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DARLENEK04 Posts: 27,414
6/17/13 7:18 P

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I still watch what I eat and drink, and act as if I do....as long as I get good readings
then I will maintain what I am doing...

Thanks,
DarleneK

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
6/17/13 6:34 P

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This is how my nephrologist explained it to me:

My creatinine may be reading stage 1 (normal readings) - but I still have chronic kidney disease.. my kidney function is what I am maintaining, while I have this disease that has no cure and no treatment.
The other important thing he told me: as long as my creatinine numbers keep changing - even if they stay in the same stage - I have chronic kidney disease (CKD).

I do not know if this makes sense to you - but it makes sense to me.

I used to fight with my primary doctor all the time about my kidney disease - I changed doctors and explained to my new doctor exactly how I maintain my CKD - if they have an issue giving me my referral to see my nephrologist please tell me NOW so I can find a supportive doctor who understands that I am maintaining my CKD - not that I do not have the disease.

I live to maintain my kidney funtion in stage 1 - I do not care who believes I have it or who doesnt. I am DONE fighting with doctors who look at my creatinine, GFR, and other numbers and say I DO NOT Have it! Because when I do not take the steps to maintain it - my numbers fall back into stage 2 or 3.

Take care of you!

Jean



Edited by: LIFE-FAITH at: 6/17/2013 (18:35)
Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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BMCOLLEY's Photo BMCOLLEY SparkPoints: (57,971)
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6/17/13 4:08 P

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I am going to email/call my primary physician and discuss the fact that I was told my kidneys are 100% and she discharged me except to have a 6 month checkup. At his point I am not sure who to believe. My creatinine (I forgot how to spell this word) did go down.

If your primary and your specialist disagree I think you should get another opinion from a physician that is independent of those two.

Bettie

Those who make the worst use of their time are the first to complain of its shortness. --Jean de la Bruyere


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DARLENEK04 Posts: 27,414
6/17/13 2:52 P

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My nephrologist says I have kidney problems and my primary care says I don't so who to believe???

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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BMCOLLEY's Photo BMCOLLEY SparkPoints: (57,971)
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6/17/13 12:10 P

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I don't know if I am excluded or not. My nephrologist told me, when I first started see her, that my kidneys were functioning at 30%--She uses 50% for each--add that together and you will get 100%. Then, at my last appointment she told me that my kidneys were functioning at 100%. I don't know what to think since the other specialists take many precautions to not damage the kidneys further. I can't wait for my next appointment, in August. When she was determine when I should come back she says I am discharging you. I don't know which dr to go to for answer involving my nephrologist's statement. I guess I will try my primary.

Bettie

Edited by: BMCOLLEY at: 6/17/2013 (12:11)
Those who make the worst use of their time are the first to complain of its shortness. --Jean de la Bruyere


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
6/17/13 11:50 A

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Methods to Repair Kidney Cells, Assess Kidney Function On the Horizon

In a related study, they report progress on a non-invasive method to assess how much kidney function has survived a serious bout of inflammation or a chronic problem like high blood pressure.
The diagnostic tool could help physicians make hard choices about whether a patient has enough kidney function left to benefit from treatment or whether dialysis or a transplant is in their future, said Dr. Michael P. Madaio, nephrologist and Chairman of the Department of Medicine at the Medical College of Georgia at Georgia Regents University.

to read the entire article:

www.sciencedaily.com/releases/2013/0
4/
130416121748.htm


Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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