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MIAMIRN's Photo MIAMIRN SparkPoints: (31,038)
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4/21/13 12:02 A

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Hi,

I subscribe to RA Warrior. It's a great blog. I get emails several times a week. She also tweets. The tweets have links to other interesting and helpful people and professionals.

Do I loose days or weeks when I get a flare. Well since I've been diagnosed six or so months ago, it's been one big flare. The day before yesterday my Rheumy said the RAD is spreading. Duh! Lol To fill you in, two weeks ago my knee decided to fall apart. It's been intensely painful on and off. Heat helps. I'm starting PT with a tens unit next week and I"m getting a wheeled walker with a built in seat. It will help a lot until I get better. I start Humera next Friday. Thank goodness! The Embrel, I've been taking is like injecting water into my system. It hasn't done much at all. But getting back to loosing time. I don't really look at getting a flare or RA spreading or in general getting an exacerbation, as loosing time. I may have to change my schedule or take more naps, but loosing time, no. I don't loose time. Time is what I make of it. I hobbled to the pool where I teach swimming to kids. The water was helpful to me, the teaching helped me to focus more. It took my mind off myself and my pain. I cat nap in the car before I go places or after I get there. Sometimes I feel like a cat. I wake up feeling good most of the time. The pain is worse when I get up, but my energy level is better. Time to stretch and go. I consider most things as stepping stones for something better. It's just a matter of perception. I'm not loosing time at all, I'm living life as healthy and as fun as I can, that's all.

If anyone wants to tweet me my name is miamirn. Easy peasey. Don't you think?

Have a great night!



Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


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LJR4HEALTH's Photo LJR4HEALTH Posts: 32,281
4/2/13 7:04 P

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yes information there is really helpful these days

Linda (Florida - Eastern Standard Time )

I am " (we are) spiritual beings having a human experience " Pierre Teilhard de Chardin

Amethyst BLC Fall 2012 to Summer 2013

2012 Fall 5% Challenge Community Team Casual Travelers t0
2013 Spring & summer 5% Challenge Community Casual Travelers

BLC22 CAMO CREW Squad Violet Assassins

Previous BLC 17 to BLC 20

“Fail to plan, plan to fail.” Carl W. Buechner


SEATTLE58's Photo SEATTLE58 Posts: 4,880
4/1/13 11:54 A

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Wow, thanks for sharing! There's more and more info. out there that we can lead better lives possibly, than those in the past. So, I sure want to take advantage of it all!

Edited by: SEATTLE58 at: 4/1/2013 (11:54)
I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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LJR4HEALTH's Photo LJR4HEALTH Posts: 32,281
3/30/13 5:48 P

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I agree with you Linda I've seen to many in my family who just stopped living way before it was time to and the disease got worst for them by just sitting and not moving I'm going down with a fight emoticon

Linda (Florida - Eastern Standard Time )

I am " (we are) spiritual beings having a human experience " Pierre Teilhard de Chardin

Amethyst BLC Fall 2012 to Summer 2013

2012 Fall 5% Challenge Community Team Casual Travelers t0
2013 Spring & summer 5% Challenge Community Casual Travelers

BLC22 CAMO CREW Squad Violet Assassins

Previous BLC 17 to BLC 20

“Fail to plan, plan to fail.” Carl W. Buechner


LINDAJOYWK's Photo LINDAJOYWK Posts: 5,466
3/30/13 7:14 A

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I actually have one of their shirts! I like the idea of being a warrior rather than someone who licks their wounds in the corner! Got to keep fighting!

"It's not the mountains ahead that wear you out-it's the grain
of sand in your shoe"-unknown


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,418
3/29/13 10:33 P

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Interesting site. Thanks for sharing!

Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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LJR4HEALTH's Photo LJR4HEALTH Posts: 32,281
3/29/13 8:06 P

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I don't know if anyone here subscribes to Rheumatoid Warrior emails or not a lot of times there is interesting information on RAD in these emails as wellas links to her blog today sparked an interest in me and thought I'd share

Today's was "Anyone Else Lose Time Thanks to Rheumatoid Disease?" When we are in a flare up we do lose time / days / weeks we will never get back

rawarrior.com/anyone-else-lose-time-
th
anks-to-rheumatoid-disease/?utm_sourR>ce=feedburner&utm_medium=email&utm_c
am
paign=Feed%3A+RheumatoidArthriti
sWarri
or+%28Rheumatoid+Arthritis+Warrior%29


under 3 important things I need ot tell you was a question? "share your strategy for not letting a chronic disease get the better of you! " that made me think again I know I do things not to let this disease define me as a person . the blog to this question is " How Do You Keep the Disease from Taking Over?"

rawarrior.com/how-do-you-keep-the-di
se
ase-from-taking-over/


Still have reading ot do on this email I got tonight but thought I'd share.

Linda (Florida - Eastern Standard Time )

I am " (we are) spiritual beings having a human experience " Pierre Teilhard de Chardin

Amethyst BLC Fall 2012 to Summer 2013

2012 Fall 5% Challenge Community Team Casual Travelers t0
2013 Spring & summer 5% Challenge Community Casual Travelers

BLC22 CAMO CREW Squad Violet Assassins

Previous BLC 17 to BLC 20

“Fail to plan, plan to fail.” Carl W. Buechner


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