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KACEYSW's Photo KACEYSW Posts: 2,072
12/6/12 7:16 P

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Finding places that are adding gluten-free choices is always a treat!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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SPARKI3's Photo SPARKI3 Posts: 64
11/24/12 10:38 A

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Disney world is soooo helpful....Wish I had known this when my grandaughter had a chance to go there!


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KACEYSW's Photo KACEYSW Posts: 2,072
11/17/12 9:23 P

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I make sure I have all the tools I need around me, even when I go out. I always keep gluten-free options in my purse and in my car, just in case. My goal is to become as healthy as I can be, for as long as I can.

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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JULIERAE41's Photo JULIERAE41 Posts: 828
10/24/12 8:52 P

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I am gluten intollerant and also pre-diabetic. Most of the gluten free foods sold in my city have a higher glycemic index than their gluten laden counerparts. I am afraid to eat anything but vegetables, meat and fruit. I am less concerned with weight loss than healthy choices for me. My biggest pitfalls are figuring out what to get when we eat out. ALL sauces are suspect and so are most condiments. When I consume any form of gluten, it causes water-weight gain and inflamation in the skin on my face being hot and red and I also wind up feeling hung over and achey like the flu. I am still learning but have a lot of process of elimination to go through, I guess.
All I know is I feel so much better off the gluten and when I think I want something I remind myself that it is poison to my body. The last time ( couple of months ago) I decided I was going to have something I missed, it didn't even taste good and the effects were soooo not worth it. I had one of my husband's hot pockets. It took me a week to get back in balance.

Edited by: JULIERAE41 at: 10/24/2012 (20:57)
In His Strength and Grace,

Julie

Proverbs 16:24 Pleasant words are as a honeycomb, sweet to the soul, and health to the bones.

Speak pleasantly to yourself and others.


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KNYAGENYA's Photo KNYAGENYA Posts: 6,740
9/21/12 7:56 A

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I'm here at Disney world and when reservations were made the staff told the restaurants I couldn't have gluten. Now every time I eat the chef comes to talk to me about my options

" The road to success is always under construction."- Lily Tomlin


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KJEANNE's Photo KJEANNE SparkPoints: (39,116)
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7/28/12 12:12 A

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Keep reading about CD, it will help you to stay motivated. I was diagnosed with Dermatitis Herpetiformus when I was 19 - that was 39 years ago. When I went on the GF diet it was like the clouds parted and I was set free: free from pain!!!! I still remember the day it all came together. I don't eat much GF products: too expensive and too many calories. Instead I stick to a simple diet and use corn tortillas as my "bread". I figure when I eat out it's only one meal out of the tens of thousands I will have in my lifetime so if its not what I want to eat but it is GF I'm good with it.

Do not look where you fell, but where you slipped.
African proverb


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JENCORINNE's Photo JENCORINNE Posts: 1,932
7/11/12 12:58 A

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I felt bad about being so blunt but I'm glad that it gave you the kick in caboose that you needed to take your health seriously. emoticon emoticon

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GLUTENFREEGRAMA's Photo GLUTENFREEGRAMA Posts: 8
7/10/12 8:00 P

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Jencorinne - I want to thank you for the link you provided, it really opened my eyes. I have been struggling to accept the gluten free life, even tho I know I feel better on it. I have resisted the idea of celiacs diseasee, tho I admitted to a gluten intolerence. I figured if I caused myself some painful temporary symptoms, it was no big deal, I just deal with them. Well, after reading about the autoimmune connection and the T-cell factors, I realize I have truly had celiacs all along, and it probably is the cause of so very many symptoms for so many years, weakness, fatigue, pain, inflamation, depression, anemia, chronic illness and infections, on and on including lupus and fybromialgia diagnosis. Probably also my mom's Chrone's disease as well. I really didn't associate CD with dangerous health risks till I read this post by you today and started doing more reading in various sites. If you hadn't been so forthright, I may not have taken my own health seriously.
I need help, but have more motivation. thank you.

"I can do all things thru Christ who strengthens me"


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DAISYLEIN's Photo DAISYLEIN SparkPoints: (2,386)
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6/7/12 2:24 A

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Hi @ all
i am happy to find this group and hoping to read experiences with the combination of Diabetes Type-2 even after that diagnose in last December recently there where some antibodies found for Type-1.
my CD was finally found in December 2010 after many emergency hospilitations, symptoms where treated with antibiotics and other wrong diagnoses like anxiety/panic disorders ... for many years i had so many signs in the blood test: like bad liver looking like i was an alcoholic, B-12 + Vit.-D too low, burning of the tounge, chronic pain, Hashimoto since 1997 (Autoimmune Thyroid, low function).
before i started on gf-diet i was on whole foods, after i started gf-foods i gained 10 kilos in 1 year which also activated diabetes type-2. after research i found out that it was the starch making me gain so much in a short time.
here in germany it is hard to find gf-whole foods which is needed with the combination of diabetes + to loose weight.
are there any recipes or a cookbook for gf-whole foods i could use? a link would help me.

lovely greetings from germany :-)

greetings from good old Germany
................................


"Love alone can unite living beings so as to complete and fulfill them...
for it alone joins them by what is deepest in
themselves.
All we need is to imagine our ability to love
developing until it embraces the totality of men and the earth."

***Pierre Teilhard de Chardin ***
................................



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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
5/11/12 10:40 P

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So many amazing posts, it's hard to know where to begin. So...ditto everything. One thing that may help with your hubby is to make being GF an adventure. There are lots of good wonderful gluten free items and mixes out there. Use this time to figure out your favorites. One thing that I notice is that if I have to make something, I will eat it less often. For example, I love brownies, but I'm willing to make them 2-3 times per year, so I don't eat them that often. The same is true with other things. That helped me with my weight loss. If you don't like to cook, this is a great reason to learn.

You can also involve your husband. Contrary to popular believe, GF doesn't mean horrible tasting. My husband isn't GF but he likes the things that I bake. He even comes across things and will buy them for me to try. He isn't GF, but he is open. Good luck to you.

The pounds are sliding off...


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JENCORINNE's Photo JENCORINNE Posts: 1,932
4/24/12 11:13 P

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If your hubbie is one of those guys that needs to see something in black and white show him this article - celiachandbook.com/opinion/untreated
-c
eliac-disease-epidemic/
or there is tons of info here www.cureceliacdisease.org/

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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,801
4/24/12 10:55 P

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I agree with the others and as for your husband do explain to him about what happens to a person that has it and you can find information on the web that will help you. As for his embarrassment that he has to deal with and don't let that stop you from asking about gluten, Remember that you are doing it for your health and not some fad.

Dorothy





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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
4/24/12 5:45 P

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Welcome to this team, Anatra49 and all Newbies.
I was never diagnosed as a true Celiac but remain a strict g-f pure person. I have added several other intolerances and allergy foods to my comprehensive no-nos list. I feel better for each and everyone I avoid proudly. The start was H-E double toothpicks with no true condition except intolerance. Like bashing my head into a brick wall every time I took in something that should not be there a pain or a hidden swelling has taken a bad hold on me; my gut would not heal and my holes made me more susceptible to infections. I no longer use prescription pain relievers because I stopped having the pains I was taking them for and I walk my gluten-free path with pride.

My list of no-nos is imbedded in my fuss journal so I know now what not to eat and in proof to myself and my doctors that the pain inflammation and harm I got from using whatever was not worth the nutrition I may have gleaned from it. Gluten, artificial anything, yeast, corn, soy, buckwheat, millet, all whole nuts, fermented foods, distillates, crude oil products in food flavorings, alcohol in anything/even medicines and concentrated flavor extracts, citric acid, caffeine not even green tea, and major lessons found in a hidden no-no of sulfur-sulfites-sulphonamides of vinegar-grapes-wines-cane and beet sugars, preservatives etc

Keep feeling and keep writing those feelings. They do mellow with time and the bitterness becomes a sweet thought about a willing change. Mine did.

emoticon

Edited by: MARGIE100%PURE at: 4/24/2012 (17:53)
The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (120,893)
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4/24/12 12:41 P

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I found that to be completely the opposite. Being GF meant I was no longer tempted by the cookies and pastries people left in the lunch room. I also have extremely supportive friends and family so that does help.

But eating out is quite simple, whole foods w/o sauces and you should be good.






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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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4/24/12 1:23 A

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Jen an excellent post
Welcome to this group. Please read Jen.s post as often as you can. She is offering some excellent advise. I was self diagnosed and do have Celiac Disease. I have had it since July of 2009. I am sure way before that but did not want to admit it. I guess that I was just tired of feeling so lousy and decided to something about it. Really it was my two (2) younger sisters that has been asking me for a long time to get checked. One of the younger sister's has Celiac and was diagnosed over 20 yrs ago and almost died. In fact, she almost died three (3) yrs ago. The dr she has now took time to find out what has been bothering and was gf. She is feeling so much better.

You mentioned that your husband is not supportive. I am very fortunate as my husband has been supportive from day one. That is means the world to me and it will be for you.

I cannot even ingest a small amount of gluten as I get extremely sick. It would take me about an hour to get sick and now it takes about 20 min. or sooner.

You know people would not question if you had cancer or diabetes but when it comes to having Celiac people do not understand nor do some drs.

Cindy gave you some good advise too.

Please keep us posted on how you are doing. Remember one thing you must take care of yoursel first.

Char

Edited by: CTRAVEL at: 4/24/2012 (01:26)
www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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JENCORINNE's Photo JENCORINNE Posts: 1,932
4/24/12 12:51 A

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emoticon ,

I will apologize in advance because I'm going to be blunt. You didn't say what you were diagnosed with, but I'm assuming Celiac Disease.

1st of all your husband is going to have to get over being embarrassed, your health is more important. I don't like making a fuss over myself but do when I have to. Remind him that if you don't follow the GF lifestyle your life will be shortened. I'm sure he wants you around for a long time, if you cheat that won't happen. Would he be just as embarrassed if you had diabetes and had to check your blood sugar or went into anaphlyactic shock if you ate the wrong thing, like with peanut allergies.
Every crumb you ingest raises your chance of cancer from mouth to anus. This disease KILLS! I have a CD friend on FB that almost died from this. Despite having blood come out of both ends, the Dr's thought she was faking. When her family finally talked the Dr to do exploratory surgery they found 5 feet of gangrene. She will never regain her health due to the missing intestines.
My Grandma was never Dx'd but I'm 99% sure she had it. She died of complications of osteoporosis. She broke vertebrae putting her socks on, then broke her hip and continued to go downhill breaking bones if you looked at her wrong. If you eat gluten your guts never heal and can not absorb your vitamins, nutrition and minerals leading to osteopenia and osteoporosis amongst other problems.

Has your Dr ever run labs to see if your intestines have healed? I'm willing to bet that they aren't if you are eating gluten.

I've taken the friends terminology for gluten now - RAT POISON! I don't want to eat rat poison and I'm sure you don't either but thats what you are doing to your body every time you eat gluten.

Now that I'm doing ranting, back to pleasantries. I'm really a nice person but have no patience for people that purposefully don't take their disease seriously. You mentioned pizza - have you tried some of the newer mixes? I don't know where you live but there are many places around me that offers GF pizza, some better than others and safer than others but it's there. A lot of restaurants, even chains, offer GF menus.

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CINDYTW Posts: 5,783
4/23/12 7:56 P

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Unfortunately there is no esy answer for that. You just have to change your thinking. Yes it is tough and requires planning and cooking. No there isn't much as far as fast and easy food. BUT is it really worth being the way you are now?? Wouldn't it be great to feel good??

Once you have made up your mind and are up for the challenge, then my best advice is to stick to whole foods and learn to get back to basics. You will save money and calories in those specialty products. I save them for rare treats. Plan your meals around meat, veggies, potato, fruits, nuts...It is healthier, cheaper and better for you!

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ANATRA49 Posts: 1
4/23/12 7:14 P

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I constantly struggle just to stay gluten-free! Diagnosed in 2002, it's a constant struggle and I go off the GF diet when feeling deprived of ease in ordering a pizza, whether I have enough GF food in the house, a husband who isn't always emotionally supportive....he would be embarrassed if I mentioned something to a waitress or if I brought my own GF bread to a dinner. GF and trying to lose weight is a big one!!

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