Janny - I had TWO full days of extreme fatigue and feeling like I'd been hit by a truck after my Remicade IV on Tuesday. Then, this morning I woke up at 6 AM with the headache from hell. I know that has to be the Remicade because I don't get headaches.
But I will say this - when I went to get my Remicade IV on Tuesday, I was having intolerable pain - the kind that makes you cry - and had been for about a week. The pain is gone now, so there must be something to the Remicade after all.
When I was there Tuesday, the nurse practitioner said they would like to start me back on Methotrexate (hair loss seems to be under control) because they believe both meds give better results when taken together. I'll probably do it because I saw nodules disappear and pain levels improve drastically with Methotrexate. I guess that will happen in September when I see the rheumatologist again. My Methotrexate has to be weekly injections and I take them at night, about 30 minutes after taking Phenergan for nausea. But that's ok. Whatever works!
I cannot believe you are trying to work with RA AND the meds for RA! I haven't worked in 10 years! Talk about feeling like a slug!!! When I was diagnosed, my RA was way beyond severe - labs were off the charts and joints were already in terrible shape. My doc would not give me a medical release to go back to work.
Don't you dare feel bad for laying around the house!! Do it when you need to, then the next day might be a little better.
I wish you a pain-free, healthy and energetic life!!
One pound at a time ...
| Pounds lost: 26.2