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CBEVNOW's Photo CBEVNOW Posts: 6,297
7/24/11 6:14 P

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Some good advice here, Jen always has some answers for us. Thank you all.

Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/24/11 10:12 A

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Thank you for the links.

For those of us with so many allergies and issues - What I did for my dad who has many many issues... I wrote on his bracelet what HE can have as far as meds go. This avoids the time consuming change up of meds in an emergency. I have to avoid certain meds also, it is easier to write what I can have vs what I have to avoid.

The words can be short and to the point...examle: ALLERGIC TO MANY..MAY ONLY BE GIVEN: ASPRIN

jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ROSES17's Photo ROSES17 Posts: 10,218
7/23/11 7:38 P

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I really hadn't thought of that. I have multiple allergies to medications and had multiple conditions. I should really consider getting one.

Lottie
Eastern North Carolina


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
7/23/11 2:25 P

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I've added. Link to another set of medical ID bracelets - they are more fashion friendly.

This problem isn't because docs & nurses don't care. They are over worked, especially nurses. Doesn't make it right, but it helps me not shoot the messenger!

My daughter has many severe medication allergies, too, and we haven't found a good solution either. It won't fit on a bracelet so you have to direct the emergency personnel to a wallet card or some other media - & who has time for that when you are in crisis? Even just her life threatening allergies won't fit on a big unattractive bracelet.

What we have done: as soon as she gets into a hospital is draw a red stop sign on her wrists and the specific allergies up her arms. This definitely helps keep the latex pulse taking problem. Not a perfect solution, but if you can get through the ER without trouble this will greatly.

The hospitals are much more willing to have a visitor over night when the patient isn't able speak for themselves so we try to have someone there 24/7 to check every pill and touch - especially blood draws and IVs. (lots of time they remember the latex gloves but forget about IV tubing.). We have to bring her linens from home as as she reacts to the industrial cleaners, so gotta watch at bed changing time.

We've considered tattooing her wrist, but like many people her allergies morph over time - she has allergies now that she didn't have 2 yrs ago and others have gotten worse and some have gotten better so....

I hadn't even thought about 1 for myself as CKD is my first life-threatening-if-I'm-unconscious illness.

Hope these tips are helpful to you.

https://www.hopepaige.com/product-ca
te
gory.aspx?ProductCategoryID=106&cateR>gory=Medical%20Bracelets


Edited by: CLAIRE_LEFT_SP at: 7/23/2011 (14:28)
Claire
********
Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
JANNYGIRL3's Photo JANNYGIRL3 SparkPoints: (36,744)
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7/23/11 10:44 A

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Jeayn, I have changed doctors and hospitals. I am only hospitalized for emergencies and the paramedics have the final say on where I go. The hospital that I don't care to use is minutes away from me and I am often taken there in spite of my wishes. I live in a large metro area and my doctors are on staff at more then one hopital so I am not always able to go to the one of my choice. You are correct that I was referring to the ID bracelets used in the hospital. I have not used a medical ID bracelet. I rely on the 'Vial of Life' which is kit with a form that I fill out with the names of my doctors, hospital, in case of emergency contacts, medications, insurance info and all other medical information. It has the red medical cross sign on the form. The form is placed in a baggy and taped on a wall inside my refrigerator. There is a refrigerator magnet with the red cross on it that is on the refrigerator door. I have an arrow on the magnet pointing upward that directs the paramedics to my medications. They are in a cabinet directly above the refrigerator in a container that also has the red cross on it. The paramedics are very familiar with this system and always look to the refrigerator when entering. They have everything they need within seconds. You can also put a form in your wallet, glove compartment, pocket or anywhere else you feel would be helpful. I have included the link for the Vial of Life Project below. Their goal is to get this kit to all seniors, however anyone can order the kit. I am on many medications and have several health conditions and the kit enables me to include all of my information. That is not possible with a bracelet due to size limitations. I can tell you from experience that the paramedics love this system whether you are able to speak or not because they have everything they need on the form and it saves valuable time. Seconds count in an emergency.
Jan

www.vialoflife.com/vial_is_free.html



"If you have the courage to begin, you have the courage to succeed."
~ David Viscott ~


Coincidence is God's way of remaining anonymous.
~Albert Einstein~




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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/23/11 9:15 A

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Amber (and Janny) I think that you are writing about the medical ID when you are in the hospital - I am encouraging wearing a Medical Id Alert Bracelet, not the electronic kind.

What you have experienced is not new - I am sorry that this happened to you. As for them asking for your info every time you see a new nurse,ect while in the hospital - from my experience that is just common practice. I have changed hospitals twice in my lifetime - each time to a better care facility. Maybe you need to find a better hospital. One hospital I use is almost two hours away from my house. My new hospital with my new doctor is an hour away. A better medical facility can make all the difference in the world to your health. If they are endangering your life, its time to move on. I want to encourage you to find a doc and a medical facility that respects your personal needs as a patient.

The medical alert ID's are for emergency situations, in the event that you cannot speak. The emergency doc, medics, nurses will know by your bracelet what your health status is.

At any rate - I want to encourage you to be your own medical advocate - a medical id alert bracelet is a great tool. They range in price - I think the cheapest is $14.95.

jean



Edited by: LIFE-FAITH at: 7/23/2011 (09:17)
Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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WENDYJM4's Photo WENDYJM4 Posts: 17,949
7/23/11 5:38 A

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I have never thought about that one. Might have to look into it.

Wendy
South Australia

wendyjm4, Team leader for Sparkies Down Under.
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JANNYGIRL3's Photo JANNYGIRL3 SparkPoints: (36,744)
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7/23/11 12:03 A

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Amber,

I have had the same experiences as you over and over at the hospital and also with my with my primary care physician. I have changed doctors and it still happens. The bracelet doesn't matter. No one takes the time to look at it. They have tried to give me drugs that I am allergic to many times. If I were unconcious and unable to advocate for myself I wouldn't be here. When I am admitted to the hospital my daughters rotate and I am never alone. I do the same for them. Unfortunately, It is not safe to be there alone.

Jan


"If you have the courage to begin, you have the courage to succeed."
~ David Viscott ~


Coincidence is God's way of remaining anonymous.
~Albert Einstein~




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1_AMAZING_WOMAN's Photo 1_AMAZING_WOMAN Posts: 2,299
7/22/11 10:07 P

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When I am talking about them trying to give me meds I am allergic to I am talking life threatening allergic reactions, and plainly they should NEVER be trying to give a med that is on the (***RED***) bracelet the patient is wearing.

They have tried giving me meds that are noted in my files as throwing me into sudden and COMPLETE kidney shut-down the 3 times I was given single doese of those meds. And, another time they tried to give me a med that literally almost took my life - I was previously carried into ER going into a coma from 2 doses given 4 hours apart, and the doctor told me that if I had taken another dose I would have died from the serious allergic reaction. I have absolutely NO trust in doctors or nurses taking care of me any more. I ask questions no matter how laid out I am from the still lingering anesthesia, and I run my medical care all the time, cause if I didn't I would be 6 foot under many years ago already.

There was even a doctor considering using IVP dye on me again even with my kidneys, and even considering the fact that the first time they used it on me I went into anaphalactic shock, and when I woke up was covered in hives. Nearly died from it, but a doc thought he'd 'try it' with an antihistamine prep. I said "NO WAY!!!" An antihistamine would not likely stop a full-blown anaphalactic shock reaction. But, then it wasn't his life he wanted to play Russian Roulette with!

Amber

Amber
-----------------------------
I admit I am powerless over food -
that my life has become unmanageable.
-------------------------------
You are looking at the 'main' source of 'all' your health & happiness.
-------------------------------
The more you say IT... The more you think IT... The more IT will occur.
-------------------------------
When someone shows you who they are, believe them - the FIRST time.


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CBEVNOW's Photo CBEVNOW Posts: 6,297
7/22/11 9:53 P

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Thank you Jen, i use to wear a bracelet and then i quit, not a good decision, i will wear it from now on.
Yesterday i went to hospital to have blood work done, i have to go back to Nephrologist on Monday, recheck i guess from a lot of stress.
I want to say just for my blood work, i had to go in to a office she read me all my information she had, and then i had to repeat it to her, while she rechecked. Then when the nurse came and got me, i had to go through this again. they had put a id bracelet on me before i went in and i had to recheck and read off again. then before she drew blood she looked at my ID bracelet and read it and then ask me my name and date of birth and why i was there.. I told them well you really know its me now dont you.LOL She said they do this with every one, and this was just for blood work. I was very impressed. But they have always done this at this hospital and i am so glad.
When i had my foot x rayed a few months ago for the broken toes., they did the same thing at my Dr. office.
I guess i have been blessed with good medical care so far.
Thanks again for the reminder.

Caroline emoticon emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/22/11 8:48 P

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Amber I am sorry that this has happened to you. I can tell you that medical personnel are trained to look for a medical ID in the event of an emergency. The only thing that I can tell you from my experience of having NINE surgeries, is that sometime what we write down and is documented as an allergic reaction is sometimes what the medical people consider a side affect. They also sometimes determine the risk of an allergic reaction if NOT life threatening, out weighs fighting the pain and inflammation from surgical procedures. However, I can tell you as a CKD patient I was denied all medications that can combat pain and inflammation after my last three surgeries. It is NOT fun healing without these meds.

At any rate - it is always best to have a medical ID in the event of an emergency... if you cannot speak - the medical team will know what your health issues are and can better treat you.

jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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1_AMAZING_WOMAN's Photo 1_AMAZING_WOMAN Posts: 2,299
7/22/11 7:38 P

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I wear a detailed Medic Alert Bracelet, but my experience has been that NONE of ANY kind of medical staff looks at it, and has REPEATEDLY brought me medications that I am very seriously allergic to. After surgeries even I have learned that when they bring me pain meds right out of surgery, I better do all I can to bring myself out of the deep sleep and ask them what they are giving me; and EVERY TIME the med has been from my list of allergies - even the list of pain med that they are NOT to give me that are written on my RED ARM BAND, which they don't ever even look at. And, plainly my doctor isn't even looking at my chart or my red arm band to have ordered it for me in the first place. So, I definately feel I am paying the yearly fee for my Medic Alert Bracelet for nothing. If I'm not awake to protest what they are giving me I don't stand a chance...

Amber

Amber
-----------------------------
I admit I am powerless over food -
that my life has become unmanageable.
-------------------------------
You are looking at the 'main' source of 'all' your health & happiness.
-------------------------------
The more you say IT... The more you think IT... The more IT will occur.
-------------------------------
When someone shows you who they are, believe them - the FIRST time.


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JANNYGIRL3's Photo JANNYGIRL3 SparkPoints: (36,744)
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7/22/11 6:43 P

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I should order one since I have CKD and epilepsy. I have complex partial seizures that have been controlled by medication since 2003. There were seven rough years leading up to that with many medication changes. I am sure all the powerful anti-convulsive drugs are what harmed my kidneys. Both of my kidneys are small and scarred. I was treated for Lymes disease with an antibiotic a year ago and my GFR dropped to 24.7. I have been able to bring it up to 33.0 through diet and I feel quite well now. Needless to say I am very concerned about being given the wrong medication. I will check into the bracelet.

Jan




"If you have the courage to begin, you have the courage to succeed."
~ David Viscott ~


Coincidence is God's way of remaining anonymous.
~Albert Einstein~




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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/22/11 5:56 P

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I am getting a bracelet to wear along side my NKF "Love Your Kidneys" bracelet.

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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DUCKYONTHERUN's Photo DUCKYONTHERUN SparkPoints: (26,961)
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7/22/11 4:32 P

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Good idea. Since my Dad lives alone, this may be a superb idea.

Faith (and Love)


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DARLENEK04 Posts: 27,391
7/22/11 3:11 P

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Well Jean,

This was thought provoking....I had not thought of that. What kind are you getting???
a bracelet or necklace?

Darlene

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/22/11 2:29 P

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Do you wear a medical ID?

Some of us have more than Kidney Disease - but the important thing about NOT wearing an ID - if there is an emergency - some medication that is used in life threatening situations should not be used on those with Kidney Disease. There are alternative medicines that can be used for those of us with CKD. Because our kidneys do not filter toxins correctly - they do not filter medicines correctly either - some medicines can build up to a toxic level.

I am ordering a medical ID from American Medical ID.

jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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