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JANISMKW's Photo JANISMKW SparkPoints: (56,430)
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7/10/14 2:01 P

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A good book on all auto-immune disorders is "The Autoimmune Connection" by Rita Baron-Faust and Jill Buyon, M.D.
It was recommended to me by a medical researcher friend.

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JANISMKW's Photo JANISMKW SparkPoints: (56,430)
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7/8/14 6:39 P

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Sorry you have this diagnosis, but if you have it, I think it's much better to have it properly diagnosed and hopefully get proper treatment, if they know what that is in this case.

Since I've had RA I've had terrible dry mouth and dry eyes. My primary doc and I thought it could be Sjogrens, but my rheum said it's the RA. I swear by Biotene mouthwash at night (every time I get up during the night). (There are store-brand generics and other brands like Oasis.) One kind is "Biotene PBF" to prevent plaque and bio-film. In the day time I drink water constantly, have a small Biotene spray in my purse and sugar-free hard candy helps me a lot.

At times I thought I had conjunctivitis, my eyes burned so badly, and the doctor wasn't sure but suspected the RA was the culprit and sent me to the eye doctor, who confirmed it was dry eye from RA. The treatment: Systane or other moisturizing eye drops.

I went to a retreat once lead by a nun who has Sjogrens. She said acupuncture was a life-saver for her. (Unfortunately, like many life-savers, insurance doesn't cover it.)

My son has braces (and autism and other delays and stuff, hence trouble doing his daily routines well) and his dentist just recommended the Water Pik as well as ACT fluoride rinse.

I wish you well, Cynthia, I know you've had a lot of pain and troubles. I am praying for you every day. God bless.

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,552
7/7/14 6:18 P

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If you are saying what the heck is that and how do you spell it? It's another RAD pronounced "SHOW GRINS" And what it does is it dries up every moisture producing area in your body. No spit, no tears, no "Down there", ...One of it's worst effects is that it destroys your teeth. In December I had just been diagnosed with it anD I went for my annual dentist visit. No cavities. YAY. The dentist told me "YOU MUST brush and floss after every meal." WHAT???? So I brushed 2-3X a week and thought I was doing well. I went back to the dentist last week anD YIKES!!!! 4 CAVITIES!!!! so he put on a fluoride varnish and insisted I floss. Now if you have ever had a peek at my hands you can imagine me trying to floss. So I heard of someone who has a WATERPIK sonic toothbrush and water jet which takesthe place of flossing. It wasn't cheap ($85) but that is cheaper than my four cavities are gonna be. It's worth it if it works.

Is anyone else here lucky enough to have this disease? It also gave me glaucoma as a side effect. I have to put drops in my eyes every night and go frequently to the ophthalmologist.
sleep well all.
Cynthia



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