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RUSSELL_40's Photo RUSSELL_40 Posts: 16,790
11/28/12 3:47 P

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I was at 16% ejection fraction, and am on my second ICD @ 38 years old. I have been taking Lasix for the whole 11 years, and I had diabetes, and swollen ankles. I even lost the hair on my lower legs, up to almost the knees, from nerve damage.

I started low carb 3.5 years ago, lost 138 lbs so far, my BP is down to 95/58, and I am off all diabetes, and cholesterol meds now. Best of all, since low carb has a diuretic effect, I stopped having wild swings in water weight. I have veins in my feet, and calves now, plus my ejection fraction is 45% now. After 7 years of bad news, I only hear improvement with every test. They have halved all my BP meds, and cut 8 pills a day away. I am hoping to drop my lasix by 33% with my next doctor visit.

If you can't do as much exercise, focus on the diet. I was 361 when I started, and getting the mail was exercise. Now I do 90 minutes walk a day, and play basketball sometimes. Weight loss will help with everything. You need to get that BP down quickly. Ask for a referral to a dietitian if you need help with information on healthy eating. Cut out sugar and salt.

I once had to sign a release form at the doctor's. My BP was high, and that got me worried, and they kept giving me these small pills, and re-testing. Every time it was higher. Doctor's offices may be something that increases your BP. If you can feel tremors in you head, or pressure though, that should be your # 1 concern right now.

Hope you see some improvements soon.

"We can't solve our problems with the same thinking we used when we created them "

- Albert Einstein

“Whether you think you can, or you think you can't--you're right.”

- Henry Ford


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SHADOWROSE45's Photo SHADOWROSE45 SparkPoints: (4,845)
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10/9/12 1:00 P

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Update on the water retention issue. Went to the doctor yesterday. My legs were swollen, lungs congested and BP at 205/107. Needless to say I was there for hours as I refused to go to the hospital.

Doc thinks possible CHF, I disagree. I was prescribed a ton of new meds including a third blood pressure medication and LASIK for the swelling. It was pitting by 3pm yesterday afternoon.

He was more concerned with the BP that took two doses of rapid acting lowering BP med to get it down.

I've been walking every day, and apparently, it's caused bursitis in my knees, worse in the right. All the walking for my two apps had me in so much pain, I'm still confinced the high BP was pain related.

I had to promise to go straight to the lab and to ome back Wen for a Doppler study to check for clots. It's not clots, I've had clots and take 10mg of warfarin a day for that issue.

My BP had actually been lowering since I've been her on SP and exercising more. Now, they are saying I can't go walking. I HAVE to walk. It's the only real exercise I can do.

My daughter wouldn't let me go do our nightly walk, I had to settle for a snails pace on the treadmill, which is fine, My knees weren't up for more. Did my mile and a half, than sat with ice and elevated two hours.

Woke up today with minimal knee pain and much less back pain, and that's the issue. When I don't walk, I wake up in a lot of pain. It's hours before I can do anything. If ai walk, I wake up feeling better than I have in ten years.

So, I'm afraid to take the BP today. Head is in mini- explode which means my BP is high again. Darn it, I don't WANT to be in the hospital. I'm a very bad patient. But, I don't want to stroke out, either, so if the new meds don't work and it's still high, off to the darn ER I go.

Thanks for the replays, by the way. I at least have lost two pounds since my last weigh-in. Does anyone ever feel they are being sabatoged?

I will be thinner and healthier if it kills me. We don't say diet in our house-ever. Diets fail!


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SHADOWROSE45's Photo SHADOWROSE45 SparkPoints: (4,845)
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10/2/12 12:35 P

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Hi

I know this isn't a very current topic, but is there any natural remedy for fluid retention? My legs are hugely swollen every day.

I'm losing inches in my waist, ars and things, but my weight goes up as ,uh as 5 pounds in one day. I know it's water.

Help

I will be thinner and healthier if it kills me. We don't say diet in our house-ever. Diets fail!


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FIRECOM's Photo FIRECOM SparkPoints: (107,673)
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8/3/12 11:48 A

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I am still having intermittent water retention problems. Gained 2 lb just yesterday and took lasix this morning. I know my cardio would be unhappy with me, but I dont like water gain. I suspect that all of us self medicate on occasion.

"It is easier to raise good children than to fix bad men" by Fredrick Douglas.

Co team leader for Living With Diabetes team.

Co Leader for Healthy Hearts team.

Leader of Gilbert Speaks team.


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TECHDOC's Photo TECHDOC Posts: 115
5/17/12 1:15 P

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I agree, the more diuretics, the more fluid i want. The less meds then the less i drink and still come out with the same BNP. i am on Demadex and zeroxillin. If i can skip the Zeroxillin then i feel much much better.

Hearts4Bart www.hearts4bart.com


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YANKEEGIRL6's Photo YANKEEGIRL6 Posts: 1,056
5/14/12 1:36 P

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I have much better results controlling fluid if I take smaller doses of lasix every day rather than a larger does whenever my shoes and rings get tight.

Honestly, I don't think it does anytthing for or against weight loss, but I also have learned to recognize the signs of fluid retention (or how I feel when I know I've gotten rid of the water) and not confuse that with weight loss or gain.


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FIRECOM's Photo FIRECOM SparkPoints: (107,673)
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5/10/12 11:33 A

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My cardio took me off lasix in an attempt to raise my blood pressure but I still have a problem with water retention so I will sometimes take it and when I do, I will see a 4 to 6 lb drop. When I was in the hospital in January for a serious intestinal bleed, they gave me huge doses of lasix, as well as 5 units of blood, and lost over 17 lb over 3 days. Tis a delicate trip we take, eh?

"It is easier to raise good children than to fix bad men" by Fredrick Douglas.

Co team leader for Living With Diabetes team.

Co Leader for Healthy Hearts team.

Leader of Gilbert Speaks team.


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K1TT3N's Photo K1TT3N SparkPoints: (66,992)
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5/7/12 2:37 P

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I am on 80 mg of Lasix a day and my weight can change up to 6 lbs or so a day from it

Eastern standard time

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FIRECOM's Photo FIRECOM SparkPoints: (107,673)
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5/4/12 4:13 P

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You hit home with this one. Mine is a two edged sword.My cardio took me off lasix in an attempt to bring my BP up. That helped that problem a little. Then I suffered through a very serious intestinal bleed and that is when I learned that if you are extremely anemic, the body will store fluids in the soft tissues of the body. During my 3 day stint in the hospital, I received huge amounts of lasix and sluffed off nearly 3 gallons of fluid and dropped 17 lb in the process. I also had 5 units of blood injected.

Since my release, I am experiencing occasional swelling and take lasix at that time. The weight variations are significant, albiet temporary in nature. Even though I was officially taken off lasix, I take it upon myself to administer if I am experiencing swelling.

Tis a delicate path we take, eh?


"It is easier to raise good children than to fix bad men" by Fredrick Douglas.

Co team leader for Living With Diabetes team.

Co Leader for Healthy Hearts team.

Leader of Gilbert Speaks team.


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STEPHANALILLEY's Photo STEPHANALILLEY Posts: 44
5/4/12 3:56 P

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I have had low ejection rate issues for the past three years. In october, my function was 30%. A recent cardiac MRI has me at 44%. Whew, no defibrillator. I've been taking a diuretic since november and at my last cardiac appointment, my doctor advised me to start checking for swelling in my extremities, limit salt consumption, take my weight daily, and I may need to limit fluids. Anyone else taking diuretics and how has this affected you? Any changes in weight loss efforts?

Nothing will change if you change nothing...


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