Author: Sorting Last Post on Top ↓ Message:
TMANNY's Photo TMANNY Posts: 667
5/15/12 4:06 P

My SparkPage
Send Private Message
Reply
It actually comes in both forms now an IV or an injection. I am on it now, it has worked the best for me of any others biologics I would say I see a 50-60% improvement overall. I have been on it for a year now. I do get really dizzy and nauseas from it (uncommon side effect) this is so uncommon that I am the only person in my entire clinic that gets the premed for these side effects LOL. I take zofran via IV pre orencia infusion and then take zofran in pill form for 3 days after the infusion and this helps a lot. It is nice to know that even when we get nasty side effects that there is usually something they can do about it. I think that Heather gave you perfect info on the infusion and all.

 current weight: 189.0 
 
189
176.75
164.5
152.25
140
BKWERM's Photo BKWERM SparkPoints: (89,157)
Fitness Minutes: (93,222)
Posts: 8,468
5/15/12 3:43 P

Community Team Member

My SparkPage
Send Private Message
Reply
I was on it for about a year but my rheumy said it wasn't working and put me on Rituxan, which I've been on since August 2009 and it seems to be working, which is good.

I actually kind of like getting the infusions (Rituxan is an infusion as well) over the needles you have to inject yourself. I hated doing those.

Joanna from Dundas, Ontario
BLC20-25 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


 current weight: 208.7 
 
264
245.5
227
208.5
190
DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,461
5/14/12 4:04 P

My SparkPage
Send Private Message
Reply
Thank you Heather for the info. It gives me a better idea of what to expect.



 current weight: 225.0 
 
226
218.25
210.5
202.75
195
HMATTAX's Photo HMATTAX SparkPoints: (11,754)
Fitness Minutes: (3,290)
Posts: 222
5/14/12 3:11 P

My SparkPage
Send Private Message
Reply
Hi there,
I was on Orencia for about a year, and it worked pretty good for me in a time of GREAT stress. Let me fill you in on the details of the med.

It is an infusion which takes about 30 minutes, so you would be in the infusion center for about an hour and a half total with all the setup and monitoring. Plan on it every 4 weeks.

MAKE SURE YOUR INSURANCE IS CLEAR BEFORE YOU GO FOR THE INFUSION!

So, you will need a TB test and pneumonia vaccine before getting Orencia, just like most infusions. The only pre-medication that I got for the infusion was Tylenol and two oral 25mg benedryl (which they let me skip at later infusions since it puts me asleep for 4 hours).

You will be set up with a basic IV and saline. Then, once the pharmacy gets their act together, the nurses will hook up the meds and get it in you. I have never had any reaction to the Orencia (outside of mass sleepiness from the benedryl), and I could drive myself to and from the infusions. BUT make sure that the first few times you go you have someone with you, just in case you do react to it (or you are like me and end up sleepified from benedryl).

After the infusion I felt fine, but gradually got more little tired over the next week. Not bad, I could still work half days on it, but I felt sort of worn out for a few days (more than normal).

One caveat: It took about three months to kick in. That is three infusions, and a long time.

I didn't have any increase in infections, which was good since my stress was rather high due to my husband (and me with him) going through: *deep breath* emergency surgery, radiation, chemotherapy, and living out of hotels in San Francisco.

So it worked great for me, I had to stop because it slowly lost effectiveness, and I needed to get surgery on my sinuses for a 10 year infection (the orencia didn't make it worse, I just got tired of living with the infection).

I highly recommend it as a med, low side effects, quick infusion every 4 weeks, and highly effective for me. (If you have any more questions feel free to poke me, I have been on most of the biologics at some point in the last 7 years)
--Heather

 current weight: 198.0 
 
1682
1299
916
533
150
DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,461
5/14/12 2:07 P

My SparkPage
Send Private Message
Reply
hi, My rheumy is considering putting me on Orencia...has anyone here had experience with it? Is it an injection or an infusion? How is it in terms of causing infections? What were the side effects you had? Did it alleviate your symptoms?
Thanks for you help.



 current weight: 225.0 
 
226
218.25
210.5
202.75
195
Page: 1 of (1)  

Report Innappropriate Post

Other Living with Rheumatoid Autoimmune Disease (RAD) RAD-Specific Posts

Topics: Last Post:
A Great Site 5/17/2014 10:54:47 AM
WooHoo! I think the Humira has kicked in!!!!! 5/28/2013 8:17:13 PM
swollen lymph nodes, possibly RA?? 5/31/2013 5:58:04 AM
Liver Toxicity 6/7/2014 11:26:47 PM
Anti-inf ammatory diet 1/29/2014 9:26:16 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=20572x959x48063786

Review our Community Guidelines