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SEATTLE58ANEW's Photo SEATTLE58ANEW Posts: 6,953
8/15/13 2:35 P

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Thank you for your response Janny, and I appreciate you telling your story also. Did it take you more than 1 round of antibiotics to get over each infection or were you able to lick it in one round? It seems like I may need another round as my dr. thought could happen. I feel that I'm just not back to totally normal yet. I know that we're all different but can I ask what different infections you had? I sure am looking forward to starting Humira again because of hurting so much more but I also know that with the dr. tests, we'll all know for sure when I can go ahead. I know that they sure warn about taking a biologic with having an infection. Not a good thing. I hate to think of what we could get then. Possibly like what your aunt went through. Is she still alive? What biologics have you all used? Ok, enough question now for you in one message! ha! Thanks again!


Karen from Minnesota

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JANNY316's Photo JANNY316 Posts: 373
8/15/13 11:14 A

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I was on Humira for about two years, with great success with my RA, but did have so many infections. After two years, it stopped working as effectively, so I have been on three more since then. One thing that I have learned is that you can never be too cautious on biologics. We can catch so many things so easily, and you need to always lean on the side of caution and go ahead and get checked out. My aunt who had RA, always took the other side, that nothing was wrong and just a side effect, and she had many complications. Good luck!

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SEATTLE58ANEW's Photo SEATTLE58ANEW Posts: 6,953
8/10/13 3:24 P

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I just want you to all know that my diarrhea wasn't from the Humira they're thinking because tests showed that I have an infection in my intestines brought on by my low immunity. So I'm on a med. for that and will get tested in 2 weeks or so to see if any infection is still there and if it's cleared up, then I can take the Humira once again. We really have to be so cautious and careful don't we, with all the germs out there? I always think that I do but now I want to be even more careful! Have a great week-end everybody!

Karen from Minnesota

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LISALOSING52's Photo LISALOSING52 SparkPoints: (105,199)
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7/31/13 8:56 A

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Hi Karen,
I'm interested in this as well. I will start taking Humira injections tomorrow if my shots come today. I was on Embrel which has helped me tremendously but I had started watching my new gson and it wasn't doing the trick anymore. I'm kind of scared of the Humira but they say it's the same. So you think the diarrhea is from the Humira? Is there anything else you can tell me that maybe I should know? I am so glad that you found something to finally give you some of the relief that you needed.
Lisa

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SEATTLE58ANEW's Photo SEATTLE58ANEW Posts: 6,953
7/29/13 1:23 P

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I've been on Humira since February and it kicked in in April and I've been feeling so much better. Well, I know that I have low immunity because of being on meds. for my RA, but haven't had diarrhea until about a month ago. I would think that it's caused by the low immunity. My Rheumy told me to try Metamucil and that's helping and also he said that if it continues to contact my primary dr. I hate to do that if this would slow down and then get me back to normal. I hate to have to go through tons of tests and then they could possibly just call it a low immunity after all the $ spent. And yet it could be something else. I also hate to have the Humira stopped and switched to another one with it working so well. Anyone else have any experience with having diarrhea Humira or any other biologic?

I hate to post this because it seems so personal and yet I really value your opinions because we're all fighting this RA and low immunity!

Karen emoticon I feel blue about all this!

Karen from Minnesota

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