I'm starting on Humira on Monday. I was very scared of it but my Rheumatologist's nurse talked me into it. They upped my methotrexate shot 2 weeks ago to .8, the maximum amount they tell me. I also take Plaquenil. I went out of work on disability 11/15/12 as the bones in my wrists are deteriorating and causing quite a bit of pain. For many years Docs thought they had the RA and Sjogrens' pretty well controlled, and were surprised how much damage the MRI showed in my wrists in November. Now work is giving me and my Doctor a hard time about a return to work date. He says he can't provide one at this time unless I show remarkable improvement in the near future, yet work keeps insisting they need a date. Why do they have to add more stress to our lives? Don't they understand we are dealing with enough?!
I hope the Humira does well for you. I have been on Humira, Enbrel, and now Cimzia. I did really well on the Humira for about 2 years, and then starting having more flare ups, changed me to Enbrel, no help, and now on the Cimzia. I am at the 3 month point and not sure the Cimzia is working. I wish Humira would have lasted a bit longer for me, because it was convenient and worked almost within the first dose or two. So many issues with RA. This is a great place for support.
Thanks Linda, for your encouragement. I really need it during this time. As far as infusions, I know that my Rheumy knew that I preferred injections over them because of the hastle we have with being quite a ways out in the country and the trouble of sitting at the hospital, but I sure would if I needed it that bad. You see, I'm walking around, doing everything pretty much like a normal person, but not too though. Can't this and that and I know you would know all about that. Working on the dairy for the first part. I'm not all curled up either. So with having chronic pain which is somewhat tolerable, but not too, I can wait. I know that this would seem funny but it hasn't even been 24 hrs. yet and this morning when I woke up, I thought my hands opened up easier and weren't so stiff. And I'm thinking it's too early to tell, but wouldn't be a miracle if it started to work right away??!! I have a friend who had it do that for her, so maybe me too?! For some reason, I have more faith this time. I hope that helps! I'm so sorry about your tests not showing up the RA activity! In your spine, so sorry!! Well, it's definitely a disease that keeps having our Rheumy's and us on top of it all the time, the rest of our lives. Remission? I wonder what that would be like. Have you ever had it? Thanks again for your care and I hope you have a good week-end too.
Karen from Minnesota
"Little by little whittling my middle!"
Right TKR 12/15/14
July Minutes: 0
Fitness Minutes: (137,771) Posts: 10,521 2/16/13 5:07 P
Hi Karen, I have been on Humira for eight years now, currently getting an injection once a week to see if it will calm down some of my 'hot spots' Personally, I don't think it ever worked as well for me as the Remicade did, but unfortunately, I took a reaction to the Remicade and had to go off it. I am sorry the Enbrel didn't work for you :( I am surprised your Dr. is going with another injectable. Wonder why they don't try one of the infusions? As they go directly into your vein, they work a lot faster. I think it takes longer for the injectables to get going. My Rheumy thinks my condition is under control, but the 'hot spots' and the new disease activity in my spinal column is showing that it isn't under control. She is going soley by my blood tests which show no active disease. But I have seen long ago my disease can be very active and nothing shows on the tests. I guess I eat so healthy, my blood is very good :P Keeping fingers crossed it works for you! Enjoy your weekend, Hugs, Linda
When one door closes, I simply kick down another one!! Never Give up! Stand Tall, Walk Proud -Dani W, Fitness Instructor Do or do not. There is no try- Yoda Rock bottom became the solid foundation of my life -J.K. Rowling
I just started on Humira last night as the Enbrel never worked for me, so I'm crossing my fingers that Humira will kick in soon. I'll let you know when it does. Oh, I'm looking so forward to feeling better. I know that you all can understand that! Hope that you all are having a good day!
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