freshly painted great-looking bathroom!)
All that said, she is 'wired' differently...always has been. The 'normal' parenting techniques,positive reinforcement and discipline have proven ineffective with her. Not because we don't follow through or are inconsistent, but because she will either turn things around to try to manipulate, or she will 'explode' for 45 min to 3 hours. I've worked closely with our pediatrician and he knows that the goal-oriented charts and reward systems don't work for her. We tried for 4 months but those things made her explode more often and made things worse. Basically, she does not have any sense of flexibility for dealing with situations...it is her way only. We have to build an 'options file' for her in her brain and create experiences for her that help her practice flexibility without feeling like she's not in control. It truly is a disorder that is based on anxiety. There is some brain research out there that addresses those issues, but there is great disagreement about treatment options.
The good news is that even though being a stay-at-home mom would not be my first choice...God blessed us by creating a situation in which I was forced to stay home, see the problems, and be home to deal with them consistently. It is difficult financially and tough on me emotionally, but the sacrifices are worth it.
Didn't mean to go into a book about all that and I hope it doesn't sound too defensive. As the therapist said at our last session, "Clearly if it was all due to parenting techniques, you wouldn't have such a well-behaved, well adjusted and polite 4 year old son." (He played in her office quietly by himself during the whole session.)

I have to run...good luck on Friday Diana...and trust your 'gut' on stuff going on with the docs and nurses. If you need to make a change don't be afraid to get a second opinion or work with someone else...remember they work for you!

Take care everyone...have a great Tuesday!
Melissa

Melissa
Lupus-Team Butterfly co-leader


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BACKMOON
BACKMOON's Photo Posts: 7,985
9/29/09 8:53 A

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Morning everyone!

Finally cooling off here. Going to to the mid 70's today. It'll be a nice change.

pretty much the same agenda for me as everyday so I won't go into details.

I will mention however. After four months, it looks as though my hand is finally starting to heal. I went to the Dr. two weeks ago and they were concerned about the wounds from the surgery were not closing. So the made this partial cast I have had to wear. It seems to be working. I go back in a month for evaluation.

Well better go and hop on my bike. Have a great Tuesday all!!

Rick

You have come to far to be controlled by a cookie!
Life is God's gift to you. What you chose to do with your life is your gift to God.
Three things I believe in and would die for:
My God,
My Family,
My Country.
Leader
TOPS MEMBERS
Co leader
Sparks with Lupus

www.flickr.com/photos/backmoon/


 current weight: 194.6 
 
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102654
102654's Photo Posts: 9,787
9/28/09 11:49 P

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Hi all, well another day down until my next surgery which is friday.
I am going to have to figure out if there is some sort of mistake on my bill, it seems there must be, under major medical it shouldn't be that high but of course I suppose anything is possible. I will have to try and work it out with them one way or another otherwise we will definitely be in the poor house.
I will have another meeting in Nov with the doctor which was the surgeon last friday, I already told him that I wasn't happy with the way things went in June, I don't think it is necessary to take things out on any patient and that is what it has appeared to be. I was just tired of all of it. I am so far doing ok. Having some pain in the abdomen and my leg but that is to be expected, and well I was thinking about all those dollar signs on my bill that I receive the night before, so wasn't into adding extra on to that.

Thank you all for being such a caring wonderful bunch, I truly appreciate all of your faithfulness.

Melissa, I have your mom on our church prayer list, a friend of mine had breast removal last week, she is doing ok.
AS far as your DD, how does she react with discipline?, do you have trouble sticking with things when it comes to her discipline? I KNOW THAT I DID, and my sister is now having the same trouble. She tries but doesn't get much help from her husband. So has a real hard time disciplining her two daughters [ I did as well with mine] they really run over her. She has a hard time making discipline stick, like following through with the task, it is very hard for her as her girls are so defiant. She keeps giving in and I understand and it is so difficult to be caring, loving parents. I know I have raised two. But they both have turned out wonderfully and it wasn't easy that is for sure. Just telling you that you will make it through and so will your husband and your daughter. Melissa how old is your daughter? [ sorry that my developmental psychology is coming out, not meaning anything bad by this, and I hope you believe this, I just sometimes care to much, but I do know that prayer can help. So I am lifting this up in prayer. Please know that you all are in my prayers]
Parenting is the very hardest job, to do in life but it is the most rewarding thing to do, and so worth it. I am sorry I guess I didn't know you were having difficulties with this. I am sorry that I didn't know. But now that I do, I can keep this [you and your family] as well as your mom in prayer. Your dad as well. I have had cellulitis and it isn't fun either, I have had it both on my legs and my arms. YUK! Well get back with us on your mom's surgery, and the other things. I want to know what specifically to pray for if possible. Take care all, Blessings, Diana

Baby steps, one at a time, and you will achieve your goals. Never, Never give up.


 
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BWCAGRL
BWCAGRL's Photo Posts: 3,220
9/28/09 9:16 A

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Morning all,
Diana...just don't know what to say other than I'm praying for you. Sounds like you are getting terrible care there. Sounds like for whatever reason they have 'pegged' you as a particular kind of patient and think it's ok to ignore or mistreat you. I've seen that happen all too often.

Tiger...glad you're feeling better. Hope the week goes well for you!

Cathy...glad you found the kind of milk that will work for you and the cramps have subsided. That must be so hard with both you and DH dealing with chronic issues. You really deal with both sides of it.

We're doing ok here. My mom's surgery is tomorrow for her breast cancer...mastectomy. My dad's cellulitis has been acting up in his legs so they've been doctoring for that too. My brother is headed there in the morning and staying until Friday. and I just found out my sister-in-law in FL is flying up next weekend and staying a few days. I wish I could be there for my parents again, but I really need to stay here and keep my family going.

We had a good session with the family therapist last week and I think she is starting to realize the severity of what we are dealing with in my daughter. She is going to do some research and find some things to help us. I keep saying that her symptoms are indicative of Oppositional Defiance Disorder, but no one wants to believe me. I know how serious that is...and no one wants to hear that diagnosis, but I'd rather deal with the reality than waste time trying to come up with 'lesser' disorders.
I'm getting through the pain and grief of it but we have a very long, tough road ahead. We'll keep up with the counseling and some testing for food sensitivities and see how things go.

With regard to my diet and exercise...well I've really let things go the past few weeks. I haven't kept up with much of my spark stuff and haven't worked out at all. My body is feeling it so now it's time to get going again. There were moments last week when I just wanted to give up, but that was just the temporary emotions talking. I'm still comitted to losing weight and building up strength...just had a set-back.

Thank you all for your thoughts and prayers this past month. It really helps to know that I'm not alone in the life, lupus and weight struggles.

Take care everyone!
Melissa

Melissa
Lupus-Team Butterfly co-leader


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BACKMOON
BACKMOON's Photo Posts: 7,985
9/28/09 8:29 A

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Morning everyone!

Diana,wow! I really don't know what to say. These people at the hospital really seem uncaring. Have you talked to the business office about your debt? Most hospitals are willing to work with patients over the bill. Believe me. There are may options. They just don't make them public knowledge.

Still warm here. Topped 104 on Sat. and broke 100 yesterday as well. Should start cooling off now.

tiger, the Brad Paisley concert was great. Our seats were center stage right in front of the soundboard. although I'm starting to think I'm getting too old for concerts like this. Broadway plays are more my speed. Which I think, the series here in Sacramento start next month.

Weigh in for TOPS today, I hope I'll do o.k. I haven't checked the scale yet this morning. I'm going to ask my co-leader to take over the meetings for a while. At least a few weeks or so. Give me a little breathing room and smooth my schedule out.
Well gotta go exercise and start my day. Have a great Monday all!

Rick


You have come to far to be controlled by a cookie!
Life is God's gift to you. What you chose to do with your life is your gift to God.
Three things I believe in and would die for:
My God,
My Family,
My Country.
Leader
TOPS MEMBERS
Co leader
Sparks with Lupus

www.flickr.com/photos/backmoon/


 current weight: 194.6 
 
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102654
102654's Photo Posts: 9,787
9/28/09 2:47 A

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Hello all, Tiger, the only reason I was conserned was that you had said continued to have a fever. Which isn't to normal. My dad never missed a day of work only once in over 50 years nor did my mom she worked for over 30 years. I never missed teaching only when I had my children and well then all the junk started. Well now I need to start over, school for my masters degree, and well need to bring in money either with an abundance of students or something. Times are tough, I recieved our portion of the bill from my June July stay and things well we owe at this point 70,000. I am hoping for an appeal, this is just way out of touch with what it should be. Enough about that.
Well Friday went ok, I had a high level of pain afterward. I usually have some but this time it seemed a bit worse, I think they blew a lot more air into my stomach and intestinal track. But the doctor only had to remove 3 polyps, which was good, but the surgery normally inflames the veins, I think it is the botox, but my right leg surgery my veins have been left inflamed and will be for a while. So most of the inflamation settled there so it has been painful, they wanted to send me to the ER I left the hospital at 11:30pm, I told them I would go back if I needed to, as with the bills that are lumming over us now well I said no way and checked myself out. DH was in agreement but he wanted me to stay at the hospital in the cafeteria, [not a comfortable place for someone who just had surgery] I said no, so we went home, things have been touch and go but mainly things went much better than the last time of course as I am not in the hospital, I think my doctor got angry with the nurse that checked me in as she wrote only Dr. Hassler to do the surgery! Well he never came back to see how I was but did go to see a patient that was accrossed the hall, I could here his voice. They had paiged him to check on me, just before that, well he didn't come, they then paiged him 3 hours later, well he finally called and said this isn't my responsibility now. My name was mentioned so I knew they were talking about me, the nurse was about 10 ft from my bed, that was when I decided that I needed to go home no matter what the nurses were saying. So far things are goin ok. Thank you all for asking, now this friday, another, then I should be good to go until Dec. Well take care all.
Cathy, glad your tummy is doing better.
I hope that your DH Tiger is going to be good to go as well.
Blessings to all, Diana

Baby steps, one at a time, and you will achieve your goals. Never, Never give up.


 
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TIGER1957
TIGER1957's Photo Posts: 573
9/27/09 10:42 P

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Hi Cathy. Nice to hear that your stomach is still doing well, and that you enjoyed your trip/visit. Sorry to learn about your DH. I'm sure he appreciates your support.

Rick, how was the concert?

Diana, hope all went well Friday. Thinking of you ... As for my DH having any disease at all? Not a chance ... seriously ... being off work sick for 3 days was a record for him, in over 25 years of work. In total, he has taken time off work for illness 3 times in his entire career.

Unfortunately, DD has caught a flu/cold (probably a version of whatever is going around) and is still sick today, so I don't know if she'll be well enough to go to her first Aikido practice Tuesday night. We'll see, I guess.

I'm feeling quite a bit better, and am on the mend. No fever or cramps any more. Maybe a bit of a flare on the lupus/fibro side, but doing relatively well. Still tired though, so heading to bed.

Tiggers bounce BIG!
100 pounds lost. 5'4".
WW goal again (04/07/10)
WW goal of 135.0 (19/04/07)
Blue Belt in Tankyushin Aikido (27/03/10)
Ottawa, Ontario, Canada


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CAPISTRANO
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9/27/09 10:17 P

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Hello all
DH and I were away for the weekend and just got home an hour ago. We enjoyed the natural living expo and learned new things, laughed a lot and had a nice visit with a Spark friend and made some new friends. We needed to get away with all that's going on here.

My tummy is doing great. I feel like it's back to normal. I've been using rice milk and went back to coffeemate for coffee/tea although this weekend I did have half & half with coffee and I was fine. And still having some cheese. The rice milk looks and tastes like skim milk, I can deal with it!

Diana, what happened on Friday? Did you have surgery and how is your leg?

Tiger, hope you feel better soon!

Rick, enjoy the concert!

My DH suffers from an autoimmune disease as well. He has severe psoriasis over 80% of his body and he has tried everything, even Enbrel shots. But they lower your immune system, it was last year he got cellulitis in his foot, so no more shots. And anyway, our new insurance won't cover the cost of them. 2 shots a week costs $1500 a month. We do have ointments now that soften his skin and then the psoriasis flakes off. But it starts to come back in less than 2 days so we have to keep applying it. But he can suffer so badly from the itching and pain when it bleeds. But mostly he gets stared at and people treat him so badly when they see how it looks.

So we both suffer with diseases and help each other as best we can, cry together, support each other...

I need to get to sleep. It was a nice weekend but tiring.
Cathy




Other Resource: Peace is to be found only within, and unless one finds it there he will never find it at all. Peace lies not in the external world. It lies within one's own soul.


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