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TOPIC:   what do you like/dislike about your equipment 


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54JIMMY
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3/11/14 2:16 A

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Carla and Linda: I actually like being able to check out the data from my machine which is on the card. That is what I was just doing now. I have a free program, SleepyHead that I use to look at my data. I can literally view every breath that I take at night. The apnea events show up along with leaks, time used, summary data and much more. I find it enlightening knowing in real time how my therapy is going. For me, a fully data capable machine is a must.

If you need more info on this don't be afraid to ask. I will be happy to get you started

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


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GRAMMACATHY
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3/10/14 8:19 P

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Carla, I love sleeping with the blankets over my head too. Much warmer and blocks out light. I never was able to adapt to nasal cushions. The air directly on the scar tissue from multiple sinus surgeries was painful. I also had a higher pressure to start. I also noticed with the nasal mask that eventually my sinuses refused to plug up so I could breath with the mask even when sick I think my body just adapted.

Joyce, Here is a video about fitting that style mask. It does not say anything good until the 2 minute mark. I think the most important thing is to not make it too tight and adjust while in sleeping position not sitting up. https://www.youtube.com/watch?v=a3_3ujHFxh
k
The red marks are probably pressure marks. I sleep on my side and get them all the time. If it is more rashy looking you might need a liner. www.quietusliners.com/

Linda, My first machine does not have a card and the card in my second is also antique and finally gave out. It had to be read at the doctors office. I think Jerry is the techy that can give you more information about cards and computer programs. I do like that I can check my machine to make sure I am not having apnea events. It does have a digital readout that does not need a card.



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DANCESTAMP
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3/5/14 9:06 P

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I've been using a cpap machine with the nasal pillows since October. I hated it for a couple of months, but I have gotten over that. I still don't want anyone to see me with it on, I have issues with that. I was sick back in January, I couldn't wear it because I had a sore throat and the air bothered my throat, so I didn't wear it a couple of days. I am sick again, but this time it hasn't bothered me, it takes me a bit longer to adjust to it cuz I breathe heavier from having a sinus infection. I have noticed I don't get as many sinus infections which is a great thing.

I was informed at my last dr apt that they do have smaller nasal pillows or nasal mask, the nurse wanted me to try a nose mask and I put it on and said I wouldn't wear it, I am happy I said no, I finally got used to the nasal pillows. I do have more energy during the day, but I also get tired earlier at night. I was also informed I could get a new mask/pillows or whatever they are called 6 months after the initial one, so I have to wait until april, then I will look into getting the smaller one to see if it will work.

I don't like the cool air either, I don't like the noise it makes if I get under a cover, but on the bright side I can hide under the covers and breathe because I am breathing in clean air and not trying to breathe under covers. helped when I was cold.

I do have the sd card in my machine, but I was never told to put it in my computer, the dr's office does it. I also have a transmitter on mine, but it doesn't usually work, I end up getting an email saying the transmitter isn't working and I haven't used my cpap machine in 3 days, I just ignore it because the dr office told me they go by the sd card. I hope I have used it more than 70% when I go in april, I have a tendency to take it off sometime in the early morning hours, don't know why, but I do, and then fall asleep without it. my pressure is on 7.

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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JYOUNG871
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3/2/14 1:23 P

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the face mask I am currently using which is the one I have used for the last 5 years is the Flexifit431 full face mask. I like it except for the leakage. When you have to keep holding it on and moving it around to keep it from leaking it does nothing for a good nights sleep. I have talked to the therapist, but he doesn't seem to have any ideas or else doesn't care.

I have a tendency to get a red rashing around the mask form and have thought that maybe there is something about the mask that I could be allergic to, but it goes away after about an hour after I take the mask off. One person told me to try baby oil, that was what he did when his made the red rash. That did seem to help that problem.

I may try the heating of the cushion and see if that helps, thanks. I may also check into the comfortgel blue nasal and see what it might be like. Thanks everyone for your help and ideas.



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BELTONWALKER67
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3/1/14 8:55 A

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I have a Philips Respironics System One Bipap Machine. Been on it about a year. Mask is a ComfortGel Blue Nasal. I haven't noticed any leakage. The vent on the hose does bother me at time blowing into my face or eyes but usually flip the hose over my headboard and do pretty good. Overall I am very happy with the results in better sleep and less tiredness. I have noticed the dark circles under my eyes. Dislike having to clean everything so often but figure it's better than an infection due to unsanitary conditions.

I am curious about the cards mentioned in earlier comments especially putting in your computer and downloading results. I'm wondering if I'm missing something as the DME provider has not called nor been back to see me since the original installation of all the equipment. Are they monitoring this or am I supposed to be doing something?

Learning so much from this team. Thank you.

Where there is a will, there is a way!

Make this a Healthy Choice Day!

"Just Do It"!

Linda-Missouri (CST)


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GRAMMACATHY
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3/1/14 1:52 A

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If you are on the bi-pap then your pressure is pretty high. Do you know the brand name of your full face mask? There are some good tutorials out there on other websites and youtube. We might find something that can help. Oh, I do remember an idea from Merri. She uses a hair drier to warm her gel cushion on her mask. It form fits to her face better at night which in turn reduces the leaks.

Best of luck on this.



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JYOUNG871
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2/27/14 8:12 P

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Thanks Grammacathy for your reply, I have a full face mask with a chin brace because I have a tendency of my mouth coming open during the night and I wake up with a very dry mouth. the chin brace helps most of the time.

I am actually on a bi-pap machine.. one setting for breathing in and another for breathing out. the mask works well, and seems to do the job except when I have a problem with the air escaping.

I have tried using the nose pillows, but they did not really work well for me, but have been thinking about trying them again.

Thanks emoticon



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GRAMMACATHY
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2/27/14 6:33 P

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I bet you are sitting up at the therapists and holding still. Trying laying down and on your side or flipping around like I do. No mask is perfect and some leaking is normal. Sometimes it helps to loosen the straps. I still want to try a cloth mask. I have a petite comfort gel nasal mask. It is the best I have tried so far, but still needs a lot more tweaking.

At some point respiratory therapists are going to get a clue and start offering therapy to train people to strengthen their palettes just like a physical therapist would train someone to strengthen a knee.

So what type mask do you have and what is your pressure? We can find out if anyone else on the team had similar experiences and how the resolved them.



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JYOUNG871
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2/26/14 10:57 P

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I have problems with my CPAP mask. Does any one else? No matter how tight I pull the straps, it still leaks. I spend about half the night holding it so it does not move, or readjusting it cause all of a sudden it gets the urge to blast an escape of air. I have tried different types of masks, different sizes of masks, and talked to the therapist about it and when I am there, it always works perfect. What kind of problems do you have with your masks? Any one have any suggestions? Has anyone heard of the CPAP Pro that does not use straps, it has a tray that clamps onto your teeth?

emoticon



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GRAMMACATHY
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1/20/14 5:16 P

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Maybe this summer for my own room.

The sun is shining today with temps at 49. I bet we top 50 today. Talk about a perfect winter day.

Slept really well after a 10 hour work day the last three hours being physically demanding. I swear, part time jobs that require physical activity are better than a gym membership. I even have sore abs from sucking in my gut while mopping.

I need a nap right now though and I can take one. No more mopping until after 6pm tonight. Then, I just need to visit people, Take Buddy to the vet, clean my own place and rest till next Saturday and the PT job at the assisted living facility. Oh, I will need to vacuum and do a walk through in the Olde School Wednesday and Friday,, but not strenuous.



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KPA1B2
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1/20/14 11:32 A

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I think my circles under my eyes are worse now then before I was on the CPAP machine. Maybe now that I usually have more energy I notice it more? I just did my more or less annual skin check with my dermatologist. He suggested ROC. He said it was rather expensive & would take a while (4-5 months) but it might help. Something about the skin getting weaker as we age.


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GRAMSIECAKES2
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1/20/14 11:28 A

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Cathy, That sounds great that you are so close to getting your own nice and warm bedroom. You surely deserve it if anyone does..

MERRI

My birthday .. Dec 25,1940
My anniversary.. Aug 21, 1959
With Sparks .. 8 years! 2/16/06



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GRAMMACATHY
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1/17/14 3:46 P

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Kathleen, the dark circles went away with my cpap. Allergies reduced breathing clean filtered air at night. Also better sleep helped. Less wheat in my diet also reduces the dark circles.

Sandy, I like you felt like a new woman even battling the mask all night long. It was amazing the difference in energy and ability to think.

I am not wild about the cold air blowing. I don't notice it so much when I sleep in the warm living room. I do notice it very much out in the garage when it gets cold at night. I do think a heated hose would help.

Merri, By the way, I think I am getting closer to having my own bedroom. Just a hunch. More later.



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KPA1B2
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1/11/14 10:05 A

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Sandy, I totally get what you are saying. I hate feeling the air blow on me. It doesn't tend to blow on my face but my arm. How my head is on the pillow makes a difference. I have a firm pillow with an indent for my head. I usually push the air out of my comforter as it will blow and make noise as it rattles.



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GRAMSIECAKES2
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1/11/14 8:08 A

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Sandy, I really love my heated hose. My dr recommended me getting it a few years ago...I am so glad that you got such a nice sleep and even the first night!!


MERRI

My birthday .. Dec 25,1940
My anniversary.. Aug 21, 1959
With Sparks .. 8 years! 2/16/06



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HOTRODSANDY
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1/11/14 2:39 A

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Hi all,
I am so new to all this - 29 days and counting. I have to say, I have been very fortunate. I wore the mask 8 hours that first night and got the best sleep ever. So my experience started off on the right foot.

I have the Phillips Respironics RemStar Auto and a Wisp nasal mask. Had to adjust the strap length a couple of times to get just the right fit. But it seems to work really well.

The one thing I can say I really don't like is the "vent" on the swivel hose attachment to the mask. It sometimes twists so I get cool air blowing across my cheeks and eyes. Easy enough to fix by swiveling the hose - but it can be annoying. I noticed they now have a heated hose available - wonder if having warm air would be less distracting?

Sandy



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GRAMSIECAKES2
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1/5/14 2:04 P

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I just happened onto this site too. I also use the ResMed S9 with the full mask. I have been very lucky as mine has fit so well from the very beginning. I think I started using mine with the idea that is would have to be better than waking up at 4:30 am and not being able to breath and my blood pressure off of the wall and having such irregular heart beats....Off to the ER I would go once again and not ONE dr could find out what the heck was wrong. Not even after EKG and ultra sounds...

One nice young dr I went to for my feet burning so bad took one look at me and said you have a severe case of sleep apnea. After one test without the mask and the second one with the mask. Boy was ever right on the money...My Pressure is 14. I fall asleep within ten mins...

MERRI

My birthday .. Dec 25,1940
My anniversary.. Aug 21, 1959
With Sparks .. 8 years! 2/16/06



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KPA1B2
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1/1/14 11:09 A

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One of the things I was told when I first started using my machine back in August was the right mask would be the most important thing you can have. I've used my machine every night except 1. I was exhausted the next day, so I will continue using it no matter what.

There are some nights that my mask just doesn't seem to fit right and I have to spend more time getting everything adjusted just right. But, it is so worth it to fiddle with it until I get it just right.

I strongly dislike the chin strap so I rarely wear it. But I have noticed that it holds my mask in place better. So, I use it when I go to bed feeling "stuffy."

I don't like the circles under my eyes, which my primary care doctor says is the results of using my machine. So, I bought concealer. I need to learn how to use it better.


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GRAMMACATHY
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1/1/14 2:18 A

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Bob your negativity is scary. I know people who have died not being compliant. I highly recommend you talk to the doctor again. He might be able to get you an oral appliance if you can't adapt. Your good health is worth the effort and a good nights sleep will make it much easier to exercise and get strong so you don't need the cpap. Stay on the team. There are all kinds of alternatives that might be helpful in your case. Let me know what you have looked into.



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BOB_IN_SC
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12/28/13 8:03 A

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What do I like. - nothing. Hasn't helped a bit.

What do I dislike. - everything. Changed mask several times, changed types of machines, changed settings many times. Nothing worked. Bottom line stopped using, the therapy is worse than the ale net. Stop using!


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GRAMMACATHY
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11/3/13 10:27 P

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That is so cool. I love technology. My card died, I had to pull it to quit getting error messages. One of these years after Obama Care, I will return to my sleep doc.



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TATASTHA
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11/3/13 12:52 P

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I am not sure why they changed machines. I think the ResMed S9 was just a test machine to find out what needed. This other machine is a new model & I put the disk in to my computer at home & up load the information on to the website & then my health care providers can check on the results even when I am not in their office & they can be alerted to any problem I may have between visits.

Do, or do not. There is no 'try." -Yoda (Star Wars)




54JIMMY
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11/1/13 10:16 A

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TATASTHA - I'm curious why you were moved off of the ResMed S9. Not enough pressure? Complex Apneas? Not familiar with your current machine.
I have the Resmed S9 Autoset. I really like this unit. It is whisper quiet, has what I believe more info that you can display on the screen, and it is fully data capable. I use the Mirage Quattro full face mask which I have now tamed due to tightening down the straps more.
Granted, I have only been a CPAP user for three months, I know that it is helping.

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


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GRAMMACATHY
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10/31/13 11:51 P

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I have a Res Med C-flex about five years old. The mask is a comfort gel nasal. I hate having the hose wrap around my neck when I roll over. I hate the kitty whiskers on my cheeks in the morning. I hate cleaning all the equipment every day.

II love the white noise of the machine. It is soothing, I love breathing the clean filtered air at night and not having so many incidents of allergies, asthma and sinus infections. I love waking up and feeling alert and alive.



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TATASTHA
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10/31/13 8:34 P

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I am kind of new to this whole sleep apnea thing. I had 2 weeks on the Resmed S9 then they put me on a Philips Respironics C-Flex. I have been on this for a week & 1/2 I found the tube on the C-Flex has a connecting piece that is too big & it keeps knocking the mask off my face. so my question is what kind of equipment do you use. what do you like or dislike about it?

Edited by: TATASTHA at: 10/31/2013 (20:36)
Do, or do not. There is no 'try." -Yoda (Star Wars)




 
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