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8/8/12 12:24 A

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Thanks for the replies everyone! I'm still waiting to hear from my insurance. Since I am on a Medicare/insurance plan, it if is covered, it would be a Tier 5 drug. Any drug assistance is banned for Medicare drugs (don't ask me why?) even if I would fit any criteria that the drug companies would have. I have not had much luck with most of the other drugs/catergories so I hope that this one is approved. I'm sure that it will take some time so I doubt that I will get to start it right away!! I am just praying that it will be approved this year! Anyway, it is good to hear that there aren't many side effects (as my doc said) and hope that it works well for all of you who are taking it!

I can do ALL things through Christ whom strengthens me.


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,124
7/25/12 7:55 P

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I've been on Actemra since last fall. It's a pretty new drug that seems to be working well. I don't have as many flares, but I also am a little more achy than I was on Remicade (until the end) but we've been having a really damp year which always affects the RA for me.

I've also been more lethargic than normal and just feeling off, but that could be other things as I've had a really, really stressful year this year. I'm also 2 days away from treatment, and I usually hurt/feel worse the last week.

Good luck!

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TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (48,732)
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7/25/12 2:51 P

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I haven't heard of Actemra. emoticon

Just been on Methotrexate (hair fell out, so off now), but now on Remicade. I was only diagnosed 12 years ago and I'm 63 years old, but my disease was very severe when diagnosed.

I wish someone could discover the CAUSE of RAD and PREVENT it!!

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HMATTAX's Photo HMATTAX SparkPoints: (11,754)
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7/25/12 1:25 P

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I have been on Actemra for about three months now and can tell that it is working. Unfortunately, it is not working as well as I had hoped it would be by this point--flaring and swelling and pain a lot still. I too am one of those people that have run the gamut of meds, so I am hoping it kicks in fully soon! Our yearly rainy season is not helping with the ra at all either, so we will see what happens in the coming months.

Side effects are minimal, and I just end up sort of headachey and slightly feverish for about a week after the infusion. I hope you can get cost assistance some way and can find relief soon!

Heather

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LJR4HEALTH's Photo LJR4HEALTH Posts: 32,271
7/25/12 12:22 P

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Never heard of that one

Linda (Florida - Eastern Standard Time )

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KIERAE's Photo KIERAE SparkPoints: (177,652)
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7/25/12 11:01 A

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I was in the research for this drug for 5 years until it was FDA released. I was off of it for 6 months while my HMO got permission for me to take it. I have a long history of failed meds (I was diagnosed when 2 and have been in that severe category for almost 30 years) so my options are limited. It is HORRIBLY expensive but we found that if the infusion is done at the hospital, my copay is 20 dollars versus THOUSANDS. It works very well for me and I have not had any side effects whatsoever. I do know lab wise that they really watch your cholesterol numbers but you have to look at all the cholesterol numbers and not just the one.

I hope you and your doc find a way to get you covered. I know that the company does have an assistance program but don't remember what the exclusionary criteria is. Feel free to shoot me a message if you need anything else.

I like living. I have sometimes been wildly, despairingly, acutely miserable, racked with sorrow, but through it all I still know quite certainly that just to be alive is a grand thing. Agatha Christie
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ae

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SERENEMOM71 SparkPoints: (40,664)
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7/25/12 10:24 A

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I have been in remission for almost 2 years after being on a course of Simponi, Methotrexate, and Arava. These past 3 months I have been flaring up with inflammation especially in my feet. My rheumy has been on and off again - even saying that maybe I don't have RA! She has been driving me nuts! I have an inflammation lump on my right foot that is very painful. Finally yesterday she saw it and decided to start me on Actemra, which is one drug I haven't taken. Has anyone been on it? What results did you have with it? Of course, I know it takes about 3 months to know even if it is going to work. Did it help with the pain? I am hoping (and praying) that Medicare will pay for this medication and not stick me with the bill. However, this remains to be seen. Although I am finally in the catastrophic phase, a tier 5 drug often isn't included! And since I am on Medicare, I can't take advantage of any help the drug company or anything else that might be available for this medication! Oh well, I can't worry about this until I know the facts. Thank you for anything you might have on this medication!

I can do ALL things through Christ whom strengthens me.


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