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SEATTLE58's Photo SEATTLE58 Posts: 4,570
5/18/14 12:42 P

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I know just what you mean about the insurance company delaying with approving the med. I've been on Orencia for 6 months and with the new insurance, they had to take their sweet time to approve it, about a week, but I could feel my fingers, etc. starting to stiffen up! So I kind of know about extra pain, Lisa. This RA life is not easy at times and I feel that I can have more trouble with depression too, every now and then. It can really rag on on that we can't do as much, especially with yard work and all now, but we have to figure out how to keep above it all, with what helps us to be happy. emoticon It's been tough to lose weight too, with not as able and with having to push and push myself every day. I know that we all have times like this. emoticon

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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MIAMIRN's Photo MIAMIRN Posts: 446
5/18/14 11:20 A

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Hi Lisa,

I know what you mean about pain. emoticon

I just got a refill authorization that was delayed. I was sick with a pulmonary infection for three weeks and couldn't take my Humira for two weeks! I was in complete remission for the first time ever and then this happened. The insurance company dragged their feet for my refill. Now I'm 25% worse. I am in pain again. The good thing about this is I probably won't be in about a month when the med kicks in. I sure hope you get your med and it works like a dream like mine does.

Have a good Sunday, emoticon

emoticon emoticon



Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


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LISALOSING52's Photo LISALOSING52 SparkPoints: (60,315)
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5/18/14 8:31 A

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Well still going around with the insurance company about this medication. I'm hoping it will be straightened out this week end. As I'm in more and more pain as time goes on. I only hope they hurry and that it works. Thanks everyone! emoticon

If it is to be, it is up to me.


So often times it happens that we live our lives in chains, and we never even know we have the key.

Lyrics from Already Gone, performed by the Eagles

~Lisa~


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SEATTLE58's Photo SEATTLE58 Posts: 4,570
5/17/14 9:08 A

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I hope that you're feeling lots better by now, Lisa, and I know that it takes it's sweet time too, to kick in. Don't we know?! emoticon I've heard of Simponi, just haven't had that one as of yet anyway. Good luck to you! emoticon emoticon

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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LISALOSING52's Photo LISALOSING52 SparkPoints: (60,315)
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5/2/14 6:04 A

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Thanks for the info ladies I appreciate it. I will check the info and get back with you MIAMIRN if I have questions and I will most definitely keep you all posted JANISMKW. Yes it truly does seem to be mostly luck. I do pray that this helps. Thanks and have a great day! Hugs, Lisa

If it is to be, it is up to me.


So often times it happens that we live our lives in chains, and we never even know we have the key.

Lyrics from Already Gone, performed by the Eagles

~Lisa~


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MIAMIRN's Photo MIAMIRN Posts: 446
5/1/14 12:41 A

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Simponi is medication like Humira and Embrel. It's used to treat RA, Ankylosing Spondylitis, Ulcerative Colitis and Sjogren's Syndrome. Auto-Immune diseases is where the body is allergic to itself and attacks itself as if it's a foreign body. The Biologic medicines work to help the body to not attack itself. Simponi is just another new Biologic medicine. Just like Humira helps some patients and not other's and Enbrel, the like,Spimponi is a relatively new medicine that you can try to see if it may help your auto-immune condition. I think it's worth a try. Here is the link from the manufacturer. The last pages are for the lay person. If you have any questions about the manufacturers insert information, feel free to ask. I may be able to answer your questions:

www.simponi.com/shared/product/simpo
ni
/prescribing-information.pdf


Have a good night,

emoticon emoticon

Edited by: MIAMIRN at: 5/1/2014 (00:43)


Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


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JANISMKW's Photo JANISMKW SparkPoints: (42,792)
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4/30/14 10:22 P

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I've heard of it but haven't used it. It is a TNF-blocker like Enbrel and Humira and others. (Some biologics block other things.)
Good luck with it (so much of this seems to be luck, doesn't it?) Keep the team posted.

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LISALOSING52's Photo LISALOSING52 SparkPoints: (60,315)
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4/30/14 5:57 P

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I went to RA Dr. yesterday and she realized that my RA isn't controlled and is starting me on Simponi. It is a once a month injection. She said it is like Embrel and Humira. I felt quite a bit better when I was on Embrel but couldn't deal with extreme fatigue + I was still in lots of pain. Then I tried Humira. I only took for 1 month. It made me almost passout and I had blurry vision and couldn't function basically so she took me off of it. Then we discussed Remicade but I didn't want to try that yet. So I've just been on methotrexate and plaquinil. They give Tramadol for pain which everyone know isn't any help at all.
I did research this and I only found one page on it. Since I've never even heard of it I was wondering if any you had used it and if so did it help.. I would appreciate all info regarding this subject. Thanks, Lisa

If it is to be, it is up to me.


So often times it happens that we live our lives in chains, and we never even know we have the key.

Lyrics from Already Gone, performed by the Eagles

~Lisa~


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