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I agree with Mia. For me, I decided that my quality of life was more important than worrying about the possible side effects of any of the meds. I'm also monitored monthly and I know my rheumy will take me off anything that is causing an adverse reaction. Heck, if I can't deal with the side effects, I tell my rheumy I don't want to take it anymore. That's what I did for methotrexate. I couldn't stand it. I felt nauseous and exhausted for 3 days after taking it every week and that's a lot when you work full time.
Joanna from Dundas, Ontario
BLC20-25 - Amber Amazon Warriors
Eastern Daylight Time (EDT)
Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)
Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~
I don't think you should be very very worried. These are warnings, not a death sentence. Embrel is not very safe either. None of the TNR medications are safe. For instance, they all can cause cancer in some patients. I talked to my rheumy about this, because I wanted to know if you could tell if there were warning signals. He said there were in most cases,Your blood work changes, you have clinical symptoms, also. All these medications have risks. So do NSAID have sudden death warnings. You can have spontaneous internal bleeding and then bleed to death internally without warning. All these medications are all dangerous. The point I'm trying to make is that we are all taking risks when we take RAD medications. The alternative is for the RAD to create such havoc on our systems that we eventually die from it. It's worth it to me to take a med that's risky, That's me. The risks are less than the risks of the meds. So we have to choose. Which is it? Death by Rheumatoid Arthritis or the possible risk of death from the meds. I choose the meds. I hope this helps you with a decision. I don't think it lessens your fears, though. Lol. Believe me, I don't like the risks of the meds, either. I have blood work done monthly and see my doc monthly to review my blood work and my physical status, I read up on everything that I can and I'm vigilant about my symptoms. If I feel anything new or unusual, I see my doc.
I hope I helped just a little
Edited by: MIAMIRN at: 7/31/2013 (13:22)
Never, never give up!
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"Your beliefs become your thoughts. Your thoughts become your words. Your word
I take methotrexate, plaquenil, folic acid for my RAD. I was taking prednisone as well but they gradually weaned me off. I am glad to be off that as I stayed hungry all the time and gained weight but it was great for pain. THe Dr. started me on Embrel 10 months ago. It started helping within the first 2/3 weeks. I noticed a marked improvement. I started watching my newborn gson (4months now) and I struggled dearly. by 10 am everyday I was totally exhausted and couldn't hardly pick him up or function. I actually reverted back to how I was before starting the Embrel. I talked to my Dr about this and she decided to put me on Humira. I've spent 3 weeks trying to get straight at insurance..so frustrating and stressful. It is finally supposed to be delivered today. I have been reading up on this and it really is scaring me. My dr says it is the same as the Embrel but I have read of numerous sudden deaths because of this. I'm sure the good probably outweighs the bad and I know you take risks with all these meds but I would feel so much better if any of you could tell me about your experience on Humira current or past. I look forward to hearing from yall and thanks for listening.
Edited by: LISALOSING52 at: 7/31/2013 (12:55)
If it is to be, it is up to me.
So often times it happens that we live our lives in chains, and we never even know we have the key.
Lyrics from Already Gone, performed by the Eagles