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JOYISDESTINY's Photo JOYISDESTINY SparkPoints: (1,843)
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1/29/14 3:27 P

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emoticon I saw the commercials on it, and knew my former rheumy was involved in the trails in research, but know nothing about it. Hope it gives you relief! emoticon

We do not know how strong we can be until being strong is the only choice we have!


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9/11/13 9:07 P

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Thanks Jani!

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JANISMKW's Photo JANISMKW SparkPoints: (48,608)
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9/10/13 12:08 P

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Hope you emoticon

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8/29/13 8:44 P

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Hi Hma,
I have not felt well enough to take it (Xeljanz) but maybe if I take it I will feel better. I really hope u get approved, as u know it is a tough haul. My best to you!

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HMATTAX's Photo HMATTAX SparkPoints: (11,754)
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8/27/13 12:27 A

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I will be starting Xeljanz as soon as the insurance company removes its head from its rear end. (Why they refuse to approve a drug that is about an eighth the cost of the current treatment is beyond me)

After trying all the other biologics and a few older DMARDS some worked great for a while (Humira, Rituxan, Actemra, Orencia, and Cimzia) only to peter out, while others didn't ever even start to work (Enbrel, Remicade, Arava, Plaquenil, MTX alone). I have tried recycling back to a few of them, but have developed allergies to Humira, Arava, and Rituxan--currently taking Actemra and it has lost most of its effectiveness over the past year.

If insurance does a flat refusal I will be going back on Cimzia as it worked best without allergies (Humira was absolute best for me, but that is anaphylaxis waiting to happen).

How are the new pills doing? Any luck? I am hoping that they work well for you... and for me once I get it!
--Heather

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6/23/13 11:24 P

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thank u all for your kindness and input I really need it! erica

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JANISMKW's Photo JANISMKW SparkPoints: (48,608)
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6/20/13 9:30 P

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Wow, good luck with it. Please let us know how it works for you. I had never heard of it so I looked on the Arthritis Foundation website. It is a newly FDA approved DMARD that may work as well as biologics. Here's the article: www.arthritistoday.org/news/tofaciti
ni
b-xeljanz-approved223.php


Humira has given me my first real relief since I got RA. It took 3 months to start to work, and kept improving for a couple more months. I had tried several DMARDs first with little or no benefit.

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MIAMIRN's Photo MIAMIRN Posts: 499
5/26/13 6:57 P

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I've heard of it. My Rheumatologist has just changed me to Humira. I don't think he wants to try me on something that new. I've only tried Embrel. He says one day there will be tests to determine which medication is the best treatment for each patient. Right now it's hit or miss until you find the right one. This disease is not new, but effective medication treatments are. So I guess we'll all have to wait and see. Embrel helped me a little. Not with the swelling though. I take Sulfazine for the swelling. It is working well. Embrel worked a little for the stiffness and inflammation.I got a big flare on Embrel though and it made me very tired. I only figured out the side effect of the fatigue after I was off of it for a few weeks. Today is my second injection of Humira. Doc says it should take weeks for the Humira to work.

What works for you, how much and in what way?



Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


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5/25/13 11:35 A

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Yes. I will keep everyone posted on how it works, I am receiving next friday. I am trying to be positive but as u all know it is hard sometimes.

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TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (50,170)
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5/25/13 10:05 A

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Erica,

I have never heard of it either; however, I certainly hope you keep us posted on how it works for you. I'm on Enbrel - and I HATE IT! I know we're all looking for something that could give us some relief - AND SOME HOPE!!

Blessings to you in your new experience with this new drug!

Tiny
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Tiny
One pound at a time ...


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SEATTLE58's Photo SEATTLE58 Posts: 4,790
5/24/13 10:33 P

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I've never heard of it either, but I surely hope that it works very well for you!

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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LINDAJOYWK's Photo LINDAJOYWK Posts: 5,425
5/24/13 6:46 A

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Good luck-hope it works! I also,have never heard of it.

"It's not the mountains ahead that wear you out-it's the grain
of sand in your shoe"-unknown


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BKWERM's Photo BKWERM SparkPoints: (91,861)
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5/23/13 5:26 P

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I've never heard of it either but I sincerely hope it works for you. Good luck.

Joanna from Dundas, Ontario
BLC20-25 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,243
5/23/13 4:43 P

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Good luck! I personally have no experience this one. Hope it works for you.

HoH Gryffindor, Hogwarts Tri-Term 5, 6, 7
C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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5/23/13 11:31 A

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I am nerous yet hopeful about starting this drug (Xeljanz) it is soooo new! But I was so bad yesterday with my hip hardly being able to walk dress etc. Anyone else try it? A few people on another site said it has really helped them I hope I am one of them! Take care all! Erica

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