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5/31/12 5:56 P

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I'm Baaaaaccckkkkk. And numbers are still jumping around. I'm not sure how much more I can take. Doctor added .05 of cytomel based on some things he and I have read and now my T3 (3.5) and T4 (1.60) are right but my TSH is .201 LOW. I feel like crap. No energy. Based on his records I have gained 9 pounds in the last year - 2 since last month's readings. Why would my TSH be so low? Please anyone have any ideas.

Here are my numbers March - May

T3 2.2 2.5 3.5
T4 1.61 1.81 1.60
TSH .972 .382 .201

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BAELLISON86's Photo BAELLISON86 Posts: 65
4/24/12 1:27 P

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I went to the endo last Friday. she left my medicine the same. my tsh was 1.05. So I was good there. She was concerned and ran a metabolic panel on me. I have a severe vitamin D deficiency. so she gave me prescription strength D 50,000. that I have to take for a month. I also have low iron levels i have to eat more iron rich foods. So that's why I felt so terrible. I do feel crappy in the morning. Stomach issues, nausea from my meds. If there is anything you can suggest to me let me know.
Thanks for the support.

"You can do iiiiiiiiiiiiiiiiiit"


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SHONADOG's Photo SHONADOG Posts: 1,864
4/17/12 8:35 A

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So many Docs are brainwashed by the pharm companys (and get kickbacks). I may not be losing the weight but my numbers are constant now. It took about a year of tweeking but I'm steady now.

Mary

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4/16/12 9:23 P

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I would love to go the natural route and have investigated chemists in the area that will prepare the medications without all fo the fillers etc. How can insurance coverage pay for the natural course? Do you have coverage for the nutrionist? I simply can not afford to have insurance pay for these items. I take Deplin to aid my Wellbutrin and those items alone are over $100 a month. Not to mention the thryoid meds which are fairly inexpensive. I would like to get a referral to your nutrionist? Can you send me a private message? Perhaps they can refer me to a South Florida nutrionist! My tests have bounced around for the last two years. My DO started me on Armour at my request and I was feeling much better but my numbers keep bouncing back and forth. Then he suggested an endo and she wanted me on synthyroid. Now I am cold, irritable and lathargic. I'm going back to my DO and work with him - I at least trust him. Thanks for all the good info. I am going to print it and take it to my doctor.

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RICHARJ's Photo RICHARJ SparkPoints: (4,383)
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4/16/12 4:59 P

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I just said this morning that I was going to try other meds so I could maybe lose some weight....but now not so much....I think I will just keeping on fighting with synthroid...this is so SCARY...

Today may there be Peace within. May you trust that you are exactly where you are meant to be.
May you not forget the infinite possibilities that are born of Faith in Yourself and others. May you use the gifts that you have received & pass on the Love that has been given to you.


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
4/16/12 10:00 A

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I feel I understand this unsure frustration; although, I do not have Hashimoto’s. My nephew had it and the cancer, too. My body totally stopped making T3 even though the doctor kept upping my T4 dosage only to drop it months later. Through the doctor’s misunderstanding my tiny adrenal glands grew exhausted under her oops care of my thyroid medication types, dosages, and lab interpretations. You are in charge of your body; learn all you can so when a doctor offers or suggests something you can ensure more comfort. I had an endocrinologist doc for 12 years. She ignored my coldness 97.8 degrees as normal for hypothyroidism. But the truth is a syndrome called Wilson’s Temperature Syndrome. This side effect from insufficient T3 creation in the body is cutting edge adjustable to feel warm and safer from infections by adding a little more T3. This logical step can also reduce depression symptoms in a really nice way.

I hated Cytomel synthetic T3 thyroid hormone prescription but do well on natural GTA Forte T3 supplements. This is pharmaceutical grade animal source T3 thyroid support. I would never have found out this for myself if I did not get brave and leave the Formal MD recommendations to follow a logical course for whole body care.

T4 is only a messenger and T3 is the acting hormone. I can not get enough information to truly understand the functions of the T1 and T2. I prefer a lower than recommended level reading for my TSH, Thyroid Stimulating Hormone which is not good enough for my endocrinologist but just fine with my professional nutritionist. I use these two forms of professionals to balance comfort with the formal laboratory result numbers. I hate Synthroid Cytomel and all additives-preservatives-and artificial colors and fillers in all pills and capsules.

Did you know that a thyroid full panel lab testing set can be too high in one area and too low in another? Too many doctors fail to get enough facts to see a clear pattern in this organ and its function. Unexplained weight gain is a fact of life for the person on synthetic support and too many laboratory test markers not being monitored. How can the doctor know if something is off the charts if the tests are not taken? Free T3 and Free T4 and a few other dry facts can be interpreted to the comfort and better health advantage of the thyroid issue patient. I had to see a different kind of Doctor to ensure better adrenal support from this all too common free T3 doctor mistake.

There are ways to please with T3 then discontinue taking T3 when levels rise to a comfortable place again. Food is another influence on the thyroid organ and I have been taught by my nutritionist to eat around thyroid weakening foods.

Did you also know that the body changes from winter and summer? In the more active summer months the body wants less and in the less active winter months a minor dose adjustments can improve life? Most MD’s never mention it or adjust for it either.

Good luck on your sense of comfort and finding a great MD you can trust.


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If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
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Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
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Impatience does not provide the time to learn the lesson;
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BAELLISON86's Photo BAELLISON86 Posts: 65
4/16/12 8:39 A

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Thank you all for the support and advice. I'll definitely let every one know how things progress.

"You can do iiiiiiiiiiiiiiiiiit"


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YICHE12's Photo YICHE12 SparkPoints: (171,154)
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4/14/12 4:58 P

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The thyroid medication reacts differently on individuals. For some people a certain medication works while on others, it doesn't.

I sure hope that your levels stabilize soon. Do keep us posted as I know that it can be terribly frustrating when the levels fluctuate like that.

I wish you well. Hugs.

Lise (pronounced Lees) - GMT (+4 hours Eastern Time )
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SHONADOG's Photo SHONADOG Posts: 1,864
4/14/12 1:21 P

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I went through the ups and downs for almost 9 years (hashi also). I was put on Armour (90 dosage. 45 in morning and 45 in afternoon) along with a very low dose of generic Levoxyl. Weight isn't coming off but I have stopped gaining. Until you find the right dose and the hashi settles your numbers will bounce. I was going every 4 months and dosage changing every time. My Endo also tested my HGH and found it was sooooo low that I went on growth hormone shots for over a year. The antibodies can attack other things besides the thyroid. If your doctor won't give you anything but synthetics you may need to find a new doc. The heart palps can be coming from too much T3 that is in Armour and that is why I'm on the combo. The extra T4 counters too much T3. I need the T3 but can't handle it. I know it sounds strange but it works for me.

Mary

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BAELLISON86's Photo BAELLISON86 Posts: 65
4/13/12 1:32 P

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Tirosint is a gel cap Synthroid that the switched me to. All my thyroid symptoms are back except the heart flutters. So I'm right there with ya.

My dr will only let me be on the modern meds. So I don't think I'll be going back on any natural stuff ever.

"You can do iiiiiiiiiiiiiiiiiit"


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4/13/12 12:40 P

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Loveby2 - Did you start gaining weight with the switch? Is that medication available in the US and covered by insurance. I go back next week to go over my bloodwork since changing to Synthyroid. Plus I am fatigued, slight constipated and cold again. I wanted to let my DO know about the Erfa. THanks all it's nice to know i'm not alone or a hypacondriac!

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LOVEDBY2 Posts: 96
4/13/12 10:30 A

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I took Armour for ten years plus. I started feeling bad with the new formula so I made the switch to Erfa from Canada. I felt awful on Synthroid when my doc tried to switch me years ago. The Erfa is suppose to be like the old Armour. I have been on about a month and I do feel better so far.

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BAELLISON86's Photo BAELLISON86 Posts: 65
4/13/12 10:11 A

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my weight just hit me as so as I switched. I'm still eating healthy. Actually eating less. I can't really exercise because I'm so tired I can hardly drag my butt out of bed in the morning. I go to bed at 9pm every night. Get up at 6 still tired.

I have another appointment next Friday. My doctor requested all kinds of blood work this time not just thyroid test. I'm also getting and ultra sound on my neck. I'm going to see what she has to say about my troubles.

It's good to know someone else has similar trouble. I'll keep you posted.

"You can do iiiiiiiiiiiiiiiiiit"


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4/12/12 8:42 P

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I am a little confused. You mentioned changing from Armour to the new medication and weight gain. When you stopped Armour did the weight just start inching up? The specialist changed me from Armour because my numbers keep bouncing around and blamed the Armour. She switched me to Lyvoxithyroin (sic) but I had horrible headaches so she gave me the non generic synthyroid and the headaches are gone. BUT I have gained 5 pounds in the last 2.5 months. NOTHING I do matters. I eat 5 small meals and good healthy. But even if I don't have dinner I don't even lose 1 pound. I also have bursts of energy but it's not consistent, I too have Hashimoto's. I don't know where to turn now! I know exactly how you feel.

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BAELLISON86's Photo BAELLISON86 Posts: 65
4/12/12 12:21 P

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So they said it was my fault at the weight gain. But it coincided with the med change, so I think I'm right on this one. I was on Armour and I did feel crappy and my numbers bounced up and down. So she switched me to Tirosint. My numbers dropped but now are slowly on the rise again. I also have Hashimoto's so I don't know it it's that crud causing trouble again. I've been trying to get my numbers regulated since I was 24 and now I'm 32. I'm kind of at a loss. But one positive thing is that my heart palpitations have completely vanished on this new medication.

I always get asked my numbers so I'll list from when I was diagnosed to now. Yes I do remember the first number. This is from my recent bout. I did have thyroid disease when I was younger but I got fed up with doctors not being able to help me and didn't go or take my meds. So stupid.

TSH 28 then it dropped to 6.75 after starting Armour. But I had side effects and switched to a specialist. My doctor pretty much washed his hands of me. I got switch to an equivalent dosage of Tirosint and my number jump to 14. Then she raised my does to 100mcg. The it dropped to 3. Then I got my blood done again and it was back to 6. She increase my does to 112mcg and it went back down to 3.8. I just had another blood test today I don't know the offical results yet but it's probably up again.

I just needed to vent. If any one has suggestions I'm open to them.

"You can do iiiiiiiiiiiiiiiiiit"


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