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KSGAMMA's Photo KSGAMMA Posts: 2,449
7/11/13 7:23 P

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it does seem strange having so little water doesn't it! I have a small machine in my bedroom that checks my ICD - if my defibrillator were to go off, it would send a report to the Heart Clinic - I don't know what good that does in an emergency as they are only open M-F 8-5, lol. But, I can send in a reading instead of going to the clinic, as well. They still have me come in every 6-8 months though.

Lin from Peterborough, ON., Canada

10 STEPS TO SELF-CARE - If it feels wrong, don't do it; Say "exactly" what you mean; Don't be a people pleaser; Trust your instincts; Never speak bad about yourself; Never give up on your dreams; Don't be afraid to say "No"; Don't be afraid to say "Yes"; Be kind to yourself; Let go of what you can't control; Stay away from drama and negativity as much as possible. (unknown)

Lost 48 lbs. in 2012 & 13 but gained 30 back!


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RUSSELL_40's Photo RUSSELL_40 Posts: 16,826
7/10/13 9:34 P

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I spent a night in the hospital, and the tests they ran came up okay. They attributed the shortness of breath, and chest pain to too much sodium, and water intake.

I take Spironolactone, and Digoxin, as well as Coreg, Furosemide, potassium, aspirin, Lisinopril, Doxasozin mesylate, as well as Warfarin at night, and Allopurinol.

My kidney function is wonderful, and I don't have any abdominal pain, or trouble with my lungs. They are clear. They did cut me off my night lasix, and told me to drop from 12-15 glasses of water daily to 1 liter, which I find very hard to do.

They say my back pain is unrelated to my heart problems. My enzymes are fine, and my last echo showed an ejection fraction over 35 %, whereas before it was 16%. They have halved all my pills, and gotten rid of my cholesterol, and diabetes meds, as well as this night Lasix. Overall, I feel great, except for the back pain. It may be from sleeping wrong, or just not being very active.

FIRECOM - sorry to hear that you are doing poorly. I had a huge problem when I found out I had CHF back in 2001. I was on oxygen, and slept a LOT, but was always tired. I kept getting worse, and worse news, till I started low carb 4 years ago. This reduced my cravings, and let me lose 140 lbs. I think that along with my youth ( 39 ), and weight loss, that 95% of the time I feel normal. Is your BP low because of Lasix? Mine was 95/57, which has been the norm for about a year, and I wonder if they are cutting my meds to push that a bit higher. My nurse re-checked it because she thought the pump was broken. Hopefully by September you get to a point where it is possible to travel. I tend to have problems for a few weeks, and then everything clears up. My largest problem has been swelling in my legs though, not any in the abdomen.

Part of the reason that CHF symptoms surprise me when they happen is that in 50 weeks of the year, I feel great, and exercise daily. I need to get a heart valve changed in the next few years, and hopefully that gets rid of some more issues.

On a lighter note Firecom, they interrogated my ICD at the hospital, but now they have it on wi-fi. They had an antennae they set on the desk, and it transferred everything from my chest to the computer, while he sat in the chair, and I sat on the bed. Still sucked to be in the hospital, but it was pretty cool. I guess you can have them in your home, and not have to go to the doctors every 3 months for a download, but I don't think it is that big of a deal, and these days, even a trip to the doc is a social event. I can't eat out at restaurants, so I spend a lot of time just sitting at home.

"We can't solve our problems with the same thinking we used when we created them "

- Albert Einstein

“Whether you think you can, or you think you can't--you're right.”

- Henry Ford


 current weight: 179.6 
 
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FIRECOM's Photo FIRECOM SparkPoints: (107,673)
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7/8/13 12:31 P

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Hi Russell. I was dx'd with CHF many years ago and now I fear that it is back. The swelling in my legs and abdomen is very significant. The treatment years ago was Lasix but now my blood pressure is very low (typically 100/60 and my cardio does not want me to use it but has, at least for now, Rx's Digoxin to help the heart pump better and I am on Lasix 20 mg, then next day, 40mg. Results in 20 mg for 3 days a week and 40 mg for the other 4 days. I am seeing no improvement in the edema.

Couple this with a TSH 4 x normal, which might add to the edema matter and serious anemia and insomnia, and things are really dicey for me right now.

I really have my heart set on traveling the 600 miles in late September to my 60th HS reunion and the Cardio says no as I tend to sleep most of the day.

"It is easier to raise good children than to fix bad men" by Fredrick Douglas.

Co team leader for Living With Diabetes team.

Co Leader for Healthy Hearts team.

Leader of Gilbert Speaks team.


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KSGAMMA's Photo KSGAMMA Posts: 2,449
7/8/13 10:41 A

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Russell - I've just come out of a 1 month session with Congestive Heart Failure. I usually don't stay in so long but with my weight loss, it turns out I was being over medicated and my kidneys decided they'd had enough and were going to go on holiday. I was cut off most of my Diabetic meds and my heart meds - including my Furosimide - what you call Lazek. This was to give my kidneys a rest and in the hope that the weight loss would be enough to sustain me without the meds. It wasn't for the heart. This time, I had little to no swelling but weight gain so I didn't recognize the onset. I have a pacemaker/defibrillator in my chest with an alarm that goes off once an evening if I've gone into heart failure. It went off 4 June and didn't go off again until 4 July,. This time, I got pains in my back between my shoulder blades, I developed a very very deep cough, and started hacking up all kinds of stuff. It wasn't coloured and wasn't infected. An x-ray to see if I had pneumonia showed no infection but definite fluid in lungs from heart failure. I had to go back on my Lazek but only 3 20-mg tablets a day instead of the 3-4 I am usually on when in failure as well as the 2 doses of another really strong one that knocks it out of me that I usually have to take when in failure. Because I only had the 3 pills, it took the whole month to clear it up, with continued weight loss. Usually I'm on 2 Lazek a day plus one in the morning called Spironolactone. I have to take mine in the day time - how do you manage to sleep taking them at night? - I'd be up peeing all night, lol. I hope you get the back pain checked out - if you have the excess fluid in your lungs - you need to get rid of it - coughing and/or medication, and you need to have your kidney function checked if they up your meds while clearing it up. The kidneys really dislike the water pills! I was threatened with dialysis when my function went south. Don't leave it - don't wait for your 3 month check-up - get in sooner if you can. Good luck.

Lin from Peterborough, ON., Canada

10 STEPS TO SELF-CARE - If it feels wrong, don't do it; Say "exactly" what you mean; Don't be a people pleaser; Trust your instincts; Never speak bad about yourself; Never give up on your dreams; Don't be afraid to say "No"; Don't be afraid to say "Yes"; Be kind to yourself; Let go of what you can't control; Stay away from drama and negativity as much as possible. (unknown)

Lost 48 lbs. in 2012 & 13 but gained 30 back!


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BEBARB149's Photo BEBARB149 SparkPoints: (50,100)
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7/8/13 9:29 A

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You really have to watch the salt with CHF. I think you can buy unsalted canned beans. Hope you start to feel better.

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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RUSSELL_40's Photo RUSSELL_40 Posts: 16,826
7/7/13 10:41 P

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It started a few weeks ago. I felt soreness in my back. Over the next few weeks I felt pain in my shoulder, and Saturday it felt like lactic acid burn when you lift weight. I got the familiar fluttery feeling, and neck pain, and felt queasy, which was new, like the back pain. Felt like a bruise, right in the center of my back. I had some chest tightness, and shortness of breath, and even some twinges.

I have worked back down to 220, so otherwise have felt good, and started volunteering more, as well as played basketball July 4th, and 5th. I also am eating low carb, but decide to up carbs to add in beans. Of course I went with convenience, and rinsed off canned beans, instead of cooking fresh ones, with less sodium. At the same time, I had pressured my doctor to cut my Lasix from 80 in the morning and 40 at night to just the morning pill. So I was upping sodium, and lowering my diuretics at the same time as I was increasing exercise, and volunteering more.

I didn't think the back pain was related. Mainly because I have been losing 3-4 lbs a week ( why I added beans, to slow that down ), and felt good for a long time. Sometimes I forget that i have a heart problem, until my 3 month check-ups

I am cutting salty beans , and will resume having them when I feel better, but cook fresh ones instead. I also have resumed taking the night Lasix. Hopefully with sleep this will be enough to get back on track.

"We can't solve our problems with the same thinking we used when we created them "

- Albert Einstein

“Whether you think you can, or you think you can't--you're right.”

- Henry Ford


 current weight: 179.6 
 
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