I spent a night in the hospital, and the tests they ran came up okay. They attributed the shortness of breath, and chest pain to too much sodium, and water intake.
I take Spironolactone, and Digoxin, as well as Coreg, Furosemide, potassium, aspirin, Lisinopril, Doxasozin mesylate, as well as Warfarin at night, and Allopurinol.
My kidney function is wonderful, and I don't have any abdominal pain, or trouble with my lungs. They are clear. They did cut me off my night lasix, and told me to drop from 12-15 glasses of water daily to 1 liter, which I find very hard to do.
They say my back pain is unrelated to my heart problems. My enzymes are fine, and my last echo showed an ejection fraction over 35 %, whereas before it was 16%. They have halved all my pills, and gotten rid of my cholesterol, and diabetes meds, as well as this night Lasix. Overall, I feel great, except for the back pain. It may be from sleeping wrong, or just not being very active.
FIRECOM - sorry to hear that you are doing poorly. I had a huge problem when I found out I had CHF back in 2001. I was on oxygen, and slept a LOT, but was always tired. I kept getting worse, and worse news, till I started low carb 4 years ago. This reduced my cravings, and let me lose 140 lbs. I think that along with my youth ( 39 ), and weight loss, that 95% of the time I feel normal. Is your BP low because of Lasix? Mine was 95/57, which has been the norm for about a year, and I wonder if they are cutting my meds to push that a bit higher. My nurse re-checked it because she thought the pump was broken. Hopefully by September you get to a point where it is possible to travel. I tend to have problems for a few weeks, and then everything clears up. My largest problem has been swelling in my legs though, not any in the abdomen.
Part of the reason that CHF symptoms surprise me when they happen is that in 50 weeks of the year, I feel great, and exercise daily. I need to get a heart valve changed in the next few years, and hopefully that gets rid of some more issues.
On a lighter note Firecom, they interrogated my ICD at the hospital, but now they have it on wi-fi. They had an antennae they set on the desk, and it transferred everything from my chest to the computer, while he sat in the chair, and I sat on the bed. Still sucked to be in the hospital, but it was pretty cool. I guess you can have them in your home, and not have to go to the doctors every 3 months for a download, but I don't think it is that big of a deal, and these days, even a trip to the doc is a social event. I can't eat out at restaurants, so I spend a lot of time just sitting at home.
"We can't solve our problems with the same thinking we used when we created them "
- Albert Einstein
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