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LAURAAT's Photo LAURAAT Posts: 1,506
10/30/12 11:06 A

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Hubby heard this on the radio the other night, so I thought I should share with you all:

www.couldihavelupus.gov

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LAURAAT's Photo LAURAAT Posts: 1,506
3/1/11 9:56 A

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Funkylinda, I'm so sorry to hear about your niece! I'm sending lots of love and good thoughts to you both. I sure hope she finds a good doctor, that is in the area more than once a month! A good doctor is so important, but at least she has someone to see for now.
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FUNKYLINDA52's Photo FUNKYLINDA52 SparkPoints: (0)
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2/26/11 12:57 A

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Thanks for those links. My neice called me today crying after her Dr. apt. and said he told her she has Fibromyalgia and he thinks she has Lupus also but he needs to run more tests. She has 3 small children and I have told her for years that she should have it checked out. I am going to give her this list of numbers so she has a starting point to check out all her resources. I have fibro lupus sjogins and renauds. I have been with my Dr now for about 12 years and she isn't taking new patients and it is hard to find Dr.s in my area who are. She found a Dr who comes to town once a month but at least she has someone to work with her. I started SP to loose weight but I have recieved so much more. It is taking some time but I am loosing weight a little at a time.

Pain is inevitable, Suffering is optional-Kathleen Casey Theisen.


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XENA1956's Photo XENA1956 SparkPoints: (65,922)
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1/10/11 11:16 P

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Wow thanks for them all.

Teri
TheOlderIGetTheBetterIWas

If youíre going to be able to look back on something and laugh about it, you might as well laugh about it now.
Xena1956


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BWCAGRL's Photo BWCAGRL Posts: 3,454
1/10/11 3:23 P

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Originally posted by Helaine:

800 Numbers To Just About Any Association You'll Ever Need:

1-800-Toll Free Numbers for Health Information
Al-Anon/Alateen World Service Office Headquarters, 888-425-2666
Alcohol and Drug Helpline, 1-800-821-4357
Allergy Information Referral Line, 1-800-822-2762
Alzheimerís Association, 1-800-272-3900
Alzheimerís Disease Education and Referral Center, 1-800-438-4380
American Association of Kidney Patients, 1-800-749-2257
American Cancer Society Response Line, 1-800-227-2345
American Council of the Blind, 1-800-424-8666
American Council on Alcoholism, 1-800-527-5344
American Diabetes Association, 1-800-232-3472
American Foundation for Urologic Disease, 1-800-242-2383
American Heart Association Stroke Connection, 1-800-553-6321
American Institute for Cancer Research, 1-800-843-8114
American Kidney Fund, 1-800-638-8299
American Leprosy Missions (Hansenís Disease), 1-800-543-3131
American Liver Foundation, 1-800-223-0179
American Paralysis Association, 1-800-225-0292
American Parkinsonís Disease Association, 1-800-223-2732
American Speech-Language-Hearing Association, 1-800-638-8255
APA Spinal Cord Injury Hotline, 1-800-526-3456
Arthritis Foundation Information Hotline, 1-800-283-7800
ASPO/LAMAZE, 1-800-368-4404
Asthma and Allergy Foundation of America, 1-800-727-8462
Better Hearing Institute, 1-800-327-9355
Brain Injury Association, Family Helpline, 1-800-444-6443
Cancer Information Service, 1-800-4-CANCER; 1-800-422-6237
CDC National AIDS Clearinghouse, 1-800-458-5231; 243-7012 (TDD)
CDC National HIV and AIDS Hotline, 1-800-342-2437; 1-800-344-7432 (Spanish):1-800-243-7889 (TDD)
CDC National STD Hotline, 1-800-227-8922
Childrenís Hospice International, 1-800-242-4453
Cleft Palate Foundation, 1-800-24-CLEFT or 1-800-242-5338
Crohnís and Colitis Foundation of America, Inc., 1-800-932-2423
Cystic Fibrosis Foundation, 1-800-344-4823
Deafness Research Foundation, 1-800-535-3323
Endometriosis Association, 1-800-992-3636
Epilepsy Foundation of America, 1-800-332-1000
Facial Plastic Surgery Information Service, 1-800-332-3223
Fibromyalgia Network 1-800- 853-2929
Food Labeling Hotline, Meat and Poultry Hotline, 1-800-535-4555
Grief Recovery Helpline, 1-800-445-4808
Guide Dog Foundation for the Blind, Inc. 1-800-548-4337
Huntingtonís Disease Society of America, 1-800-345-4372
Impotence Information Center, v843-4315; 1-800-543-9632
International Childbirth Education Association, 1-800-624-4934
International Essential Tremor Foundation 888-387-3667
Job Accommodation Network, JAN, 1-800-526-7234
Juvenile Diabetes Foundation International Hotline, 1-800-223-1138
Lighthouse National Center for Vision and Aging, The, 1-800-334-5497
Living Bank, The, 1-800-528-2971
Lung Line National Jewish Center for Immunology and Respiratory Medicine, 1-800-222-5864; 1-800-552-LUNG or 1-800-552-5864 (LUNG FACTS)
Lupus Foundation of America, 1-800-558-0121
Lupus Alliance- 1-800-850-9000
Lyme Disease Foundation 800-886-LYME (5963)
Medic Alert Foundation, 1-800-432-5378; 1-800-344-3226
Medicare Telephone Hotline, 1-800-638-6833
Multiple Sclerosis Association of America, 1-800-LEARN-MS or 1-800-532-7667
National Center for Sight, 331-2020
National Clearinghouse for Alcohol and Drug Information, 729-6686; 487-4889 (TTY/TDD)
National Council on Alcoholism and Drug Dependence Hopeline Inc., 1-800-622-2255
National Eye Care Project Hotline, 1-800-222-EYES or 1-800-222-3937
National Eye Research Foundation, 1-800-621-2258
National Headache Foundation, 1-888-643-5552
National Health Information Center, 1-800-336-4797
National Information Center for Children and Youth with Disabilities, 1-800-695-0285
National Information Center for Orphan Drugs and Rare Diseases, 1-800-300-7469
National Institute of Mental Health, 1-800-647-2642 or 1-800-421-4211
National Institute on Aging Information Center, 1-800-222-2225
National Institute on Deafness and Other Communication Disorders Information Clearinghouse, 1-800-241-1044; 1-800-241-1055 (TT)
National Kidney Foundation, 1-800-622-9010
National Lead Information Center, 1-800-LEAD-FYI (Hotline) or 1-800-532-3394; 1-800-424-LEAD or 1-800-424-5323 (Clearinghouse); 1-800-526-5456 (TDD)
National Marrow Donor Program, 1-800-MARROW-2 or 1-800-627-7692
National Mental Health Association Information Center, 1-800-969-6642
National Neurofibromatosis Foundation, 1-800-323-7938
National Organization for Rare Disorders, 1-800-999-6673
National Parkinsonís Foundation, Inc., 1-800-327-4545
National Pesticide Telecommunications Network, 1-800-858-7378
National Rehabilitation Information Center, 1-800-346-2742
National Resource Center on Homelessness and Mental Illness, c/o Policy Research Associates, 1-800-444-7415 ext. 232
National Reyeís Syndrome Foundation, 1-800-233-7393
National Spinal Cord Injury Association, 1-800-962-9629
National Stroke Association, STROKES or 1-800-787-6537
National Tuberous Sclerosis Association, 1-800-225-6872
Panic Disorder Information Line, 1-800-64-PANIC or 1-800-647-2642
Polycystic Kidney Disease foundation. 1-800-753-2873
Project Inform HIV/AIDS Treatment Hotline, 1-800-822-7422
Sickle Cell Disease Association of America, 1-800-421-8453
Simon Foundation for Continence, The, 1-800-237-4666
Spina Bifida Association of America, 1-800-621-3141
Stuttering Foundation of America, 1-800-992-9392
The SjŲgrenís Syndrome Foundation (800) 475-6473
Tourette Syndrome Association, 1-800-237-0717
United Cerebral Palsy Association, 1-800-872-5827
United Network for Organ Sharing, 1-800-243-6667
United Scleroderma Foundation, 1-800-722-HOPE or 1-800-722-4673
Y-ME National Organization for Breast Cancer Information Support Program, 1-800-221-2141
This list is provided for informational purposes only. Of course if you are seeking medical advice- it is always best to speak with your doctor.



Melissa
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BWCAGRL's Photo BWCAGRL Posts: 3,454
1/10/11 3:15 P

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The first and most obvious link would be to the Lupus Foundation of America - a wealth of information lives here!!
www.lupus.org/newsite/index.html



Melissa
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