Author: Sorting Last Post on Top ↓ Message:
BKWERM's Photo BKWERM SparkPoints: (92,404)
Fitness Minutes: (97,027)
Posts: 8,682
7/31/13 8:58 P

Community Team Member

My SparkPage
Send Private Message
Reply
I agree with Mia. For me, I decided that my quality of life was more important than worrying about the possible side effects of any of the meds. I'm also monitored monthly and I know my rheumy will take me off anything that is causing an adverse reaction. Heck, if I can't deal with the side effects, I tell my rheumy I don't want to take it anymore. That's what I did for methotrexate. I couldn't stand it. I felt nauseous and exhausted for 3 days after taking it every week and that's a lot when you work full time.

Joanna from Dundas, Ontario
BLC20-25 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


 current weight: 211.1 
 
264
245.5
227
208.5
190
MIAMIRN's Photo MIAMIRN Posts: 507
7/31/13 1:14 P

My SparkPage
Send Private Message
Reply
I don't think you should be very very worried. These are warnings, not a death sentence. Embrel is not very safe either. None of the TNR medications are safe. For instance, they all can cause cancer in some patients. I talked to my rheumy about this, because I wanted to know if you could tell if there were warning signals. He said there were in most cases,Your blood work changes, you have clinical symptoms, also. All these medications have risks. So do NSAID have sudden death warnings. You can have spontaneous internal bleeding and then bleed to death internally without warning. All these medications are all dangerous. The point I'm trying to make is that we are all taking risks when we take RAD medications. The alternative is for the RAD to create such havoc on our systems that we eventually die from it. It's worth it to me to take a med that's risky, That's me. The risks are less than the risks of the meds. So we have to choose. Which is it? Death by Rheumatoid Arthritis or the possible risk of death from the meds. I choose the meds. I hope this helps you with a decision. I don't think it lessens your fears, though. Lol. Believe me, I don't like the risks of the meds, either. I have blood work done monthly and see my doc monthly to review my blood work and my physical status, I read up on everything that I can and I'm vigilant about my symptoms. If I feel anything new or unusual, I see my doc.

I hope I helped just a little

emoticon emoticon

Edited by: MIAMIRN at: 7/31/2013 (13:22)


Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


 current weight: 170.0 
 
179
176.75
174.5
172.25
170
LISALOSING52's Photo LISALOSING52 SparkPoints: (64,302)
Fitness Minutes: (27,931)
Posts: 1,731
7/31/13 12:54 P

My SparkPage
Send Private Message
Reply
I take methotrexate, plaquenil, folic acid for my RAD. I was taking prednisone as well but they gradually weaned me off. I am glad to be off that as I stayed hungry all the time and gained weight but it was great for pain. THe Dr. started me on Embrel 10 months ago. It started helping within the first 2/3 weeks. I noticed a marked improvement. I started watching my newborn gson (4months now) and I struggled dearly. by 10 am everyday I was totally exhausted and couldn't hardly pick him up or function. I actually reverted back to how I was before starting the Embrel. I talked to my Dr about this and she decided to put me on Humira. I've spent 3 weeks trying to get straight at insurance..so frustrating and stressful. It is finally supposed to be delivered today. I have been reading up on this and it really is scaring me. My dr says it is the same as the Embrel but I have read of numerous sudden deaths because of this. I'm sure the good probably outweighs the bad and I know you take risks with all these meds but I would feel so much better if any of you could tell me about your experience on Humira current or past. I look forward to hearing from yall and thanks for listening.
emoticon

Edited by: LISALOSING52 at: 7/31/2013 (12:55)
If it is to be, it is up to me.


So often times it happens that we live our lives in chains, and we never even know we have the key.

Lyrics from Already Gone, performed by the Eagles

~Lisa~


 Pounds lost: 2.0 
 
0
10.25
20.5
30.75
41
Page: 1 of (1)  

Report Innappropriate Post

Other Living with Rheumatoid Autoimmune Disease (RAD) RAD-Specific Posts

Topics: Last Post:
I really need to try this Xeljanz for the new year 1/1/2014 12:27:42 PM
Bad flare for week 7/8/2014 4:40:22 PM
Pain in neck 9/29/2014 8:23:30 AM
Support for PsA 8/24/2013 6:24:09 PM
Survey for RA sufferers 7/19/2013 12:07:58 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=20572x959x54340372

Review our Community Guidelines