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PEARLBLACK Posts: 34
1/11/13 6:43 P

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Thanks for sharing such awesome testimony. emoticon

TRACKSALL's Photo TRACKSALL SparkPoints: (12,758)
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12/12/12 4:15 A

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I dragged an oxygen tank around for 4 years before my transplant. You can strengthen yourself to do many of the exercises that well people do. It will take some time and modification, but I spent 3.5 hours a day in a pre=transplant exercise program at Duke University Hospital. I was with 60 other people with COPD, Pulmonary Fibrosis, Alpha-1, etc. I will be happy to help (but I am not a medical person) I learned a lot in the 7 months I spent there waiting for lungs. I was so strong by then I actually got up 18 hours after surgery and started walking laps aroung the ICU unit. My lung function the day before was 17%...so I know how important it is to develop a daily routine - no matter how little breath you have left. You can do it!

Edited by: TRACKSALL at: 12/12/2012 (04:17)
A strong positive attitude will create more miracles than any wonder drug. ~Patricia Neal

I can do all things through Christ who strengthens me! Philipians 4:13


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BJOHNSONWONG Posts: 7
7/29/12 10:38 A

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Thank you. You are right about the pulmonary rehab. I did that a year ago and even psychologically it made a big difference.

BONCOLLIER's Photo BONCOLLIER SparkPoints: (2,766)
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7/22/12 9:33 A

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My father had PF. The best exercise we found for him (and was very effective in helping with symptoms of PF) was going to cardio/pulmonary rehab. We saw immediate improvement when he started. It's not just about the exercise, they also teach you effective ways to breathe, use oxygen, etc. The rehab is affiliated with a local hospital. Medicare paid for his visits.

Happiness is when what you think, what you say, and what you do are in harmony.
Mahatma Gandhi


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BJOHNSONWONG Posts: 7
7/19/12 8:23 P

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Thank you. I'll look into it.

BJOHNSONWONG Posts: 7
7/19/12 8:20 P

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Thanks so much Sharon. Very good information.
All the best

BJOHNSONWONG Posts: 7
7/19/12 8:18 P

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I totally understand about the muggy weather. I usually walk outside but this summer has been unbearably muggy where I live too. Keep up your routine. Good for you.
It's taking me awhile to totally accept this condition but now I'm ready to move on.
All the best

BJOHNSONWONG Posts: 7
7/19/12 8:15 P

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Thank you so much for your kind response. I have checked the website you suggested and it is helpful. All the best to you.

JUMPSONG2 SparkPoints: (28)
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7/16/12 12:42 P

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I have COPD and I am going to start to walk on a treadmill. I have my oxygen tank here at home which will hopefully make it easier to do.. emoticon It is too muggy to exercise outside for me..Wish me luck..

HEALTHYONE2008's Photo HEALTHYONE2008 Posts: 15,918
7/13/12 8:44 P

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Hi and welcome to the team. Wishing you the best

Nancy in Columbia,SC

"It's hard to beat a person that never gives up"...and I intend to be that person

FAVORITE HYMNS

Jesus loves me
Amazing Grace
Rock of Ages
No, not one
Some things never change
You are God alone/how great is our God
Move mountain, move
When the rocks cry out
Written in red



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AMALYDAVIU's Photo AMALYDAVIU SparkPoints: (7,013)
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7/13/12 4:18 P

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Welcome, you I see that you are getting some info. I pray that you would find it helpful. I have found that health condition secession are very helpful. emoticon

I can do all things through Christ who strengthen me


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SHARON632's Photo SHARON632 SparkPoints: (79,314)
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7/13/12 10:31 A

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Here is the link already provided for you by GENESIS2012. I just made it so you can click on it to access the information.
www.ehow.com/way_5621613_lung-exerci
se
s-pulmonary-fibrosis.html


You can also look for information on your condition by going to Health Conditions on your menu bar and click on Health A-Z.

Edited by: SHARON632 at: 7/13/2012 (10:34)
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* SHARON *
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Starting over
Nov. 23, 2009, 245 lbs.


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SHOAPIE's Photo SHOAPIE SparkPoints: (209,452)
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7/13/12 8:52 A

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emoticon

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BLACK741's Photo BLACK741 SparkPoints: (84,070)
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7/13/12 7:09 A

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you might look into T-Tapp see if that would work for you.

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GENESIS2012's Photo GENESIS2012 Posts: 1,284
7/13/12 12:32 A

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Hi, I read your post and looked for some information as I wasn't sure about exercise that would be helpful to you with your illness. I did find some information specifically on aerobic and strength exercise with pulmonary fibrosis. Here is the link:

http://www.ehow.com/way_5621613_lung-exe
rcises-pulmonary-fibrosis.html

I hope you find it helpful. emoticon emoticon

Carol emoticon

The Lord is at hand; do not be anxious about anything, but in everything by prayer and supplication with thanksgiving, let your requests be made known to God. Philippians 4:6 TLSB

Carol
Arizona USA


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BJOHNSONWONG Posts: 7
7/12/12 10:29 P

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I have pulmonary fibrosis and looking for new ways to get exercise or any relevant advice on things that work. Willing to share what I know too. Anybody the same as me?

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