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GOLFLADY11's Photo GOLFLADY11 SparkPoints: (33,404)
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3/17/12 1:44 P

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I just had my cardioversion on Thursday and it was a disaster. Put me into irregular rhythm in the low 30's so spent 2 days in Emergency. My pulse is now in mid 60's low 70's and still irregular. I am on R&R til Tuesday when I will get a halter monitor for 24 hours. That interesting about the herbal extracts? for the arrythmia. Will look into this once I get stabilized again to my normal abnormal.

Edited by: GOLFLADY11 at: 3/17/2012 (13:44)
"Fall down 7 times, get up 8" - Japanese Proverb;
The journey is the reward"


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ARENARIA's Photo ARENARIA SparkPoints: (137)
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3/10/12 5:04 A

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Mellabellas- hii! There are herbal treatments for high blood pressure, you can do your own research on it all (here's ideas, not a medical or gov site but it's a good enough place to start http://www.anniesremedy.com/remedy_use92.p
hp )
I use extracts for arrhythmia because we haven't found a medication yet, and it's working pretty well. You can get them in local homeopathic shops or online for pretty inexpensive. Maybe something along that line will help!

Edited by: ARENARIA at: 3/10/2012 (05:04)
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3/9/12 5:12 P

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Hi! I'm 21 and kinda new to the heart disease thing- I've only recently been diagnosed with a congenital defect, an epically nasty case of Wolff-Parkinson-White Syndrome. At least it's got a sort of cool name! I'm not really a surgery candidate, mostly because of the severity- I'm not even allowed cold medicine or caffeinated tea, my doctors are a bit wary of going in to cauterise bits of my heart. For now I'm taking hawthorn and motherwort and a few other rather untasty herbal concoctions to stabilise the arrhythmia and keep the worst of the skipped-beat-jolts at bay. So far it's working pretty well, I'm definitely better off than I have been in years. Now I just need to join in a few peer communities and I'll have nearly got through the cardiology department's 'basic care' checklist!

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GUYTRYING Posts: 12
3/8/12 5:47 P

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Thank you. I wish you success in your adventure.

GOLFLADY11's Photo GOLFLADY11 SparkPoints: (33,404)
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3/6/12 11:44 P

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Good luck Guytrying!

"Fall down 7 times, get up 8" - Japanese Proverb;
The journey is the reward"


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GUYTRYING Posts: 12
3/5/12 4:01 P

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Hi. I'm 58. I had a heart attack 3 years ago.My heart guy told me that the right side of my heart is 100% blocked with collateral. (he told me that means my heart grew another artery to circumvent the blockage) Left side is 50% blocked.

I also have Type2 diabetes and take pills and a nightly shot of insulin. The insulin made my body do what it's supposed to do and the result was packing the pounds on. I hit 250 pounds although I carry the weight well, I'm 6'1",

I was asked what I wanted for Xmas and since my birthday is on 7 Jan I asked for a gym membership. About the same time I found this great website.

I have only dropped 7 pounds (3 1/2 inch smaller in the waist) but my dietitian told me that's because I'm packing muscles on now. I go to the gym 5 times a week. Although I have a back injury I managed to work through my concerns.

My blood sugar has leveled off and on target. What surprised me is that I took to the gym like a duck to water.

Good luck to all.


GOLFLADY11's Photo GOLFLADY11 SparkPoints: (33,404)
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3/5/12 3:04 P

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I'm so glad I found this thread. I am a team member however will introduce myself and heart history. Born with a heart murmur; surgery in 1972; suffered from atrial fib for many years and was on digoxin and biquin meds. Had laser ablasion surgery in 2000 and this cured the AF. However I have been diagnosed again now with an irregular heartbeat. The last couple years I have suffered from shortness of breath (not all the time it comes and goes) but just attributed it to being out of shape. Now I am going to have pulmonary function tests so we will see what that says.

"Fall down 7 times, get up 8" - Japanese Proverb;
The journey is the reward"


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DOGWALKER2013's Photo DOGWALKER2013 SparkPoints: (58,761)
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1/20/12 12:32 P

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Hi! I am new to this team, and wanted to introduce myself. I am 47 and have just been diagnosed with HFPEF (Heart Failure with Preserved Ejection Fraction). In October, I was able to run 2 miles, 3 times a week, and by the time I was diagnosed in December, could barely make it up the steps to my office building. I have been on a beta blocker and water pill for a few weeks now, and bp and fluid retention seemed to be getting better, until a couple of days ago. I had lost 8 pounds of fluid in a little over a week, and was finally able to exercise without getting dizzy and out of breath. This week, gained back 2 pounds in one day, and had to take an extra Lasix pill on top of my daily pills to get rid of the excess fluid. I was wondering if anyone else out there has this condition, and how you are coping? I find it very frustrating to try to lose weight, when I can barely keep the fluids from building up.

"Do or do not! There is no try!" - Yoda
Chris
Kentucky


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MELLABELLAS's Photo MELLABELLAS Posts: 1,769
12/13/11 2:42 A

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Thx Misty! I agree I should look into some kind of prescription drug program for my meds. The lame thing was that a year ago when I was on Diovan there was no generic form of it. I I think now I'll do some research on it to see if it's available.
I'm glad you were able to lower you BP from exercise! Plus your circulation has most likely improved, too. I have been slacking off on my workouts for a month or so. I really need to get back into it!

~Melanie~

~~BLC 21 Sassy Shamrock Sheriffs!~~

*BLC Starting weight 177

*BLC weight goal is 10 pounds


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MISTYBLUE716's Photo MISTYBLUE716 Posts: 1,150
12/11/11 6:26 P

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Hey Mel!!!!! I have high BP too...I'm currently on two different types of meds. I don't have insurance...there are generic forms....I pay 19 for them combined..so not so bad....just a thought. I take attenolol and lisinopril-hctz. I lowered my bp considerably too from working out and changing my eating habits. for a while I wasn't taking meds b/c I "couldn't afford them" but really...I just wasn't managing money..but health is WAY important and NEEDS to be worked into the budget.

anyway....working out..and eating less salt..for sure. I love salty stuff....I just don't use the salt shaker anymore...It used to be a constant..but since my b/f doesn't use it it isn't a norm for me anymore..so that helps ....I need to work on not getting so stressed now! Hope all is well!!!!

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MELLABELLAS's Photo MELLABELLAS Posts: 1,769
12/11/11 6:03 P

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Hi! My name is Melanie and although I haven't been diagnosed with a heart-specific problem I have had extremely high blood pressure since I was 22. I was on some med called Toprol and later Diovan, but since I am 25 I no longer have insurance through my mom's provider. I am med~free.

I stopped smoking after I realized that I would not be able to take my pill every morning. I also quit drinking as much because of how it makes my heart pound in my ears.

I frequently eat too much salt though, which will give me headaches and red cheeks.

If anyone knows any good home therapies for high BP I would love to hear them!

emoticon

~Melanie~

~~BLC 21 Sassy Shamrock Sheriffs!~~

*BLC Starting weight 177

*BLC weight goal is 10 pounds


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PUFFERLOST SparkPoints: (94)
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12/11/11 12:37 P

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just found out that I am adopted and 2 of my sibs have heart problems plus my husband has heart problem. So I need to keep us healthy. Also have a daughter who I want to keep healthy as well.

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12/8/11 9:05 P

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Hi, I'm Mike. i am Diabetic and i saw my cardiologist on 11/21 and when i was there he said i had CAD. i left and it hit me that i didnt ask how that was diagnosed. i dont remember any tests being done. i also have high BP, Cholesterol and Triglycerides. i left a message on 12/6 with his nurse asking how he came across with the diagnosis. I still have not heard anything. I know i am in rough shape. i am on many meds and also on insulin. has anyone gone through this?


STARTING Waist Measurement. 50"

Read WHEAT BELLY: Gives a new meaning to Food Addiction


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4_MY_LIFE's Photo 4_MY_LIFE Posts: 12,961
9/21/11 4:19 P

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Hi, I'm Renee. I have a bicuspid aortic valve, aortic stenosis and ascending aortic aneurysm. I've had the bicuspid valve and stenosis my whole life. I was diagnosed with the aneurysm in 2006. It has been stable since then. My doctors have always told me that as long as it stayed stable and I followed their instructions I wouldn't have to have surgery anytime soon. The cardiologist I saw yesterday said I need it soon. I'm waiting on the translated report so I can get with my regular doctor and we can go over it and then consult with an American doctor. Until then I'm not going to worry but I am going to work harder on losing my excess weight.


***Renee***
Time zone: EST
Maryland


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YANKEEGIRL6's Photo YANKEEGIRL6 Posts: 1,063
9/21/11 9:04 A

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Hello. I'm Denise. I live in Dayton, OH. I've recently been diagnosed with a ventricle septal defect and an enlarged heart. As a child, my doctor suggested for years that I have tests to investigate a heart murmur. My parents never thought it was necessary. It was finally tested after a chest x-ray before a hospital admission for a kidney infection.

I always thought the shortness of breath and chest pains I've had for years were just because I'm fat.


I've got the magic in me.
WGRIMONE's Photo WGRIMONE Posts: 11
9/7/11 12:48 P

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Hi Holly, I don't think I can help you but I understand how you feel. I have been treated from high BP for 7 years and then all of a sudden my pulse is messed up and I got an abnormal ekg. Cardio dr doesnt think it is something bad, but they are running tests to see if they can pinpoint the problem. Like you i get lightheaded, and feel weird then short of breath. I take a zanax and it goes away. Therefore what is pain and what is panic? i especially get severly paniced when I am going for another test (maybe they find something terrible). I guess the importtant thing for both of us is to try and relax. It could always be worse, but my prayer for you and I is that things return to normal. I have not taken care of myself in the last 15 years and now have to lose 100 pounds, quit smoking and start exercising!!! Quite a bit to swallow! Good luck to you and try not to worry.




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JAYNEMARIE58 SparkPoints: (10,043)
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9/4/11 1:59 P

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Heart problems run in my family. I don't have any yet and would like to keep it that way.

Jaynemarie



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MARISERV's Photo MARISERV SparkPoints: (6,992)
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7/20/11 5:01 P

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Welcome to Healthy Hearts, Alex. I had a heart attack 4 years ago and have CAD. There is not a day that goes by that I don't think of my heart. I am here to become as healthy as I can be because of my disease and inspite of it. Much success to you with SP emoticon

Marion

Leader - You're The Boss of You
Leader- Healthy Hearts

Every Morning is a New Beginning



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ALEXZ2011 Posts: 2
7/20/11 4:34 P

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Hi
I am new here and am looking forward to getting to know
everyone I was diagnosed with Idiopathic Hyperthoric Subaotic
Stenosis in 96. I got my first pacemaker at that time
I now have chronic AFIB and go in for cardio conversion every
few months I am on a drug called Amiodarone which is only
given to at risk patients. I know that I have a serious heart
condition but do not feel sick. The doctors say this condition
was caused by Lupus. I have had two ablations and have a
Pacer Difibulator. Biggest problem is AFIB because I do not know
when I am in it. Last time I was in AFIB and flutter for 106 days
did not know until I went to the cardiologist. That is not good.


Edited by: ALEXZ2011 at: 7/20/2011 (16:37)
LVZ617's Photo LVZ617 SparkPoints: (22,493)
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3/15/11 5:14 P

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I joined Spark People about 3 weeks ago. It has been very eye-opening to track my food and see how much I do it. I haven't lost any weight yet, for a couple of reasons. I have "chronic stable angina", which means I get angina with exertion. I have to walk a fine line between increasing exercise and not getting to the point of having to use my nitro. Today I walked further than I have in years - almost half a mile. However, I got chest pain and had to have my husband come pick me up.
I also have the problem that a lot of women do - my symptoms start as fatigue, then shortness of breath, then chest pain.

Women with PTSD co-leader

"Do not be afraid of going slowly; be afraid only of standing still." (Chinese proverb)


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CNIKKI33's Photo CNIKKI33 SparkPoints: (42,493)
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3/8/11 3:24 P

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Hi! I'm new to your team. I'm a 31 year old mother of one from WY. I've been with SP since 2009. I've lost 40lbs and have ran a couple 5k's and thought I was doing great. From December to Feb. I started fighting a bunch of nasty infections including ear infections, bronchitis and the flu. During all that I started experiencing heart palpitations, shortness of breath and chest pressure. My primary doc thought it was panic attacks and basically brushed me off. After going back numerous times he sent me to a cardiologist. She set me up with an event moniter and then diagnosed me with sinus tachycardia. She put me on a low dose beta blocker and told me to up my salt intake to off set my already low blood pressure. I haven't been on it long and am still experiencing the chest pressure and shortness of breath on a regular basis. My EKG's have turned out OK and I have an Echo in another month. I guess I am scared and in denial and am really happy I have found this team.

AMYSMOM2's Photo AMYSMOM2 Posts: 1,875
6/29/08 9:27 P

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Mine is a little parachute-looking thing that fits over the left atrial appendage and keeps clots from forming there. It's really pretty fascinating. Well, it sure is to me!
http://www.atritech.net/device.aspx?id=1
07

I like to smile. It stretches the wrinkles.
------------------------
Words of wisdom should be words of wisdom--Arrested Development
-------------------------
Giving up smoking is the easiest thing in the world. I know because I've done it thousands of times.--Mark Twain


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6/29/08 8:33 P

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Welcome to the team, Charlotte!
Better living through technology - I love it! (Except for having to get hand-inspected at airports 'cause of the metal inside my body...)

-------
Kelly
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On the internet, nobody knows your socks don't match.


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AMYSMOM2's Photo AMYSMOM2 Posts: 1,875
6/28/08 10:26 P

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Hello, everyone. I'm Charlotte and I have chronic a fib. The doctors have tried to restart the proper rhythm and can't and I tried some kind of pretty dangerous medicine they had to administer in intensive care--it didn't work either. My cardiologist got me in a trial study for a device called a watchman. What that boils down to is that I don't have to take Coumadin, only Plavix--AND IT'S WORKING. That and I have to take digoxyn to keep the beat slow. All of that makes it a bit hard to lose weight because my heart rate doesn't climb very high with the meds. Luckily, I feel really good, but it's taking forever to get weight off. My, my, I am the wordy one. Anyway, Hi, ya'll.

I like to smile. It stretches the wrinkles.
------------------------
Words of wisdom should be words of wisdom--Arrested Development
-------------------------
Giving up smoking is the easiest thing in the world. I know because I've done it thousands of times.--Mark Twain


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6/18/08 3:14 P

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Welcome to the team, SKINNYPUP! Keeping track of something *before* anything goes noticeably wrong is a great idea!

-------
Kelly
-------
On the internet, nobody knows your socks don't match.


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SKINNYPUP's Photo SKINNYPUP SparkPoints: (6,675)
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6/17/08 2:11 P

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Hi. New and wide awake facing denial that my tiny but loud murmer (pulmonic stenosis) is indeed a form of heart disease. Even if I was born with it.

I think I'm lucky to be sensitive to it and this knowledge might save my life later. My grandfather died of a heart attack.

(When I'm stressed, I get chest pains)
I also get echo cardiograms every other year since I was 17. I found the murmer after experiencing chest pains from a car accident at 17.

But the sudden death of our Political writer/journalist Tim Russert woke me up. I take decent or better care of myself, but do I really take enough care of my heart?

Anyway. Here I am hoping to better connect to the reality of my situation.


Thanks for making the team, and thanks for listening.

:)


Edited by: SKINNYPUP at: 6/17/2008 (14:10)
I'm only as strong as the coffee I drink and the hair spray I use...

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6/8/08 5:07 P

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Welcome to the team, JENGOJENGO!

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Kelly
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On the internet, nobody knows your socks don't match.


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JENGOJENGO SparkPoints: (9,626)
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6/6/08 5:19 P

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Hi, I'm new to the team. I've got Mitral Valve Prolapse with Regurgitation, Neurocardiogenic Syncope, and "significant palpitations" (that's what the doc's call it b/c they really don't know what's wrong, lol)

I really struggle with fitness!

Rockin' with the Dazzling Diamonds BLC Winter Challenge Team!






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5/27/08 6:27 P

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Welcome to the team, LSKARBOE!

-------
Kelly
-------
On the internet, nobody knows your socks don't match.


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LSKARBOE's Photo LSKARBOE Posts: 16
5/27/08 2:42 P

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I'm just new to sparks. I had a echo. today. Due to PVCs that I was having last week.
Doc. Said it did not look that bad, but wants to see me next week. I know he will want to put me on a plan.

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5/27/08 1:43 A

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I'm on my second pacemaker/ICD and I'm only fifty-mumble!

-------
Kelly
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On the internet, nobody knows your socks don't match.


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GWENROBERSON Posts: 594
5/26/08 8:29 P

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Welcome to this team. I am 70 & have had a pacemaker for nearly 5 yr. Didn't know I had heart trouble till I was in Hospital for tests & my heart stopped 3 times. They did a pace maker defibrillator. I am on my second one. Yes; It is scary when you have heart problems. Heart trouble runs in my family. My youngest bro. had a aorta repaired last week. He is only 60. Welcome, Gwen emoticon

GRANNYOF05's Photo GRANNYOF05 SparkPoints: (73,049)
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5/26/08 6:03 P

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Hi everyone:

I'm new to all of this as of last month. I'm a grandmother in my 60's and was shocked when they told me my main artery to the heart was 90% blocked.

This was when I was taken to the hospital for chest pains. Thank goodness the cardiac doctor on call
did the emergency catherization.

I have been given a medicine induced stent. I am on
several medications. They are now trying to adjust
my meds since I was affected by Loperessor. It gave
me violent headaches. I also had below normal pottasium which caused me to go into the hospital
2 weeks later, with more chest pains.

I am now on Blood pressure medicine, an aspirin
a beta blocker, plavix, pottasium tablet, a stomach neutralizer and a multi vitamin w/iron, as well as
a pill for high cholestoral.

It amazes me how inter-rellated all the other organs
are in your body, once the heart has a problem.

I have a great cardiologist and she keeps me monitored.

I also had a lot of fluid building up in my body, so
I was put on Lassix's also.

I lost over 60 lbs last year on Sparkpeople and WW
and I guess that it was good that I did before all of this happening.

I know the anxiety I feel about the whole matter.

My doctor has also given me Zanex when needed for stress. I have only taken it a few times.

Good luck to all of you and I'm glad to have someone
else to discuss these matters with.

My husband has been a heart patient for over 10 years
with a quadrupal by-pass and 6 stents, so he is very
good at understanding what I am going thru, and I am
very supportive of him and knew exactly what was being told to me, from his experiences.

If any of you would like to vent, please feel free
to either sparkmail me or do it here on the board.

Hugs to all of you,
and God bless,
Granny





Edited by: GRANNYOF05 at: 5/26/2008 (18:02)
Gayle



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2/9/08 11:14 P

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BREEBY, welcome to the team and good luck with your weight loss goals! It sounds like you have several challenges to meet - I guess you must stay busy just trying to keep your body in balance!

Kelly

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Kelly
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On the internet, nobody knows your socks don't match.


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BREEBY's Photo BREEBY Posts: 494
2/9/08 1:51 A

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Hi! I have SVT with low blood pressure. That combined with liver problems has made finding a medicine a bit tricky. I am epileptic and the three conditions seem to agitate one another. I need to be on medicine as little as possible due to my liver, so I am hoping dropping these extra pounds will help.

Starting weight: 186lbs

Goal Weight: 150lbs

Height:5'5"


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HOLLY_1970's Photo HOLLY_1970 SparkPoints: (0)
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1/31/08 4:06 P

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Hi
I have tachcardia, and they aren't sure what the cause is. I am on two beta blockers. Cardeizum and Lopressor.
I don't like taking meds. But it keeps the heart rate down. Once in awhile I will get an attack and it is real scary. I feel really weird in the head and light headed and faint feeling. Then I have to run to the BR and I have loose stools. I get the shakes real bad because I think it is because I am so traumatise by this thing.
They told me I could be panic attacks. But I am not to sure. I check my B/P a lot and sometimes it is up, and my palse is up for no reason. But I usually don't feel it unless I get one of those attacks. I hope someone on here can help me.



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SBNEMITZ's Photo SBNEMITZ SparkPoints: (0)
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1/24/08 4:21 P

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Welcome to the team!
emoticon

The U. S. Constitution doesn't guarantee happiness, only the pursuit of it. You have to catch up with it yourself.
- Ben Franklin


 
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ROBYNHOOD154's Photo ROBYNHOOD154 Posts: 20
1/24/08 4:13 P

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Hi there,

I just joined Spark and am eager to get going.
I have SVT and intermitant atrial fib for reasons that the doctors cannot figure out. I havent had ablation since it is trickier for two conditions so instead I take verapamil daily. It seems to do the trick pretty well (except for a bump in the road here and there).... I am looking forward to getting to know everyone

:) Robyn

to dream of a person you wish to be is a waste of the person you are!


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10/11/07 1:57 A

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Hi LINDA! Welcome to the team. Some meds make it more difficult to lose weight, alas.

Kelly

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Kelly
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LINDA!'s Photo LINDA! Posts: 88,635
10/10/07 11:44 P

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Hi, I am new to this group. I was diagnosed with coronary artery disease when I was 49. I take several medications, took cardiac rehab -- having a hard time losing weight. I do try to keep up with cardio for health reasons....just struggling with diet.

Linda - Florida
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10/3/07 4:26 P

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Thank you everyone!

The U. S. Constitution doesn't guarantee happiness, only the pursuit of it. You have to catch up with it yourself.
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10/3/07 12:29 A

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Welcome to the team, SBNEMITZ!

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10/2/07 7:16 P

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Welcome to the team! Spark is a wonderful place, and the members of this team have a lot of knowledge about a lot of different heart conditions! Best of luck to you!

Edited by: RKBABCOCK at: 10/2/2007 (19:17)
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10/2/07 6:33 P

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Hi! I just joined this team today, and joined SP about a month ago. I am 25 and was recently diagnosed with vasovagal neurocardiogenic syndrome. I also had a mild heart attack two and a half months ago during the tilt table testing (dr error with the IV). Big wake up call. I'm trying to live healthier for my family and for myself. I've lost 4.6 pounds the right way this month, surpassing my goal. Really happy to be here among people who understand the challenges.
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10/1/07 11:33 P

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Welcome to the team, Ann!
The Holter monitor (it's named after a guy named Holter - I know how easy it is to confuse it with the design like a halter!) - provides a lot of useful information, but it's a pain in the patoot to wear for 24 hours.

Kelly

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10/1/07 11:08 P

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Hi there: I would like to join this team. I have atrial fibrillation. I am on dilitazem and 2 baby asprin. Have no restrictions to exercise. Have had some small incidents recently and am waitng for halter monitor. Always have some anxiety about my heart. I am 64.
Ann

Our task must be to free ourselves . . . by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."

"Nothing will benefit human health and increase chances of survival for life on earth as much as the evolution to a vegetarian diet."

Albert Einstein, physicist, Nobel Prize 1921
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8/12/07 2:09 P

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Welcome, Jane!

Rhonda

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8/11/07 3:23 P

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Welcome, Jane!
I prefer to thank science rather than a god, but hey, aren't we lucky we live in an era where this stuff won't kill us!

Kelly
CHF, v-fib, all that stuff

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JUSTJANE47's Photo JUSTJANE47 Posts: 21
8/11/07 11:57 A

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emoticon Hello, my name is Jane and I just found this group! I have heart disease, had 1 stent put in, triple bypass and diagnosed with congestive heart failure. I will not let that get me down. NO WAY. with God all things are possible!!! I joined Weight Watchers online and am currently tracking my 25 points daily. I've walked 30 minutes on the treadmill this morning emoticon
At this time I'm fighting to exercise pain free. Went for another stress test and everything looks good. My cardiologist did increase my Coreg and prescribed Emdur? I will join in cardiac rehab on Aug 20th. I can't wait, I feel I need medical supervision until I feel comfortable working out!
Ok..hope everyone is having a blessed and happy weekend! emoticon

May you always have ~~ love to share ~~ health to spare ~~ friends that care.
With God all things are possible.
If you tell the truth you don't have to remember so much


 
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8/10/07 8:41 P

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Welcome, EMAVERICK! How smart of you to be thinking of your heart *before* something goes wrong.

I do a lot of vegetarian meals, though not all, and I find that having Eden Foods no-salt-added canned beans and canned rice-and-beans on hand makes making low-fat, low-salt veggie meals much easier; all I have to do is toss in some fresh veggies and seasoning.

Kelly emoticon

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8/10/07 8:04 P

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Welcome to the team, EMAVERICK!

Rhonda

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8/9/07 1:30 P

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Hi All,

I've made it down to my goal weight, am doing pretty well on exercise, struggling a bit with maintaining, but nevertheless maintaining.

I don't have heart disease, yet anyway, but figure a heart healthy diet would be a good way to go. I am 44, so getting up there. I do have a heart murmur, that dr's tell me will have no effect on my longevity.

I'm interested in the Ornish diet, but haven't figured out a way to make it work. I tried to do it years ago, and felt better for the two weeks, but the cooking and shopping was so high maintenance. Now I am not eating so far off it, but having to balance the proteins seems hard.
Anyway, Hi emoticon

Hugs -- Edith Started at 220, made goal 160 now I have to get there again :-)

Keep Dancing. Joy is the best exercise.


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7/22/07 6:57 P

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Welcome, Brittany! Do you have a local cardiac center where you could exercise under supervision? I know how scary it is to start an exercise program with heart problems! Best of luck to you!

Rhonda

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7/21/07 4:11 P

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My husband the computer geek always refers to my interrogations as "data dumps." Which I understand completely, but which confuses the telemetry tech.

Kelly
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7/21/07 2:54 P

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I walk on a treadmill very slowly for 40 mins now. 6x a week. at cardiac rehab I walk for 22 mins and use reclumbent stepper machine for 17 mins. I am on medication to soften my heart that is stiffing. I have to use O2 at 4 liters to exercise. Have a good day Sandra

 
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7/20/07 8:56 P

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When I am healthy I do alot of exercise. I walk, bowl, work out at the gym, chase my 5 year old niece, Play with the Girl Guide Unit (5-7 year olds), and garden. I am sure I have forgotten some stuff too.

A person's task is to hear the Lord saying to them everyday "I have chosen you and you are precious and you are beautiful and I love you".





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7/20/07 4:54 P

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I don't exercise much. When I took a stress test, my EF dropped from 20% down to 10% at the very first time they increased the level. So, no exercise that is in any way aerobic/cardio. I depend solely on diet to control my weight.

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7/20/07 2:45 P

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Hello I am new to your team and wanted to tell you about myself. I am 24 and have cardiomyopathy. I was diagnosed in 2002 was told by one doctor that my CHF is from the chemo I was given when I was young and another said it happened when I had a multiple organ failure. Who knows... I have improved my EF with the weight loss but I can't correct the heart stiffness. My biggest struggle is my pulmonary affects other than salt intake. How do you exercise with your heart problems?

 
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7/5/07 8:56 P

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Wishing you the best and sending prayers your way.













Forget the potholes in the road and celebrate the journey instead.







- W.J. Camero









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7/5/07 8:46 P

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Well I went to have my pacemaker interrogated today. I have had 100 episodes in 6 weeks. Yep you heard that right. I am now awaiting a 3rd ablation. It should be within the next 4 to 6 weeks. I hope.

A person's task is to hear the Lord saying to them everyday "I have chosen you and you are precious and you are beautiful and I love you".





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6/27/07 1:45 P

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Welcome to the group!!

Rhonda

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6/26/07 9:47 P

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I also have a pacemaker. I will be 36 on July 11. I find it takes a while to get use to it and also to the changes they make each time it is interrogated.

A person's task is to hear the Lord saying to them everyday "I have chosen you and you are precious and you are beautiful and I love you".





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6/26/07 8:02 P

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Welcome! I've got a defibrillator/pacemaker, too (I'm 53). It does take a little getting used to!

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6/26/07 7:55 P

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Hi everyone. I'm now 68 years young and have been retired for about 4 years and loving every minute of it. A year ago Jan, I was diagnosed with atrial fibrillation and high BP. After having a stress test and wearing a halter monitor for 48 hours,it was decided that I needed a pacemaker which was put in a year ago April. I had been so tired for over 6mo. attributing it to the stress of building a home and moving to another state. Even after the pacemaker, it took me nearly 3 months before I started to feel like the energizer bunny.
Because I have some degenerative disc disease in my lower back, my exercise consist mainly of walking and very low impact aerobics.

My husband and I share a home with 2 very spoiled cats. They think this is their house. Shhhh

My highest weight was 239 - a couple of times and am now working to get into the 170's and eventually into the 150's. It sure is not easy like it use to be. A pound at a time - an inch at a time.

Enjoy reading your bio's and hope to be a regular part of your group.













Forget the potholes in the road and celebrate the journey instead.







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6/17/07 11:31 P

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Welcome, Sandra!

Rhonda

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6/17/07 10:44 P

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Let me know if you'd like any help with the low-sodium stuff. I've posted several low-sodium recipes already. I've had CHF for almost 5 years, and have done a fairly good job of investigating and sticking to a lo-so diet. (Although today I was naughty and ate something at a restaurant which had a slightly salty sauce - so double Lasix tomorrow morning!)
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6/17/07 6:50 P

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HI, My name is Sandra and I am 61 yrs old and recently dx with stiffness of the heart and high bp and Pulmonary hypertension. I have not been able to do anything for 6 months now attending cardiac Rehab classses and up to 10 mins on reculumbent bike. I am on O2 24/7 and especailly when moving. I have been really frustrated until a month ago when the doctors finally discovered what was wrong with me. I have been having problem with the low sodium diet and picking more heallthy choices. I am a diabetic and have the carb and caloried deal down actually I have more problem eating enough. Thanks for letting me vent
Sandra

 
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6/10/07 7:39 P

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My husband joined Spark about a week after I did, because he saw how much it was helping me, and also because he wanted to see why I was having so much fun! LOL!! We compete against each other with the SparkPoints, and we also get our cardio together most days. Good luck to both you and your husband!

Edited by: RKBABCOCK at: 6/10/2007 (19:40)
Rhonda

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AERIALROBS Posts: 76
6/10/07 7:02 P

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Hi Everyone,
My husband has a heart condition, for three years his cardiologist said you need to take 10 pounds off and for 3 years he put 10 pounds on, now he needs to take off 30, actually 37.
So I started my program , my new life style of eating a few months ago. And he has been watching. Well 2 week ago he said I want to start to lose weight. so far 7.5 pounds. Amen to that.
He is doing the weight watchers. He is very competitive. So I mixed it up a bit. If he has a cereal bar , I say you get 2 points for that. For him the points are reward not a guide. This is what works for him. He is so please with himself..
You can lead a horse to water but you canít make him drink it . So I just keep my mouth shut instead of saying things like , Your heart is working very hard with the extra weight. And low and behold the horse asked for a drink of water. He also joined spark people last week.


"Things Don't Just Happen. They are MADE to Happen."-JFK


It is not enough to understand, or to see clearly. The future will be shaped in the arena of human activity, by those willing to commit their minds and their bodies to the task.
Robert Kennedy
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6/9/07 7:35 P

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Kelly, I did not know that Coreg affected your temperature regulation! I wonder if that's why I get so cold?? Thanks for the info, especially with the temperatures rising! I try to get my cardio done as early as possible, before it gets too warm, or in the evening when it starts to cool off. I also try to stay inside when the humidity gets high. I guess I'm lucky, because I don't know that it affects my energy level too much. But I do have to take naps some days, so maybe that's why? Again, thanks for the info!

Rhonda

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6/9/07 6:07 P

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Welcome to the idiopathic cardiomyopathy club! Me too. They blame it on a virus, but it really is "we don't have the foggiest idea what really caused it." What's your ejection fraction?

I've been running a blog about my cardiomyopathy/CHF called "My Adventures With Heart Failure" which I just moved from Blogspot to LiveJournal; you can read it at http://bunrab_mawhf.livejournal.com . It may answer some of your questions about what to expect. Let me know if you have other questions; I got diagnosed almost 5 years ago, and I have done a LOT of reading and research since then.

Kelly
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6/9/07 6:03 P

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Hi! I'm Kelly. I got diagnosed with congestive heart failure, due to idiopathic dilated cardiomyopathy, almost 5 years ago. (Which means I'm just about hitting the 50% survival period, whee.) Anyhoo, I have an implant, combo ICD/pacemaker; the pacemaker was supposed to be bi-ventricular, to help my discordant heartbeat, but they couldn't get the third lead in. This is my second pacemaker, 3rd try at getting a third lead in, top surgeon at Johns Hopkins - so I don't guess it's gonna happen at all. So my EF remains at 20% on good days, and drops to 10% if I attempt to exercise - my stress echo results were so alarming they had to stop the test early.

Why do I mention that? Because it means I CAN'T EXERCISE. Cardio and aerobic exercise are right out of the question; even gentle walking can make me weak and dizzy after 1 block. So I have to control my weight solely through watching my diet, which is a neat trick. (And I get hits against earning Spark Points, too, since I can't track my cardio exercise or strength training - and also because I need about 12 hours sleep in a 24-hour period, usually 10 hours at night and a nap in the afternoon, sometimes more if I've been doing anything at all strenuous, like clean the litter boxes. (We have 4 pet rabbits, 3 chinchillas, and 2 cats.)

So. Meds list: Coreg, Lasix, spironolactone, digoxin, Diovan, Lipitor, levothyroxine, Wellbutrin, Prozac, aspirin, and Singulair during allergy seasons.

Whew, that was probably TMI, which tells you something about me emoticon

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6/9/07 5:55 P

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Coreg will make you tired. Basically what it does is block adrenaline - that's what "alpha" and "beta" are, alpha-adrenergic and beta-adrenergic enzymes. So your body can't use adrenaline to give you energy, when you're taking Coreg. It also, incidentally, interferes with your body's ability to regulate its temperature, especially in hot conditions, so you want to be really careful about going outside when it's over 90 degrees F.

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6/9/07 1:21 P

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Hmm, that's interesting! I guess if it made me tired when I first started taking it, I didn't notice! Of course, I was recovering from the heart attack and bypass surgery, plus still recovering from having the baby!

Rhonda

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MINDY_SUE Posts: 1,983
6/9/07 10:50 A

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I am on Lisinopril, Coreg & an asprin. He told me it was the Coreg that was making me so tired. I feel a little better today, but it's early.

Edited by: MINDY_SUE at: 6/9/2007 (10:50)
melinda

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\/)"(\/
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6/7/07 8:48 P

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Hope you start feeling better! What medications are you on, if you don't mind me asking? I am down to taking Coreg and an aspirin every day. I was taking 4 different meds plus aspirin right after my heart attack!

Rhonda

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MINDY_SUE Posts: 1,983
6/7/07 2:19 P

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Thank you for the welcome.

The medication my cardiologist put me on is wiping me right out. I can hardly function. I called him & he said to keep taking it for 2 more weeks, to see if my body will adjust. If it adjusts any more, I will be in a coma.

melinda

,-._,-.
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oo-oo



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STARKEY's Photo STARKEY Posts: 1
6/6/07 2:44 P

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Hi everyone My problems started when I had my appendix out but fluid in my pelvis showed all I had was an ovarian cyst then my temp shot up and I was in the hospital for 4 weeks before they realized I had gotten a blood infection that was eating my heart away(my white count was normal when I went in so it must have been from the surgery) after 4 months in the hospital I came out with a pig valve, a pacemaker and one rebult wall in my heart. that was 10 years ago since then I have had one more heart surgery to have a human valve put in and 2 pacemaker surgeries. I gained over 40lbs with my 1st operation, I was off work for 2 years and everytime I seem to be getting some off Something else happens. I have an active job so working out is the last thing I want to do, I'm afraid I'm getting to comfortable at this weight because I have an excuse to be too tired to do anything. The depression will fade girls its just the tramatic stress disorder that takes awhile to figure out, I couldn't remember my phone number or I would make plans with 4 people for the same day same time. I would argue with my boyfriend about stuff that he was right about He just thought I was crazy but I'm ok now I think!!

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6/6/07 11:53 A

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Welcome, Melinda!

Rhonda

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NEWBEIN's Photo NEWBEIN Posts: 715
6/6/07 10:44 A

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Welcome Melinda~and I so know what you mean about "hating" to have to join a group about Heart Problems..UGH! But I'm so glad that there are others that know somewhat of what you go through. I was diagnosed with my condition on Mother's Day...I would've preferred flowers.

Shantel

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MINDY_SUE Posts: 1,983
6/6/07 5:23 A

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I'm new to this team, and let me tell you - I hated the fact that I am able to join it.

This nightmare started May 8th, when I went to the doctor about migraines. I casually mentioned the chest pains, that I thought were from all the weights I do.

I had all my blood work done, and it all came back great. I am so proud of my cholesterol - 155 (HDL 52). My blood pressure is borderline - which I know is always higher when I am sitting in the doctors office.

My next trip was to the hospital for an Echo/Stress test, which they couldn't do (the stress test part) because I was having way too much arrythimia - so I was scheduled for a different kind of stress test that following Monday. Those tests took 5 hours.

I had a heart cath done on May 23rd (our 27th anniversary!). Thank goodness there was absolutely no blockage. YEAH!

I had my cardiologist appointment on the 31st, and finally have a diagnosis. I have Viral Cardiomyopathy.


I am now on 2 different medications, and will see him back in 1 month to get them adjusted. I will go back in 6 months for another echocardiogram to see if there has been a change. I am still having the chest pains, but was told not to worry - they are caused by my heart being inflamed & effecting the other surrounding organs. I have trouble breathing at night while laying flat, so I prop myself up - this too I thought was from working out.

I got the "thumbs up" to resume my regular workouts and yesterday was my first day back since May 8th when all this started. I need to lose weight (duh!) so my goal for my 6 month appointment is 20 pounds.

Both my doctors feel that there will be a change for the good when I have the next Echo done. In the mean time, I am going to try real hard to go back to normal living, eat right & lose weight.

Some days I'm doing ok, some days I'm not. Yesterday was a bad day - I was so exhausted I slept pretty much the entire day.

I'm still trying to get a grip on what I am dealing with. I'm just hoping that my doctors are right & I will come out of this ok. My husband won't even talk about it - at first he was making jokes, now he says nothing. I'm trying to find some good information on it, but everything I find here on the internet is the same information, and it doesn't sound good! I might call my doctor tomorrow and ask him - I want to learn as much as I can.

~ melinda ~
emoticon

p.s. WORD OF WARNING! Do NOT watch the movie BEACHES if you have Viral Cardiomyopathy. Thank goodness it was filmed in 1988 and medicine has come a long way since then.

Edited by: MINDY_SUE at: 6/6/2007 (05:34)
melinda

,-._,-.
\/)"(\/
(_o_)
(V^^I
((|| ||))
oo-oo



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RKBABCOCK's Photo RKBABCOCK SparkPoints: (36,688)
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6/5/07 1:32 P

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Shantel, that's great! Hope you continue to do well!!

Rhonda

Upcoming Races:

11/6/10 - Indianapolis Monumental Half Marathon

2/27/10 - Disney Princess Half Marathon


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NEWBEIN's Photo NEWBEIN Posts: 715
6/5/07 11:26 A

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Hey Healthy Hearters..

Just happy to report that my visit to the cardiologist yesterday went great! I only have to follow up with him every 3 months unless I have some complications! emoticon

Shantel

All We Have Is NOW..so what are YOU doing with YOUR NOW?


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RKBABCOCK's Photo RKBABCOCK SparkPoints: (36,688)
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6/4/07 6:52 P

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Thanks, Robin! We just got back from vacation, and I was pleasantly suprised that I hadn't done too much damage to the scale while we were gone!

Rhonda

Upcoming Races:

11/6/10 - Indianapolis Monumental Half Marathon

2/27/10 - Disney Princess Half Marathon


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ROBBIEROB1973's Photo ROBBIEROB1973 Posts: 35
6/4/07 5:50 P

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Hi Carla,
I was just thinking how scry itmusthave been t havea pacemaker at nine!! You were just a year younger than my son is now!!I couldn't imagine having to see either of my children go through that. I am glad you joined our group.
Robin

"People love going along with the idea of a beautiful pig. It is like a conspiracy." ~ Jim Henson


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ROBBIEROB1973's Photo ROBBIEROB1973 Posts: 35
6/4/07 5:48 P

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Welcome to all the new people that joined our group. I am sorry I haven't been on here much. My husband and I run our own business and I am trying to get a business loan. Things have been busy. They always are in the summer. Also, I wanted to give Rhonda a big "You go girl!!' i noticed that you are down quite a bit since the last time I logged in!!

"People love going along with the idea of a beautiful pig. It is like a conspiracy." ~ Jim Henson


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RKBABCOCK's Photo RKBABCOCK SparkPoints: (36,688)
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5/30/07 6:01 P

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Welcome, everyone!

Rhonda

Upcoming Races:

11/6/10 - Indianapolis Monumental Half Marathon

2/27/10 - Disney Princess Half Marathon


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VIRTUE49's Photo VIRTUE49 Posts: 11
5/29/07 9:28 P

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Hi, my name's Carla and I'm 20 years old. I've had a pacemaker since 1996 (I was 9) and I had it changed in 2004. In spring of '06 I also had a problem with blood clots in my lungs but that's all taken care of and I've been assured that there's very low risk of them returning. I went from 156 down to 125 when I was a senior in high school but my weight has been fluctuating by 20 pounds for the last year so here I am. Plus I finally realized I should be taking care of myself and doing cardio workouts.

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NEWBEIN's Photo NEWBEIN Posts: 715
5/29/07 10:05 A

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Hey Welcome to all the newbies..and sorta newbies. :) This can be all so overwhelming. I hope we can support each other through our unique challenges.

Shantel

All We Have Is NOW..so what are YOU doing with YOUR NOW?


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SPIRIT42004 SparkPoints: (0)
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5/28/07 7:48 P

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Hi! I just joined! With a strong family history and half my immediate family dead of heart failure and fatal arrhythmias, having been diagnosed with cardiomyopathy and two leaking valves, I guess I belong here. At least, the last echo showed no sign of regurgitation nor pulmonary hypertension, plus I had a great ejection frction; so i hope my fatigue is merely the side effect of blood pressure meds and over-weight. My blood pressure is sub-normal, in fact and they say that's the way they want to keep it. Forget oxygen to the brain and muscles. He He. Shoot, all this is enough to make one sick, swesar, or swesr off doctors (and their portents of doom!)
emoticon

Edited by: SPIRIT42004 at: 5/28/2007 (19:51)
"It is only with the heart that one can see rightly;
what is essential is invisible to the eye."

St. Exupery


 
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WILDCAT-44's Photo WILDCAT-44 Posts: 61
5/27/07 10:59 P

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Hello, I join this team a few weeks ago but have had the chance to introduce myself. I am a 44 year old wife and mother. I also have 2 beatiful granddaughters. I suffered a heart attack in 2002 and had a stent put in at that time. I since have been diagnosed with angina and also had another stent last year. I stumble upon this site looking for something to help me track my food. Looks like a wonderful site. Just looking to better my health so I can be here to enjoy my grandbabies.

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TULIPS4ME's Photo TULIPS4ME Posts: 655
5/24/07 1:36 P

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I was diagnoised with two forms of angina and have had no surgery. What was that surgery and what were the results?. They give me catherizations and two different kinds of stress tests and they do change the meds Iam on but no surgery. I just joined this group and am interested in hearing how people do lose the weight from weight gaining drugs. Iam also interested in finding heart healthy receipes since I have been grabbing a few here and there. I weigh in at 200lb and do excerize but see results very slowly. How are all of you doing today and why not let me know how far you have come in your journey. Glad to be here, would have been sooner but didn't know this group was here.

Iam am 169Goal weight is 145pounds remember to take one day at a time, The fastest runner doesn''t always win the race. Your determination is key to success



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ROBBIEROB1973's Photo ROBBIEROB1973 Posts: 35
5/22/07 6:17 P

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Hi Shantel,
I am so sorry I didn't welcoe you sooner!! I am horrible. I just noticed you in the recipes thread. That recipe sounds delicious by the way. I am glad you are here. :) It is very nice to meet you.

Robin

"People love going along with the idea of a beautiful pig. It is like a conspiracy." ~ Jim Henson


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